December 2011 Surgeries - want to wait together?
Comments
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lol Bogie, I doubt that we are the only ones requesting it. But you are right what's a girl to do when they aren't being trained to handle drawing blood and taking BP other places. Just keep being your own advocate and tell them NO. My BP is high anyway. But they seem to be able to get about the same as I used have in my arms. It runs anywhere from the 140s to the 170s over 60s to 90s.
Moon I am keeping them heavily covered with lots of 4x4s packed in and over the wounds. I am washing it twice a day with dial anti bacterial soap that my BS said to make sure I did. They just don't look like they are closing at all. The PS said it may take like 3 months for them to heal all the way! YIKES!
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@ Bogie and Gabe - I also have been 'battling' an opening that wouldn't heal (Bogie - you and I had surgery same day).
At 4 weeks it was still the size of a half-dollar. At appt. with surgeon, he said to to 'wet to dry' dressing on it. An example of what this is below:
http://www.nlm.nih.gov/medlineplus/ency/patientinstructions/000315.htm
It is now the size of a quarter .... progress. Mary
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..... and ...... I have gotten that C O L D / HOT sensation mid chest since my BMX also. Bizarre!
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I think I belong on this list. UMX right with SNB Dec 29
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JATNME, The only thing my surgeon said to do is put Neosporin on it. I think this aggravates it! I also use Dial soap and rinse well With the hand shower , let dry and if it dries out add Aquaphor. I think it was to moist before and stalled healing. It's now beginning to scab over some areas, and just whitish/yellow other areas. Dr, said its surface infected.
Off to go shower, the dang Neosporin is bag graduating it. I never heard of the wet dry packs, interesting. -
So I am just wondering if they use a regular blood pressure cuff on your leg? Also, can we use one of the wrist kind?
Cookie- I am great with the kids but disorganized and scattered with planning and paperwork. Not good as it is report card week. I just keep losing things and after looking in 10 different places I find it in the first place I looked. It is maddening!!! -
I've added you firstcall. Welcome. I had a right UMX as well.
-Judy
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Ginger, they use the same size cuff for my calf as they did for my arm. My doc and my pharmacist both told me with my high blood pressure you do not want to use a wrist one to monitor it because they do not work as well and tend to be inacurate.
justunme, my PS tried to get me to do the wet to dry dressing but I could not do it by myself. I didn't like him anyway and went to a new PS who told me to wash the areas thoroghly with dial or safegaurd antibacterial soap and put bacitracin with zinc on it. He said he does not recommend triple antibiotic ointments like neoporin because it tends to make the area more red and irritated.
Bogie, read what I said my PS said about neosporin....I wouldn't use it. My son is allegic to it, it breaks him out worse than the scrape he had to begin with. Now with the PS comments about it I know why.
firstcall, welcome to our group, sorry you have to be here.
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@ gabe and Bogie -
Doctors are so different aren't they? I told my BS I was using neosporin .... and he said 'don't'.
My wound was yellowish/white too and wet ... but he explained that when the smaller dressing - next to the wound is moist - it draws the wetness OUT of the wound (?? made no sense to me either) ... then you cover with a larger guaze ... just to cover things up. I noticed after doing it for awhile - he was right. The wound would look dryer .... and it's working for me. Just actually last week it finally appeared to have a 'skin' over it ... and like I said it's half the size now... Just thought I'd share. To add - he did say though that it would leave a scar .... lol.
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Now that is funny jstunme...leave a scar...lol like I am going to notice that when it is already on the "scar" line where he did the surgery. The wet to dry thing worked to draw out a lot of fluid at first with me then it stopped working and it didn't do anything but leave it more red so I am just doing the washing and putting bacitracin and dry 4x4s on the areas. Hopefully it will work eventually...but like I said in another post he said it may take three months to fully heal...BLAH
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When he pulled the drains, my PS said to put neosporin and just a band aid over it until it healed. I had stopped on them and they had dried up and at my follow up he said to keep them moist that they'll heal better that way (with the neosporin keeping them moist). Interesting what different PS's have to say on the subject.
On a totally different note, I accidentally inhaled at the wrong time tonight and got some liquid down my wind pipe causing a coughing fit. Even after almost 7 weeks, that was no fun at all. My DIEP stomach didn't like it - not at the incision but above there, that's been the most tender area lately anyway.
It sounds like I'm lucky I had a UMX and so can have BP and blood draws on the other side at least. It's my preferred side anyway.
I survived the swim this morning, it was a bit uncomfortable, especially when I stretched out the right arm (DIEP side) so I tried to take it easy on that side. I'm glad that I did it although I'm slower and more out of shape than the last time I swam. I'll keep at it, and I'm sure it'll get better. I may try to start other exercise too, it would be good for me, after all. Finding the time is the biggest hurdle for me.
