Calling all TNs

Hi Ladies!  I popped in about 2 months ago to read up on everyone and say that I was doing well...but I need help now.  After chemo (last treatment was 10/10) I have had lingering aches and pains, the worst of them being the bottom of my feet hurting and my toes feeling like they wanted to explode and my toenails pop off (really, lol)  I finally got on cymbalta and I am having a time with it!! Has anyone else tried this?  I was on Wellbutrin and Zoloft and was told to discontinue the Zoloft, that the cymbalta would take its place.  I'm 3 weeks on it...and was told it would be about 6 weeks before it fully kicked in.  

So happy to see so many familiar names...you are wonderful to support the newcomers, as I once was...hugs to everyone! 

Frozen shoulder here too - long after completing tx. A couple of visits with a PT were all it took to learn exercises and get pretty good range of motion. Not perfect, but fine.

Heidi - only got the survey once, took it, and have not seen it since. Perhaps it didn't like your answers?

Titan- I'd have a firehose and an ice pack ready.....

Heidi LOL!!!!

Congrats to Linda and Linda on significant milestones,

Heidi - Loved the pics!! 

Titan, you can google Scream Cream, I think its a prescription you get from your doctor.  I'm sure this is all TMI but you have tried just regular lubrication?  The kind you can get in the stores? 

Titan, there is at least one very active and enthusiastic thread on here about scream cream... you may want to search the boards. A lot of women seem to find it far better than the usual lubricants etc. 

What's sex?

Titan- I have run through that conversation with my gyno in my mind. I am embarrassed just thinking about it! I can't imagine actually discussing it with him! Maybe I'll join the edible cocoa butter group. Where do you get it?

Linda - congrats on the birthday, i consider that a great milestone. YAYYY!



Having trouble sleeping tonight, lots of fluid on the lugs. Ill be back to fill in more tomorrow about my trip after I get this stuff drained.



Have a great late night everyone!

I started a post and then pressed a key and then it went so if I post two please forgive.

Well Tuesday came around as I knew it would of course.  When I got to the hospital I went first to have an echocardiogram and luckily that was ok or they said I could not have the chemo. So one positive.  I had a melt down when I got to the Day Unit but everyone was just so so so kind.  I had an hours education course on everything they would do today and that was great then the big guns came and that was it. They couldn't find a vein at first but eventually did.  They said I might need to have a port !!!! not sure what happens here.  Never heard of it.  Anyway the chemo went well except I had red urine but they said this would happen and it did.  They gave me Emend and Ondansetron and I didn't feel sick at all.  I managed to get home with no probs and only felt like scrambled egg for tea as I didn't want to overdo it.  Since tea I have had a funny pain not in the tummy a bit below that so I am not sure what that is and a slight headache but the headache could have been the stress of the day. They told me to take the antiemetics religously and at the right time. They made me promise !! I didn't need to promise I will take them as soon as .

Your posts tonight made me laugh about the scream cream (never heard of it) and the sex posts.  Don't suppose it could be KY Jelly??.

Tomorrow apparently is the big day. So I am not in any hurry to go to bed as it will get here quicker.  But day 1 is over and was positive thanks to you guys and the care I received. My next chemo in three weeks is in my home town and only five mins away so that will be better because I won'y have to worry about a journey afterwards. 

Can any of you tell me if you have wigs.  Are they worth buying, do you use it much, are they a good match to your own hair, do they itch, do they come off easily when out in the wind or do you just use bandanas. 

Your posts have been a godsend to me and I am grateful to each and every one of you so thank you all so much.  The journey has started and I cannot get off the roundabout because I have a wonderful husband and daughters and this is for them even more than me.  So onwards and upwards, too late now anyway.

In reply to Titan's Sign Up I will put my diagnosis as best I can.

I am 65 years of age. Married with two wonderful girls and two granddaughters and two grandson's. 

HX: dianosed by mammogram in October 2011,  The cancer was so small that they gave me a magnifying glass to see it so it was a big shock to find it was high grade and aggressive and was Triple Negative.  Underwent left Mastectomy with an excellent clearance but it was in four of the five nodes so the surgeon took them all out. It was also growing outside of one of the nodes which I find really scary,  as has it gone further already?.   I am having 4x3 of Cyclophosphsamide every three weeks, 4xDoxorubicin every three weeks and then 12x Paclitaxel weekly.  I think this one is your Taxol.  Our drugs here may have a different name but they can be found on Internet. I have Coloxyl and Senna for constipation but seems to be nothing for the diarrhoea if I get it.

I was interested to find that all of you on the forum only had a lumpectomy and mostly not a mastectomy. Is that something they do more of in the USA?

Well I am sure you have had enough of me for one night so sleep well guys.  I will eventually go to bed but not looking forward to tomorrow.

Thank you once again for all of your help and advice it is invaluable.

Annie