Hip Pain - should I be concerned?

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Hi everyone,

 I've been having continuous pain in my left hip..One specific area of the hip, and have noticed a swollen node in the area on occasion.  The hip pain is getting worse and affecting my gait now.. Pain is worse at night when resting, or sitting for long periods.  Since my original diagnosis was DCIS, wondeirng if th is could be something else.. new occurance, mets, in my mind?? any thoughts?

Comments

  • sweetbean
    sweetbean Member Posts: 1,931
    edited January 2012

    The fear sucks, doesn't it?  Listen, it could be anything, but to be on the safe side, go get it checked out.  That's what I would do. 

  • lisa-e
    lisa-e Member Posts: 819
    edited January 2012

    If it is affecting your gait, get it checked out!

     It could be many things, including arthritis (my guess) but want to get it checked out.

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited January 2012

    I agree get it checked out.



    I too had been having hip pain, mostly at night, so I was concerned that it had nothing to do with movement.



    Well we did scans and turns out to be bursitis, and when I change positions sleeping that brings it on.



    We are keeping an eye on it for any changes.



    Suggest you get it checked out for peace of mind.



    Are you on any AI's?

  • Rozzy
    Rozzy Member Posts: 39
    edited January 2012

    @onebadbood.  I was on Tamoxifen for about a year..Had horrible joint pains, and a couple other side effects so I decided with my onc's approval (finally) to disconutine.  Hope I made the right decision.

    @sweetbean.. Yes the fear sucks big time.. I am always thinking "is this it again" or "what more am I going to have to deal with"  I'm dealing with lymphedema in the arm of the radiated breast.  Lymph nodes were radiated and I suffered pretty bad radiation burns in the underarm area which they think may haave damaged the nodes.. Thus now lymphedema has begun.

  • Rozzy
    Rozzy Member Posts: 39
    edited January 2012

    @onebadbood.  I was on Tamoxifen for about a year..Had horrible joint pains, and a couple other side effects so I decided with my onc's approval (finally) to disconutine.  Hope I made the right decision.

    @sweetbean.. Yes the fear sucks big time.. I am always thinking "is this it again" or "what more am I going to have to deal with"  I'm dealing with lymphedema in the arm of the radiated breast.  Lymph nodes were radiated and I suffered pretty bad radiation burns in the underarm area which they think may haave damaged the nodes.. Thus now lymphedema has begun.

  • Denise2730
    Denise2730 Member Posts: 648
    edited January 2012

    Yep, it's the fear of every unusual pain being mets that freaks me out. I was never one to go to the doctor's unless it was something serious now I have started dreaming that the cancer is back.

  • mikita5
    mikita5 Member Posts: 373
    edited January 2012

    Hi Rozzy,

    I, too have been having hip and leg pain.. I was working on a room and thought it was all the exertion. Now that the room is almost finished and I'm not exerting myself, the extreme leg pain is gone but I still have hip pain. Let's make a pact and go get it checked out. I've had this for about 2 months and keep saying I'm going to have it checked out, but haven't done so yet.  We'll meet back here to exchange diagnosis.

    As you can see, mine was DCIS also.  I don't care what kind of bc we have, there's always fear that it has come back..

    Hugs.......make that appt...... 

  • Rozzy
    Rozzy Member Posts: 39
    edited January 2012

    @chiluvt1228..I hope one day we are free from the fear.. It's a drag...

    @Mikita5...I'ts a pact...I've been having this pain close to 6 months now, progressively getting worse.. I am going to call my oncologist this week and see what he thinks.  Hopfeully it is bursitis or something minor.  But just in case, I guess I don't need to let it go any longer.  Good idea to meet back here and check in with one another.

  • 8cats
    8cats Member Posts: 5
    edited January 2012

    Better safe than sorry! If it is not metastisis you will feel better...if it is you can treat it! You are entitled to be more concerned than you were before bc! I too will get it checked out! Like using a flashlight to look under the bed for monsters is better than not looking!

  • nancyh
    nancyh Member Posts: 2,644
    edited January 2012

    Dear Rozzy,

    Any persistent, unexplained pain should be checked out.  Hope it is nothing.

    Hugs,

    NancyH 

  • Rozzy
    Rozzy Member Posts: 39
    edited January 2012

    Made and appt with the oncologist for next week.. I called the nurse and discussed it with her and He wanted me to come in and get checked. So we shall see. Thanks everyeone for your responses.