Be well all.
-Judy
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Had my second fill yesterday. All went well. Felt a little sting when the needle went in but then nothing. My PS thinks one of the te's may have a small leak in it. The left was filled more than the right at my first fill and now it appears to be a bit smaller. Go figure. He said not to worry about it and use the other side as my gauge for how big/small I want to go. Maybe just one more small fill then it's off to exchange. I'm amazed at how quickly it's going. Maybe I'll have new boobs for my birthday in March!
Interesting about the blood pressure issue. Makes me wonder when I have my exchange surgery what they'll do. Glad to hear that everyone is doing relatively well. I'm still hung up on the fact that my MO didn't recommend any further treatment. I don't even have an appointment to see her again, ever. Not that I want any more treatment but I wonder if lifestyle changes are enough. I think part of my problem is that I read too much on bco and compare my situation to others which I know I shouldn't do. Then I freak out. I'll get over it at some point I'm sure.
Hope all are healing and recovering well. Take care of youselves.
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Out with Neosporin and in with Bacitracin next! I felt irritated all day until I washed it off.
I thought better it breathe just been wearing white cotton camisole or tanks undershirts (no bandages)maybe I should cover it again.
OK as far as needing blood drawn, should I stick to my guns and NOT get blood drawn from masectomy side that still has nodes? Bilateral MX 5 nodes removed right side only. Ask to go to the hospital for the draw out of where? I hear heel hurts bad.
Crissiloni, iI see you are ER/PR+and her2- wondering why your Oncologist isn't suggesting hormone therapy antihormonal drugs like tamoxifen or Arimidex?
It's 3:30am and I can't sleep, anxious knowiing I need to go back to work next week, -
Bogie....she feels the risks and benefits are about equal in my case. I have a strong family hx of stroke, heart disease and diabetes so I'm thinking these things factor in as well. I mentioned removing my ovaries and she didn't think that was a good idea either. I've been debating getting a second opinion but I'm afraid as I don't know what I'd do if they said I should be on HT.
Time for bed for me. I work 3rd shift,another baddie for cancer. It was a busy night at the hopsital and I'm poopes. Have a great day everyone.
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Hi Adrain - FirstCall. I was following your story on the other thread on which you posted. When I reminded my friends and family about screening and I made sure to include my dad. Most of the information the Dec. group has been sharing lately relates to reconstruction and issues with those processes. However, you can find good information on SNB related, HT, and overall emotional health and support. Brother, Your sisters are here for you!
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Intersting for Hormone Therapy. I also have stroke and heart disease in the family. however, my surgeon and Oncologist said a low Oncotypw score is based on the assumption I will be taking Tamoxifen or a Arimidex. I may go with Arimidex for that very reason, he told me less SE in regard or stroke and heart disease and more toward the bone loss.
Also I was given for open wound delayed healing a prescription from my PS Collagenase Santyl ointment. -
Bogie - Read about the Santyl ointment online .... looks interesting ..... wish my BS would've considered it for me 4 weeks ago.... Now that mine is Finally covering over ... too late.
Let us know how it worked!
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Welcome FirstCall. Bogie- stick to your guns- my PS asked if I had nodes removed from both sides, I said yes, then he said take it on the calf or thigh. I just had sentinel nodes removed at least one from each side, perhaps 2 from one of sides, I cant tell- they dont specify the extra tissue as a node, strange, but who knows? But definetly one from both sides. So make sure they don't do it on the sample side. I probably have a very low risk of LE, but at least while in chemo and when healing, I will not let them. I want the port for that reason.
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JST the collagen cream didn't work that great for me. Since I reacted to Neosporin I'm now trying the Bacitration, if I react to that back to just plain old Aquaphor.
moon good idea on the port. Where will you get blood draws, your foot?. -
bogie- the port works both ways- blood draws from port too.
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Went to the Weight Management Program Orientation tonight....got to taste the products....not bad!
The only problem is that the nutrition bars list 7 grams of soy protein as an ingredient. You only get one bar a day, and I could substitute an extra shake, so if the Onco says no, it won't be a issue. I also want to make sure my PS is o.k. with such a reduced calorie diet. I'm 8 weeks out, and healing well, so I'm hoping he says yes.
I also have to have extensive lab work, an EKG, and a one-hour physical with the weight mamagement doctor next week before I can be admitted into the program.
Hoping this works!
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Blessings - I'm thinking I'm about ready to start back on Weight Watchers. Maybe we can cheer each other on in this too.
Do you have the appointment with the doctor scheduled yet?
