Rib issues

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Anybody have a new onset rib soreness and pain with an obvious bone bump/lump in the area of discomfort? Pain not related to my exercise, and is lessening..it's been a couple weeks. But there is definitely a hard, bony type bump there which isnt on other side, and of course it's right under my foob on cancer side...anyone with similar bump, was it anything? Thanks for any input, you all are wonderful! Karen

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  • bookgirl
    bookgirl Member Posts: 128
    edited February 2012

    Just wanted to let you know I'm thinking about you. I have had some rib soreness for a few days, Can't tell if there is a lump, I have been poking myself about every 10 minutes to check! My TMs have been slowly going above the norm for a few months and I think about mets constantly. I see my ONC on Tue which always freaks me out, I sort of relive the original bad experience so and tests and doctors really make me nervous. I miss the days when a pain was just pain and I did'nt jump to dark places. Anyway sending positive thoughts you way.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    Thanks for response bookgirl...don't you miss the days where every little thing didn't start you worrying? I think I will call my surgeon and ask what she thinks or if she wants to see me. I trust her more than my oncologist or primary....I hate the fact that if you're early stage they tend to dismiss you. Wish I could have MRI of chest just to know all is ok. Just remember, other things can make TM go up. Mine were up this past summer and it turned out I had Epstein Barr virus, not great but better than BC! Take care and let me know how onc visit goes.

  • bookgirl
    bookgirl Member Posts: 128
    edited February 2012

    Thanks for the encouragement, I know I wouldn't even notice the rib if the TMs were not wonky. Please keep me posted on your check up. My BS is my Favorite too, she's wonderful. Hope you can relax soon. Have a good evening

  • leggo
    leggo Member Posts: 3,293
    edited February 2012

    Ask for a bone scan asap. I had the rib pain and my doc dismissed it as chostochondritis for a  year and a half....it wasn't.

  • mimi791
    mimi791 Member Posts: 92
    edited February 2012

    Hi 3boys:

    I too have had some weird vague rib pain for the last couple of weeks.  I don't have a lump or bump, but it comes and goes and I did have a bone scan which showed "something", so now I am going for a CT with contrast on Monday.  My tumor markers are normal, so who knows.  I broke ribs when I was young, and I have gotten pretty banged up riding my horse...so for now I am just trying to stay positive.  I would go have it checked out though.  Lord knows I don't want bad news, but if it is, I would rather be having treatment.

    MImi

  • bookgirl
    bookgirl Member Posts: 128
    edited February 2012

    I'll be thinking good healthy thoughts for you Mimi, I think I agree, the unknown, worry and negative thoughts might be worse that going into something with weapons and knowledge. I always get obsessed as test come up. I wish we only had flower fields not battlefields ahead.

  • spitnspunk
    spitnspunk Member Posts: 138
    edited February 2012

    Wow, I came here to see if anyone was talking about rib pain...I have the exact same thing: rib pain, on my left side/side of cancer, and a bumpy lump under the breast - it's been hurting for a good month now..I see my onco in early March so I'm trying to hold off till then but that and the back pain is pretty bad. I just finished herceptin three months ago so I keep saying it can't be anything come back this soon, but hard chemo finished last Feb so who knows...I SO want to go back to the days when a pain was just a pain and due to just getting old-er. I'm hoping this is nothing for both of us.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    I called my BS today to go in....office not open today of course. Guess I'll call Monday, didn't want to try onc, they barely call back...Gracie what happened with u? Mimi, let us know how CT goes, why else would I have extra bone?

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    Hi everyone, im having rib pain too & have been googling all day. Hope someone here may have some thoughts. I have TE in that are filled to 620 now. I just finished chemo and exchange will be end of march. Im worried bc bone scan showed area of focal activity on posterior left ribs in "linear distribution." Report says "could be due to muscle insertion sites." It also noted 2 areas of focal activity in front left 3rd and 5th ribs. It says "tissue expanders in area... could be stress related or due to post procedural changes...metastatic disease cannot be completely excluded." Onc was unconcerned and thinks its from expansions. I can't get MRI because of TEs. So I got a follow up x ray friday. I don't know findings yet and see onc Wednesday. Could focal activity be anything but mets? Or is it most likely mets if focal activity is seen on a bone scan? If I still don't get a definitive answer on wednesday I will ask for a CT scan.

  • bookgirl
    bookgirl Member Posts: 128
    edited February 2012

    Hi Shore1, just wanted to let you know I'm thinking about you. I see my Onc tomorrow (and taking my Ativan tonight!) and keeping fingers crossed! Night all.

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    Hope it goes well for you when you see your onc bookgirl. Let us know. My onc doesn't test TEs or even do scans. I had to insist in bone scan. I can't stand uncertainty - its really making me crazy.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    shore1, how did you get onc to order bone scan? just based on pain? i am waiting for call back from BS, guess i'll wait and see what she says. sure seems with all the recent trauma to your soft tissues/ muscles, could very well be reason for focal activity...will pray for good results tomorrow, hang in there all.....

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    3boysmom, onc didn't want to order scan. I insisted. Now, even with bone scan showing rib activity, onc still unconcerned. I requested follow up test & got x ray and am awaiting results. I think a CT scan is what I really need. Its very frustrating. Let us know how it goes for you.

