ER PR + is worse?

2

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  • BelaT
    BelaT Member Posts: 217
    edited February 2012

     Lago,well, its inasive meaning has spread to local tissue . I wish they are wrong. You are right live my life , I need, I need some one to tell me. I am always taking it hard. Thanks for getting on my case and all. I need you to remind me that every now and then. so I guess its IDC? 

    I have been so moping around and making my hubby's and kids life miserable. I am going to change .

    Thanks

    Bela.

    PS you are courageous woman 

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  • lago
    lago Member Posts: 17,186
    edited February 2012
    Bela it does get better. You will find in time as you are further out from treatment,  you feel more like yourself and you will enjoy your life again. (Wow that was a lot of "you" in one sentence. Tongue out)
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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    Bela, I do the same thing, I mop and I have meltdowns.  It is hard to stay positive, but you are in a good situation as far as stage, at least I think you are.  My stage 3 was a shock as I was told and my surgeon told me that I was barely stage 1. Then in surgery she found the nodes and that changed the game for me.  SO I have my meltdowns, come to this board, read things positive and go on with my life.  The bottom line is we should not worry until we have something to worry about. Now, that is easier said than done BUT I find myself forgetting about bc and I am not even a year out yet. I am planning a trip to hopefully puerto rico in sept to celebrate my 5 yr wedding ann. or to vegas not sure yet.  And as much as I think about this not ending well for me, I have to have hope that I will be able to get past the 5 year mark and then 7, 9 then 10 and so on. This cancer is the most studied, they are always coming up with new and improved ways to treat us. hang in there, maybe go buy yourself something nice or go out to dinner. Have a drink with some girlfriends, anything to take your mind somewhere else for awhile.  Oh and SMILE!! Postivie attitudes really do help the body.

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  • lago
    lago Member Posts: 17,186
    edited February 2012

    Buy shoes! New shoes always makes me happy

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    Ahhh I love shoes....  unfortunately my vice is animals!! Yep I have 6 cats and just sold a horse... hubby says no more. So I bought a pool.  Can't wait for summer!!

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  • BelaT
    BelaT Member Posts: 217
    edited February 2012

    Lago, Yay, shoes, Ofcourse.

    Thanks ckgrayoh, enjoy your trip. 

    I an trying to be cheerful but really deep down I am scared. Not of dying but going thor' pain of disease and truthfully daughter's pain. she is 18. 

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  • BelaT
    BelaT Member Posts: 217
    edited February 2012

    I do want a dog but my hubby is not fond of animals at home at all. he feels intimidated. We grew up like that in India so I understand

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    How about a cat? They are nice and they will leave you alone or cuddle, I have 3 that sleep with me at night. Sometimes I am pinned down and can't move. LOL....

    Bela, I am scared too. Are you doing chemo or rads? Surgery?  Pain goes away...just takes time. I am not looking forward to my surgery next month. Am having one implant and one tissue expander using lasstismus flap, can only imagine the pain with that. URG.... But am looking forward to going from a cup to small c. Yes I guess I was a little greedy but, he I figure I have to get something out of this bc crap...

    Hang in there girl!!

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  • lago
    lago Member Posts: 17,186
    edited February 2012

    Bela that's normal. I felt better after surgery but before that I thought the end was near and it was going to be painful. The thought of not being around for my husband and my parents…  yadda yadda yadda…

    But it's been 1.5 years since my diagnosis. I'm still here, NED and no reason to think that's going to change. I've done some things I always thought I would never do: plastic surgery and tattoos. I am done with reconstruction. Now sporting larger boobie (prizes) with the tattoos I got last Tuesday on my birthday.

    I actually made birthday cookies for my BS, chemo team (including onc/NP) and my PS and delivered them on my birthday.  I now welcome getting older.

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  • BelaT
    BelaT Member Posts: 217
    edited February 2012

    ckgrayoh,

    Yes, I had lumectomy and nodes, that was 2 months almost 3 months ago, and I had two chemo one CT got so sick with colitis was in hospital for 12 days. I thought I was dying. Now its AC had 2nd one. 2 more. No bad effects yet from AC usuall stuff.

    And after I have to decide surgery or Rads. its just right breast , so if i do surgery.. one uni. cross that bridge when i get there. 