  • gutsy
    gutsy Member Posts: 391
    edited January 2012

    Hopefully it is nothing, I totally can relate to unexplained pains. It could be anything. Arthritus, pinched nerve, whatever. Is heat helping at all? I had significant pain in my back and ended up having a whole bunch of x-rays. It was degenerative something, eventhough I am in my forties.

  • Rozzy
    Rozzy Member Posts: 39
    edited January 2012

    Just an update,  Saw Oncologist and had an Xray on Friday and results today showed nothing.. Still having pain.. Was prescribed mobic on Friday which has taken the edge off but pain still persists.  Oncologist is sending me for an MRI on Friday. .He thinks it may be arthritis, since nothing showed on xray. He said the MRI will show if there is anything muscular, and will take a deeper look.  He also prescribed a steroid boost for the inflamation, hopefully this  will help.

  • Rozzy
    Rozzy Member Posts: 39
    edited February 2012

    Another update,  Just heard from the Nurse at the Oncologist ofc. .The MRI  from last week showed an abnormal area in the hip.. Edema Swelling and a possible fracture.. They are going to schedule a bone scan now.. What could be going on?

  • bcisnofun
    bcisnofun Member Posts: 488
    edited February 2012

    hi rozzy - sorry for the delay in reading your post.  When is your bone scan?

  • LtotheK
    LtotheK Member Posts: 2,095
    edited February 2012

    I have been through the wringer on this, I also got sent for a contrast MRI, no funsville.  I have been complaining of hip pain for months, which got decidedly worse when I started Tamoxifen and has been increasing since.  Rozzy, so weird.  Exactly same thing with me--some strange swelling they think might be an infection.  I'm on Tamoxifen, that's my bet.  Of course, I went through all the horror and fear of it being bone mets, and we aren't over that yet.  They are retesting my WBC and doing another MRI in a month.

    I really wonder sometimes what these drugs do to us.  Rozzy, your chances of mets based on your profile is just so low...

  • Rozzy
    Rozzy Member Posts: 39
    edited February 2012

    @LtotheK,  I took Tamoxifen for about a year.. I had horrible bone and joint aches, could not perform my job some days and it's low stress.  So I discussed withe the Oncologist and he said it was ok to discontinue due to low grade DCIS and just monitor more closely..That's been a year ago this month that I stopped tamox.. now i'm wondering if it was the best decision. I have very dense large breast, The technician who did my last mammogram called them "busy" said they are always changing. I'm wondering if it is possible that they are so dense and busy that something may have been missed.  Don't want to be a worry wart.. But the MRI rept stated that if there was no trauma or injury, they suggested a Bone scan to look for any additonal lesions and if there were then metastatic disease should be considered with history of breast carcinoma..

    I don't recall an injury or trauma that could have caused the current pain.  I do however have mild lymphedema on the same side, in the arm of the radiate breast.  since the MRI showed edema and swelling in the bone marrow. could the lymphadema be the culprit.. just moving lower??

  • LtotheK
    LtotheK Member Posts: 2,095
    edited February 2012

    Rozzy, let's stay in touch.  Sounds like we are in the same boat in terms of our findings.

    I don't think this is lymphedema.  The most likely scenario in my case, based on my readings and what my doc is saying, is a condition called osteomyelitis. It is an infection of the bone, and it is quite serious, but if caught early, treatable with a lot of antibiotics.  The other thing is, I wonder if bone edema can be something that comes and goes from gym and general body use.  In a general Dr. Google (ill advised in my mental state) suggests other things can cause edema, like injury or arthritis (which I've got, I think frankly, by age 40, a lot of folks show at least some signs).

    My doctor has ordered another MRI.  She says my MRI shows no concern for tumors, but if the next MRI shows the same occlusion, then it's bone biopsy time.

    I've been basically sick to my stomach about all this, but it really is important to remember that worrying doesn't change anything other than to ruin whatever time we do have on this green earth.  Please try to remember that and go reclaim your life until you can get answers.

    Again, your chances of mets are so low.  I was IDC Stage 1, and even in my case, the chance of mets is in the single digits with Tamoxifen therapy.

