Aging Parents Anonymous

Options
17810121318

Comments

  • Leah_S
    Leah_S Member Posts: 8,458
    edited February 2012

    Otter, I'm so sorry to hear this sad news. I'm glad you have your family with you, and that your father's end was peaceful.

    May G-d send you comfort.

    Leah

  • sam52
    sam52 Member Posts: 950
    edited February 2012

    Otter....so sorry to read your news. My heart goes out to you.I guess in some ways it was better that your dad did not linger in that state - but still a shock to all those left behind.

    Sam x

  • althea
    althea Member Posts: 1,595
    edited February 2012

    otter, I'm so sorry to hear your news.  Words are so inadequate.  {{{{{{{{{more hugs}}}}}}}}}}

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Oh Otter, like the others here, my heart really goes out to you. Wonder if that was why you were on my mind so much? It is good that he didn't linger in that state, but can only imagine the void you feel. So, so sorry. Sending hugs and prayers too. (((HUGS)))

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited February 2012

    Otter,

    So sorry to hear about your Dad. A hard thing no doubt, but I am glad that they fact that he passed peacefully, surrounded by family gives you some comfort.

    *susan* 

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    Otter....my condolences on the passing of your father...I hope your memories will bring you peace....Karen

  • beergirl
    beergirl Member Posts: 334
    edited February 2012

    Otter, I am so sorry. No words are enough. Be glad you had him as long as you did. Be glad he had hospice care. I wish someone had told me to get hospice for my dad, even though he died peacefully and was talking to me right up until the last five breaths. I still catch myself thinking " I'll call my dad and ask him ." I am sure you will have moments like this too. I still tear up even though it has been almost ten years.

    My heart is with you. Much love, my friend.

  • JFV
    JFV Member Posts: 795
    edited February 2012

    Otter wishing you peace of spirit at this terrible time.

    Joan 

  • artsee
    artsee Member Posts: 1,576
    edited February 2012

    Otter...You have my sincere sympathy in the passing of your father.

    He has entered a new beginning of a new life. A better one by far......thinking of you...always.

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    more worried about my parents than I have been up to now....got a knot in my stomach just thinking about it....I'm going to visit them over the coming long week-end....I leave on a red eye late wedensday night/thursday morning, getting into Florida around 9:30 am Thursday and I'm there till Monday....Dad is becoming incontinent again (poop)...Mom is depressed and in denial about the depressiona and dad....mom just says she has too much on her plate.....I see Mom as worn out...She called me today to tell me that her downstairs neighbor just told Mom that her husband has althzeimers and was asking Mom for info on where Dad goes....Mom goes, "its so scary, everytime I turn around I hear about someone else"....they live in a retirement community...don't know how to address Mom when she says this.....She won't look at placing Dad and says he's not ready for it yet....but she hates being a caretaker and doesn't want anyone coming into the house....Dad is bored and wants to go on a vacation...on a cruise...Mom wants to come to Denver for Passover, but wants me to make the decision if they should come when I'm there...I so want them, but I think it may be too much for Mom, but she says she can handle it, but wait till I see Dad...Its a tangled web!!!   Dealing with my folks is a distraction for me from dealing with my issues!!!!  Well....I have lots to do today....need to get lots done in the house, for work and for the trip and only 3 days to do it all.....so best get my sorry behind off the computer and get busy....

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Karen, I am SO glad you will be with your parents soon. I am sure your mom will feel so much relief while you are there and can help out, plus make decisions, etc. Can hardly belive this time has come already...when you first mentioned seeing them in Feb, it seemed so far away. Do you mean your mom wants you to help them decide whether or not to come to Denver for Passover? It seems like that would be very hard for them to fly there by themselves, since he is incontinent again and I guess also confused. I could see it more, if they flew with you, but that would mean another trip there for you, both ways. Boy, it sure gets confusing when our parents need our help, but are far away. Thank God you will get to see them soon! My parents return here on the 27th, so that is why I am trying to get my surgeries out of the way. But having 2 procedures this past week was pretty hard on me. I still have a low-grade fever and had another scare today, but now I think it will be okay. Whenver I have medical probs, I worry about my parents and if I was unable to help them while they are here.

    Hang in there, Karen! You are doing the best you can, and I know your parents appreciate all the help you give them. Hoping your visit will be a good one! Keep us posted on everything, ok?

