multiple reccurance

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lollypop59
lollypop59 Member Posts: 123
edited June 2014 in IBC (Inflammatory Breast Cancer)

had a local reccurance 3 months ago, now another biopsy show  multiple reccurance, but they said its local , not sure yet if they can operate but if not it will be chemo i am so scared.

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  • ibcmets
    ibcmets Member Posts: 4,286
    edited January 2012

    Very sorry Lollypop.  I had to wait a year after being stable with ibc before having surgery; but I was glad I did.  It mentally prepared me that I got the disease out of my system. Since you are ER-, it's probably good to have the surgery.  Sometimes with ER+, there are medications we can go on for a long time.  Best wishes on good results with your treatment.

    Terri

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  • ma111
    ma111 Member Posts: 1,376
    edited January 2012

    Lollypop,

    We will talk you through chemo. It's a doable thing. It's normal to be scared. I was shaking so bad it was pittaful. I called my family doctor and she called me in some ativan. It helped.

    I will say a special prayer for you.

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  • lollypop59
    lollypop59 Member Posts: 123
    edited January 2012

    hello ibcmets.and ma111,

                                        thankyou for you replies both of you, i do have alot of support with my kids, but you ladies are so lovely and supportive on here a great deal, i will be having my op thurs morning they will be removing the lattissmus dorsi mucles the nodules and the rest of the skin, and then replacing more skin from another part of my body, then it will be more chemo afterwards i am hoping i dont get the same side affects i had last i had nutropena. i hope you are both feeling very well x x

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  • ma111
    ma111 Member Posts: 1,376
    edited January 2012

    Lollypop, We are on the boards for the same reasons. That's a big surgery you have coming up. I wish you well and will say a prayer for you. Nutripenia is very common. One my first round they gave me Neulasta 24 hours after chemo and it worked. Caused bone pain, but worked on the nuutripenia.

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  • chester2010
    chester2010 Member Posts: 101
    edited January 2012

    Lollypop.  I'm so sorry to hear about a recurrence.  Just try to take one day at a time and beat the ..... out of this nasty disease.  Stay in touch.  We will help when we can.

    Kathy Toronto

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  • ibcmets
    ibcmets Member Posts: 4,286
    edited January 2012

    Best Wishes on your surgery.  Wishing you a quick recovery.

    Terri

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  • lollypop59
    lollypop59 Member Posts: 123
    edited January 2012

    well hi ladies,

                  i came out of hospital today have not had the nodules removed yet there was a small lump that was in the lattissmus muscle they have removed that they are not sure what it is yet got to wait ten days and i will bee defiently having more chem, they said  i am a very unusual case they never seen it before, my god freaky. anyway hope you are all doing well x x x

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  • lollypop59
    lollypop59 Member Posts: 123
    edited January 2012

    i miss understood that can not remove the flap they have removed the small lump and then its more chemo first. its all so confusing .

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  • ma111
    ma111 Member Posts: 1,376
    edited January 2012

    Inflamatory is unusaual and rare form of breast cancer. I have heard a lot that I am unusual. I wish you easily controled side effects with the posion. Let us know what path says.

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  • lollypop59
    lollypop59 Member Posts: 123
    edited January 2012

    hi ma111,

                i got nervous when  they said i am a unusual case, its frighting in case they dont know what they are doing, but still i got through it once and i will do it again, hope you are feeling well and i will let you know what the results are as soon as i know.

                                                                                      take care x x

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  • chester2010
    chester2010 Member Posts: 101
    edited January 2012

    Sorry to hear that you have to go through more waiting and worrying.  I was also told I was unusual because the redness in the breast was so faint! We have to trust that the Drs. do know what they`re doing but it for sure makes us nervous.  Keep in touch and let us know your resultls and take ddep breaths..  I`m on Xeloda (oral chemo)  for skin mets and they cleared up almost instantly

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  • ma111
    ma111 Member Posts: 1,376
    edited January 2012

    Lollypop,

    Waiting is very hard. I wish you well.

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited January 2012

    Wishing you well xo

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  • lollypop59
    lollypop59 Member Posts: 123
    edited February 2012

    hi keepingfaith69,

                         bad news im afraid i have a chest wall reccurrance, which is what i did expect, so now will have ct scan mon they say its still local reccurrance praying for ned with ct scan, and will be starting taxotere, one a week not sure for how long yet. hope everyone is well x

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  • lollypop59
    lollypop59 Member Posts: 123
    edited February 2012

    hi ibcmets

             i was told today i have a chest wall reccurrance and some cancer skin nodules, which i did guess that anyway so now waiting for ct scan next monday hoping its clear then starting chemo again taxotere. hope you are feeling well x

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  • lollypop59
    lollypop59 Member Posts: 123
    edited February 2012

    hi chester2010,

           hi just to let you i was told today that i have some cancerous skin nodules but now also a chest wall reccurrance so now i have a ct scan next monday, hoping for to be clear and then starting chemo in two weeks taxotere. hope you are well x

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  • ma111
    ma111 Member Posts: 1,376
    edited February 2012

    Lolypop, Sorry to hear the bad news. I will say a prayer that it is not anywhere else.

