But I don't want to have a bone scan!!

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Ok,

 So I know we have all been here, but for the last week and a half or so, I have this nagging dull ache under my ribs on my back.....and so now I have to have bloodwork and a bone scan.....and I just want to barf....except I am at work and that would freak everyone out.  I don't have night sweats,( other than the tamoxifen ones) I don't have weight loss (although it would be nice to have some benefit from all the diet and exercise that I have been doing) and it doesn't hurt at night and I have recently increased my activity.....but I am a therapist and know what muscle aches feel like and this is just different, and not getting better.....so I am freaking out.  I am now taking a deep breath and doing my best not to panic.

Thank you for letting me get that off my chest (so to speak)

Mimi 

Comments

  • alison34
    alison34 Member Posts: 138
    edited January 2012

    hi

    i am feeling the same as you at the moment so your not on your own

    i have to have scan of pelvis abdo and chest dut to a enlarged intremammary node

    its horrible the waiting and your mind goes into overdrive

    good luck my thoughts are with you

    alison

  • BlueCowgirl
    BlueCowgirl Member Posts: 667
    edited January 2012
    Mimi,
    Best wishes to you...I just experienced the same "scan and wait" due to unexplained pain. Here's hoping your pain is as benign as mine was. 
  • reesie
    reesie Member Posts: 2,078
    edited January 2012

    Mimi,



    It's a good thing you're getting checked BUT it's an even better thing that you don't have pain at night.



    Although it's possible to have mets without pain - usually the pain doesn't go away when you do have it. So you would still feel it at night. As a matter of fact most of the time bone mets pai is worse at rest.



    Of course, I do say usually and most. So there is always that qualifier. Good Luck.

  • mimi791
    mimi791 Member Posts: 92
    edited January 2012

    Well, they did the blood work and the scan is scheduled for next Wednesday morning. Ugh.

  • sbaaronson
    sbaaronson Member Posts: 230
    edited January 2012

    I have been having hip pain, so I am headed for the bone scan too! It is un-nerving. Frankly, I am running out of steam on this BC stuff. I can't believe this is what we are in for the long haul... I vaguely remember my life before I had to consider every ache and pain. Sorry to be such a bummer. Today wasn't a good post-bc treament day.

  • mimi791
    mimi791 Member Posts: 92
    edited January 2012

    Hi Sb....some days just aren't good days and that's the truth of it.  I just got my port out 3 weeks ago after leaving it in for an extra year "just in case" and now this piled on top of a new job that I really like.  Just when you think you are moving on, you move back a bit.  I know that panicking is silly and yet there I am.....panicking.  The one good thing is that today I feel oddly better for having gotten everything going to get checked out.  Hang in there...we can hang in together!

  • sbaaronson
    sbaaronson Member Posts: 230
    edited January 2012

    I will say, the bad days are coming farther and farther apart now. I did cry last night, but the truth is I don't remember the last time I let myself... I know in my heart we have to press on into this new normal and even as I put one foot in front of the other, I am conscious that I will never be who I was again. It's surreal. So, I am having my bone scan on Wednesday. Hoping there is not, yet another, fork in the road! I'll keep you posted! Thanks for the support.

  • pennyfarmer
    pennyfarmer Member Posts: 10
    edited January 2012

    Good morning ladies. I am 1 & 1/2 years out from TN stage 1, grade 3 IDC; 1 year from bi-lateral tram flap reconstruction. Have been suffering with lower back/pelvic pain for 4 weeks. Am also having knee pain and severe pain in my ankles and actual feet bones!! I decided that I was just having issues because of my lack of exercise but it has continued to worsen despite my efforts to push through the day and increase activity. I have been taking skelaxin and tramodol at night before bed just to try to sleep. Ibuprofen during the day does nothing. So finally bit the bullet, called my once, now have a bone scan scheduled for valentines day......I KNEW IT...AND I DON'T WANT IT!!



  • apple
    apple Member Posts: 7,799
    edited January 2012

    a bone scan tho, is a good chance to get a little rest.  good luck girls.. it's very non invasive.