    Hugsssssss,

    Kathy

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    Kathy....hope your feeling better......I off to the airport in about 1 1/2 hours.....will let you know how things go when I'm in Florida....made a few phone calls to doctors today, but don't feel any farther ahead of the game.....Mom's counselor is really pushing for Mom to look at places for Dad....wants me to take Mom to see the place she thinks would be good and to arrange for an eval of Dad by the facility......Mom just isn't there...Today Dad said he didn't want to go back to the day care program and Mom said she might not send him for a month....I asked what she would do with no time for her and Mom says, I can leave Dad.......Wow!!!!!  already thinking when I can go again!!!!!  Thanks for all your support....

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Thanks Karen, This morning I finally felt normal again...yay! (But still on antib's and having to have clear liquid diet....not fun!). Talked to my mom and told her I got tix to take her to a funny musical (Motherhood the Musical) in March, and she was excited. Also said she might want to go to more art classes, so I am really hoping she will be able to do things like that! They get here on the 27th.

    SAFE travels overnight! I was just thinking.....if the counselor is trying to get your mom to place your dad in a facility and your mom is not liking the idea, THEN do you think she might reconsider having someone come in to help out? If she realized she HAS to do something, maybe you will be able to help her figure out what she and your dad would be happiest with. Just a thought. Hope your trip goes well, and you will be able to help her make some decisions!! And enjoy your time with them, and give them some hugs from us!

    Hugsssss,

    Kathy

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    Kathy.....at the airport...its 10:45 and my flight is at 12:59 so got a lot of time till I board....was hoping to get a glass of wine but didn't see anywhere in the airport....oh well...guess that will save my liver!!!!

    Mom told me the other week that she doesn't want anyone coming into the home!!!!

    Looking forward to seeing them, but in a way quite stressed....was really up tight before I left....

    Mom didn't make any plans for Th or F.  Saturday night they have tickets to a play at their clubhouse and they got an extra one for me...we will eat at the clubhouse before the play.  They have tickets for something Friday night and I'm really okay if they go, but Mom decided she rather stay home....not sure if its just me or if she realizes that going out two nights in a row is too much.

    Glad to hear you are feeling better :) 

    Hugs...Karen

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Hope you are now safely at your parents house, Karen! (And glad your mom prolly let YOU drive!). The play and dinner out Sat night sounds like fun! Yeah, I knew your mom didn't want anyone in their home, but I just wonder which option she would prefer...having your dad placed somewhere, or have someone come in? Hard decision, and hoping she will let you help her make that decision, so it will be easier on her in the long run. Enjoy them while you are there! Hope the weather will be nice too, that will be a bonus!!!

    Hugsssss,

    Kathy

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    Good day with my folks...but I can see how much Mom has aged in the past year....she just can't do what she used to do.....going to the airport (but I drove back) and to the grocery store wore her out....she was talking about it being a long day....yes I need to remember that she isn't as young as she used to be...and we did go to 2 stores.....I think I have a handle of what Mom needs and how to better support her emotionally....that is a lot of the problem...She made a couple statements today that really shed some more light on the picture.....I think that Dad is okay at home for now.....but his memory is NOT good and neither is his attention span....Mom had concert tickets for tomorrow night....she tried to sell them, but no luck....I talked her into going....She decided she would go, but leave Dad home...I commended her for this....SO....I think I'm going to be "therapist" daughter....not in the real sense, but I think I know how to respond....regards to Passover and coming to Denver...first Mom said No earlier today, then tonight was asking me and leaning to Yes....so i said to her....Mom what happens if he has an accident in the airport....that would be awful for her...I told Mom that when she is planning things, she needs to think about scenarios...like if Dad has an accident and how that would affect her enjoyment of whatever.....She doesn't talk to her friends about any of it....When Dad is home, he really doesn't do much but just sit....and doze off....that frustrates Mom so much....but Dad was never high energy or mr social butterfly....and always liked being taken care of.....so now he's the same person, but older, with physical limitations and dimentia......But most importantly, Mom needs support......Will see what tomorrow brings......

