MIDDLE-AGED WOMEN 40-60ish

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2012

    kittygirl- it is nice to see good news posted here. I never went on any sites before because I was afraid it was going to be all doom and gloom. I had a major melt down yesterday, but I am feeling stronger as I keep reading everyone's stories. Thanks to all of you. I have a major fear of anesthesia and I think that swayed my decision the first round because my surgeon did my lumpectomy while I was awake. I think that is effecting my decision again now that it is back on the other side. I am going to try to concentrate on making a decision keeping that out of the picture for now. Am I the only one with this fear??? I feel like a baby about it.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2012

    Lisa Marie welcome to the middies.  sorry you had to make it here but it is a great bunch of ladies.  Sounds like your BS is a nightmare.  I would get another BS after this post op appointment but I don't think it is true that another BS would not touch another ones work.  Through this journey I have switched BS's and MO's and am much happier with my team now than before.

    Dianarose-the fat grafting is basically lipo from a harvest area to your breast.  From what I have heard and read not 100% of it remains so they usually overfill it when they do it.  As for the TE's.  I have been under the impression that if you go smaller you can skip the TE, but I  don't know of anyone that has stayed the same size or larger and be able to skip the TE.  I may be wrong about that and there is a thread on here regarding immediate implants.  I'll try to find it and post it in a bit for you.  My first BS did  not give me all my options either.  Not that she did not do all of it she is just very opinionated and only told me what she thought I should do instead of me making the decision.  So after another scare in the other breast I am now moving forward with the BMX, but the PS made me wait one year for healing of the rads side.  If you decide to do MX and recon on your radiated side you should do pretty well since it has been so long ago for the radiation.  They say the longer out you are the better for healing with recon.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2012

    Here are my twin granddaughters that I went to see last weekend.

    Faryn

    Bella

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2012

    Sorry those were so big I tried to make them smaller and it did not work

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2012

    Welcome Lisamarie - Sorry you are here with us but as you can already see this is a great bunch of very supportive ladies with lots of stories to share.  I am sooo sorry this experience has been so bad for you.  A cancer diagnosis is bad enough and then to have this happen - unacceptable in my book.  I would definitely look for a new BS.  The one you have now sounds like he has the bedside manner of a piss ant.  

    Sherry - They are sooooo cute!!! 

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2012

    Diana Rose here is the other thread I was talking about, I hope the link works

    Nipple Sparing Matectomy with immediate reconstuction

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2012

    Dianarose,  I don't care for general anesthesia either.  I never had a bad reaction, so I know I can do fine with it, but I guess it is just my inner control-freak that doesn't like it.  I was groggy for a whole day after my lumpectony (although otherwise I felt o.k., no pain.)  No, it's not being a baby.  Remember, when you are in pre-op they can give you oral drugs for anxiety if you want them.  They offered me Versed.  I didn't take it, because I wasn't that nervous THEN, and once I was out it would not matter...they just had to make sure they did not screw something up.

    Well, kay and kitty, once madp gets back with GOOD news, we can have a regular cotillion ball of HAPPY DANCING.

                                        

    p.s.  Sherryc,  Are they identical...looks like they might be fraternal twins?

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2012

    Sherry, the BIGGER the better!!! What a couple of DOLLS!!!!!

    Lisamarie, I had a doctor not want to help me with a seroma because "it was another doctor's work". I also had a bleed out from a revision and a walk-in clinic doc didn't want to help me. I "assured" her I wouldn't tell, would she just please stop the bleeding!!! Sheesh!!

  • Marple
    Marple Member Posts: 19,143
    edited February 2012

    Those are the sweetest wee babes I've seen. They make my heart melt.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012

    cute babies ... I have a 17month old granddaughter and I love her so much .. bless you and the babies .. today I was told that excision confirmed the LCIS and she said there is a chance it can be in the other one as well... and she said its a high risk .. she gave me a choice of tamoxifen and monitoring or PBMX with immediate recon as she said I will be an excellent candidate .. for some reason she was a lot more compassionate and helpful today , she said to take my time making the decision and let her know .. I ask if i do PBMX then im 100 % okay and she said nothing is 100 % but its leaning towards a 0 chance .. I told her I am full of anxiety and stress and cannot keep getting biopsies and tests and keep waiting .. so I am going to Vegas on the 18th to see my mom and I think I am going with the PBMX because I cannot take the stress of this and I will know I did everything I can do and I will feel better about it .. I just want to say thank you all so much for talking with me :)

  • madpeacock
    madpeacock Member Posts: 369
    edited February 2012

    Let the cotillion commence!!

