confused er/pr negative aromicin

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goldieloks
goldieloks Member Posts: 6
edited June 2014 in Triple-Negative Breast Cancer

I had 2 lumpectomys and radiation for high grade dcis. The oncologist put me on aromicin to protect the other breast.I was and still am very confused for everything  i have read states that no meds can help estrogen negative women.When i told the onc.she stated that there is a possiblaty that it can hep prevent a reaccurance.I have osteopena which makes me even more afraid to take a drug that does nothing so i decided to go to memorial sloan kettering for a 2nd oppinion and they said they put all women no matter there hormone status on meds.Even with 2 oppinions i am still not convinced meds are going to help.I am wondering if anyone else is taking hormones being triple negative.I would appreciate any information you could give me.

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  • Luah
    Luah Member Posts: 1,541
    edited February 2012

    Goldie: I'm not on any hormone therapy and I don't know of any TN women here who are - unless they are weakly ER+. Is that the case with you?

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  • TifJ
    TifJ Member Posts: 1,568
    edited February 2012

    Goldie- I am triple negative with 3% ER+ and I am not on any meds.

    Luah- is anyone on the TNS thread taking anything? I can't think of anyone.

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  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Not I! 

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  • Morgan513
    Morgan513 Member Posts: 664
    edited February 2012

    I'm not either.  I wonder if this is something I should talk to my MO about when I see him again?  

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  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2012

    My understanding has been that any triple negative with any positivity whatsoever, would have the choice of either taking a hormonal, or not.  Alot of onc insist that you do as it is yet another means to thwart a recurrence.  I do not know of any stats offhand supporting that, but I do know of many other gals with very low estogen (1-5%) that do take them.  Unfortunately for me, I was triple "0" on everything -est. prog and Her, so it was just my initial treatment and nothing else.  Wishing you all the best,

    Linda

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  • Luah
    Luah Member Posts: 1,541
    edited February 2012

    If your tumour showed zero receptivity to estrogen (as mine did), I can't think of any reason to take any meds and suffer the related SEs that some women do. Makes no sense at all. Goldie, Morgan, you might want to check your path report to see if you were weakly positive as that would be a different case - and your onc could advise whether it was worth doing or not. 

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  • christina1961
    christina1961 Member Posts: 736
    edited February 2012

    I will be taking tamoxifen but my tumor tested positive for 5-10% estrogen receptors with moderate staining intensity.

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  • TifJ
    TifJ Member Posts: 1,568
    edited February 2012

    My onc told me the side effects were not worth the benefit-as it would really do me no good.

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  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Linda..I was also a triple "o"...almost...HER was 1-2%.....but really ladies..being HER negative is NOT a bad thing..but we aren't discussing that here..oops

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  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2012

    Titan,

    You know it's funny that I turned out to be triple neg with NO readings whatsoever on all three receptors as I had the worse, and I mean worse menopause that one can imagine.  Even my male gyno at the time felt sorry for me.  However, I did refuse any hormones or combos of same that he offered me to help with all the sweating, hot flashes, etc.  It lasted FOREVER.  I began my menopause at about 52 and it never, ever let up at all until about the time I was diagnosed with cancer.  I still from time to time experience some hot flashes, but nothing like in my 50's.  With all those side-effects of menopause, I would have certainly thought my estrogen levels were off the wall - but here I am with NO estogen, No progesterone and no HER-2 staining at all!  Go figure.

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