calling all back pain sufferers!
Hi All
I would like to hear from anyone who has suffered sciatica and/or related symptoms. Im hoping your input may ease my fears or push me to seek a second opinion.
I do have a long history of sciatica. I am only 41 but seem to be plagued with it. Obviously im more concerned since my IDC dx Feb 11'.
One episode 3 years ago was agonising. I crawled to the doctor's surgery and was given oramorph. Have had repeated, albeit less severe episodes since. About 8 weeks ago I was over reaching and jarred back again. Felt the familiar numbness around buttock area and it gradually worsened.
Over the last 8 weeks this problem has varied in degrees of severity. Right now its bad. On anti inflammatory and painkillers and today it feels like my mid back is locking. I have been to my doctor and oncologist. had physical exam, blood work shows normal and they don't feel it warrants a bone scan with my history. I am an anxious Annie at the best of times and would prefer not to go through a scan.
Does anybody have a similar experience? I know sciatica comes and goes but my doc said it usually takes about 6 weeks. Its been longer this time and Im wondering about bone mets now. I am still on Herceptin and 5 month in to Tamoxifen. Please help.
Liz
Comments
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I have sciatica ALL THE TIME. Chronic pain. It may have settled in since cancer arrived. It is so hard to know if our aches are connected to the cancer. If insurance will help with payment of scan and scan would make you feel better, then I say go for it. Good luck.
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If you had sciatica pre BC you can bet it will now be exacerbated by lace of hormones. I see you are hormone positive, are you on an AI.
One year post chemo (kind of where you are) I began to suffer from the worst sciatica it was horrible and I was sure I had mets in hip or back. I had scan after scan for 2 years and finally figured out how different my body was now with no hormones. The only way I have gotten releif and I have tried everything is HOT YOGA 3x per week. I started it one year ago and rarely have the pains any longer.
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I get reg bone scans every 6 months ordered by my MO.
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HI there, Please wait too long with this issue before seeing a neurologist.
I had similar bouts that became worse and worse to the point I finally couldnt walk, felt like my hip was broken, pain down the back of my leg, front of my leg and my leg lost feeling from the knee down. I ended up losing bowel control as the nerve that controls all of this was compressed.
I had emergency spinal cord decompression and a discectomy on my l4 l5. The surgery was a success, pain is 90% gone. I still do have numbness on my lower leg and no reflex as the nerve was so badly damaged. My neruologist gives me epidural injections of kenelog, a steroid that gets rid of the remaining pain.
Good luck, please seek help before this gets worse and you possibly have issues like I did. FYI , I was 44 at the time, about 2 years ago.
Bevin
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Hi to everyone who has kindly replied to my post. bgail84 so sorry to hear that you to have the misery of this complaint. I fully appreciate how relentless it is. I feel at ransom to it and kinda angry that ive come through cancer so far and yet this pain is limiting my life. Would be interested to know what treatments you have tried up to now.
mmm5 Hi there. I am still pre or peri menopausal not sure which, it appears to change! On Tamoxifen so that could be a factor. My friend has been on an Al for 6 months and she now has arthritis in her leg and actually limps- worrying!. Also interested to hear about the Hot yoga. I have tried 2 sessions of Pilates which I love. The day of the 2nd class i felt great, hardly any symptoms but a few days later itreturned. Perhaps I should persevere with these classes. I also walk regularly. You have certainley been through it with scans. That must have been awful. Did you get any answers?
Hi bevin thank you for your advice. I have an appointment with my doctor in a couple of weeks. Im going to push for further investigations. Im a bit less worried it could be mets but there is something wrong and i could be treated for it. Have you heard of bursitis?
Love and best wishes to you all
Liz
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I had sciatica down my left leg that would come on all of a sudden and be excruciating. My PC dr sent me to physical therapy for 6 wks and it helped! But since it's something that I understand comes and goes, I always wonder if it would have just gone away on its own.
That was last fall, but now I've noticed weakening in my rt leg and aching for which my oncologist has ordered a spinal MRI. Had a bone scan last summer and it came back clear--just lots of arthritis.
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Count me in. My doc is doing extensive testing by MRI. They found arthritis and osteo (expected) no mets (thank goodness), but what is really weird is they are testing again in a month with MRI and WBC blood tests for what they think might be a subclinical bone infection. Whaa?? Anyway, my take: Tamoxifen. It started in earnest when I started the medication. I haven't had real respite since. Exercise is vital, but it often makes it worse. Sleeping is rough, I wake up at least a couple of times from it.
Seems for now, barring some weird infection, not much to do about it. I may try PT.
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Hot Yoga is not advised for those who have had lymph node removal, my PT strictly forbade it. Just another person's perspective, I sure wish I could do it because I bet it would be great.
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Have you tried a chiropractor? Someone else mentioned that PT does help. I'm surprised your doctor didn't right you a script for it.
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Hi there again-
The scans never showed anything but mild arthritis, I got several opinions and most believe it was the problems we may have had all along but greatly excerbated by having a harsh drop in hormones. I have been doing hot yoga for almost 1 1/2 years and had 4 lymph nodes taken. There are several cancer survivors in my class with more nodes taken and they are all doing well. I suspect the warning has to do with Lymphadema but I would get a 2nd opinion. All of my docs, surgeon, Onc and Rheumatologist suggest yoga for these type of symptoms and the hot yoga allows you to take that stretch much further, it has literally healed by body in so many ways. You must stay very hydrated. If you have more questions PM me, but it really saved me as I was 41 at dx and the hormone suprression was really hard on me much worse than the 1 year of chemo.
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Hi mmm5
Thanks for posting again.
Update: Last night was the first time I had difficulty sleeping with pain and numbness. The pain isnt excrutiating now. If anything its the pins and needles feeling in my leg and general stiffness/achiness that bothers me more. I decided in the early hours of this morning to push my doc for a scan. he called me this morning and has requested one.
My anxiety levels are through the roof as I read about spinal cord compression and torture myself with the usual doom and gloom stuff! So i have also mad a private referral in case the NHS appointment is a long wait. The NHS scan is free of course here in Uk but im keen to be scanned this week so I can get some answers.
Going to ask about exercise and PT as I think they would help, but right now Im stuck in as its icy here in Yorkshire and I daren't risk slipping.
Talking to everyone on the board is such a comfort. Im quite down right now.
Just to reiterate if anyone can comment on my sciatica symptoms: sometimes there is improvement, more numbness than back pain, some involuntary muscle twitches, stiff and achy, pulled back 8 weeks ago, history of sciatica before my bc dx.
Love Liz
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Hi Liz--
I too have sciatica that comes and goes, had this way before BC. It first showed up in my 2nd of 3 full term pregnancies. At the time, my Ob/Gyn, who happens to be my Aunt....told me that once you have it, it will recur off and on, I guess forever. Now, when I experience it, it is not as bad as when I was pregnant. Then, I remember my right leg actually giving out on me. -
I would love to hear more about successful Bikram/hot yoga enthusiasts, because I would love to do it. But I do think it's important to recommend that anyone considering hot yoga be treated by a physical therapist familiar with lymphedema before they take the plunge.
From what I can see, there are arguments for and against online.
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