Feeling of milk let-down with DCIS?

I had that feeling in my breast about 10 years ago-like my milk was letting down. I had at least 9 annual mammograms between then and being diagnosed with IDC. My tumor was in the exact same spot I had felt that feeling all those years ago. Was it related? I'll never know.....

Mary 

No, I had absolutely no strange feelings in that breast prior to diagnosis.  When I was told that I had breast cancer, you could have knocked me over with a feather!  Oh, and I did breast feed for almost a year, so I was well acquainted with that feeling.  I guess, like everything else, it varies.

I was having painful "blocked" feeling in my left breast, as I was breastfeeding my daughter (this was fall 06-fall 07), I asked several drs, all said must be a blocked duct, by Dec 2009, this was the same place I asked my doctor to check, almost as an afterthought, as my visits to her were yearly, and without incident. This blocked feeling had come and gone since I had weaned my daughter, and i would have feelings like milk coming down, also.

This turned out to be where my tumor was growing, found in dec. 2009.

Just so you know I had the same feeling.  I posted about it on this thread a while back.

http://community.breastcancer.org/forum/83/topic/747011?page=1#idx_10

I told my doctor she thought it was interesting but said she had heard nothing about it being a sign or symptom.

to me, this speaks to such an innate "awareness" system, definitely needs studies,...

I, myself, knew many years before i was diagnosed, that this would be my path.  I was aware, before i knew what Cancer was, that We would be "involved."

When I was diagnosed, It was not a surprise.

I have it too!..i actually used to dislike the let down feeling when i was breast feeding (14 months)..so i am aware when it happens as i dont like the reminder... Although i am stage IV, my tumour wasnt removed...but i also have a spot of dcis according to my path report...so that is an interesting observation of yours.

I never had any feelings with my DCIS. I had a green discharge for three years prior to diagnosis. At that point, the discharge turned bloody. Two months later, I found the lump. I did not to self exams and had not been to a doctor in about a year.

I am currenty waiting on mammo results, but my symptoms have been gradually building....Im so glad I saw this post thats exactly what mine feels like then I check and nothing is there! Its a very strang feeling.  I dont know if it means anything.  i have ver dense breast so I dont think the mammo I had is going to do any good guess I will wait untill I have a "major" symptom that the doctor seems to be looking for

I definately had this feeling. I am so glad you posted this question because I always felt that I was keenly aware of my body and it was just my special observation. Incidentally, my dcis was generally painful (at least my breast was always tender) large over 10 cm, not detected by mammogram, I also had nipple discharge for a few months before diagnosis and finally developed palpable lumps. But that 'let down' feeling was going on for well over two years. And sometimes it felt as if my breast was warm just as it did when my milk came in. My children were 11 and 9 when I was diagnosed and I had not lactated for 8 years.

I'm so intrigued by this symptom of DCIS. I felt this for several months before I was diagnosed with DCIS.  Anyone else?

I had breast pain in my right breast off and on for about four years, not related to menstrual cycle - very dense breasts, numerous mammograms did not detect anything, three ob-gyns pretty much dismissed the pain and told me to drink less coffee and yes, it's the hormones after pregnancies ... sometimes my right breast felt warm, and something just did not feel right. I had asked for a breast ultrasound two years ago, and my ob-gyn sent me for one, but at the imaging center, they told me that they can only do it if I had a palbable mass, which I did not, otherwise, the insurance would not pay for it. Looking back to when I breastfed the last time, in 2008, the right (DCIS) breast was always the one that had blocked ducts etc. Interesting.

I've only just thought of this reading this thread, but I had the same sensation of milk let down this fall. My daughter is almost 9...I never would have made the association to dcis. But wow! That is so strange....I just thought I was crazy the first time around....

I had pain off and on in my left breast. While it was not consistent, I thought maybe it was related to my cycle and didn't think too much about. Afterall, I didn't feel anything, have no family history and thought I was too young for bc (obviously I didn't know much about bc!!). Then my co-workers wife was diagnosed with bc at 37. She had been having pain in her breast before finding a lump. After hearing that my instincts told me something could be wrong and I needed to check it out. I had my first mammogram and sure enough - DCIS and IDC. I'm glad I listened to myself:)

I hope it will be nothing laffycat. If it is, there is a wonderful community of support here to help you through:)

I have been looking for posts about a let-down feeling for months but I guess I didn't search in the right way. Today I found you here! My situation is a little bit different...I did not have the let-down feeling before surgery due to DCIS, but after. My BMX was 7 months ago and every single time since then, when I get out of bed in the morning or stand up after spending an hour or two in my recliner, the let-down feeling happens. It is SO strong that it's painful and I grab my implants and hold tight, grimacing for 5-8 seconds until it fades away. It got so bad I would wake up and stay in bed for a half hour, all the while dreading having to get up.

I've asked my breast surgeon and plastic surgeon, but neither has heard of this. I've posted the experience on several other threads, but never found anyone else who had a let-down feeling. I had dense breasts and was blindsided by the diagnosis of DCIS. I chose BMX which was fortunate because pathology showed a lot of LCIS in the other breast. Apparently it was there for years, although it was never picked up on mammograms, even after a biopsy found DCIS and I had a bilateral MRI with contrast to look for anything in the other breast.