Any ER+, Her2+, node positive 3+ years??

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  • missy_111
    missy_111 Member Posts: 141
    edited November 2011

    That is GREAT to hear lisaelder1972!!

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  • florencedonna
    florencedonna Member Posts: 131
    edited December 2011

    Hi,  I was diagnosed on 10/10/2005 with IDC, ER+, HER +,  with 6 positive nodes.

     Now six years out without recurrence!  Good luck to you.

     donna

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  • pejkug3
    pejkug3 Member Posts: 902
    edited December 2011

    Love itm Florencedonna!

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  • HensonChi
    HensonChi Member Posts: 357
    edited January 2012

    This month I am 4 years out.  I go for my 6th month checkup on Thursday.  I feel good these days!

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  • blondie45
    blondie45 Member Posts: 580
    edited January 2012

    I will be 3 years from diagnosis in April of this year.  Yippeeeeee.....

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  • missy_111
    missy_111 Member Posts: 141
    edited January 2012

    Ladies, so great to hear that.  Thank you for posting!

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  • saralmom
    saralmom Member Posts: 329
    edited January 2012

    Love to hear all of these stories!  Congrats to blondie, henson, and florence!

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  • blondie45
    blondie45 Member Posts: 580
    edited January 2012

    saralmom - Thanks!

    missy_111 - You are welcome!

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  • jackboo09
    jackboo09 Member Posts: 920
    edited January 2012

    Hello everyone

    Im afraid Im only 11 months out from dx. Dont want to hijack this thread but was just wondering if any Her 2 & ER + ladies have had ovarian surpression.My onco says the jury is out?

    Great to hear so many ladies with this dx doing well 3 yrs out Missy111. I suppose Im wondering if the premenopausal portion of these have opted for OS.

    Liz

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  • PlantLover
    PlantLover Member Posts: 622
    edited January 2012

    jackboo09 - My oncologist definitely didn't want my ovaries to kick back in.  Chemo shut them down & the doc thought, based on my age at diagnosis (48), their function would be suppressed permanently.   I had a feeling he might be wrong.  My periods were always regular with no signs of menopause prior to treatments.  Sure enough, as soon as all the chemo was out of my system my ovaries became active again.  I started receiving Lupron shots, administered monthly.  I had two shots before I decided I didn't want any more chemicals in my body and had my ovaries removed.

    Hope that helps!

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  • jackboo09
    jackboo09 Member Posts: 920
    edited January 2012

    Hi Plantlover

    Many thanks for the feedback. I have decided to give the Lupron a try and see how I cope with the side effects. Im tempted to just stay on Tamoxifen as I seem to be tolerating it well. However, my gut feeling is that I should do all I can to prevent a reoccurence and OS could help.

    At least with this kind of OS its not irreversible.

    Liz

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  • saralmom
    saralmom Member Posts: 329
    edited January 2012

    Hi jackaboo09.  I am Her2+ and ER+ and I had a hysterectomy this year.  I started chemo in April 2010 and went right into chemopause.  I was 43 at the time and having no premenopausal symptoms or anything.  I finished chemo in August. Started Tamoxifen in November.   In about November my onc suggested that I might consider ovary removal to stay menopausal.  She said that studies were showing that staying menopausal after chemo meant "better outcomes."  I had a history of uterine polyps anyhow, and with Tamox SE of uterine cancer, I opted for a complete hysterectomy in Feb 2011.  I had laporoscopic surgery, and it was really a breeze.  I have not regretted my decision.  (Although I was not concerned about trying to maintain fertility, I was done having kids and didn't need those organs for that reason).  Some people think it's too agressive and invasive and a shame to lose those organs "just in case".  For me, I just knew that having the thought in my head would create ongoing anxiety and that I would be better off reducing any of that.  I'm def not recommending it as an option/trying to talk anyone into it, just putting my story out there.

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  • jackboo09
    jackboo09 Member Posts: 920
    edited January 2012

    Hi Saralmom

    Lovely to hear from you. Our tx timeline is similar, just a year earlier for you.I did TCH starting on May 5th 2011 and finished on 19th Aug 2011. My period returned in November 2011 and I am currently taking Tamoxifen.

    Having considered everything I have decided to start Lupron injections with a view to an oop when possible.

    I was told that my reduction surgery would have to wait till I finish Herceptin which wont be until May 2012. I suppose it will be the same for the oop.

    Im grateful for your post and pleased to see that you are doing so well and so are your friends who were triple pos. Did you experience bad menopausal symptoms?

    Liz

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  • saralmom
    saralmom Member Posts: 329
    edited January 2012

    Hi Liz.  I haven't had terrible menopause symptoms.  A few bad hot flashes every day, and several warm flashes every day.  But I was having those since starting chemo anyhow.  

    I don't know too much about Lupron, so I'm not sure what the side effects are - ie menopausal symptoms...  Hope it all goes smoothly for you.

