Diep 2012

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  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited February 2012

    Hey ladies! Hope everyone is doing well. At the beginning of the week I called my PS office about an area where I had some oozing and their nurse told me I could go and see my local ps just to be sure everything is a OK. I went yesterday to my local PS and he said everything looked great and he had no concerns of any with my healing. My drainage out put was like MAYBE 12cc in a 24 hr period so he pulled my drains yesterday (3weeks post op). Soo, fast forward to today. I called the ps pa who performed the DIEP and she gets all pissy about the local ps pulling my drains and tells me that more than likely my incision will open up. I was a mess when I got off the phone. The pa then calls me back 3 minutes later telling me she was moving my check up appointment with them out 1 more week (from jan13 to jan20) because since i had my drains pulled 4 days earlier than they were gonna pull them that that would give me time if my incisions were to open then they could see me then. She tells me to immediately get a compression garment and gegin wearing it 24hrs. I am soo upset and freaked out because as soon as I got off the phone with her another place began dripping fluid. There is NO open places but I am oozing a little. The discharge is yellow/clear drainage with no odor or fever on my part. Any similiar experiences or reassurance? I'm terrified of my incision opening up!! : (

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited February 2012

    I meant moved my check up appointment from feb13 to feb20th.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    Kasey... I did have my incision open up, two weeks after surgery when the glue came off... I ended up losing the flap and needed a wound surgery and then a replacement flap. The difference is I think that I had skin necrosis  and was using ointment on the raw skin and the incision below that opened and kept getting bigger and bigger until after two weeks of tremndous leaking had to go back under the knife. If I knew then what I know now, I would have seen a doctor as soon as it was leaking. They told me NOT to get it closed up as that can seal in any bacteria and let it heal from the inside out, but perhaps a local doctor could have done something before it was a disaster. 

    I know you wanted reassurance.. sorry I can't give that. My suggestion is to not only wear a compression bra but to add extra padding for EXTRA compression... but if it continues to leak, see a doctor.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    Oops.. I went back to re-read and you are talking about ab drains?? Not as bad as a leaking breast... trust me.

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited February 2012

    Thanks bdavis- yes, in my terror I forgot tp mention it's my abdominal incision. Sorry, about your flap loss. I'm sure you were devastated! I'm just soo ready to get off this emotional roller coaster : )

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    I had drains for 8.5 weeks, so I understand... I definitely would use a lot of compression... adding extra padding on the incision line. I actually doubled up on my compression and had about 6 ABD pads stuffed in my garment... what kind of compression do you have?? Spanx may be sufficient if its tight enough.

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited February 2012

    I have a garment like spanks that I got today and am using those pads they give maternity moms when they leave the hospital. I also ordered a lipo in a box compression garment that should be delivered tomorrow. I am putting Bactroban ointment on my incisions twice a day and changing pads twice a day. Any other suggestions? I see no holes but just drops of liquid is oozing out two places : (

  • TexasRose
    TexasRose Member Posts: 740
    edited February 2012

    sadie, glad to hear you are doing well. Your plan to sit, relax, eat, walk and sleep sounds like a good one!! Laughing

    I got the house cleaned today. Except the master bath. I still have to do that, but didn't feel like doing anymore cleaning today. I'm going to relax a little tomorrow and get a pedicure. I guess it's ok to have painted toenails? The instructions didn't say not to. I know that I had just gotten a pedicure right before my mastectomy and no one said anything.

    Tuesday is the big day for me.

  • Snobird
    Snobird Member Posts: 593
    edited February 2012

    I had some minor oozing out of one of my breast incision. PS was not concerned because the incision wasn't spreading but if it started to open up I needed to see him. It resolved itself in a few days. I just added some gauze pads under my bra to soak it up. Only had to change 3 times a day til it stopped.

  • goldlining
    goldlining Member Posts: 1,178
    edited February 2012

    I've read no polish on either fingers or toes. No accounting for why they let you have polish for the mx. I think the machinery now can monitor blood oxygen better than in the past where they had to rely on nail colour as part of the information to see oxygenation, but old traditions linger.

  • tamlyn110
    tamlyn110 Member Posts: 195
    edited February 2012

    Sadie- So glad to hear everything went well for you and you are feeling good. You should feel better everyday

  • mamachick
    mamachick Member Posts: 229
    edited February 2012

    c8ndygr1-  I may have missed it on another thread about diep, but the squashed hamburger is usually with those of us that had implants placed.  They look like hamburger buns under the skin, they are suppose to drop and fluff after a few months, but not so for me.  That's why I am here on this thread.

    Kasey- I am so sorry you are having to worry about all of this.  I am hoping that all is well and you can go in there the 20th and prove them wrong.

    Sadie- glad you made it home and are doing well. Hope it is getting better each day!