    Saw a different PA at the BS office today who went over every detail of both my old, preop mammo and the new one from last week. There was a big, bright mass right behind the tumor location on the new one which was the area of concern.  

    This is a very dense seroma or fluid pocket left over from my Mammosite radiation. I had terrific problems with drainage after the rads and this pocket still remains. She did a side by side with new & old and even compared the tissue patterns - which had not changed.

    All in all, nothing to worry about! Yay!

    I do have some swelling and tightness and she recommended a baseline visit with their BC physical therapist. This can rule out any lymphedema, muscle problems, etc., so I thought, why not! I will do this next week.  I was teaching aerobics before all the BC mess started, so I was in good shape - and still am - but this tightness and swelling bugs me. I feel it when I reach up high to get something out of the top of the cabinet. 

    Thanks for being in my pocket today! I just knew with everyone there it was all going to be fine. I will have bilateral diagnostic mammo in July, so hopefully this fluid will be resolving by then. 

    Oh - and I just want to hug those sweet babies. Mine just turned 13, but she is still just as snuggly.  

    Party time!! Cool 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2012

    GREAT news peacock!! A MUCH better visit.

    lisamarie, I had both breasts taken off. It doesn't change the mortality factor, but I was sick of biopsies and lumpectomies (I'd had 5!!), so I was SO done with my breasts. I didn't do recon.

  • Kay_G
    Kay_G Member Posts: 3,345
    edited February 2012

    Woo Hoo! Love all the good news!



    Sherry, your granddaughters are just too precious! Are they identical? I have an identical twin, very few people could tell us apart back in the day. Enjoy every minute you spend with them.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2012

    madp,  I still stretch at home with my hand over head on a door frame; and then again with my hands in the 10:00-2:00 position (fly like an eagle!) and do both stretches leaning slightly forward.  The radiation side always feels a little tighter, but I have full range of motion

    WE NEED SOME CRAZY WIG-DADDIES FOR THE HAPPY DANCE COTILLION!  WOOT WOOT!!!

                                                               

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2012

    madp - Great news!  That is what we all like to hear.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited February 2012
    I gotta say that you ladies are WONDERFUL !!!! Laughing
  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2012

    madpecock that is great news.  Use the PT it sure helped me after rads.  I was so tight and it ended up very painful once in PT they did wonders.  Just wished I had done it 5 months earlier.

    Lisamarie.  I have had 3 lumpectomies and numerous biopsies.  I am now having both breast removed with reconstruction the end of March.  The last lumpectomy did me in emotionally and I said I'm done.  I have felt so much more at peace with this decision.  I never felt good about the whole lumpectomy/radiation.  Just me but I know what I am doing is the best thing for me.  It is a personal decision and you just have to do what feels right for you.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2012

    Kay no they are fraternal twins.  One has light hair and the other dark hair so if it stays that way they will be easy to tell apart.  So far though Bella looks like her big sisiter Berkley.  We have not figured Faryn out yet. 

    Thanks for all the well wishes on my new granddaughters, I just wished I lived closer to help take care of them.  I was lucky when Berkley was born I was not working and the kids lived here.  My DIL was in law school so I had Berkley full time and loved it, and we have a very special bond.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2012

    DianaRose--get out of Maine for your consultations.  Lumpectomies do not need general anethsesia like they do in Maine.  You cannot get a DIEP reconstruction in Maine, you can't even get correct info about that option.  Very few surgeons in Maine offer skin or nipple sparing surgeries.  The entire bc care system is about 10 years behind everywhere else. I can tell you from experience it's easy to get insurance to cover out of state consults, and my reconstruction was handled as if it were in-network, becuase the procedure isn't available in Maine.  Get a referral to one of the Boston hospitals, and start from the beginning with them, you'll do a lot better, trust me. 

  • dechi
    dechi Member Posts: 173
    edited February 2012

    Hi Ladies - Just found this thread.  I'm 51 years old and was first diagnosed with breast cancer when I was 43.  I had a R mx, reconstruction with TE and CMF chemo, 5 years of tamoxifen and then Femara for a year.  This past summer I found a lump on the side of my mastectomy and was diagnosed with a recurrence.  I had a lumpectomy and axillary node dissection (16 nodes) because they couldn't do another sentinal node due to my previous surgery.  My nodes were negative, yeah!  I've gone through 4 rounds of AC (yuk) and now am going in today for my 4th Taxol/Herceptin.  Thankfully, so far, T/H is much, much better than AC.  I'll be doing rads at some point also.   I'm taking B-complex and L-glutamine and no neuropathy so far, just a bunch of constipation.  Anyway, nice to meet you all!  Have a great day!!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2012

    drchi, welcome!  Wow, sorry to hear you fell into the 2% or so that recur after Mx.  A lot of good the odds did you, huh?  You are wrapping up the chemo, so congrats!  Lots of us here had radiation, and when it is time, you should also look in the radiation forum for those having it the same months you do, then you can compare notes.  

