January 2012 rads
Comments
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chef127, I have not developed a cough, but understand that can be a side effect since our lungs are getting a skimming from the radiation. I'd mention it to the techs, for sure.
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I had my visit with the Radiation Oncologist yesterday, January 30. Ready to start on February 8. The Rad Oncologist told me this will not be a treatment just a dry run then real treatments start on February 9. My first appointment lasted 1 hour and 45 minutes. First had a chat with the Rn about my meds and other medical conditions. she took my weight and blood pressure, then had me change into a gown. The doctor came in and we talked and she examined me and made marks on my skin where the tatoos would be. Then I went into the room where the catscan is done and the tech positioned me on the table. The catscan result was not quite right so we had to do it again with a wedge behind my back to lift me up some. That was perfect. The tatoos were done and that was it. The worst part was laying on the hard table in one position for 20 minutes and it was so cold in there! Not that bad!
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Just had my first treatment today. Piece of cake, although I know SEs are cumulative.
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off to treatment # 4 Just starting to get slightly pink.. Then Herceptin treatment # 9 of 15.. Countdown has begun
.. Radiation done March 5.. Herceptin Done June 5.. Second stage of recon. then back to life Woohoo
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Just came back to work from tx #11. A little tired, but I think that's from the drive there and back! Ah, traffic. Still beet red, but not painful and the swelling seems to be going down. Maybe the anti-inflammatories are doing the trick.
On the way out I told them all my favorite bad joke: "see you next month!" They all paused and said: no, wait, what, no, oh, I get it...
I love saying that at the end of each month. For my coworkers, it's gotten old so I enjoy having new folks on which to inflict my humor!
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Yay! It is next month tomorrow!! I had tx #11 today as well. The anti-inflammatories are working for me as well!!! So relieved and so happy to be able to exercise again. A little pink at night but gone in the morning. I end on March 5th too.
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Was told that if you boil water, add salt let it cool then moisten a facecloth in it and lay over treated area.. This is supposed to help with the redness.. Going to try it.. won't hurt
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Ossa- I would ask first the nurse because it could hurt. Too much water on your skin could break it.
NWArtLady and Hawk - Are you applying any creams, oils or Aloe Vera? How many times per day? Why are you taking anti-inflamatories?
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Hello ladies. Glad to see everyone is moving right along.
I finished treatment #16 today. So far just a lot of redness and soreness. My boob is also swollen. My RO said all this was normal. So far, I've only used Aloe Vera gel once. Ossa, I might try your recommendation for the redness. I'm still wearing my regular bras but I think I may need to move to my sport bras soon. The regular bras are starting to get uncomfortable.
Hope everyone has a wonderful day tomorrow. Talk to ya soon!
HUGS!
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I just checked the radiation guidelines and booklets that the nurse gave me and it says: "If your skin starts to feel warm and is reddened, the nurse may give you materials to place "domboro" or "bluboro" soak on the affected area three or four times a day. Many people find this treatment to be cooling and soothing, and follow it with the aloe gel products". I finished treatment #7 today.
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Ralston.
The salt water idea was given to me by my chemo nurse who also works in radiation
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ossa, Isn't salt water drying to the skin? It may help the redness but the skin can dry???I don't know.
I asked the RO about my chest pain and unusual cough today he said "its not my field of expertise. go see your PCP" What. I was asking if the rads had anything to do with it? I bet it does.The techs said no. The rad nurse said I had a cold. I love her. she gave me a gift cert to a fine restaurant today thanks to a BC foundation. I asked her to join me. She is really sweet and informative. She said she couldn't and I should take my kids. Their always wining and dining. I'll ask her again, Next month.
14 down, 21 to go.
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Yes, I got to feeling bad and started coughing really bad. I found out yesterday I had a broken rib! But the RO said it was from the coughing and it was not uncommon for someone to break a rib. He gave me some pain meds and with all the inhalers prescribed by my primary care I am starting to feel better. Of course he didnt mention the radiation being a cause but I have read it can weaken your bones somewhat.
I had number 25 today. I am really sunburned and under the crease it is almost blood red. But it's not as sore as I expected. I can stand anything for 8 more days .... I hope.
See you ladies in February RADS.
Take care,
Helen
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Ralston, I am using Calendula (as recommended by my RO) and am applying it immediately after radiation (in the changing room) and sometimes in the evening. The anti-inflammatories are for the swelling that began after treatment #1.
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Gosh I think it is really easy to wonder if every little thing in our bodies is related to the rads or the cancer. I have decided not to go down that path; winter is always a hard time of year for me, I am still beset with menopausal systems and was before cancer; and have been under a lot of stress on the job, all these things can contribute to physical sensations and not feeling well, so I am going to assume it is not the radiation therapy unless a professional tells me otherwise.
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I am jealous that some of you have changing rooms. I just have a coat rack and a chair in the room with the machine. So I have to dress quickly, to make room for the next patient. It means that I can't put any cream on it.
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#6 down
NWArtLady - I quickly jog into the public bath room and apply calendula cream after each treatment.
