Low Vitamin D

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Went for my yearly physical last week.  My vitamin D level is a 10, normal is between 35-100. Dr stated maybe you should start taking a vit D sup, end of discussion.  Of course, I had to go online to see if there was any connection with BC.  Apparently there is research showing that woman with BC are at greater risk of cancer spreading if they have low vit D.  One study I read stated woman with low vit D have a 75% chance of the desease spreading, I have an appt next month with MO, guess I will discuss this issue with him.  Just wondering if anyone has any info regarding this issue.

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  • Omaz
    Omaz Member Posts: 5,497
    edited February 2012
    Hi Sue, I read this too and asked my onc to check, I was low as well, just under 30.  I started taking a supplement and after 3 months it came up to 33!  She said it takes nearly a year to see higher levels sometimes so I keep plugging away at it.  I am taking Carlson Vitamin D3 2000IU soft gels.  I don't know if that is the best, but that is what I am taking. 
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    I use Vit D drops, 4000 IU.  But consider that the best way to get Vit D is sunlight exposure (not too much!) 30 min a day if you can. I live in a relatively sunny part of the state so I can usually get this amount. Helps with my mood, too.

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2012

    Yes, I also go out in the sun intentionally for a while.  I have read that this is the best way to make vitamin D.  I was surprised my levels were low actually since I live in AZ and go outside a lot.  But it has to do with skin color as well, darker skin makes less vit D than lighter skin and I get tan pretty easy.

    Claire - what are the drops and how do you use them? 

  • slousha
    slousha Member Posts: 312
    edited February 2012

    At my experience, your D3 levels are really low. I‘ve had 37 and it was said BC ladies should have it 60-80. I have a sunny balcony, was taking sun bath every day at midday, without sun crème, only 15 minutes each site.In 9 months  my levels raised from 37 to 72 without medicine. Now I'm still taking 1000 units per day to retain the state in winter.

    So much my information!

    Best

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited February 2012

    Vitamin D thread with information, located under "alternative" forum:

    http://community.breastcancer.org/forum/121/topic/781084

  • suebak
    suebak Member Posts: 199
    edited February 2012

    Thank you for all of your quick responses.  I am thinking, is low vit D an indication that BC is aggressive?  Having neg nodes, I have not had any scans to determine mets.  I, like so many other early stagers, am sure this crap is going to spread.  I am driving myself crazy.  Losing 2 friends in the last month to this horrible desease does not help

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2012

    Mine was 17 after chemo.  Have been taking Vit D and trying to sit outside for 15 minutes, and walk 4 miles outside, but balancing that with having had extensive skin cancer as well.  I really did not go out in the sun at all because of this for the last 20 years and it could partially account for my low levels.  My Vit D level is now into the normal range at 35 but I am continuing to take Vit D in an effort to raise it more.

  • firstcall
    firstcall Member Posts: 499
    edited February 2012

    It is important for everyone to get Vitamin D, and especially important for those with BC.  A couple of points:  

    If you live in the northern US, you dont get much Vit D from sun exposure, even in the sun.  If the sun is not high in the sky, there is too much atmosphere and the rays won't effect vitamin D production.  There may only be 3-4 months in the northern states, when sun exposure will make any Vit D.  

     The RDA for Vit D was 400 units a day, which is the amount you need to take to prevent rickets.  A couple of years ago it was raised to 1000 units.  If you live in the northern climes, this is still not enough.  I find that it takes about 2000units a day for most people in the northern climes to have a level over 32.  

    If you have a very low level, you might consider taking 4-5000 units daily for 3-4 weeks to correct your level.  After that 2000 units a day.  You can have your level checked periodically to see that you are on track.  Getting your level up to 60 or more is a good idea.   

  • TheNancyGirl
    TheNancyGirl Member Posts: 40
    edited February 2012

    Very interesting!  I had no idea that there was a link between low vitamin d and breast cancer.  I am definitely a "low vitamin d" person.  Thanks for posting about this.

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2012

    I was told that even in AZ the sun is only high enough during the winter to stimulate vitamin D production at noon!