    Sherryc, That was me asking if the twins were fraternal. 

    -----------------------------------------------------------

    Here's something I forgot to post a couple weeks ago.  My husband got a 2012 calendar in January...the S.I. Swimsuit Calendar.  He got it for his mancave.  I said, "What were you thinking?"  He said, "They were half-price."  What a maroon!  

    We had to have a sit-down where I explained that with him having a wife who has an unsightly surgical scar on her boob, it iwas thoughtless and insensitive to get a calendar of 12 young ladies with perfect unblemished boobs.  He never had calendars like that before, so now (even tho' he is in his man-o-pause) is not the time to start.  His window of opportunity to have one of those hanging on the wall was back in his single days. Too late now.  I gave him a calendar from St. Jude's Children's Hospital instead.  Hahaha!  

    Thread now open for any man insensitivity you wish to share.  Preferrably B/C related, otherwise we might get to page 700 by the weekend.

  • dechi
    dechi Member Posts: 173
    edited February 2012

    Elimar - My BS told me that they can only get 90-95% of breast tissue when they do a mastectomy (never heard that before).  She likened it to trying to get all of the fat off a chicken breast, that it's really impossible to get every bit of breast tissue.  Sooo, I asked her why don't they do mammograms on the MX side (which they did in Florida where I was first diagnosed) and she said it was due to "cost effectiveness" (insurance companies) and that it's so rare to get a recurrence  on a MX side that they just do them...ergh...

  • Sherryc
    Sherryc Member Posts: 5,938
    edited February 2012

    Eli so sorry I got you too mixed up. Can't keep things straight sometimes. Good for you with the St. Jude's Children's Hospital Calendar.  Sometimes our guys can be moroons and the are so innocent about it.

    dechi-welcome to the group. Sorry you had to have a second round of this crap.  Hope we can be of some comfort to you here.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2012

    I'd add to dechi's post--mammograms don't get the areas where breast tissue is left after a mast--up near the collar bone, around under the arm pit.  Mammos just don't get those areas.  Not a good idea to expose already traumatized tissue to radiation that isn't even going to look at the problem areas, after all.  Statistically, mammos suck at finding bc after a mammo.  A doctor's  fingers are far better. 

  • jo1955
    jo1955 Member Posts: 8,543
    edited February 2012

    Welcome dechi - This is a fantastic group of ladies.  So sorry you are having to deal with this crap a second time.  Hope we hear from you often - you will find so much comfort and support here.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2012

    Native Mainer- you are so right about Maine being behind the rest of the country. Even Maine Med only had 2 ps that they deal with and one I didn't like and the other was cash only.

    When I had my intitial mammo 2 spots showed up, one a white spot and the other calcifications. They tried to do markings for over 2 hours to biopsy the white area and couldn't so they sent me for an MRI. Thank GOD they did, because those 2 spots didn't show up on the MRI, a different are did that was deep. I had an mri guided biopsy and that is the one that is IDC. If they could have gotten to the intitial spot and it was b9 I would have thought I was fine. I am not excited that they found cancer, but glad they did. A Love-Hate relationship with that one. They are going to biopsy the calcifications next week. Not looking forward to that.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2012

    Has anyone had their surgery done by laser and not the tradtional knife? I came across this site and it just seems to good to be true. I can't find much information on it though.

    www.laserbreastcancersurgery.com

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2012

    I haven't heard much about laser surgery for bc, I have heard of it becoming more popular for other kinds of surgery, especially cosmetic or reconstruction.  I think we'll be hearing more about laser surgery as time goes by. 

  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2012
    We would have to get out of Maine of course for that as well. Cool I am in Southern Maine and it's 47 degree's out. Feels like a heat wave. We still don't get to take our flannel sheets off until the 4th of July though.
  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2012

    49.6 at my place, central Maine.  Not taking the down comforter off the bed for a while yet!  When laser surgery is the norm it might be available here in Maine about 10 years later.  I had a PS consult in southern Maine, was not impressed with the dingy  office building and old furniture in the waiting room.  Not to mention how hard it was to find the place.  I know we're not supposed to juge things by appearance, but sometimes clean makes a difference!

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