Diep 2012
Comments
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I work on an OB/GYN unit of a hospital and quite often our c-sections are closed w/ staples. I'm starting to see more use of glue and steri strips. Time and body type are 2 of the reasons
staples are used more than glue and steris. Personally, I much prefer the glue and steri's. That is the way my bilateral was closed and I never had and incisional pain from the pulling and pinching of staples. katiejane
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I did not have staple, just internal stitches and glue.. and once the glue came off (about two weeks) it looked much better... after durgery, blood was mixed in with the glue, and it looked worse than it was..
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Yes, the dark dried blood and black marker under the surgical glue made my incision look really bad. But when the glue peeled off, it was nice new healed skin underneath. I also asked my PS about stitches left inside and he said he doesn't use any non-dissolvable ones.
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How long are u ladies waiting after diep for having a bath......I'm so craving a hot bath, just worried about incisions that all.
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No baths as long as you have drains, plus a few days for the hole healing... After that, I think its ok... but I had drains for a good bit since I started with hip flaps, so my incisions were all well healed by the time I lost my last drain.
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Red, I was told to shower daily as soon as I left the hospital, drains and all. Others were told to keep drains dry, refrain for a period of time, etc. So you should probably ask the PS or the nursing unit for a copy of the discharge instructions.
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BTW.. I showered day 2, but was not allowed to swim or take a bath with drains.
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Last night before my surgery. I'm getting a little nervous now. I've tried to do my research, learn as much as I can, and prepare myself. So many people praying and comforting me. I've never been in the hospital for less than five days, so I'm kinda prepared for the recovery - after 2 c-sections and a hysterectomy. All I can think about is flap failure, but I have great confidence in my PS and it's now in his and His hands. Thank you all for your kind words. Talk to you soon.
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Sadie - Wishing you total success!!! and peace! Do as they tell you and let us hear from you when you're able. Mary
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Good luck sadie5254. It wouldn't be normal to not be nervous, but flap failure is so very uncommon that it gets a lot of discussion when it happens. All you have to do is be on time, and then get a good sleep while they do their work. Everyone is pulling for you.
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Sadie you are in His hands. I have had the best experience with my DIEP and am really pleased with everything. There were a couple of bumps in the road. Drains suck! No way to sugarcoat that one. Use a pillow to cough. Do all the breathing that they ask you to do. Do not leave the hospital until you are ready. Trust the surgeon rejoice with each Doppler reading! Expect some major bruising of the skin area in the breast and know that this does not mean failure or a problem. If the oxygen readings are going well and your 'baby' is strong and healthy on the Doppler then you are doing fine!
Hugs!
Diana. ( 3 weeks, 2 days post-op from axillary excision, left skinsparing nipplesparing mastectomy, and immediate DIEP reconstruction ). -
Good luck, Sadie! Keeping you in my prayers.
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Just introducing myself. Had my consultation with a local PS who has told me I'm a great candidate for the DIEP. She can't do the surgery herself (she is qualified but our state doesn't allow anyone to do it here...long story) so I have pretty much settled on MD Anderson in Houston. Have a consultation appt. in a couple of weeks and just waiting for a call back from them in the next day or so to get the rest of my questions out there. If I can get it done before early April, I will be having both a BMX and reconstruction done together. Fingers crossed on that. Was initially really upset that I have to travel and live in a hotel for 3-5 weeks to get this done because of our state issues but my sister is coming with me (hubby will hold down the home front) and MD Anderson has its own special hotel across from its medical center that is designed for its cancer patients so we're trying to look at the positives. Will post more if I have anything interesting to add (I do a lot of lurking) but wanted to say "hi" and send good thoughts to those of you in the process of recovery or having your surgeries soon. What an amazing group of women!!
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I am in the hospital as I am writing this recovering from my bmx and free tram reconstruction. I had my surgery on Wednesday and today is Friday and I feel sooooo much better today than I did yesterday. I do not have staples, just surgical tape on both my breasts and my tummy. I have 6 drains and am hoping to lose some of them before I leave the hospital. I should be able to take a shower today. Cannot wait!!
I am still so happy with my decision. It will take some time for my scars to heal but I can already tell how good it will all look when I am done. I have less scarring then some elective breast surgeries. I am in great spirits and so happy to have this cancer out of me. -
Hi Elisabeth. You are the second person who has mentioned that you cannot have DIEP in New Mexico? Why are they not allowed? You will be in excellent hands in MD Anderson!
khegidio- I hope you got your shower today! It was nice to read that you are happy with your surgery. I am scheduled for February 14th. Some days I'm calm and some days I'm very nervous. I got a few things to wear for after the surgery yesterday. I have some things from when I had my unilateral mastectomy, but now the ab scar with this surgery will make some of that useless. I need to hunt down the page on the 2011 thread where everyone talked about what they used the most after this particular surgery. I remember reading it, but I didn't make notes. I should have.
