Jan 3oth, 10 yr stage 2BTN survivor!

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  • rhondalee
    rhondalee Member Posts: 13
    edited January 2012

    Just found out friday that oncotype score was 53!  I am scared beyond belief because I was also told that I am a triple negative after being told I was ER+ on the path report.......not sure why it changed to TN and my oncologist isn't either.  He said that he will have to do some more confirmatory tests (whatever those are??).  In the meantime, any long-term survivors of Stage 1, grade 3, IDC, with TN??  Needing a little encouragement after reading about TN and hearing such a high onco score.

    Thanks, Rhondalee

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  • Patti3
    Patti3 Member Posts: 53
    edited January 2012

    yellowdoglady..I have, wishing you the best and a happily ever after too!! :)

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  • JJsMominCA
    JJsMominCA Member Posts: 14
    edited January 2012

    To Rhondalee, I was amazed to read your post, because the same thing happened to me!  The pathology report from my original biopsy in October 2011 said ER+ (although weak).  Had lumpectomy and snb on Jan. 4 and today got path report from that which says they retested and I am ER-.  Have an appointment with oncologist on Jan. 17, will let you know what he says.  I plan to beat this thing with treatment, diet, exercise, organic living, yoga, all the things I didn't do before which is why I was overweight, unfit, and had a tremendous amount of stress.  Those 3 things are my enemy, and they are history!  Hang in there, I will be praying for you.  We can compare notes as we go along this path seemingly side by side :) 

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  • Hope60
    Hope60 Member Posts: 223
    edited January 2012

    Patti - Big smile from me when I read your post.  Congratulations, and thanks so much for sharing your good news!!!  We all need to hear these stories.

    Rhondalee and JJsMom - Sorry you have to be here, but welcome.  You might want to visit the "Calling all TNs" thread here.  You will find some very supportive, well-informed women who can answer any question you have.  I was also scared when I got my path report, so I understand. Yes, TN is generally aggressive but it's treatable, and you will hear many encouraging stories over there. Best of luck to you!

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  • HollyHopes
    HollyHopes Member Posts: 497
    edited January 2012

    Patti - you ROCK!!!  Thank you so much for sharing your happy 10 year anniversary with us!  It means the world to know there are long term TN survivors out there.  Next month marks my five year anniversary.  I am celebrating by hosting a luncheon at my simple, little townhome for the wonderful women who have helped me through this challenging journey.  There are 20+ of us who have or have had breast cancer.  It is an amazing group.  We meet for lunch once a month - always at one or another of the local restaraunts.  This month I want everyone under my roof.  Nothing formal - we just keep finding one another and inviting newcomers to join us.

    Happy, Happy, Happy...never thought I could say that five years ago!!

    Blessings for all of us,

    -Holly

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  • CharB22
    CharB22 Member Posts: 310
    edited January 2012

    Holly -- thank you, thank you, thank you!!! I hope to be doing the same thing in 5 years! You are an inspiration!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    As TNBC over 10 years ago, I felt so alone and helpless.  It is nice to hear more about this positive story. We are supporting each other -  We fight cancer not only with our physical body and treatments, but also with our spiritual. 

    13 yrs, Stage II, Grade 2, TN.

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    Thank you Dandelion!  Congrats!!  Some days we just all need to hear from long term survivors. 

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  • BelaT
    BelaT Member Posts: 217
    edited February 2012

    good to hear. enjoy life

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  • HollyHopes
    HollyHopes Member Posts: 497
    edited February 2012
    Char - I look forward to YOUR celebration in five years!!Laughing
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  • CharB22
    CharB22 Member Posts: 310
    edited February 2012

    Me too!! Me too!! Actually, I'll just be celebrating when I'm done this crappy chemo. Kiss

    My DH and boys were already planning our vacation...somewhere sunny and where I get waited on hand and foot!

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  • shila
    shila Member Posts: 7
    edited February 2012
    Patti3, you are my hero. Do you mind write more about your story when you have time? I would like to know more about your treaments, recovery, life style, everything. I believe in mind body connection, too and read quit bit about inner peace. Thank you very much for bringing hope to us.
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  • tibet
    tibet Member Posts: 545
    edited February 2012

    hi Cindy, nice to hear from you. I changed my sign in name. Will email you,

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