Alternative Treatment

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  • ShelMel
    ShelMel Member Posts: 207
    edited October 2011

    I'm so glad I found this thread. I've been reconsidering taking Tamoxifen for a few weeks now. I started taking Tamoxifen in May 2011 and since then, my triglycerides and cholesterol has gone sky high and I just had an abnormal pap. I have an appointment with a gyno tomorrow to do another pap and they're talking about scraping my uterus since Tamoxifen can cause uterine cancer. I also found out that Tamoxifen can cause high cholesterol and triglyceride numbers.

    My onc offered me the option to have a hysterectomy before I started taking the Tamoxifen, even though I caught my BC early, but I had just turned 40 years old, I had already had surgeries, chemo and rads and I just couldn't handle the thought of yet another surgery. 

    I'll be checking out all these links. Many blessings to all of you! 

  • Kaara
    Kaara Member Posts: 3,647
    edited October 2011

    Beeb75:  That's an interesting study.  I'm wondering, and I am certain it wasn't done, but of the women who did not take tamixofen, how many were using alternative metods of treatment such as diet and supplementation?

    If one is not going to go the route of conventional therapy, then it is imperative that diet and supplements that rid the body of cancer or prevent it from growing be researched and followed.  If you want to avoid the SE's from drugs, then you have to utilize other options to keep cancer at bay IMO. 

  • Right2Live
    Right2Live Member Posts: 6
    edited December 2011

    I have been approached by many people asking about information I have collected on alternative cancer therapies. I decided to put this in an eBook I just finished if anybody is interested.

    www.scuttlebutt.biz/cancer
  • Right2Live
    Right2Live Member Posts: 6
    edited December 2011

    I wish it was easier to pass on important alternative therapy information to people......sigh

  • dougbrimor
    dougbrimor Member Posts: 13
    edited December 2011

    Was notified that there were new post, logged on and found that they had been removed, what is that all about? 

  • Rosieo
    Rosieo Member Posts: 262
    edited December 2011

    Hi everyone

    Here is a little fact on Tamoxifen.  I was diagnosed with breast cancer 15 years ago.  Because I had many radiation treatments about 15 years before that (the radiation was for Hodgkins) my Dr said I could not take radiation for the bc, so the mastectomy.  It was stage 1 and I did not need chemo but the oncologist did give me Tamoxifen.  I took it for 5 years with no problems.  Now this past year I was diagnosed again on my other breast with a new breast cancer.  Stage 1 ER+Pr+ no lymph node involvement, clear margins.  Another mastectomy.  Back to oncologist.  First words out of his mouth CHEMO  I said oh no, I didn't have to take it last time and it is the same diagnosis as last time, why would I have to take it now!!  He said, they didn't give it back then for this diagnosis!!!!  Well then I asked for an oncotype dx test.  It came back 1(one)  So he said " no need for chemo" but take Arimidex.  Which I have only taken now for three months. 

    But I guess I would like to ask you ladies because I know you are well read.  Why do you think the dr. is giving me arimidex.  I have no more breasts and I am 75 years old.  How much estrogen can I have  If any one has any kind of answer I would appreciate

  • impositive
    impositive Member Posts: 629
    edited December 2011

    Rosieo, You might try posting that question in the "Early Stage Natural Girls" in the "alternative Forum".  I think you'll get a response there.

  • Luna5
    Luna5 Member Posts: 738
    edited January 2012

    Rosieo  seems stupid to me  for a doc to give you an AI to lower your estrone and estradiol if you don't know what your levels are.  Why not have your estrone and estradiol checked?  While you are at it, also check you progesterone and testosterone.  You need a little testosterone for you brain and other things and you definitely need at least 1.7 progesterone for your body to be able to kill off bad cells.  And of course only use bio identical if you supplement from a reputable compounding pharmacist.

  • sunspark
    sunspark Member Posts: 3
    edited February 2012

    I read an article about science finding an ancient mummy that suffered from cancer. Upon mentioning this to a friend of mine, he replied that, "Yes, that it is true, some people did have cancer long ago, but only those people who chose not to go to an alchemist". When I expressed disbelief about his statement, he replied that long ago, alchemists were able to cure people of all forms of diseases by using alchemy. Then, he rapidly listed names and dates. He seemed quite knowledgeable and genuine.Thought this to be quite interesting.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited February 2012

    Alchemy?  The process of turning lead to gold?

