Bottle 'o Tamoxifen

JULES~  Welcome Back !

Good new my friends you can hop out of my pocket !!  NO CANCER, just a messed up back need to see an orthopedic. I have never been so happy in my life.  Having a bone density test to look for osteoporosis.  It's all GOOD ~~~ thanks be to god and you girls !

Went to see the VOW tonight with my hubby.  It was pretty good ~

Nite all ! Thanks for all the good thoughts.

Yay Alicia! Great news!

Jules, glad you're back!

Hope everyone has a great weekend. 

Alicia- Hooray!!!!!!!!!

See you there Jules.

Awesome e news Alicia......yaahhhhhh

Jules..welcome back

Jule good to hear from you although I have been keeping up with you  on FB.  How is the YMCA program going???

Alicia so glad no cancer but hate that your back is messed up.

Well I had a good visit with MO on Friday.  Got my Zometa infusion and I have had no SE's from it.  We talked about my neck and he said I have sever arthritis and a pinched nerve.  I did not know about the pinched nerve but he read my MRI report.  He said that I need to keep on like I have with my meds even though I have resorted to hydrocodone at night but he said that is fine.  He said I need to commit to 5 minutes in the morning and at night doing stretching exercises.  SAid that would be the best thing.  Does not want me to do cortisone shots unless I absolutely cannot stand the pain because of other SE's that can happen and with my old neck injury he wants to keep me from doing anything unless I have too.  Not crazy about pain meds.  Also we talked about my nausea I have had the last three weeks and he said it is from the meds I am on but that right now I need all of them.  He thinks it is the meds for my arthritis that is causing it.  SAid do the stretched and hopefully I can feel better to get off of some of these meds.  In the meantime he gave me something I can take PRN for the nausea.  He also said the lamisil is fine for the toe nail fungus but suggested I take it a little differently than what the foot doctor said to do.  I told him I got approved for my BMX and that I am scheduled for March 26th.  He said he felt that I had made a very wise decision and he was glad that I choose the BMX.  All along he has been very neutral but giving me all the information beause he wanted me to make decision.  He said he felt I made the best decision and he was glad I had choose the BMX.

So I have been here at my sons snuggling with my new grandbabies.  It has been so nice.  Have cooked all weekend so that they will have food.  It snowed really good today and is so pretty outside but very very cold.  I'll post pictures after I get home.

Alicia- YAY!!!

Sherry- so sorry you have to keep taking other meds...the back thing...yeah...ortho or massage and chiro...I am going to give an acupuncturist a call and see if I can't get it sorted out that way too....too tense!

Cherethomas- You are not alone. I have also experienced those SE's. I have been on tamoxifen just over 6 months, and I do feel like the SE's have gotten less. I also started splitting the pill and taking half in the morning and half at bedtime. I think that has helped. Best of luck and hang in there!

Hi all, I've been catching up on this thread, and thought I'd let you all know what's going on with my Tamoxifen saga. 

I have been off tami with my MO's blessing since Jan 1.  I read someone else on this thread quit on that day too.  Fresh start and all. Well, Fri. I went to see my MO for the first since I quit Tami and seems he felt it was a good time to visit his daughter who is in college in another state.  So I ended up seeing his NP.  First thing I tell her about all the SE I have been suffering, and the muscle pain in my arms and shoulders is better, but not gone yet.

She tells me I am anemic, and we need to find out why.  Orders blood tests for vit. B levels, thyroid, etc.  Also orders hormone test to see if I can go on AI.  I'm 52 and haven't had a period since last March, after my first chemo infusion.  Before I get home, I got a call from her telling me that my TSH is a little high, meaning my thyroid levels are low (hypothyroid). Reading on the Internet, I find that most of my symptoms (muscle and joint pain,fatigue, depression) could be caused by this.  So is it the Tami, or the thyroid, or both?  I do feel some better since quitting the Tami.

I expect to get the results of the rest of my blood work today, and hopefully a plan from my MO as to what to do going forward to cut my risk of recurrence.  Possibly a monthly shot to suppress my ovaries and an AI.  Bleeeeck!

Good to know, MamaV.  I will be looking to you for advice in the future.  Meanwhile, my MO's nurse called me today and is forwarding my THS test levels to my GP, who then will refer me to an endocrinologist.  Seems like the MO could do that for me and skip the GP.  Oh, and my MO is setting me up for a bone scan to rule out mets.  I'm relieved to know that it could all be my thyroid causing my pain.  This bone scan business has me pretty shook up.  I'm hoping to have it done Wed., just waiting for appointment confirmation.

Jules - I have to agree with MamaV that it is probably part of the new "normal".  Must say I liked the old normal better.

For today, I am just not going to be on the lookout for mets.  What I would REALLY like is a day without pain and don't really care if mets are there or not. Geez, I AM cranky today!!! Will head to bed soon and hope to wake up on the right side of it tomorrow!

Jo - I like that excuse for a party.  Of course, usually any excuse will do.

Pocket party tomorrow!!!  Going for MRI results.  My pain specialist thinks I have a pinched nerve in my lower spine.  If it is not one thing, it is another.  This is not BC related BUT my mind has ventured to the dark side and mets came to mind.  Guess that is part of this new normal.