Calling all TNs

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  • bak94
    bak94 Member Posts: 1,846
    edited February 2012

    CS-I highly recommend a port, make the whole chemo, finding a vein so much easier! I have done it bothe ways, and am a big fan of a port. I did wear a wig when I worked. I am very sensitive and the wigs were itchy, yanked it off the minute I got home. I had a lumpectomy 10 years ago and when I got a new primary last March I had a bmx, shoulda done that in the first place as I am brca pos. Glad you got your first treatment out of the way!

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited February 2012

    Hi to everyone, haven't been on in a while but been thinking of you all.  Had my Ist year anniversary mammogram yesterday.  Just have to wait for the results.

    The scream cream comments make me laugh - so here's one for Valentines Day:

    A Mother had 3 virgin daughters.
    They were all getting married within a short time period.
    Because Mum was a bit worried about how their sex life would get started, she made them all promise to send a postcard from the honeymoon with a few words on how marital sex felt.
    The first girl sent a card from Hawaii two days after the wedding. The card said nothing but: 'Nescafe'
    Mum was puzzled at first, but then went to her kitchen and got out the Nescafe jar.
    It said: 'Good till the last drop'.
    Mum blushed, but was pleased for her daughter.
    The second girl sent the card from Vermont a week after the wedding, the card read: 'Rothmans'
    Mum now knew to go straight to her husband's cigarettes and she read from the pack: 'Extra Long. King Size'
    She was again slightly embarrassed but still happy for her daughter.
    The third girl left for her honeymoon in Auckland, New Zealand.
    Mum waited for a week, nothing. Another week went by and still nothing...
    Then after a whole month, a card finally arrived.
    Written on it with shaky handwriting were the words 'Air New Zealand'
    Mum took out her latest YOU magazine, flipped through the pages fearing the worst, finally found the ad for Air NZ.
    The ad said: 'Ten times a day, seven days a week, both ways.'
    Mum fainted!
     

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited February 2012

    Good one Bernie made me LOL....

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    Bernie, Funny! 

    Happy Birthday Linda,

    Happy Cancerversary other Linda

    Titan, at this point in the relationship with my onc I'll ask/say just about anything.  He's seen me at my worse, I figure I can't embarass myself anymore.  Besides, it took hubby a long time to ask his doctor about a certain prescription because he was too embarrassed, I wouldn't want to waste anymore time.  I'm trying to stick with my new motto "Just do it"  ( I guess that is really Nike's but I'm using it now) besides I'm sure you won't be the first or the last to ask. 

    Welcome home Suze, I hope your trip was fabulous and your starting to feel better.   

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  • Babs37
    Babs37 Member Posts: 455
    edited February 2012

    Just saw this for you Titan.Beats the hell out of asking your onc for itWink....

    http://www.screamcream.net/

    Have a good day everyone.

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  • Hope60
    Hope60 Member Posts: 223
    edited February 2012

     Happy Cancerversary to Linda and Linda!  I love hearing things like this...it gives me hope!

    Scream cream...interesting:)  I don't have a "significant other" right now, but will keep it in mind.  Just in case I ever have sex again....lol.

    Cocker Spaniel/Annie - I'm so happy your first chemo went well.  You can get through this, and you will!

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited February 2012

    Hi All,

    Happy Valentines Day to everyone.....Suze hope you had a great trip....

    Been busy....

    Susan

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  • OBXK
    OBXK Member Posts: 791
    edited February 2012

    Annie, I hope you have a good night's rest, and awake with manageable side effects! I had a lumpectomy with my first cancer, mastectomy with second. I echo Bak on the hindsight and port. The port, is put into a vein in your chest, and sits right under the skin. Makes infusion access much easier. If you google "power port" it may help you understand. My first time with chemo, I wore a soft hat designed for chemo heads, when I was out. The second time, I just went bald! I wore my wig for about 3 hours, hated it.

    Rest well, and keep us posted. Karen

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  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2012

    Thank you, Suze, and, while I welcome you back from your trip, I am  sosorry to hear about the fluid situation.  I am so sorry you have to deal with this.  Please know that many, many prayers and nothing but good thoughts are sent your way constantly.  

    Love,

    L. 

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  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2012

    Thank you all so very much for the birthday wishes. 

    My wish right back to each of you is that I hope you also get to celebrate birthday #65 - and decades and decades more beyond that one too.

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  • TifJ
    TifJ Member Posts: 1,568
    edited February 2012

    Hope you had a great birthday Linda!!

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  • MBJ
    MBJ Member Posts: 4,352
    edited February 2012

    yLarajane: lost message -stage IV in bones-, going to hospice-no chemo, so surgery, had radiation-not sure if covered by Medicaid-baf lympedema, IV in crook not cureif Doxi will contrrol pain-received computer yesterday-hanging in in minute by by mintute,

    Thank you all for geat support  and help!!!!!

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  • TifJ
    TifJ Member Posts: 1,568
    edited February 2012

    Oh MBJ- I am so glad to see you posting- so sorry you are dealing with the beast again. My heart hurts for you and wish I could somehow ease your pain. I hope you are at least home now. Please don't give up- we need you here!

