I need help-got the dreaded call yesterday

Sorry that you are going through this ( Is your doctor ordering a bone scan as well? Sometimes PET scans show some uptake on the bones that turn out to be benign or positive after a bone scan.

Hi Formy:

 I had a bone scan yesterday....showed 2 ribs that look off, so I am having an abdominal CT Monday.  Oddly my tumor markers are fine....so who knows, but damn, not the day that I was hoping to have either.  I will be thinking of you.

Mimi

formygirls,  I'm sorry, but I don't know the answer to your question.  It seems like it would be a possibility.  I hope you are able to get your scan results soon and that the results are NOT mets.  In the meantime, my thoughts are with you.  I hope you can "speak with someone" as you mentioned you want to do.  My oncologist had a someone for me to talk to, perhaps yours does, too.  This is so hard, and so much to deal with.  I wish I could take this away from you.  Hugs, G.

So sorry to hear you are going through this. I hope that the scans prove your onc wrong. But if not, don't give up hope. There are many women who have a good long run at stage IV, some even getting back to NED with treatment. Crossing everything for you and sending strength and positive energy to get you through the days ahead, Angelfalls xx

Hanging in there with you.

Love n hugs.  Chrissy

How I wish I were with you to give you a giant hug, hold your hand.....   I'm sending you courage, strength and hope through cyberworld instead.   With a heavy heart tonight, G.

Hang in there baby...I have mets pretty much all over but all are tiny sprinkles with only a couple of measurable (still tiny) spots.  No large tumors so treatment is very effective and there are soooo many that I acheived stable with bone mets for 4 months when a microburst exploded in my abdominal cavity, digging in to the abdominal wall and now it is pretty much everywhere in a spot here on the liver, a spot on the lung and the bone mets has sprinkled itself all over. 

Abraxane did not work so I am on Xeloda/Avastin/Xgeva/Aresep and xanan, percocets and effexsor - my tumor markers are dropping and may be headed back to stable again.  This is 2 1/2 years after the first dx of bone mets.  Don't put yourself in the grave - I did that too and found that I really DID have the strength - you will too, I promise...keep coming back and the uplifting and support you will get from here will infect you through and through before you know it and you will be captaining you own ship and guiding your own care and become very outspoken about what you want and not just following what the onc's say. 

So sorry this is happenig to you but we are here and use us up!

Many hugs...

LowRider

 Take the time to process the news-it always seems the worst right after you hear it. I am so sorry this has happened to you.

  There are lots of treatment options-some easier than others-but they will find something that will help you get going in the right direction. You don't have a choice-your girls need you. You WILL be able to do this. Ther are lots of help and support in the Stage IV threads. Someon over there always has an answer for whatever is bugging you. they have been a huge help to me.

Oh no. I am so sorry to hear this. Take heart from these ladies who have been there. Sending you hugs and prayers and good thoughts.

FMG: I really really feel for you. It's so hard to stay positive with so much uncertainty around you. I hope whatever treatment plan is put in place for you brings you to NED, as has happened for so many on these boards. I went in for my 3-weekly Herceptin yesterday and asked to see whoever was covering Oncology, as last week my RO, looking at my latest scan, had said "Either its inflammation from infection, or it's cancer." And she didn't seem convinced it was inflammation... DH and I cried all the way home. Anyway, back to yesterday. Nurse called into Oncology while I was in infusion, was told, of course you can go and see someone. PA came out and talked to me, offered to give me my report. Disappeared for a long time and then reappeared and asked me to come into the office. She basically said she could see why the RO had said what she had. She wouldn't discuss it further, but told me my onc would be in shortly. Deep breath. Read report. See "results concerning for metastases of the thorax" on the report. Stop breathing. Deep breath. Finally the onc came in and took 45 mins to go through the report with me, explaining that the radiologists reading the film didn't know I'd had radiation. After talking with them, all were in agreement changes seen in my lung could have been caused by the radiation. Especially as there is no sign of any speck of cancer anywhere else, and there aren't a bunch of nodules growing in my lung. So we'll rescan at the end of February. He said radiation changes can last for months. Then he said, "Even if the worst case scenario occurred," we have tons of treatments for you. It just shows me how hard it is to work in this field - so many different variables. Anyway, I got another prescription for Ativan, and I intend to use it. This is all so hard for us.

Formygirls, I'm sorry that you got bad news, it sucks.  I'm glad you went over to the stage IV boards.  We are in this together and will always be here for you.  I know it's alot to process.  I was diagnosed with mets in May after 7 1/2 years out.  It turned my world upside down.  You don't have to be strong everyday.  You can be angry, sad all you want.  It's a grieving process, I'm just starting now to get my head around this.  Once you have your treatment plan in place you can move forward. And you will get through this, because that's all we can do.  I have liver and bone mets and still there is hope. I'm thinking of you this weekend, try not to dwell on morbid thoughts as hard as I know it is.  Good luck to you and keep coming back.  You will get lots of info from the stage IV gals and most of all remember that we are always here for you. 

formygirls, I'm sorry for your news.  Having mets isn't so bad.  At first the news is devastating but it can be treated and you can live a fairly normal life with cancer mets.  I was originally diagnosed March, 1999 at Stage IIA. Four years later to the exact same month, I found a lump under my other arm and found out that it was bc and it had spread to my lungs. It was devastating but I figured I would just fight. Three months later I found out it had spread all over my bones, which would explain the terrible back pain I was having. It's been nine years that I've been stage IV and at this point my cancer is in my lungs, liver bones and skin.  My tumors are still small and I still fight every day to live my life. I've been unable to have children because of this but my bff has three kids I adore and love like my own. They are the reason I fight. I want to see them grow up as much as possible.  Yes there are days I lay on the couch crying cuz chemo made me feel like crap again but then I think of all of the things I still want to do in my life and I keep on fighting. I help other newly diagnosed women with mets too.  You can do this. Be positive. Your attitude means alot during your fight and is very important. If you need to talk, please feel free to contact me.  Good luck and blessings to you and your family!!!

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