    People weren't being cured of cancer back then, they died.  Probably fewer people got cancer, due to a variety of factors (including the increased risk of dying from something else), but people weren't surviving it.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited February 2012

    I have more of a question or theory than a conclusion about tamoxifen use for breast cancer, for those here to consider (not only HER2 positives, but HR negatives).

    I was dx'd stage 1 grade 3 HER2+++, and after doing CAFx5 and rads, was put on tamoxifen. I was on it for a year and then started finding reliable info on the net in 2003 that indicated that about 1/3 of the HER2 positive bc patients developed resistance to tamoxifen. Since they didn't know they were developing resistance to it, they didn't know they were taking it for nothing. So at the end of the first year of it I cut my dose down somewhat, and brought the info to my PCP, who took it to my onc.

    Both my PCP and my onc, instead of being polite enough to treat the question (and me) respectfully by intelligent discussion, merely responded that "because I was probably menopausal [by this time], we will just put you on an aromatase inhibitor". I was appalled (and justifiably irritated) to have been put on a drug that had a 1/3 chance of risk of not being effective at all for me without any discussion in the first place, and then being treated like an idiot for bringing in the documentation for discussion--especially given that tamoxifen has many side effects and some additional risks.

    It is possible that initially the tamoxifen was helpful to me, since my breast density was still dense at completion of rads after CAFx6 but disappeared by 3 months out from starting the tamoxifen. (Ditto for my sex life -- permanently.)

    The research indicates that those HER2 positives who have a high AIB1 level are the ones who are likely to develop resistance to tamoxifen. I don't know why but there does not seem to be testing commonly available to determine whether one has a high AIB1 level.

    What is concerning to me is that recently I saw some research that indicated that another group that has a high AIB1 level is the HR- group, which also tends to have a higher recurrence rate. The conclusion of the recent study is that maybe finding a way to knock down the AIB1 level may be worth targeting.

    I don't know how "usable" this info is for those here, but it is just interesting to consider on an individual basis.

    AlaskaAngel

  • sweetbean
    sweetbean Member Posts: 1,931
    edited February 2012

    Now, that's interesting, AA.  About the A1B1.  There is also a link between recurrence and high levels of CRP, which can be controlled with diet and exercise.  Anything like that for A1B1?

  • dougbrimor
    dougbrimor Member Posts: 13
    edited February 2012

    Could you explain the link between reoccurence and CRP, I hadn't heard about this before.  Thank you

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited February 2012

    sweetbean may have more to add here about the CRP. But it is used as a test for cardiac purposes primarily, for inflammation of the circulation system. Mine was done because my PCP assumed that because I was menopausal and had gained weight after treatment and am older now that, like most, I was not eating a proper diet and because I had a cholesterol that was moderately high, I should take a statin for it. I challenged his conclusion and we agreed to do the CRP. It showed clearly that my diet was not a problem, and read "low risk".  (All my other lab results had been very clearly indicating such to be the case for me, but my PCP was fixated on the cholesterol reading.) I think diet is so key to keeping cancer from recurring that I think this test, when used with someone who has bc, can indicate whether they are eating the best possible diet.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited February 2012

    sweetbean,

    I don't know of anything that those with a high AIB1 can do to lower it, but your question is very interesting. The deal for bc patients about AIB1 is that about 1/3 of HER positive patients have a high level, but MOST of the HR negatives have a high level.

    With these 2 groups having such a bad rap (prior to trastuzumab at least), IF science can find a natural way (or less desirably, a synthetic way) to lower AIB1, then that would allow more successful use of tamoxifen until postmenopause is reached.

    I dunno. I still wish they would just get over this tweaking with this and that, and get off their buns and get more serious about analyzing the natural endocrine basis and effects. I'd RATHER have a sex life than have to use a synthetic to just survive.

    A.A.

  • Kaara
    Kaara Member Posts: 3,647
    edited February 2012

    I am HR/PR+ and post menopausal.  I am starting on tamoxifen because it seems to have less SE's than the Al's.  I am going to start on a lower dose (1/2 the prescribed) until I can see if my body will tolerate it.  I read somewhere that better results are achieved if you do tamox for several years and then switch to an Al if you are postmenopausal.

  • sunspark
    sunspark Member Posts: 3
    edited February 2012

    Sweetbean in reply to your question:

    Thank you for your question about alchemy and your statement that no one survived cancer long ago. I asked my friend about this. He said long ago alchemists cured people of cancer and all diseases, in the same way that they changed lead into gold, as documented in 1814.

    He said alchemists use the sound energies contained in secret words and sing the sounds of ancient secret songs that cause the protons, electrons and neutrons of atoms to move into different configurations. He said this process transformed diseased cells in human bodies into healthy cells.