  • sadie5254
    sadie5254 Member Posts: 39
    edited February 2012

    Thanks ladies.  I appreciate the kind words!  I did forget to mention that I'm having the weirdest problem and I've not seen it here.  I have two drains in the left breast - they are taped up and stitched under my arm.  Occasionally, it pulls there and it does hurt.  However, I have almost intolerable pain from the drain end which is poking out of the skin right by the cleavage.  You can feel the drain in the breast and this end hurts more than anything I've had so far.  I can't even bear to touch it - this tender hard lump which is the drain end.  I'm hoping I can last until next Thursday when he (assumedly) takes the drains out.  I told him about this before I left the hospital and he acknowledged it, but didn't do anything.  My husband hasn't noticed anything oozing from the stomach (I keep my binder on all the time) and there are layers of tape under the breast which PS said is forming the shelf the breast will sit on, so I haven't really seen the "complete" breast. 

    This stupid, sometimes unbearable pain from this dam* drain.  And not even from the drain site!

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited February 2012

    Thanks everyone! To top things off just now when I was doing my nightly wound inspections and placing bactroban on a big scab came off on the underside of my right breast. It's open about 1.5 to 2 inches long. I took a picture and emailed the PA in Charleston asking her if she'd like for me to come down or see a PS here in the upstate of SC. Reguardless, it looks like it needs to be seen about. I am shocked! My breast looked soo good and that area just looked to have a thicker scab but once I rubbed the ointment on the scab came off revealing an unhealed open area : ( I had some left over oral Cipro because they changed my antibiotics 3 times while in Charleston due to respiratory issues so I started that tonight. Hopefully, this will just be packing and delayed healing.

    Sadie5254- I hope your pain resolves and you get that darn drain out! I have said they are made of and of the devil himself : )

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    Kasey... Might I recommend using betadine. You want to keep it DRY not moist... So I think using ointment is going to keep it from healing. I would use betadine and then use compression and extra pads over teh open incision... and keep using the betadine to dry it out. An incision is not the same as a cut where we use ointment. Of course ask the PA, but my 2 cents. Who is your doctor?

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited February 2012

    Betsy- Thanks! Dr. Craigie is my surgeon.

  • goldlining
    goldlining Member Posts: 1,178
    edited February 2012

    sadie5254 It's too bad you have them so long. Most of us seem to leave at least 3 drains including both upstairs drains at the hospital. I had the same grievance with mx drains however. The drain pain was at the tip not the skin opening. It felt like a knife in my side. The day it came out was the best day of all. It will soon be in the past.

    I think the drain tubes must be supplied on a roll or rolled up in a package because they do have a curl to them, and the ones that curl in an unfavourable way are more painful. I don't think they always pay enough attention to the curl when they put them in.

  • Snobird
    Snobird Member Posts: 593
    edited February 2012

    My PS didn't have me putting anything on the incisions. Just wanted them to be clean and dry like Betsy said. Also not to pull on tape or sutures. As the tape worked its way off I just cut it close with scissors. It's better to let it scab over. A scab is natures bandaid. Once the tape and scabs were gone I started using vit. E on the scars which was very helpful.

  • dltnhm
    dltnhm Member Posts: 873
    edited February 2012

    c8ndygr1 -- I am doubtful that a bra would flatten a breast. I WILL reiterate that you must trust your PS and know that he/she knows what is best for you. And if there is any doubt about that at any stage in prepping for surgery (beyond bras, etc.) then you need another surgeon.

    And I will keep posting that NOT every surgeon believes that it is necessary to wear bras after DIEP construction and I have complete faith and trust in my surgeon. He is TOPS. He is one of not too many in the country who have been trained in the finesse of microsurgical techniques and has extensive practice. So it doesn't bother me a bit that some other women and their surgeons swear by having bras and compression garments post surgery.

    I will say that it is sometimes frustrating to keep reminding women (not you my dear) that just because YOUR experience and everyone you know has been X ... and not Y, then therefore every other woman in the world should follow your example. Just isn't the case in real life when it comes to breast cancer, to surgery, to treatments, etc. For that matter it just isn't the case in real life at all. Our lives are just that .. our lives. There are differences that occur. That doesn't make those differences WRONG or out of synch or risky .... it just makes them different.

    Hugs to you fine lady. You will do just fine :-)

  • dltnhm
    dltnhm Member Posts: 873
    edited February 2012

    To you gals having some complications and such .. my heart goes out to you. I imagine that having open wounds is scary and having that end of the tube poking and causing pain at the site of your breast just awful. I have no personal experience with either scenario.

    The only ointment that was used (following the doc's instructions) was Bacitracin (abdominal incision and very little, but some, at the site of those stitches on my breast and around one drain site where there was a tiny bit of leaking and after when it was removed for just a couple days.

    Either I, or the visiting nurse, changed my abdominal incision and each dressing change involved a light application of bacitracin with a sterile cotton swab, application of Xeroform Petrolatum dressing, covered sometimes with a light layer of sterile gauze, and then ABD pads cut to fit so that they were not hugely bulky but covered. Paper tape was used to secure the gauze and pad and very sparingly so as not to pull. And the nurse and PA and myself would use a notched pad around the drain areas sometimes so that there was a little cushion and support for that drain. As the swelling was reduced in that area there was inevitable pulling and discomfort in that area (inevitable for me - can only speak for me) so those notched pads provided a level of support but did not in any way prevent those areas from healing quickly.