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    I just wanted to let you girls with rib pain know what my docs are telling me, since rib soreness/pain seems to be a pretty common issue. I'm also curious what you hear and what tests you are getting. My bone scan showed a few areas of focal activity (above post). I pressed for more tests even though onc was unconcerened becasue I have TE in that are very full at this point & I'm kinda thin. So they gave me an x ray, which showed no fractures and no lesions, and radiologist (and onc) do not recommend further testing. Indicated it could be due to muscle insertion sites from surgery. PS also said inflammation can light up on bone scan. If I still have soreness after healing from exchange, which is taking place in about 5 weeks, then they would order further scans. Does this sound reasonable to you all? Onc thinks CT scan is not warranted at this point - no suspicion of met disease (although, I am suspicious because of unexpalined focal activity on bone scan). I'm usually so logical, and can see that, logically, my rib pain on both sides could likely be due to these rock hard things on my chest being inflated every week, but I also think I have lost a lot of my former reasonableness. If it was cancer, I'm thinking left and right ribs would have lit up becasue both sides really hurt. Thanks in advance for any replies. 

  • bookgirl
    bookgirl Member Posts: 128
    edited February 2012

    FINALLY! I saw the Onc on Tues and told him about the rib discomfort, he checked very thoroughly but said every thing normal most like cause was muscle, but possible to be gallbladder. He sent me to get TMs again and today he called with the news that they were in the normal range! First time in 7 months they have not been slightly elevated. He said that markers were most likely up because of the saroma from 2 surgery's. He reminded me that Many things usually benign can cause ribs to be sore. Just wanted to let you know and remind you my thoughts and prayers are with you all.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    Great news bookgirl! Thanks for the update..I go to BS Monday morning,she assumes it's something orthopedic in nature but wants to check, I think mostly to make me feel better! I'll let you know how it goes.

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    Good news bookgirl.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    Shore1,

    It sounds reasonable to wait for now....as hard as that is. I bet those TEs are your problem, especially if you're thin and don't have much tissue/skin to stretch! Hang in there and let us know how you're doing. Karen

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited February 2012

    Hi ladies, I just wanted to chime in on rib pain and maybe give someone some peace of mind.  I had a BMX June of 2010.  Almost a year later I started a=having a lot of pain in my ribs.  I had been having back pain but I have two small kids am very active lifting them etc and have never had a good back so I ignored it until the rib pain.  I was VERY freaked out.  I started seeing a physical therapist.  I was honest with her and told her all my discomforts and my fear of the rib pain.  She was great and explained how rib pain can occur due to muscular issues.  I saw her 4 times, and the rib pain was gone.  Well, it comes back now and again but she can feel the muscles and what it is doing to spasm and puts my mind at ease and then puts my body at ease.  I had the same issue with clavicle pain- it has all been muscular (thank God).

    I have now been in physical therapy- massage- for 7  months and can say that it has been a huge help to met physically and mentally.  All the aches and pains have had an explanation.  I don't know why more BS and PS don't suggest PT??

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    Thanks 3boys. I feel a lot better about everything this week. I will push for scans if I don't feel better after exchange, but I also know I will have aches & pains from herceptin & tamoxifen so im just going to keep jotting down symptoms to discuss at appointments and try not to freak out so easily in between. Let us know what your BS says on Monday.

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    Makes a lot of sense Laurie. Glad the PT has helped you. BS & PS should suggest it more, especially when they are not concerned but know that the patient is.

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited February 2012

    Shore- or more that the patient doesn't know they should be concerned.  I could get the sippy cup off the top shelf so I thought I was fine.  Not the case.  I thought I had full range of motion back until my PT had me put my arms over my head- then she did it.  It made me realize I couldn't do it like a normal person could.  Mine are at an angle, not straight up.  Or arms at your side wide open- hers were almost a foot more open than mine and it hurt me to do it.  I had no idea, I was too busy functioning to notice the difference.  I talked to my BS about recommending PT and she seemed annoyed.  My PS on the other hand agreed and said he would bring it up with his patients.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    I am a physical therapist...so nice to see positive, supportive things written! I actually had my husband ( who is also a P.T. ) treat my rib pain initially, which did decrease pain somewhat....but bump on bone and sensitivity remain. Saw BS yesterday, she ordered CT of chest, which technician said is read in 24 hours, had it yesterday p.m., so maybe I'll know something tomorrow. My BS didn't seem concerned and told me she doesn't see/ feel bone mets.....meanwhile my recent DEXA scan came back with increase in osteopenia....WTH??? I guess nothing should surprise me. Take care all.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    Hello all, just got results of CT...i broke my rib....scan shows healing fracture with surrounding edema. very weird since there was no trauma, although i know its not unheard of. She wasnt concerned regarding metastasis, and will order f/u CT in 3 mos. to make sure its all healed. maybe its due to being osteopenic at the ripe old age of 42? nobody had fracture that turned out to be mets. did they?

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited February 2012

    I am pretty sure that cancer and broken ribs look very different on CT, so I would venture to say you are in the clear.  Time to stop worrying!

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    Thanks coolbreeze, I know, I know, slightly paranoid! You guys are wonderful...always in my thoughts and prayers. Karen

  • shore1
    shore1 Member Posts: 739
    edited February 2012

    Hi 3boys, be confident in what your onc says. Hard as it is to not worry, its good when doctors are not concerned. They have seen so much, they know when to be concerned. Not to say we shouldn't persist if something really bothers us, but for the sake of our sanity I think we need to rely on the oncs opinions about some aches &pains. I know if I didn't, I would lose my mind.

  • O2BAKAT
    O2BAKAT Member Posts: 11
    edited February 2012

    I had a bone scan or ct, can't remember which, but it showed uptake in ribs on left side. My right side was killing me at the time, turns out I had 3 broken ribs. It was very odd that the pain was on opposite side, that was summer of 2010.

  • spitnspunk
    spitnspunk Member Posts: 138
    edited March 2012

    Saw the onco today, going for a bone scan..thinks it's nothing but wants to be sure...not sure when yet.

  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited March 2012

    Let us know what results are..praying for something benign.

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