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Karen, Sounds like you have a good assesment of things. Esp telling your mom that she needs to think about scenarios before planning events. Prolly hard for her to accept this, but it is a fact, and by you mentioning those things to her, will help her realize it. Too bad she doesn't have anyone else to talk to except counselor, and you, but you are being a BIG help!!! WIth my parents, since they are in their 90's, most of their friends have passed, so they only have much younger friends, and no one is in a similar situation. So I feel like you in a way, because I try to explain things to them and help them realize their limitations. EXCEPT they keep doing too many things! My mom is so anxious for them to get here (about 10 days), but then worries about having to go back. And I think my sister bought them tickets to something or other that my mom said would make them have to return sooner.....my answer...give the tickets back to her and let her use them! LOL. Because the sister DOES NOT help them at all...expects them to do things for her, and is an hr away. Hoping my dad will let my mom stay as long as she wants, this time.

    I wish you could go to the concert with your mom, and have someone come in to watch your dad. Is that a possibility? Even a neighbor, just for an evening? OR is there someone she knows that would want to go with her? Hope today goes well!!!

    Kath

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    Different day, different tune....now mom is saying, I want to place dad!!! when I say we could have gone to look at places....lots of excuses.....and that her counselor will help her find places......I said Dad needs to be evaluated....Mom says he's been....and I said, no the residence does the evaluations......so frustrated today, feeling like I was before in a way......Too hard to try to explain it all in writing......but long story short, Mom is tired of being a care-taker......don't blame her.....she is just so "wishy-washy" with feelings/making decision etc that it confuses her and adds to her stress level.....WEll....don't want to stay on the computer too long....its after 11 and we're supposed to go to the pool....to me the day is 1/2 over (even though I didn't get up early cuz of time change) and haven't done anything yet.......Kathy thanks for all your support.

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Karen, are you leaving on Monday? IF SO, is there anyway you can get to a facility and have him evaluated tomorrow? Sounds like your mom just needs someone to say "This is what we have to do". She does not want to make "that" decision, but seems like she realizes that is what is needed. I am so sorry for all your frustration, and I am not there yet, so only living it thru you. If you can't get him evaluated while you are there, perhaps you can set up an appt, and the counselor can go with them? I hope someone could go with them, to help support your mom and let her know she is doing what is best. Best of luck! We are ALL here to support each other, and I am so glad Althea started this thread. I am sure I will have more questions, and need more support once my parents get here too. Hang in there, and do what you can, as everything you do is helping them!

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    Working with Mom to get Dad evaluated...probably can't get anything done this week-end......Dad had an accident at the pool (though not in the pool)....but Mom ended up having to clean up a mess in the bathroom at the pool from Dad.....Mom realizes now that flying to Denver is not realistic as if Dad has an accident at the airport or on the plane she would be devastated.....

    I keep telling her that she needs to go look at the places and have them do an eval to see what type care Dad needs.....she's moving in that direction...but slowly......she tells her counselor, I'll see what Karen says....she tells me, I'll ask my counselor......

    I'm thinking that Dad needs assistive living, not nursing care....but I really don't know what that means for these facilities....The head of social services from the place Mom's counselor told me to call, called today....she has 14 assistive living beds and they are all full......she told me to call another place and then also gave me a name of an agency that does this type of thing....she asked me a few questions about dad and seemed to think he needs assistive living, but her place is always full!!!!!  So I will look into the other 2 places or get Mom to.....Mom seems to think that these places always have openings as people keep leaving!!!!!  Still haven't gotten back with psychiatrist as don't want to play phone tag...will also email counselor after the week-end when I can give her a more complete update.....This week-end so far has been a learning experience for me......getting a better picture on things.....but then again, a lot of uncertainty!!!!  The saga continues!!!

  • althea
    althea Member Posts: 1,595
    edited February 2012

    Hi Karen, I really feel for you and your situation.  It's good that your mom has a counselor.  Assisted living sounds like a good option.  Are there any resources you can tap within your parents' retirement community?  Are there any friends who have care providers they can recommend?  I also wonder if there's a hotel near to where they live that might have shuttle service to the airport.  The closer to home your mom drives, probably the better.   I also wonder if there's a place where your dad could stay for a few days while your mom travels to see you in CO?  Maybe you could find out the procedures for getting on a waiting list for an assisted living provider that you like.  Good luck and keep us posted. 