    He also said he is part of an organization which will very soon go public with a big announcement.Here is a listing of alchemy related historical dates and names that were provided.

    • 300 AD Roman Emperor Diocletian orders all books on alchemy destroyed.
    • 1317 Pope John XXII issues "Spondent Pariter" condemning alchemist to exile and heavy fines for merchants dealing in alchemical gold.
    • 1404 Henry IV in England issues edit declaring use of alchemy to be illegal.
    • 1814 Bullet of lead alchemically transformed into gold in front of an army officer and a doctor. (Bullet and affidavits are located in London's British Museum).
     

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2012

    Sunspark = Shivamsarah?

  • sweetbean
    sweetbean Member Posts: 1,931
    edited February 2012

    sunspark,

    does your friend also wear a lovely tinfoil hat?  i'm sorry - that just sounds ridiculous to me.  cancer used to be a death sentence, and a fairly quick one at that, because by the time it was diagnosed, it was extremely advanced.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited February 2012

    I respect that we all have different beliefs as to what may cure our cancer but don't you think the alchemists would have paid somebody off with the gold they made so that they would be able to carry on their work? This is just too much to believe.

    I will say though that I am curious about the big announcement.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited February 2012

    seriously.  i apologize for the snarkiness, but I am all hopped up on pain meds from my exchange yesterday.  i agree with rosemary - if alchemy worked, those dudes would be rich.

  • thenewme
    thenewme Member Posts: 1,611
    edited February 2012

    Meh, Rosemary - you'd probably have to sign up for a  "must see" youtube video or something, forever subjecting yourself to spammy emails inviting you to join their inner circle of fabulously rich alchemists or something.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited February 2012

    thenewme

    You are such a cynic...but you have a point.

  • thenewme
    thenewme Member Posts: 1,611
    edited February 2012

    LOL! Reading the stuff some people post around here, it's hard not to be cynical.  

    Who knows, though?  Maybe Sunspark's friend will come here and show us all the magic alchemic cure free of charge just because he's that kind of guy.  

  • Wabbit
    Wabbit Member Posts: 1,592
    edited February 2012

    Hello ladies ... it just so happens that I know Alchemy and can turn lead into gold quite quickly.  For a small sum ... well relatively small in return for a cure ... I will share my secret with you.  Just let me know if you want more info.

    OK ... before thenewme outs me ...  my Alchemy is really a computer puzzle game :)  But still ... you never know.  I'm going to start playing again tonight.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited February 2012

    I am doing a Hard Sudoku Puzzle tonight. Maybe it will show me the way wabbit - lol!

  • abigail48
    abigail48 Member Posts: 1,699
    edited February 2012

    I posted when I first joined this site, & havn't been able to find it, or a post where someone gave a site for alternate treatments, I wonder if the deleted posts are such, cancer is a billion dollar industry for the allopaths & perhaps that;s the reason for the deletions:  it makes one think so anyway, & whatever the reason it shows disrespect for the posters & the search for information for all of us

  • apple
    apple Member Posts: 7,799
    edited February 2012

    the search function is excellent here Abigail.. you might try a different word combination and search within the forum you are in now.. 'The Forum:  Alternative Treatment:.   I'd help but I don't know exactly what you are looking for.   put your own threads in 'favorites' and if you click on your own name, your posting history will pop up.  Good luck.

    I'm sure someone will help.

  • sunspark
    sunspark Member Posts: 3
    edited February 2012
    On a historical note, I have heard that alchemists did try to pay off the Roman emperor, but who then got greedy, captured the alchemists, forced many to make gold for him (so he could pay off mercenary armies protecting the Roman empire's borders), killed off alchemists who wouldn't make gold for him. Special colloidal waters were part of ancient Egyptian practice during that time-period. The remaining alchemists went underground and saved techniques over generations - passing it father to son, mother to daughter, and so on.
    On a more current note, I just saw a very recent article in the UK Daily News on the healing properties of silver in a study done at the University of Leeds. It is entitled: "Silver bullet for cancer: Metal can kill some tumours better than chemotherapy with fewer side effects". Now this I would call alchemy and perhaps there are modern day alchemists.
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited February 2012

    I truly respect everyone's beliefs and opinions and don't visit this thread often because I use conventional therapy combined with exercise, nutritional support and some supplements but...alchemy ? Really? Given the current price of gold, those alchemists should be very rich by now. No intent to insult or put down but this just seems too much like snake oil.

    Caryn

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