Ductogram

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I have been having discharge from the nipple of the boob that I had cancer in.  I went to the doctor and they did an MRI, Ultrasound, and Mammogram and said everythign looks o.k.  I am continuing to have the problem and now they want me to have a ductogram.  Has anyone else had one?  I'm not looking forward to it but would like to know what is going on with my body!  Thanks.

Comments

  • AnnieBear
    AnnieBear Member Posts: 96
    edited February 2012
  • momof3boys
    momof3boys Member Posts: 896
    edited February 2012
  • carol57
    carol57 Member Posts: 3,567
    edited February 2012

    I had a ductogram and it was painless.  The radiologist inserted a very, very slim catheter into the portion of the nipple that was yielding discharge, and that catheter was attached to a syringe from which she injected a contrast agent, i.e. a dye of some sort.  Then I had a mammo.  I cannot recall if she applied a topical analgesic or not, I just recall that the catheter insertion was no biggie and did not take long.  I had thought that the smash/squish from the mammo plate might cause extra discomfort because of the catheter, but no...same smash/squish discomfort as always, but no more.

    There are several benign causes of discharge, so here's hoping one of them is what's going on with you.  Don't stress about the ductogram itself. Mine was not bad at all.

  • AnnieBear
    AnnieBear Member Posts: 96
    edited February 2012

    Carol57- Thank you ! ! ! ! !

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited February 2012

    AnnieBear -

    I also had a ductogram. The idea freaked me out, but incredibly, it was relatively painless.

    I had no numbing agents at all, and the needle that was inserted into the nipple/duct was VERY tiny.

    The only problem I had was that the Radiologist had to repeat it so many times because apparently the duct was almost completely blocked, and she couldn't get the dye to insert. She kept apologizing, and I felt really sorry for her, because it wasn't uncomfortable at all.

    When the dye did start to go in, I told her when the sensation changed to "feeling full", and she stopped.

    Even getting the mammo with the needle still in was no big deal.

    My only issue was the prep - I am allergic to iodine, so I had to take Prednisone, Benadryl, and Tagamet prior to going in. Hmmmm....maybe the Prednisone was why I felt so good? Smile

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2012

    I've had three ductograms. It takes a skilled radiologist to make sure they have isolated the correct duct. To me it was not painful, and actually it was very interesting. The last doc I went to was able to show me the inside of the duct and the suspected papillomas on his computer screen within minutes. That was pretty cool.

  • Denali
    Denali Member Posts: 347
    edited February 2012

    I had had one Mastectomy upon diagnosis and when I was having some issues with discharge after chemo, my oncologist said the next step is this test where they put a needle in your nipple.  Can't remember the name of the test,all thatremains in my memory is the needle and where they were going to put it.  I told her I'd rather have another mastectomy and I did ---with reconstruction at the same time.

    Pathology found no cancer or problems in the suspicious breast, so those symptoms can certainly be caused by innocent reasons.

    Good luck. 

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited February 2012

    A ductogram can also be called a galactogram....

  • Palma
    Palma Member Posts: 1
    edited February 2012

    I 've been diagnosed and treated with DCIS 7 years ago. Last year I had a bloody discharge from the other breast that persisted. I had to do another biopsy, and my doctor told me not to worry before the surgery, "it is just a papilloma". He was very confident. Pathology report confirmed his diagnosis, but also showed that I have ADH in this breast .

    As I understand, papilomas are the most common reason for persistent breast discharge.

    I may also need to do a ductogram, I have a discharge again.

  • AnnieBear
    AnnieBear Member Posts: 96
    edited February 2012

    I had the ductogram and I do indeed have a papilloma which will need to be excised.  It took me five different opinions though before anyone took me seriously.  The first four all said it was probably just leakage from the seroma I still had from my lumpectomy.  Of course they are saying don't worry it will be benign, but that's what they said when they first discovered the calcifications that turned out to be DCIS ! ! ! ! !   I just want to say that if you don't feel satisfied with what a doctor is telling you, get another opinion, and another if you need one, and yet another ....  We know our bodies better than anyone.

  • AnnieBear
    AnnieBear Member Posts: 96
    edited April 2012

    I saw my breast surgeon today and I am having a ductal excision on April 18.  He said there is a 10% chance that this could be a cancer recurrence or a new cancer altogether.  I told him they said there was a 5% chance when I was first diagnosed - so to me 10% odds are pretty high!  He said the nipple could become numb forever or I could lose the whole nipple due to necrotization!  He assured me that both of these side-effects are very rare.  Has anyone else had a ductal excision?

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