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  • PlantLover
    PlantLover Member Posts: 622
    edited January 2012

    I've had a lot of hot flashes, but I was having them during chemo because chemo stopped my periods.  I did continue getting them during the two months of Lupron.  They got a bit worse after having my ovaries out but now I seem to mostly just get them at night.  I think I'm just getting used to them and compared to some of the other side effects I've had from treatments, they're no big deal.

    Also, wanted to let you guys know that my doc had me on Tamoxifen when I was getting Lupron and continues to recommend I stay on it even though my ovaries have been removed.  He wants me on it for a total of 3 years.

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  • saralmom
    saralmom Member Posts: 329
    edited January 2012

    Plantlover - my onc has kept me on Tamoxifen as well.  I was on it before the hyst, and have stayed on it after the hyst.  She says she wants me on it for 2 years total and then I'll switch to an AI for 5 years.  So I suppose I'll switch this fall.

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  • shore1
    shore1 Member Posts: 739
    edited January 2012

    Hi, for those of you had ooph, did you initially do lupron & tamoxifen upon finishing chemo? If you went straight to the ooph, how soon after finishing chemo did you get it? I finish taxol in a few weeks & onc is recommending tamox but i know I want an ooph now or in the near future and im concerned about the timing of it all, wondering if doing just tamox will give cancer a chance before I can get the ooph. Thanks.

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  • saralmom
    saralmom Member Posts: 329
    edited January 2012

    I had my hysterctomy 5.5 months after I finished chemo.  I started Tamox 2 months after I finished chemo.  During radiation (for the 2 months post chemo) I was not on any meds.  I stayed menopausal all during my chemo and for the 5.5 months until my surgery.

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  • shore1
    shore1 Member Posts: 739
    edited January 2012

    Is there a minimum period of time after chemo ends that you have to wait to get hysterectomy? Assuming I feel good after chemo, counts are all back up, etc. , can it be done as soon as a month or two after chemo?

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  • saralmom
    saralmom Member Posts: 329
    edited January 2012

    shore1 - I don't really know about any time limits with chemo and surgery.  I do remember not being able to start chemo until at least 4 weeks after my lumpectomy.  But I don't know if it goes both ways.  

    I didn't have any real reasons for waiting 5 months.  My last chemo was in August.  And then my next onc appt was in November, and that's when she suggested ooph to me.  After that I had to see my ob/gyn, and then a different gyn who does laparoscopic hyst (mine doesn't), and then get it took some time to get it scheduled.  Just lots of appts got in the way.  (And then I had a trip planned with my husband in January and I didn't want to have the hyst until after that.)

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  • my2boys
    my2boys Member Posts: 339
    edited January 2012

    Almost 3-1/2 years out and still dancing!!!  Her2+ and ER+ here!

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  • missy_111
    missy_111 Member Posts: 141
    edited February 2012

    my2boys-  that's so great to hear!!

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  • markat
    markat Member Posts: 909
    edited February 2012

    Missy I just wanted to thank you for this thread :) It's so great to read everyone's stories while going through this.

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  • missy_111
    missy_111 Member Posts: 141
    edited February 2012

    markat - I agree!  It gives us all hope......:)

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  • missy_111
    missy_111 Member Posts: 141
    edited March 2012

    bump

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  • HopingforaCure
    HopingforaCure Member Posts: 163
    edited March 2012

    Was diagnosed 5 years ago this month.  Just had my 6 month check up with the medical oncologist.  All is good!

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  • mmm5
    mmm5 Member Posts: 1,470
    edited March 2012

    Will hit four years in 3 weeks all good

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  • sheila888
    sheila888 Member Posts: 25,634
    edited March 2012

    I'm not Node+......but next month will be 7 years  Smile

    Hugs all the Triple+ sisters.

    ♥

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  • Kraemermom
    Kraemermom Member Posts: 10
    edited March 2012

    Hi All- I'm new to this site and feeling very anxious. Had BMX 2/20/12 and will start chemo 3/15. Feeling like ER+/PR- HER2+ is not a good combo, I have a different mix than most I see posting. The ER is only 10%+ but will still do tamoxafin. Trying so hard to stay positive but I've been having a "pity party" for myself the last 3 days. I am 46yr with 5 children, husband just lost his job, losts of stress!!! Any good advice out there?

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  • jacksnana
    jacksnana Member Posts: 168
    edited March 2012

    So happy to see these posts of women a several years out.  I don't think there are a lot of us with this er+/pr-/her2+ combo.  In April it will be two years since I finished chemo and I am taking the big leap to have my port removed!! 

    Kraemermom, I don't blame you for having a pity party...you sure do have a lot going on in your life, wish I had some good advice for you.  You can always come to this site to vent, rant, or just say whatever is on your mind and in your heart.  There's always going to be encouragement and support for you here.  Just be sure to take care of yourself, which I'm sure with five kids and all that is going on, is no easy task.  Thinking of you and sending big hugs,  Veda

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