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  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Mary..WTF...going to hospice?  There is nothing?  I'm sorry..maybe I shouldn't post this..but is there nothing that can be done?...I'm sorry..crying here....

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  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Bak..I can talk to my onc but I just freak out.. I can just imagine his face if I ask for scream cream....maybe I should do it just to see his reaction.

    On a lighter note..(I work for a grocery store chain)..and we get samples in of stuff..one was coconut butter..sooo..I'm looking at it thinking hmmmmm...but I hate the smell of coconut..

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  • christina1961
    christina1961 Member Posts: 736
    edited February 2012

    MBJ, I am so glad you have the computer - I am so sorry you are in such  pain and the FC has gone to Stage 4 - I wish there was something I could do to take it all away from you.  Please reach out when you feel like you can and know we are all here for you. 

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  • christina1961
    christina1961 Member Posts: 736
    edited February 2012

    Bernie, I just had my first follow up annual mammo a couple days ago -it was ok and they let me see the film.  Breast is getting less dense, too, which is helpful.  Hope you have good results!

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited February 2012

    MBJ so sorry you are dealing with all of this.  Praying for you and hoping you can fight this beast!  Stay strong and positive!

    glad you got your computer.. 

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  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Christina..remember when we thought that having dense breast was a "good" thing?  Wrong..I really can't understand why women with dense breasts ..no matter what the age isn't there something else other than a mammogram...having dense breasts and a mammogram is like looking for snow flake in a snow storm...it just doesn't work..I remember my gyn telling me that I had dense breasts when I was around 40 years of age..ok..fine...check me out with something other than a mammogram then...it still pisses me off.

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited February 2012

    MBJ - I don't know what to say except I hope and pray you improve. I'm so glad to hear you got the computer. We missed you and need you on the thread. Take care.

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  • christina1961
    christina1961 Member Posts: 736
    edited February 2012

    Titan, I don't understand it, either -why not do an ultrasound at least?  I'm glad my daughter is being watched like a hawk with my oncology surgeon who is wonderful - of course, sadly, sometimes it doesn't matter how closely one is watched - but at least I know she is going to someone who knows her family history and cares about his patients.

    Linda, Happy Birthday! Each birthday is a gift to us like never before.

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  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Annie..hang in there OK?   Your se's may not be as bad as you think they will be..If you are having the nualasta..be sure to take the claritin and aleve...think about seeing an acupuncturist also..for the pain that the nuelasta may give you...the Neulasta pain (and alot of us didn't have this but I did)..was like having the flu..not the intestinal kind but just very achy..my bones hurt, my skin hurt to touch..this lasted for maybe 24 hours or less....the best thing was to sleep..besides that 24 hours of neulasta crap..I really was totally fine..not perfect but ok...I can't say that chemo stopped me from much of anything...I went out in crowds, ate veggies and did whatever...my onc never told me to NOT do anything...

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  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Christina...it's just with TN it just grows so quickly..so glad your daughter is being watched closely..how old is she?  My daughter is 23 and I'm just not sure when to start pushing these mammos or ultrasounds..I will pay for them myself if I have too...

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  • Babs37
    Babs37 Member Posts: 455
    edited February 2012

    MBJ- I just can't believe this......It makes me so sad to hear.........Big hugs to you. xx

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  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2012

    MBJ:

    I am sickened over this latest news, but I am so puzzled, much as Titan is - why hospice??? If it's just in the bones what about radiation for the pain and to stabilize the bones?  There are so many gals on the Stage IV board with bone mets that have this done, and one is even living 18 years (or more) with bone mets.  I don't mean to rattle on so, but I am very emotional at hearing what you are going through and I feel so damned defenseless in helping you, but want to so very much.  Please know that we admire you so, miss you dearly, and want only the best for you.  I can't believe that there is nothing else to be done??????  Another opinion????  I'm sorry, I am probably upsetting you even more, and that is not my intention, I just want so much for you to get better.

    Love,

    Linda

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  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2012

    Thank you, Tif and Christina- just so rattled by MBJ's news that I forgot to thank you for the birthday wishes. 

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  • OBXK
    OBXK Member Posts: 791
    edited February 2012

    MBJ - wishing you comfort.

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  • OBXK
    OBXK Member Posts: 791
    edited February 2012

    MBJ - wishing you comfort.

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  • christina1961
    christina1961 Member Posts: 736
    edited February 2012

    Titan, my daughter is 35 - I'm 51. She has already had one hard biopsy and a couple cysts treated.  I never had a hard biopsy but had the same problem with painful cysts. I can't remember when she started getting mammograms but I think the onc surgeon recommended them for her due to her fibrocystic changes.

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited February 2012

    Hi to all

    I did have a great nights sleep and you were right, no side effects  yet and not one little bit of nausea or vomiting.  Have eaten well today and even manahed to type for most of the day.  Was wonderful. Though do have a little bit of constipation hopefully the veges will help that and to me thats a tiny problem.   

    I am so sorry about some of the diagnosis on here and hope things work out well for you all.  

     Titan how can I do your TN's Sign Up. Can you tell me as I am not sure what to do on here.

    Thanks again for all your help guys and keep as well as you can.  Only a small post tonight as I'm sure you got fed up with the long one.

    Annie 

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