  • Rozzy
    Rozzy Member Posts: 39
    edited February 2012

    LtotheK,

    OK great, lets keep in touch.. sounds like we have a good bit in common.  My bone scan is scheduled for this Wed, with referral to a Orthopedic Surgeon on Monday.  I feel better with being referred to ortho, the oncologist must not be too suspicious in the area of any thing cancer related if he's referring me.  Maybe they are just being safe doing the bone scan..

  • Leah_S
    Leah_S Member Posts: 8,458
    edited February 2012

    Rozzy, I've been having bad hip pain recently. I already have bone mets (single lesion in sacrum) so of course I figured it was another tumor. Onc said from symptoms he didn't think so but he never takes chances so sent me for a bone scan. Good news! I'm getting old! No new mets. It's probably either arthritis or bursitis. Now I just have to make an appt with an orhopedist.

    I hope your news is similar.

    Leah

  • CKDancer
    CKDancer Member Posts: 1
    edited February 2012

    During the past year I have battled hip pain and sciatica and never put it together with the Tamoxifen!  Thank you to all of you who have shared this.  I had a bone marrow test and all was negative.  Since I am 4 years into Tamoxifen and May is my 5 year anniversary of 'all clear' from my breast cancer, I think it is time for me to move on without the Tamoxifen.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited February 2012

    I can so relate to this topic--about a year after I started taking my drugs (femara and lupron) I started to have a periodic pain in my hip..... I kept going to yoga, running,etc.  The pain was slight and only came on sporadically--- but when I woke up in the morning I could always feel "something".  I talked to the onc and to my pcp---both said it was unlikely bc-- and if it continued for longer thatn 2-3 weeks regularly, then we should take a look.  Well, it never did--I might feel it on Monday and not again for a week.  This past fall I was in a fairly aggressive yoga class- and I really felt it... and I could not shake it--- so I talked to my pcp and she had me start physical therapy--

    Well, what a revelation--turns out the problem was actually in my lower back and the PT was able to essentiall "move" the pain from my hip to my lower back which we now think is an old injury that has recurred--and it makes sense to me now since the pain would radiate down my leg-- sciatica which I had occasionally but never actually "solved" .  So the stretching in yoga was not really helping me and all the forward bending was actually irritating a disc..... 

     things are so much better-- I still sometimes feel it, but all I have to do is improve my posture and be sure to do the PT exercises--- I am still in PT and we have been slowly reintroducing exercises- pool running, elliptical trainers and alot of walking..... 

    I have noticed that it irritates more when I am sitting than standing, it gets better when my core muscles are stronger (that is the case for all of us) and the hip pain is practically non-existent.

    I know this is going to sound strange, but I really felt all along that it was not bc- the pain was not unfamiliar to me, but it was affecting my activity.   I do however think the meds have played a role-- I feel like I have no "oil" if you know what I mean--my joints and ligaments are more tender....

    I was really not interested in a scan, etc because I just cannot bear the waiting... I feel like during the dx period all I did was wait and get stressed and I just don't want to do that.  Certainly, if I thought things were really bad ,that would be different-- but this all seemed to start to resolve on the first PT appointment so I knew that it was more skeletal and posture related than anything else.  

    So, sometimes hip pain is actually lower back pain that has radiated to the hip because the disc is inflamed or has been knocked out of place  a little bit.  But, of course, getting it checked out is always a good idea..... I am just too chicken for any more tests other than my annual breast MRI.... 

    People say that they get off the drugs and it is like a miracle.  I am hoping to get off the lupron this spring and see what happens..... I am going to try to hang on the the femara until the  5 year mark, but we will see.  

  • Rozzy
    Rozzy Member Posts: 39
    edited February 2012

    Hi everyone,

    Had my bone scan which had similar findings to the MRI, bone marrow edema and swelling possible linear hip fracture, second consideration atypical metestatic disease.  The Orthopedic Doc is sending me to Vanderbuilt Univ to see an Orthopedic Oncologist for a second opinion.  He felt the hip pain may be bursitis, gave me a big injection of steroids which helped for 3-4 days now pain is back.  Recommended Physical therapy as well, which I will try to schedule next week. .I see the Orth.Onc in a week and a half.. Doctor said there is a very low chance that something "bad" is going on but he wants to rule it completely out.  So I'm grateful for that. But the waiting is the hard part. .Now I have to get all my scans on CD from the imaging center and take them to the Orth. Oncologist at Vanderbilt.

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