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  • cp418
    cp418 Member Posts: 7,079
    edited February 2012

    ckgrayoh - great information on this post with the links.  I know someone dx in 2004 or 2005 stage 3 hormone positive and doing VERY well.  There will be good and bad days where that fear creeps back and shadows us.  Remember there are numerous ongoing clinical trials collecting data for hormone positive patients  - - - to take anti-hormone meds long term.  I am almost 5 yrs out and new oncologist advised taking Femara an additional 3 yrs --- if I could continue to tolerate the side effects.  My choice as the long term data is not available yet.  It will be when you get to the 5 yr mark!  Vaccines trials too so I keep hoping in the near future we can all get a vaccine to prevent recurrence. 

    note- my vice is animals too!  Bought a large pony last year as my 2 horses are elderly and retired unsound now.  I truely missed riding.  Now cleaning 3 stalls daily --- what was I thinking??!!  Oh well - keeps me sane.  Smile

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  • BelaT
    BelaT Member Posts: 217
    edited February 2012

    Lago,

    I mean its nice that life has to go on and you are right with time I will think differently.

    I am confused what to eat , I am veg. and hate pritein smothies and all that. 

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  • lago
    lago Member Posts: 17,186
    edited February 2012

    Bela I'm not a veg but I thought there were plant based proteins like nuts. Are you vegetarian or vegan? Will you eat eggs and low fat cheese? Also sources of protien.

    Berries have lots of antioxident properties.

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  • BelaT
    BelaT Member Posts: 217
    edited February 2012

    Lago,I do eat eggs and cheese. I dont mind that at all. and all for berries but atm not, untill chemo is done told to stay away from them.

     I do eat some good stuff atm I m more focused on eating since chemo makes my tastae buds yuck

    Thanks

    Bela 

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    Hi cp, I am hoping to get another horse but am waiting until after surgery is over as I want to show and trail ride.  My person at the hosptial breast center told me about the AI after being on tamoxofin, I have to wait and see what my hormone levels are next year. My onc is waiting until next year in case I have chemo pause. But my sister and mom were both  menopaused at 40 I just turned 41 so....maybe tamoxofin for 2 years then an AI. Not sure what plan is...

     But I do plan on enjoying the "twins" in my new pool this summer.... lol

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    cp that is good news about your friend. Glad to hear stories like that!! Thanks

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  • rumoret
    rumoret Member Posts: 685
    edited February 2012

    I will post for my mother because she is not a member of this site.

    My mom diagnosed triple negative in 1999 at age 69 years young. It was stage IIa and she had a lumpectomy and chemo. She is going to be 83 years old on May 7th! She is younger acting now then she was at 69 years old. 

    Remember....no one should waste living their life TODAY.......because no one is ever promised TOMORROW. I remind my family of that when ever they think I'm so courageous. 

    Hugs,

    TerryLaughing

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012
    Thanks for the post Rumoret! Good for you mom!!  Hugs back at ya!! Wink
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  • Paula1231
    Paula1231 Member Posts: 456
    edited February 2012

    Thanks Lago..I was unaware of the "luminal" types until now.  I agree with you that we need to live our lives.   Sometimes I get very weepy and engage in my pitiful "why me" mantra, but all in all, I am trying to face the future with a positive attitude.

    Thanks for simplifying that complex data. 

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  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited February 2012
    What day is it,?" asked Pooh.
    "It's today," squeaked Piglet.
    "My favorite day," said Pooh." This is my favorite day also. It is my "present"  I have no guarantees about anymore.
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  • bak94
    bak94 Member Posts: 1,846
    edited February 2012

    Just need to say that just because you might see more women with recurrences on these boards being er/pr pos. does not mean they recur more. Only 10-20% of those diagnosed with breast cancer are trip, neg, so less women in total would be diagnosed with recurrence as compared to er pr positve. Plus, you would have to prove that those who post here are an equal sample of the whole breast cancer community. Am I making any sense? Laughing The first time I was diagnosed, before I received all of my results, I had the type of cancer I wanted picked out, the surgery, the chemo that I wanted. Well, it didn't work out the way I wanted it to! Boy was I disappointed. I wanted the chemo that didn't make your hair fall out!

    I love Pooh! Oh, I am crazy about animals too! I have dogs, cats, goats, chickens, birds. I never have had a horse though.