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    My visit with my folks has come to an end....not sure that I am any ahead of the game that before I got here, but it has been nice to be with them....Dad doesn't have much interest in anything...he's quiet and really doesn't interact with anyone....but he is glad that I'm here....Mom stresses and worries about more than she needs to....and she needs to learn to give up control of things....and she keeps changing her mind about what she wants.....in itself its not a problem, except I think it is adding to her stress.... I talked to my parents PCP today (they have the same one)....he doesn't seem to think that Dad needs placing at this time, but feels Mom needs help...he says that no one can do it 24/7/365...I think we are on the same page...the trouble is getting Mom to act on it....it is all very difficult being across the country....had a good talk with Mom tonight....said she needs help and Mom says, she has a cleaning lady every 2 weeks!!!! tried to give her examples of where she could have help.....but doubt she will do anything.....and one minute she's not going anywhere with Dad, another its, well, I'll try this and just be prepared!!!!

    Althea...Mom doesn't talk to any of her "friends"...so its me, her counselor and any of the docs.....she just needs to utilize the resources....I may fly direct next trip and just tell Mom that I'm taking the shuttle...she let me drive home from the airport and will let me drive to the airport tomorrow morning...but I will have to keep reminding her that she goes south to go home!!!!  Mom keeps "threatening" to place Dad so she can go away, but she hasn't done anything to look into it....I think there is a lot of guilt...but not sure why.....

    I am going to write Mom's counselor tomorrow, but want to plan out what I want to say....its a slow process....just hope that Mom hangs in there and doesn't collapse from exhaustion.....but I know she feels good when I'm here.....but unfortunately, I probably can't come again till after school is out in June.....

    Thanks everyone for all your support...it means the world to me....

  • GabbyCal
    GabbyCal Member Posts: 277
    edited February 2012

    Karen - You're doing all the right things in researching he help your parents need. It is so understandably difficult for them when the whole world they know and love changes. We've helped my own parents and my DH's parents navigate through the whole declining health/abilities thing. We found it's more an evolution than a one-step process.

    There are agencies that specialize in providing care-givers who will come to your home to help. Even though there was resistance at the start, our parents warmed to the people and appreciated the help once it was there. Their PCP should be able to provide a list of quality services. Eventually your Dad may need to move to an assisted living or other facility. Can you get him on the waiting list for the place that is full now but in their community? 

    I'd give their PCP's opinion the most credibility. Take things one step at a time. Sounds like Mom might be getting too isolated. If you bring in some help, she could get out to recharge her energy which in the long run will help your Dad too as she'll be better able to help him.

    Bringing in help is something you can do now to buy some time to sort through Dad's needs and options.

    Peace, strength and courage to you. 

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Good advice GabbyCal, I am learning all this too, even though my parents are in their 90's (dad is 95), haven't had to face this yet. But I know the time will soon be here for all of this. They fly back here next Monday, so I will see in person how they are doing.

    Karen, Safe travels today. I know it was hard saying goodbye to your parents. Very glad you were able to be there though!

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2012

    I'm home....Overall it was a nice visit with my folks....Mom and I talked on the way to the airport and again when i got home....She is just so scared of what the future holds....She said to me, "I know I aggrevate you with constantly changing my mind"....no she doesn't aggrevate me with it, its just that I see it stressing her out....Its one small step at a time for her...one of their friends commented to Mom today that he tried to make small talk with Dad Saturday night and Dad didn't want to talk....and Mom said, I guess people are starting to notice a difference in him....I worry about Mom and kept telling her last night and this morning that she needs to get help...but she has trouble seeing the whole picture.....its like, giving up one thing won't help!!  I told Mom that she needs to give up  some of the control....that maybe help in the home can be good as maybe they could take Dad to the pool instead of her, or take him for a haircut or whatever....Mom has done so mahy things for so many years....she has always done everything...but now she struggles with all the doctor appts and she doesn't like getting old....its just all the little things adding up.....I have no guilt in doing whats best for my folks...if Dad needs to be placed...I want whatever is best for Mom and Dad.....there are days Mom wants Dad placed and others she says he's not ready for it.....I think that placing Dad scares Mom....her life is changing so much....She wants to come visit me in Denver, but traveling with Dad might not be realistic anymore...they have always gone on cruises and that also may not be viable...Dad is sometimes incontinent...and guess who has the job of cleaning him up???  Well...I rambling....I so appreciate the comments/insights today  from Jo-5 and GabbyGall along with Wahine....As I said earlier its so nice to have you gals to vent to and get feedback....I wish Mom felt she had a support like this....Hoping she will go to a support group...but then again, I know I didn't like in person support groups......Hugs....