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Elisabeth.. Why would you need to be in a hotel for 3-5 weeks?
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Mary,
I just wore yoga pants and a button up shirt home from the hospital. At home I wore nightgowns and robes because it was so much easier than pants until I got the drains out. I got some zip-up robes at the thirft store that had pockets and since they were so cheap I cut holes above the pocket so I could pull the drains through. I did have 1 robe that had buttons instead of zipped that made it easy with the drains. To my PS appointment I wore yoga pants, cami (without bra shelf) and a zip-up hoody that had pockets inside but not enough room in them for all 4 drains so I clipped them inside the hoody. Now I have the drains out and I am wearing yoga pants and I wear regular tops.
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I have been reading your posts and I too am curious about clothing after diep. Do you have to wear a bra at all post-op? I know with my BMX and TE"s I had to wear a sports bra, but I think that was mainly to hold the dressings in.
Tammy- I like the idea of the bath robes. I may have to go shopping this coming week.
khegidio- Thinking about you and hope you are doing well. Glad you are in good spirits.
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@TexasRose (btw, I love your screen name..I was born in Harlingen and my grandma used to call me her little Yellow Rose). Apparently NM is the only state that does not allow anything other than implant and TRAM reconstruction. My PS said that they've been working for about 3 years to get that changed but they keep running into politic-related obstacles with the two local insurance companies who manage our two major hospitals, and thus the state insurance commission. Sigh.
@bdavis - I know that sounds like a long time, doesn't it?! My local PS said that most the patients she has referred out of state end up with the normal hospitalization of 3-5 days for the BMX and bi-lateral DIEP and then another week or two until drains are removed and follow up is done. She told me to count on being gone 3 weeks if everything goes well and up to 5 if there are complications. My sister is coming along so she will be staying in the hotel (and better be visiting!!..lol) while I'm hospitalized and I guess we'll be staying there until they release me to come home. I plan on staying at least until the drains are taken out (there is no way I'm getting on an airplane with them) and think it will probably be cheaper to do that, anyway, than to keep flying back and forth. So much unknown, still. I'm waiting for a call back from MD Anderson so hope to get their take on that so maybe it will turn out to be less time.
@khegidio--Keep getting better and better! = )
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Stacey- clothing has been a struggle for me. I bought all these yoga pants with zip up hoodies and where my hip drains are the pants pull on them and bother me. I find I am most comfortable in the old granny moo-moo gowns or just a housecoat ! I wear low cut panties and pin the drains to them. I also want to shout out and give a HUGE Thank you to Better-body-Babe for visiting me in the hospital and bringing me flowers. She is precious and her DIEP results are great!
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Kasey- Glad you are happy with the results. I am hoping to meet Better-Body-Babe at the end of the month. She was a big help in me deciding to go with the diep in Charleston. Hope you continue to heal quickly! Thanks for the advice on the clothes.
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mamachick - My PS didn't want me to wear a bra post DIEP. He wanted no constriction on the transplanted tissue at all. So I went without. My other side (that I now call droopy) wasn't going to get any droopier if I didn't wear one for a few weeks so I didn't worry about it. I didn't go out much either though, and when I did I was in big button down shirts and then usually a hoodie over that.
-Judy
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Thanks, Judy. that's what I kind of figured, that they wouldn't want to constrict the area. I guess I will be pulling out my dad's big flannels again and tank tops to leave the house in when I go.
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MAMACHICK.... My PS required a compression bra for 2 weeks 24/7 - I woke up in one and they gave me a second one. i think that is what most do, but of course ther are exceptions as with COOKIEMONSTER... I would see what your PS wants you to do.
ELISABETH... I went out of town for surgery and I flew in 2 days beforehand (for pre-op stuff) and then was in teh hospital for 5 nights... had my post op one week after surgery and then flew home (with drains). I had drains for 8.5 weeks... They are so used to out of town patients that any questions etc was done by phone, email and photos.. I then went back down one month later because I had a problem (they paid for my flight) and was in the hospital another 2 weeks... I can't imagine staying out of town after surgery. Most people don't have complications... I would tack on a couple of days just in case, but that's it.
CLOTHES.. I bought yoga/lounge pants... super soft and loose, nothing too constricting. And wore regular tops that were loose at the bottom. I then used a small black over the shoulder bag to hold my drains.. all worked out well. And as I said, I had my drains for over 8 weeks.
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Thanks, Betsy. I was going to send an email to the NP to see what I needed to bring with me and what I needed to wear.
