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Tundra
Tundra Member Posts: 136
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

well hello there...

 I was previously a more regular poster on this board (about a year back), but being an IBC girl, I ended up more on the IBC support list.

But yes, sadly, as of this past Friday this is the correct forum for me to be posting in. I was dx with bone mets to the thoracic spine. I'm feeling pretty shocked.

I was dx Dec 15, 2010 with stage IIIb inflammatory breat cancer, I was 35 at dx. This past year I went through all the treatments and then some. I had a month of a break and then my onco ordered a bone scan because I was "sore all over".

the got the bone scan, and then confirmed it with an MRI last week... and I got the news by phone last Friday. Today was my appointment with my onco to try to make a plan.

 It's all very very surreal for me. I knew my dx was intense, but to be honest I thought I'd have longer before I went to stage 4. It's a lot to wrap my head around.

 My family seems to be in shock/burn out mode--to the extent that my mom went away the day I was getting results (she came back), but now she and my step dad are talking as if they will still continue with theuir plans to go away somewhere tropical for 3 weeks (they would leave in only a week). So yah, family matters are making it much more diffcult than it already is, which is saying a lot.

 As for me, I luckily have some very good friends around me. But I just honestly have absolutely no idea how to deal with this---mentally or emotionally.

So yeah... enough about me!

Obviously you all must be in a similar situation. I'm so sorry that you are as well. 

Sending you all goodness

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  • 3boysmom39
    3boysmom39 Member Posts: 54
    edited February 2012

    Tundra..so sorry you have to deal with this now. I will be praying for you. I don't think anyone thinks mets will happen so soon, but from all the information available on this site it seems that bone mets are very treatable.....there's nothing magic to say but the women here will surround you and support you. Take care

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited February 2012

    Tundra so sorry you need to join us but glad you have.  Hearing those words sure does take your breath away and put the mind into overdrive and shock all at the same time.  I am a bone only met girl and I can tell you, that it can be treated and controlled for many years so don't drop your bundle just yet.  Being ER/PR+ is a help too as it means a whole lot more options as far as treatment goes.

    Good luck with your appointment and I hope you can wrap your head around all that is going on at the moment.  Just remember, you can have many, many years ahead of you.

    Love n hugs.  Chrissy

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  • Katarina
    Katarina Member Posts: 386
    edited February 2012

    Can you ask your mother if you can go along on the trip. You deserve it and I think it would make you feel better. 

    I've seen how some close family members can't handle it at first but they are as scared as you are.

    I'm so sorry your suffering. I send you prayers and hugs.  

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  • alesta29
    alesta29 Member Posts: 1,505
    edited February 2012

    Hey Tundra

    Hi and welcome - sorry you're here.

    Stage IV is pretty terrifying at the start. I was diagnosed at 49 out of the box last June after a routine breast screening with liver, lung and bone mets. Thought I'd be dead by Xmas but here I am, 6 chemos down, still got mets but feeling good and am back working full time, just on Tamoxifen now.

    You will get your head around this and will start living again, just give yourself some time to come to terms with it, grieve for your old life and then start to pick up the pieces of your new one. There will be days when you just can't see the point of getting out of bed but there will also be bright and shining days when actually you can forget about the damn stupid cancer for a few seconds, then a few minutes then the next thing you know you're having a good time and you won't have thought about it for hours (or maybe days...) It's taken me 6 months to get to that stage and I still have wobbly moments but overall, I'm trying to live rather than thinking about dying. 

    Come on over to the stage IV boards when you're ready and have a look around. We'll make you very welcome.

    Hugs

    Laurie x 

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