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    JO-5, Excellent advice. Thank you so much for sharing what you went through, and those words of wisdom. I am so sorry you have lost both of your parents. You sure were there for them, and did so much, out of love. I am taking all of this in, as I will be doing this someday. My mom was always sweet, and as she has a lot of forgetfulness now, she is so grateful and cheerful. My dad gets cranky, but that is how he always was, so you hit that right on the head. THANK YOU so much for your post, it is advice I am going to remember. HUGS to you!

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Karen, Just saw your post. Glad you arrived home safely!! Does your mom use the computer? My parents do, and I wondered if your mom does, if she would want to be part of an online support group? OR if you printed out some things for her that others in her situation have said? Well, I am still pulling at straws, just trying to think of something. I think JO-5's words mean a lot more, as she has been there, and has such good advice for all of us. Hugs to you too!!!!! Hoping your mom will be able to accept some help soon!

  • althea
    althea Member Posts: 1,595
    edited February 2012

    karen, so glad you're back home and were able to visit your parents this month.  Just having time to spend with them brings a lot of benefit to them, and to your relationship with them. 

    Gabbycal and jo-5, thank you for joining the thread.  

    My mom has had a bit of a rough patch lately with loss of appetite, more than usual, and more fatigue.  It came on with an increase in digoxin recommended by her heart doc.  I've since scaled back to her previous dose, and she's doing better, but the matter will be discussed again at her next visit.  

    One thing I'd really like to see for her is someone to come to the house and create an exercise routine that she could manage.  Last year I asked the nurse practitioner at the heart clinic for physical therapy, and she said mom doesn't have a qualifying dx for that.  ???  She's a heart patient with a paceemaker who doesn't exercise.  Maybe physical therapy isn't the right thing to request, but surely there's services that help elderly people find suitable exercises.... aren't there?  Sure could use some help on this one if anyone has a clue to share.  

  • wahine
    wahine Member Posts: 8,231
    edited February 2012

    Good post JO-5! Yes, it does sound ideal to have both parents together in a facility, but I know mine would not go for that. Even though my dad is 95, I can't see him wanting to go anywhere like that. So far I am lucky though, as they are still living on their own. Prolly for my parents the thing would be for someone to come in and help out (or me while they are here). I love all your advice though, and I am tucking that info back into a corner of my brain for when I need it. Thank you so much for sharing your experiences!

    Althea, Oh shoot I hate hearing that your mom had a setback with that med. Hope her dr will agree that the lower dose better suits her. Hmmmmm as for exercize, one thing came to mind and that would be a senior center. I think ours has exercizes for seniors, even those in wheelchairs or not able to move around much. Wonder if you have access to a senior center and can sit in on a class? OR maybe a senior center might know how to advise you on getting exercizes for your mom. Would be great if someone could come in! But if not, would she do them on her own if you were to show her some that she could do? I know that isn't any help, so hoping someone else will chime in!

    My parents arrive here on Monday, and I was surprised my mom remembered a used decorative chest she bought before she left here at the end of Nov, which needs a lot of work. She actually remembered it, and is anxious to work on it! Boy I hope I can do things like that when I am in my 90's! The chest has a marble top that had a large chunk missing from the corner, so I used bondo and filled it in and painted it, as it is so heavy I didn't really want her to have to do that part too. Went to their house to clean today....got half done,  Can't wait to see them.

    Oops, thunder storms just started,so I better get off the computer. Best to you all, and Althea, I hope someone has some advice for your mom!!!! (((Althea)))

    Best to all you gals!

    Kathy

  • wahine
    wahine Member Posts: 8,231
    edited March 2012

    Haven't heard from you galz for awhile, and I do hope everyone is doing well! My parents have been here for a couple of weeks, so I have been quite busy with them. Had a partial talk with my dad about end of life wishes, etc. But there were some decisions he was unsure of. SO I got on the AARP site today http://www.aarp.org/relationships/caregiving-resource-center/info-11-2010/lfm_living_will_and_health_care_power_of_attorney.print.html  and printed this out, plus was able to print out the advance directives for both states. I thought if something happened to them while they are here in AL, I should have some directive to go by, too. Anxious to hear how you all are doing!

    Hugsssssss,

    Kathy

Categories