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What I loved wearing was a cashmere cardigan like from a twin set (and a similar acrylic one that felt like cashmere). They were so soft and comforting on the skin and looked halfway nice when I wore them with yoga pants to the store or medical appts. Could be accessorized with necklace or scarf. The acrylic one was an old one that keeps looking good after many years, but the cashmere I got at one of those discount stores (like Marshall's, TJ Maxx) for a good price.
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Drains were all gone for me by day 13 as well as all dressings except for a new dressing around the last underarm drain site which bled a bit off and on for about a week. I had 4 drains total. 2 were removed day 9 .
I had a left mastectomy, immediate DIEP, and axillary excision. Surgeon made the vascuar connection using the excision incision so that had to be guarded a bit more.
Hospital stay was 5 nights. Saw a surgeon from the practice each day I was in the hospital, then at day 9, my physician's assistant; day 13, my surgeon; day 21, my phys. asst. Next 'appt' is phone visit 4 weeks post-op to hopefully get the all clear for phys. therapy to restore full range of motion to my arm and continue with lymph edema prevention. I may change this to an office visit because i am fairly certaini can get the sign off on running if i am physically present in the office. Next surgeon appt is 5 weeks post-op.
I can so see why you would want to give yourself those 5 weeks if I had had to go out of state to have my procedure. Although I wouldn't have wanted to be away from my own home that long, you will feel better about being 'right there' in close proximity to your surgeon and the hospital where you have your procedure.
Hope all goes well for you! Pick our brains that's why we areontheotherside of surgery now so at we can help those who aren't just like others helped us. -
Tammy- Thanks for the clothing suggestions. I found a nightgown this week that buttoned up. They aren't easy to find. I usually wear pajamas and that is all I have from my original mastectomy in 2009. I don't know if I will be able to wear the pajama bottoms or not. I guess if I can pull them up high like an old man, maybe they might work eventually. I have some yoga pants. Glad to know those will work. How are you doing? I think about you and Red everyday. I hope you are healing and feeling better.
Elisabeth- I'm sorry you have to travel for your surgery. That is just crazy that NM won't allow the surgery.
And Kaseymomto2 brings up a good point- what about underwear? Did you wear any in the hospital? Is it better to go real low cut or granny?
My PS said I would be wearing an abdominal binder, but he didn't mention a bra. He said I would have four drains, but would probably only go home with one. Sounds optomistic to me. After my mastectomy, I had my drain for 10 days. Once I get rid of those darned things, I know clothes will get easier. I've been pulling out the big baggie button up shirts from my mastectomy days. I didn't leave the house much while I still had the drain and I probably won't this time either. It's just too hard to dress with those things.
I know this time will be harder to dress because it will be both sides. My mastectomy was left only. This will be right mastectomy and bilateral DIEP. At least this time there will be no lymph nodes involved.
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I didn't wear underwear in the hospital. With the abdominal binder, my normal underwear was fine, didn't get uncomfortable. With drains a somewhat lower cut is probably better than the super high cut ones.
I spent most of my time in button up nightshirts with a robe over. I was gifted a nice warm blanket that I practically lived under for the first few weeks home.
I tended to pin the drains to the binder and that worked relatively well. I think that for pants I tended to sweat pants, and those I could pull up pretty high on my waist to mostly avoid the drain tubes (I tucked the bulbs into the pants so the pants went over everything.
I think each of us has to find what we're most comfortable doing and wearing, and it's very individual. I don't think I could have tolerated tighter yoga pants over my midsection, but that's just me and it seems to have worked well for many women here.
I would think that trying to dress totally differently from how you normally dress is not going to make you comfortable. How close to normal can you dress? The closer to normal, the more emotionally comfortable you'll be.
-Judy
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texasrose, the drain prediction was bang on for me. I had them for almost 3 weeks after mx but 3 of 4 came out before I left hospital at 5 days and the 4th wasn't putting out anything and just took up space for 48 hours before the homecare nurse orders allowed me to make her remove it. Your procedure is the mirror image of mine. Right mx with nodes previously, then mx with bilateral DIEP. I found it easier than the mx primarily because of the nodes, although the abdominal part is tricky. I just did not visualize how much vertical height I would lose on the front and how stooped over I would be. Just didn't do the math in my head. It took probably 5 weeks for the stooping to not be noticeable to me.
As for the unmentionables, I did not wear undies in the hospital as it wasn't really needed with the hospital gown and robe for the hall, and one less thing to manage in the bathroom. I simply wore my usual undies to go home and thereafter. They don't go as high as the abdominal scar. (And I also did not visualize that the skin on both sides of the scar would stretch and the scar would get higher. It's basic physics and I'm an engineer, but I just didn't visualize it.) The yoga pants came up higher and the waistband hit above the incision line. I wore PJ bottoms fine at home.
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