  • mimi791
    mimi791 Member Posts: 92
    edited February 2012

    Apple:

    My god you made me laugh!  Only a cancer survivor would think of a bone scan as a place to get a little nap in.  Thank you so much for a reality check I so desperately needed:) Tomorrow morning, 9 am, nap, check!!  Good luck tomorrow, SB, I'll be right there and radioactive with you!

     Mimi

  • mimi791
    mimi791 Member Posts: 92
    edited February 2012

    Oh...and Penny...NO BONE SCANS ON VALENTINE'S DAY!!  I'm checking the cancer rulebook and I swear there has to be a rule about that........

    Mimi

  • ILOVEMYMOTHER
    ILOVEMYMOTHER Member Posts: 6
    edited February 2012

    Hello all,

     I just found this website and thank God for it.  I am a daughter whos mother has had breast cancer first diagnosed at 50 12 years ago, the bc came back with vengence at 54.  A very aggresive cancer.  she is now 67 and she had a CA 15-3 or some cancer screening test.  She usually has tests every year but today the nurse called and said that her levels are 70.  The normal range for this test is 35-40.  My mom asked what were the numbers from the last test and she told her that they had everyone int he office looking for this test and they didn't have results that one was ever done.  Do you know how mad I am?  But I am a christian and we can't look back, we can only look forward.  She said becuase it was 70 they are ordering a PET scan.  My mom is overweight and also has lyphodema and she just had a yeast infection and she twisted her ankle and her arm always swell up like a baloon from inflammation.  She always has blood work done every month but this was the first time a CA 15-3 has been ordered.  Again,  i don't know why i am just praying and it hurts me that my mom has to go through the anxiety and pain in waiting for this PET SCAN.  Can anyone help me understand if 70 is high.  Her second cancer she had at 54 years old, she also had 27 lymph nodes all cancer.  She has been in remission 16 yrs with the first cancer and 12 years with the second agressive cancer.  We are hoping and praying that her levels are because of the lymphodema and constant inflammation since this ca 15-3 or a CA 125 or a CA 27.29 had never been done.  Please can anyone help me understand or tell me if anyone has ever had this happen and should we be concerned with her 70 number.  Thank you and I am praying for everyone on this post that you find comfort and peace in knowing that prayers are all sent your way for a full recovery.  xoxoxoxox

  • Leah_S
    Leah_S Member Posts: 8,458
    edited February 2012

    I love my mother, I don't have answers to your questions but if you post it as a seperate thread in the Stage IV forum you'll probably get  more people who can help.

    You sound like a loving and caring daughter.

    Leah

  • Nordy
    Nordy Member Posts: 2,106
    edited February 2012

    Ilovemymother - first try to take a deep breath. It is early to know anything. First, there are many, many doctors who do not do routine blood work for the cancer markers. Many feel that the patient is just as likely to feel pain or have other symptoms if there is an issue and they also state that markers can also show false positives, or be elevated for other reasons. So... Having said that, I inderstand your worry. Hang in there. I am going to be sending positive vibes that all is well with your mom. Hugs



    Mimi791 - i too am a therapist. A couple of years ago I was having some sternal and rib pain that was not gping away... The bone scan came back negative. Somehow, somewhere I overdid it... And even though it did not feel like "normal" muscle soreness, I think that is exactly what it was. After having surgery and rads to the chest area, as well as damage from tissue expanders, any activities that really engage the pecs leave me fairly uncomfortable in the sternal area. I recognize the feeling now, but the first couple of times really freaked me out. Hang in there. I hope all comes back well.

  • ILOVEMYMOTHER
    ILOVEMYMOTHER Member Posts: 6
    edited February 2012

    Leah and Nordy, thank you so much for your responses. i feel so numb but knowing i can come and share my fears with you makes the pain less.  i will pray for you both as im still up talking to God.   The Lord, He is the One who goes before you. He will be with You, He will not forsake you, do not fear nor be dismayed. Deuteronomy 31:8.  i will keep you posted on mommys tests.  thank you and may God Bless you and keep you close and wrap his arms around you and protect you and keep you safe always. xoxoxoxox

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