  • di1947
    di1947 Member Posts: 13
    edited February 2012

    When I was diagnosed with breast cancer in Oct. 2011, I was surprised because I had gotten my Vit D3 level up to 45 from a low of 25 in 2009. I take 5000 iu a day to keep my level between 40-60 and have it checked every 6 mos. It also might help protect against the SE of femara which I just started taking 2 weeks ago. So far, no aches or insomnia!

  • stage1
    stage1 Member Posts: 475
    edited February 2012

    My PCP took the blood test for vitamin D, unrelated to BC, he took it because I was getting pain in my neck and shoulders...related to bone issues, i guess.  My MO had refused to take that test on me, I don't know why. Anyway, the PCP took it, and it is 55.  I have been taking 1000iu plus what is in my multi.  I just raised it to 2000iu because of the info I have been reading.  It is interesting that the PCP took the test on me but not the MO.

  • chrissilini
    chrissilini Member Posts: 313
    edited February 2012

    I  just had my vit D checked recently after reading an article about bc and low D. I have been low and last year started taking 1000iu a day. Bloodwork last week showed my level was 15! Yikes! My pcp has me taking 2000iu a day now. Hope that helps along with some sunshine. Unfortunately in New England the sun is scarce this time of year. And if it's around, it's cold!

  • LtotheK
    LtotheK Member Posts: 2,095
    edited February 2012

    The NIH guidelines seem to indicate 40 - 60 is optimal, with rates over 60 being potentially problematic for other kinds of cancer, like pancreatic.

  • JustJean
    JustJean Member Posts: 327
    edited February 2012

    I take a 50,000 iu supplement twice a week. I have also had a couple of injections to jump start the process through my alternative physician's office.Their advice is to get it close to 80. My level runs now at about 70. This is my 4th time with bc and I want it to be my last, and if this will help, I'm all for it.

    No way you could get enough sun in NE Ohio.

  • LtotheK
    LtotheK Member Posts: 2,095
    edited February 2012

    Here is the research on rates over 60.

    The following suggests going easy on Vit D above 4000IU/day (NIH study)

    Long-term intakes above the UL increase the risk of adverse health effects [1] (Table 4). Most reports suggest a toxicity threshold for vitamin D of 10,000 to 40,000 IU/day and serum 25(OH)D levels of 500–600 nmol/L (200–240 ng/mL). While symptoms of toxicity are unlikely at daily intakes below 10,000 IU/day, the FNB pointed to emerging science from national survey data, observational studies, and clinical trials suggesting that even lower vitamin D intakes and serum 25(OH)D levels might have adverse health effects over time. The FNB concluded that serum 25(OH)D levels above approximately 125–150 nmol/L (50–60 ng/mL) should be avoided, as even lower serum levels (approximately 75–120 nmol/L or 30–48 ng/mL) are associated with increases in all-cause mortality, greater risk of cancer at some sites like the pancreas, greater risk of cardiovascular events, and more falls and fractures among the elderly. The FNB committee cited research which found that vitamin D intakes of 5,000 IU/day achieved serum 25(OH)D concentrations between 100–150 nmol/L (40–60 ng/mL), but no greater. Applying an uncertainty factor of 20% to this intake value gave a UL of 4,000 IU which the FNB applied to children aged 9 and older, with corresponding lower amounts for younger children.

  • ALittleBitBritish
    ALittleBitBritish Member Posts: 627
    edited February 2012

    Did your MO's all bring up vitamin D levels? 

    Mine has never mentioned it. 

  • JustJean
    JustJean Member Posts: 327
    edited February 2012

    I'm still shooting for 80. Can you provide a link to that study so that I can read it?

    I am also diabetic. A study come out recently that said that checking fasting blood glucose numbers in the morning didn't help you control your diabetes, but what they DIDN'T tell you is that they only let people check it twice a week and didn't let people check at any other time. Duh? How are you going to be able to possibly control your glucose levels if you don't know what they are??

    Not saying that your NIH story is false, just that I'm now a huge skeptic about these things unless I can read them myself.