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  • chester2010
    chester2010 Member Posts: 101
    edited February 2012

    Hi Lollypop:  I'm so sorry to hear of this recurrance.  We're all praying that you the CT scan will be clear. The waiting is always agony but hope that the taxotere works for you.  As you are HER2+ are you on Herceptin also?  Keep in touch, we'll all help when we can.

    Kathy 

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  • lollypop59
    lollypop59 Member Posts: 123
    edited February 2012

    hi chester2010,

               i was on herceptin but the last three which would of ended jan 3rd i could not have because of my heart so been on medication for three months and my onc said if my hear have retuned back to normal i will go back on herceptin if not they will put me on tykerb, i will feel a bit happier when my trreatment starts, hoping you are feeling well x

                                                                lorraine

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  • ibcmets
    ibcmets Member Posts: 4,286
    edited February 2012

    Lollypop,

    Saying prayers for you.  Sorry you're dealing with a reoccurence.  Hope your new treatment works well.

    Terri

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  • lollypop59
    lollypop59 Member Posts: 123
    edited April 2012

    hi ibc mets,

       i havent been on for a while, i have been on chemo every week which is taxol not taxotere i got for lung mets also the ct werent good but i am still feeling positive just had my 6th one today,i am feeling fine so far no side affects having another scan on the 26th april. i hope you are keeping well.

         hugs and best wishes lorraine x x

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  • lollypop59
    lollypop59 Member Posts: 123
    edited April 2012

     hi  ma111,

      have not been on here lately  i am having chemo weekly taxol and herceptin every three weeks, my scan showed lung mets, not good news but still positive,having a ct on the 26th.

    anyway hoping you are well.

          best wishes lorraine

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  • lollypop59
    lollypop59 Member Posts: 123
    edited April 2012

    hi chester2010,

           my ct showd lung mets was not that shocked all the reccurances i were getting but anyway on taxol weekly plus herceptin, hoping it done affect the heart again but i am on medication for that so fingers cross. i have got a ct on the 26th had my 6th taxol today. hope you are keeping well.

         hugs lorraine x x

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  • chester2010
    chester2010 Member Posts: 101
    edited April 2012

    Hi Lorraine:  Sorry you have this nasty recurrence and I do hope the chemo will control things. It is always the worry that something will crop up again.  Good luck with your CT scan on the 26th, keep in touch. Kathy

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  • lollypop59
    lollypop59 Member Posts: 123
    edited April 2012

    hi bon,

           i am doing well just had my 6th taxol yesterday and my third herceptin next week, i am feeling great so far  will be having ct scan on the 26th april and hoping for good news, thankyou for asking bon, yes i did have herceptin last time but the last three i at to stop brcause of heart issues, they pit me in heart tablets sraight away so now i am fine, hoping dont have the heart problems again but if i do my onc will swich me to tykerb they are giving me muga scans every two months instead of every three months. to be honest if i did not have to stopped the herceptin i dont think it would of spread, but its just one of those things..

                                                      hugs lorraine x

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  • lollypop59
    lollypop59 Member Posts: 123
    edited April 2012

                             hi bon,

          i knosw the feeling with chemo brain, i put things down all the time and forget where i have put them, well so far apart from the chemo fog i am feeling fine, the nodules on my chest have nearer enough gone and the redness my onc said thats its worked on the outside and i will be really surprized if it havent on the inside, so fingers crossed eh, my scan is on the 26th, i hope you are feeling well, i am on my 8th taxol next wed, did you say you had lung mets.

                                              lorraine x

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  • lollypop59
    lollypop59 Member Posts: 123
    edited April 2012

    hi bon,

       nice to hear that you are stable i will have my scan results on monday hoping for good newa eh, i will keep you updated, also chester hoping you are well plus also ibc hoping you are well too ,

                                                                 hugs lorraine

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  • chester2010
    chester2010 Member Posts: 101
    edited April 2012

    Hi Lorraine:  I'm glad to hear that the nodules cleared up with the taxol and you seem to be tolerating it all very well.  GOOD LUCK with your scans tomorrow. It's always anxiety time but you can take encouragement from the fact that you can actually see the improvement with your skin.

    Cheers. kathy Toronto

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