-Judy
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Judy -
I see the PS Friday morning for my 3rd set of fills. I want to make sure the extra low calorie part (960 per day) is o.k. with him. Then I'll email my Onco to ask her about the soy. Will have lab work and EKG on Monday the 6th, then see the Weight Management doc on the 9th.
So I'm moving right along!
I think WW is awesome and healthy. I'm just on sort of a time crunch to lose more before my Exchange Surgery which could happen sooner than I expected.
Would love to be your WW cheerleader!!! -
Blessing when you go for lab work, will you get blood draw grom your arm?
Best of luck in the new program! -
Moonflower- thanks for explaining the MUGA. I've had a couple of echo's in the past and do have a bit of back flow between my left ventricle and left atrium (mitral valve)....hmm. Do they do this same day you have chemo? I will have to travel 85 miles for chemo, so still thinking how I will do that (alone if needed).
Gabe - are you getting seromas or general swelling? Like you, two of my drains came out after week one, but of the two I have remaining at 2 weeks out, one is still not getting into qualifiable range (the other has been ready to be taken out). What bothers me the most are these boobs under my arms. I got filled 250cc each in surgery and wonder how much of this is the TE, swelling or fluid? Anybody have any ideas? Again, I'd probably be running into my PS's office to get these answers, but being so far away.....p.s. the sloshing has stopped. I only had that the day after I lost 100cc of fluid in 8 hours...may have well created a cavity. I kind of liked how I felt after that event, too!
Has anyone in December group started chemo or been told they need chemo, yet?
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Blessings - I think I missed it, but what is the time crunch about for losing weight before your exchange surgery? I think WW is fantastic.
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Bogie - Since surgery, I've always had blood draws and BPs done on my right side, where no nodes were removed. No one yet has said that this would be a problem....they said just avoid it on my left (SNB) side.
Kam170 - The LONG version of my story is on page 36 of this thread, somewhere in the middle. The SHORT version is that I need to lose at least 40 pounds, and Kaiser is offering an 82 week Weight Management Program. The first 16 weeks involve meal-replacements in the form of shakes, soups, and bars.
I need to get this fat off for two reasons: 1) My cancer is estrogen-positive, and even though I'm post-menopausal, my big honkin' belly fat is still producing estrogen. 2) I want my PS to have the best material to work with at the time of my exchange. If he puts in 700cc or 800cc high profile implants just so I can have some projection over my big gut, and I lose weight later, I will end up looking like Dolly Parton. NOT for me!!! I already know he will be doing extra work cleaning up some of my side boobage, and armpit fat/spillover, and it would be better to have lost the weight prior to going into the Exchange Surgery.
I was worried that my exchange might come sooner than I'd expected, because he was filling me so fast. But this morning I got only 80ccs on the left, and 60ccs on the right. I didn't tell him to stop; he just felt the TEs and said that was all for today. So actually, if we slow down, my wait until exchange (final TE fills + 3 months waiting period) may take me closer to my original date.
The meal replacement plan is faster than WW. I love WW, but I only lose a pound a week and often hit plateaus. I am very limited in how much I can exercise, and my doctors seem to think this program is a good jump-start to getting down to a normal weight. I can count on losing up to 40 pounds in four months. Then we start easing back into home cooked meals.
Sorry....guess my SHORT answer wasn't so short after all!
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Kam170 - My first treatment was yesterday. You can find some of us in the January or February chemo threads. I needed the results of the MUGA before she would set the date and type of chemo. It is looking to benchmark your heart as well determine if it strong enough to handle it.
I am definitely glad I had company for my chemo, but it really was non-eventful. I felt fine yesterday and feel fine today. I was able to drive without much concern, the company is what you'll appreciate but I felt completely myself when I left the office. It is tomorrow and Sunday that are supposed to be the tougher days for me. There are others that have said how far they have to travel for treatment, I can imagine what an extra burden that is

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and blessings you just made me giggle out loud!
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I love this group and have to apologize for not keeping 100% up. Blessings, I do remember reading your "meal replacement" post, but my memory just sucks! I too need to lose weight and do appreciate you explaining that to me. I wish you all the empowerment you need to complete the task - you will do it! For now, I'm just winging it; eating along the lines of Servan-Schreiber anti-cancer diet (he has a book and youtube video, btw, that are outstanding for cancer prevention and reoccurance). Yesterday my gf brought a slow cooker over ( a gift) and all the ingredients to make minestrone. I told my friends...more than meals, I want to walk, get kitty litter scooped and what a great idea she had. I'm not an invalid!!
Faith - I will look for your posts on the chemo threads...8 doses for you? Did you even have to have an Oncotype test?
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