  • annettek
    annettek Member Posts: 1,640
    edited February 2012

    irst my regular doc did at my exam right before i was dx....she wanted me to start supplementing it to boost it from 18...she keeps up with things beyond same old same old...I blew her off .....then I was diagnosed and the BS insisted, along with the Onc that I take massive doses to boost it (D3) - shot up in a few months to 110, now keeps steady at 70-80. There is a link....they are just trying to find define it. Same deal, all three said literally every single woman diagnosed with BC they had seen had low levels. Oddly it made me pull out my old blood work from years gone by....never under 35-40, until then.

  • suebak
    suebak Member Posts: 199
    edited February 2012

    Justjean- I am sorry, haven't figured out how to attached a link here yet.  I actually googled, low vit D and breast cancer.  The article I read is under ABC news.  I am not sure if you want to read it.  I know it scared the living hell out of me. But, I will admitt, I am in a very bad place right now.  Having horrible back, neck, and arm pain.  I have myself convinced it is cancer.  Cancer has made me crazy.

  • Kaara
    Kaara Member Posts: 3,647
    edited February 2012

    It is very important for vitamin D-3 levels to be at least 70 if you are dx with bc.  This will help to fight of a recurrence, and prevent new bc.  Nine months before I was dx, I had my levels checked and they were 27...way too low.  After supplementing they are now at 57.  I take 5,000 IU's daily and sometimes I take an extra 5,000 for a boost.

  • stage1
    stage1 Member Posts: 475
    edited February 2012

    I have been reading some cautions about too much vitamin D.  So, I am thinking these high doses, should be monitered.  I have read side effects to include cardio issues to pancreatic cancer...etc.  I say great, as long as you are tested often.  I am going to take 2000iu a day and get tested in 6 months. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    just in case no one has mentioned it yet - remember it's VITAMIN D3 we want to be taking - and if you're E+, might not want to take it if it is processed with SOY OIL.  I take one in rice bran oil.

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2012
    Sunflowers - I had to go check mine!!  The Carlson brand usessunflower oil.  Thanks for the reminder to check for soy. 
  • 37antiques
    37antiques Member Posts: 643
    edited February 2012

    Sue - Please have your PCP check your calcium and PTH levels as well.  Low vitamin D and high calcium are indicative or a parathyroid issue (not to be confused with thyroid or thyroid blood tests, completely separate).  Hyerparathyroidism can give you pain especially in the long bones - legs and arms.  If this is the case, no supplement will raise the D.  It is important to check, because it can cause a host of other problems as it goes on.  Like most things, very simple to find, but doctors just don't seem to be aware of it.

    There is a link of low D and BC, also autoimmune disorders and hyperparathyroid and thyroid issues.  I live in hope that they will start to explain this in medical schools someday.

  • stage1
    stage1 Member Posts: 475
    edited February 2012

    Check sunflower oil, I think it is also a problem for E+.  I read that somewhere????  Will someone please write a book about all this?

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2012
    OK - so sunflower, what brand are you using with the rice bran oil?
  • jgbartlett
    jgbartlett Member Posts: 112
    edited February 2012

    My Onc wants my level over 70.  It was 38 seven months ago and 48 one month ago - I'm currently taking a Calcium tablet with Vit D + 3 extra Vit D tablets. Add that to the Tamoxifen and Thyroxine (had a thyroidectomy 5 years ago due to a benign tumour), and I'm rattling every day - much like all of you ladies I expect. 'A tablet for this, and another tablet to counteract the SE of that' - the joys of it all !!

  • Thatgirl
    Thatgirl Member Posts: 276
    edited February 2012

    I just looked up a NIH study that says D is protective against pancreatic cancer. I wish I could post the link. In all the studies I've come across vitamin D helps not harms.

    If your able go on a week or weekend vacation to sunny place.. You can get over 20,000 or more in a week. The vitamin D you get from the sun does so much more for the body. If you live in a cold, dreary state, start saving now for a trip next year. 

    The info my Onco shared with me was that women who had low vit D3 survival rates were lower than those who were higher. She told me to get my levels up STAT!.  

  • LtotheK
    LtotheK Member Posts: 2,095
    edited February 2012

    Amazing how inconsistent all the feedback we get is!  My naturapath says over 60.  My oncologist says between 35 and 60, no higher, per the NIH study I posted here earlier.

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