Doctors not caring anymore.

Options

I will try to make this short. Truly. Quick History: Dx 1/1981 with AML, (Luekemia) at age 20. Symptom: Swollen Right Ankle. Tx with Adrimicyn and others I do not remember. Remission right away. Had option for BMT, (Bone Marrow Transplant). Figured, what did I have to lose, back then it was a 50/50. My brother was the doner. More Chemo and TBI, Total Body Irradiation. No GVH, rejection of the marrow. At one of my clinic visits post Transplant, I explained to my Dr. that I did not feel right, like a women, you know. His response, "well you are now damaged goods"!! I will never ever forget that. I felt the need to let that out. In any case 2001 I had to treat with pegintron for HEPC I got from all the blood transfusions in 1981. Thankfully, cleared that. March of 2007 my husband felt a lump. October 2007- the news BC!! I thought I had my share with AML back in 1981. Oh well, did Toxatere + Carboplatin x 4. Had both breat removed with exp/silicone. No Rads for me because of all the Rads I had for my BMT in 1981.Muga scan came back low, (heart damage from Adrimicyn in 1981). HER2+++, so no Herceptin for me. I have been so overwhelmed this past year I can't begin to describe. Now in Therapy. She says it is PTSD. I mention what has been going on to my Doctors and I really feel like they do not even care. My recent Neuro Dr. kind of just dropped me. I mentioned other Dr.'s and recent happenings and He is like. Dr...., I am like yes, the BS!! It is all in my chart. That was just one. Even My Onc. He new from the get go in 2007 with my BC Dx that my Muga Scan came back not good. He even said back then b-4 my tx stared that he would set me up w/Cardio Dr. Never happened. I just recently saw my BS, LOVE, Love her! She gave me the name. I will see that Cardio Dr. Tuesday. I also pushed my Gastro Dr. to to another CT Scan of Chest, Ab & Pelvis, (tomorrow am), to compare to May 2011 that indicated Fatty Liver and 2mm Pulmonary Nodule in my lower right lung. I also have low B12 and recently Vitamin D, level 6!!!! Onc. take 5,000 units a day. You don't go in the sun. I havn't been in the sun since 1981!! I would really love to know what caused this low D. Just venting. Sorry to all. Anyone feel this way? I just feel so done. In my gut, you know. Just so done. I am 51 and felt better when I was doing the BC Tx. I am so exhausted, I feel muscle wasting, overwhelmed. Burnt out. Again, thank you. 

Comments

  • Stormynyte
    Stormynyte Member Posts: 650
    edited January 2012

    I am soo sorry. I can't even begin to understand how you must be feeling, but if you need someone to just listen, to yell at or cry on or anything else..send me a PM. 

  • westiesmom
    westiesmom Member Posts: 62
    edited January 2012

    Thank you. I just might do that.

  • dawny
    dawny Member Posts: 1,126
    edited February 2012

    Well, Gee Whizz westiesmom, you have been thru a lot!!  Since it has been a few week since you posted, I hope some thing have been sorted out, and u are feeling a little better?   Pls post and let us know how you are getting on..

    Dawn

  • Racy
    Racy Member Posts: 2,651
    edited February 2012

    Hi westiesmom, I just saw this post now. I hope the therapy is helping you.



    I know how important it is to have empathetic doctors. I was browsing the resources on this site a few days ago and came across some interesting tips on building good relationships with your doctors. I can't post a link as I am typing on my phone but it was the subject of an Ask the Expert conference a few years ago. You can hopefully find it via the menu on the home page.



    If all else fails, maybe you need to think about changing doctors, especially those you will continue to see a lot.



    Good luck and good health.



  • Racy
    Racy Member Posts: 2,651
    edited February 2012

    Westiesmom,the Ask the Expert Conference that I referred to in my previous post is from February 2003 and titled The Doctor-Patient Relationship, so you can search for it.

  • Angelfalls
    Angelfalls Member Posts: 849
    edited February 2012

    I'm so sorry to hear of everything you've been through. I must have missed your message when it was first posted, but I'm glad you've come to the boards for the support you need right now. I don't have any information or advice for you, but just wanted to send hugs and positive energy to you. Take care and keep on posting, Angelfalls xx

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