    Just my story.

    Diana

  • Del11
    Del11 Member Posts: 944
    edited February 2012

    Diana- are you in Chicago? Mind if I ask who your surgeon is?  I've had trouble in the past identifying skilled DIEP surgeons in the city, for other people. (I went out of town)

  • M0m2Three
    M0m2Three Member Posts: 29
    edited February 2012

    Thanks for posting about the incisions and oozing! I was in a near panic after Thursday after all 4 drains were removed along with staples and stitches because, my left flap incision site opened up about 1/2 inch. I read the posts about flap failure and immediately called my PS. They said to wash the area twice a day with wound care saline and cover the area with dry gauze. Both hip drain areas are still oozing. I am covering those with dry gauze.



    Have any of you reduced your activity level when your incisions opened up? I am trying not to use my left arm as much.



    Thank you for your responses!



    Janet



    DIEP - 1/25/12



    BMX - 9/23/11

  • rthrift1
    rthrift1 Member Posts: 21
    edited February 2012

    I am so thankful for all the helpful information I have received thus far....Surgery is only 9 days away and the nerves are kicking in. I would love to see some diep pics if anyone is willing to share? I had to have a double mastectomy in Dec 2011, and I never dreamed I would be so eager to have breast so soon. Thank you so much again everyone. Continue to join me in praying for a cure!

  • rthrift1
    rthrift1 Member Posts: 21
    edited February 2012

    Just another note...I havent seen any post on here from anyone that used my doctor, but my doctor is Dr Robinson at Carolinas Medical Plastic Surgery in Charlotte NC....Anyone have experience with him?

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2012

    rtthrift1... I do not know your doctor, but hopefully someone will chime in...for pictures PM nowheregirl and ask to see her picture gallery.

    dltnhm... I get the impression you are pointing your statements toward me, and yet I said to follow whatever her doctor tells her to do... said what mine did after you said what yours did... didn't say mine was right and yours wrong, just different.

  • TexasRose
    TexasRose Member Posts: 740
    edited February 2012

    rthrift1, I hear ya! My surgery is on Tuesday and I'm getting very nervous, very scared and very excited. My DIEP is delayed. My original uni MX was three years ago. I can't believe that I am going to have two breasts again! I don't even remember what it feels like or looks like! When I put my prosthesis on this morning, it really hit me that I am about to give it up for good. I cannot wait!! But it also hits me that I am about to remove a "healthy" breast too. I have absolutely no doubts about doing that, but there is some sadness that comes with it too.

    I went this morning and got my pedicure. I called the pre-surgical evaluation unit where I met with the anesthesiologist last week and asked them if it was ok. The nurse said it was fine. No problem at all. And they told me to relax and enjoy it. So I did and now I have pretty toes for my surgery and I appreciate that because it will be awhile before I can get up in that pedi chair again! My toenails took such a beating with chemo and that is the one pampering I allow myself. I guess that's just another way that each surgery, surgeon and hospital is different.

    And I'd like to say that I appreciate so very much hearing the experiences of each of you that have gone before me. No two experiences will be exactly the same and there will always be variances, but I trust my surgeon to know what is best for me and I appreciate each of you sharing what your surgery and experience was for you. So, thank you to all of you for sharing. I wish you peace and healing always.

    Mary  

  • TexasRose
    TexasRose Member Posts: 740
    edited February 2012

    Just called up there for my report time. 6 AM on Tuesday. Now I'm nervous!

  • goldlining
    goldlining Member Posts: 1,178
    edited February 2012
    TexasRose I was so nervous about being on time for 06:00 but there was just a parade of people seeing me in the pre-op ward doing their preparation, and when they wheeled me into the room, and I saw the big lights, and my CT scan on the computer monitor, and all the people standing around to do their jobs, I felt SO CALM. It was the best I had felt in almost two years, since the first mammo recall. The last Valium I took was the night before surgery. I did not even change to another medicine or taper or anything. They didn't give me any, and I didn't need any. Your job is to get your beauty sleep! (With your pretty toes!!)
  • dltnhm
    dltnhm Member Posts: 873
    edited February 2012

    I saw Dr. Schechter. He has offices in Morton Grove, Grays Lake and at least one other location. I am in the car traveling to Galena in his snow right now so I cannot give you a link. Google Schechter and Pavone and plastic surgeons and DIEP and you should be able to find him.

  • Sharon789
    Sharon789 Member Posts: 56
    edited February 2012

    Hi all,

    I had a bil. DIEP 2.5 weeks ago.  For the past few days, I have noticed there are areas on one of my breasts that are firmer than others.  There is no skin discoloration and the areas are still warm to touch.

    I was wondering what your PS has told you is normal healing and what are the symptoms that I should be concerned about.

    Thanks for you help.

    Sharon

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