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    Bak, good post, makes sense.  I went to look at horse last month and the guy had 2 little fainting goats. OMG, he made one faint and it was the funniest cutest thing I have ever seen!!  He eats his goats so that sucks but they were so cute. I would like to have one. My sister has stable with horses, maybe I will see if we can get a little fainter, probably have to have to so they can keep each other company.

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  • Racy
    Racy Member Posts: 2,651
    edited February 2012

    ckgrayoh, I believe that horses often have goats as companions so if you get a goat, you shouldn't need to get two as the horse and goat will have each other as companions.

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    ok, my sister has a 2 year old and he loves the barn cat so maybe he would like  goat too!!

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    I am hoping that if there is a reoccurence it is in the breast area.  I wonder though about when I read abotu reoccurences if that means only locally to the breast or anywhere in the body? Why do some ppl have it come back in other places and some ppl don't?

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  • lago
    lago Member Posts: 17,186
    edited February 2012

    ckgrayoh

    local recurrence is more common with lumpectomy than MX (not to infer it's common but happens more often when compared to MX). It's because sometimes a few cells are missed. This is why rads are always done with lumpectomy. Granted it can happen with an MX too. Typical place is on the scar.

    If you get diagnosed in the other breast that isn't a recurrence. That is a new primary. Once you have been diagnose in one breast your risk goes up as far as the other breast… but since you are watched much closer they usually find it very early.

    Distant occurrence happens if some cancer cells got into your system outside the breast and nodes. They can lay dormant for a long time. This is why we take hormone therapy for 5 (or maybe more in some cases). If they "wake up" not having hormone to feed them will make them die. Chemo doesn't attack dormant cancer only the ones that are active and growing.

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    Thanks Lago!!

    I am driving myself nuts thinking about mets, can't seem to let it go. Have stopped smoking and drink only twice a month now, a couple beers or glasses of wine.  I joined a gym and go 4-5 times a week, read that exercise cuts reoccurence rates. Do you think that means in the breast or anywhere in the body?

    If you dont' mind my asking, how was the nipple tatts? I have my recon surgery coming up on March 19, one implant and one TE. Not sure how I am going to pull that one off until the exchange???

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  • lago
    lago Member Posts: 17,186
    edited February 2012

    Exercise helps with most diseases so I would keep doing that so you don't get some other disease or die of something else.Tongue out It will also help keep your stress level down which I swear is one of those factors that set my cancer in motion but there is no scientific fact to prove that. Keeping your body weight down also helps prevent recurrence.

    "Short of resorting to such drastic measures, all women can reduce the risk of getting breast cancer by drinking less alcohol and losing weight. "Patients want to know what they can do," says Cobleigh. "It used to be you could say, ‘There really isn't anything.' Now you can say, ‘If you control your weight after a diagnosis of breast cancer, you'll be less likely to die.'"
    source link 

    You have no reason to assume you have mets. Statistically the odds are in your favor your favor of being alive and NED in the next 10-15 years. Stop looking at the empty part of the glass. Your glass is more than half full. The time to worry about distant mets is if you have them. Just do the proper things (like eat right, keep weight down and exercise) take your horomone therapy pill and live your life. No one knows how much time they have left even those who don't have cancer.The others just don't think about it and live life.

    ---------------------------------

    Nipple tat was easy. My Ps drew circles till I was OK with the size (made him redraw twice because I thought they were too big). Then he numbed me, mixed the ink  colored "in the lines". I was a little sore that evening but the next day felt fine. They scab over a bit but that's almost gone now. It was an in-office procedure. I don't think most PS do that tattooing. I think my PS really enjoys doing it though. He really loves his work.

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited February 2012

    Hi Lago, thanks for the info.  My first ps said that he uses a tattoo artist not sure what my current PS will do.  I assume that it will most likely be towards fall that I will get them. I just can't wait to be whole again and since I have always been an A cup and now will be a full B small C, I am excited though not about the pain or discomfort of the TE. Oh well, it won't last forever.

    I go to the gym 4-5x a week and feel much better for doing it. I also have moderated my diet and the drinking I do once or twice a month but only a couple beers. You are a wealth of info, thanks so much!!

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  • jennifer1
    jennifer1 Member Posts: 185
    edited February 2012

    In five years, if I make it, they will have a fix, hopefully.  Our stats will change as medical science improves and they are working on it. BC stills sucks

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