Chef - That was the sweetest thing! I also want my nurse to give me a cert to a restaurant :d
I stopped wearning a bra after the first rad, am super careful when I am at home(read monitor the breast like a hawk). I try to walk around the house without a t-shirt as much as possible, getting bit cold in my little homestead when it is -16 degrees outside
I don't have any neighbors around which is helpful and the horses wont mind. I believe the yoga, walks and honey are helping me keep any swelling down.
Ossa - I think salt water definately is worth a try. I am looking at anything used on burns. So much crap is going into my body through the radiation that I don't want to add any more meds if I don't have to.
Getting a strange kind of tired. It almost feels like being on drugs.
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chef - that was so nice!
ossa - I would be careful of the salt because I agree with chef, you don't want to dry your skin.. I heard black tea that has been cooled or vinegar on a washcloth in the same fashion.
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I'm off to #20 today. The fatigue is so heavy. With chemo, I only had a day or two of fatigue, but with rads it is everyday and night. I finally took at nap yesterday for about 2 hours and my body was happy. I don't know about anyone else, but I've also been waking up early with night sweats and hot flashes. Seems that chemopause has really started the menopause train.
I remember back in June talking with my doctor and saying that I didn't want the cure to be worse then the disease. Well, I have to say I'm starting to wonder. I know I did the right thing by all the treatment choices I made, but before BC I was never physically sick. Now I feel beaten down. Sorry to be a drag and downer. I should be happy that I only have a dash over 2 weeks left, but I'm nervous about the Tamoxifen coming up too.
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Been told by rad team salt water is good.. ofcourse I also use moisturizing cream. Glaxal Base at least twice a day and aloe vera gel before bed.. Also have two aloe vera plants growing.. One in my bathroom that I snip a little piece of after my shower.
Tried the saltwater last night, found it very soothing..
We are assigned a "cubby" when we go for rads. so I leave a bag with my gown ( no point getting a new one everyday as it is used such a short time) as well as my cream so I can "glob" it on after treatment..
Banba
Where in Sweden are you from?? I grew up in Bergen, Norway..Miss it a lot. My family is still all there..
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Momine, no dressing room?!? That sucks! I'd say something to them about that - you have to be there every day for weeks and you at least deserve the dignity of a changing room. Banba, do you also not have a changing room? At least you can get the cream on soon after treatment.
Rockym, I, too, am feeling more fatigued. I just hold on to the fact that things will slowly get back to normal after we are all done with treatments (right?!?). And I know what you mean about chemopause! I am waking up in the middle of the night sweating, I even found myself tempted to take off my hat when I was talking to a group of students at work due to a hot flash! I didn't, though, because I dd not want to distract them from what I was saying.
I'm going to get some aloe to supplement my calendula - y'all are always a fount of good information!!
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#8 done, so far so good, but my RO said "expect the worse and hope for the best" (I have a Tissue Expander...) Well, I am hoping that she will be wrong
Rockym and NWArtLady - I am also having hot flashes and night sweats, but I began taking Tamoxifen almost 2 months ago. I almost didn't have any SE's during chemo, but since surgery my underarm is numb (nerves, TE and mild LE), so it really sucks when the cure leave you with "constant reminders" that somehow don't allow you to forget. I also started feeling pain in my feet and heels first thing in the morning when I get out of bed. It sucks!
I have a dressing room and a new gown everyday. It is really convenient because I apply aloe vera after each treatment and it's kind of messy, but I can wait until it dries to get dress without anybody rushing me.
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Interesting to see the different experiences. I have a changing room and there is coffee and other drinks available if you want anything. The techs seem to change a lot, there is only a couple of consistent people, but they are all very nice.
I just had #15 out of 33 and I am holding up well. I have a little bit of a "tan" but am not feeling anything different. I use aloe right after the treatment, and still using emu oil and aquaphor. I also got some Miaderm and have used a couple of times.
Fatigue is wierd. Some days I feel totally wiped out, and then others I am totally normal. I lost another pound this week. Not that I am complaining! It is just kind of weird.
Chef, are you still losing also?
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Banba - I also think that my daily stretches and manual drainage (plus drinking tons of water) are helping me to keep any swelling down.
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hello ladies,
Another uneventful tx. #15.
anafoefana, Lost 2 #'s at last weigh in. Gained the 2#'s back this week. I guess the meno is normalizing. or is it the rads?? My skin is also a pinkish tan and not sore at all. I must be leather like. I hope it continues to be so easy but the worst is yet to come.
I'm not really moisturizing as much as I should. Will I regret this lazyness? I'm the same way with the fatigue, some days it hits me and somedays not.
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Just home from # 5..
Was told by radiation nurse to stop using Aloe Vera, just use Glaxal Base and salt water. Was given an instruction sheet on salt water compress. It goes as follows:
Saline compresses are recommended for skin irritation and soreness. Saline compresses clean and sooth the skin as well as reduce inflammation and improve comfort
Recipe for saline:
Heat one litre of water to boiling. Remove from heat.
Add 1.5- teaspoons table salt. Stir until dissolved.
Pour solution into clean one liter container.
Cover and leave at room temperature to cool.
Make a fresh solution each evening.
Saline compresses:
Wash hands well with soap and water
Place gauze or clean facecloth in a clean bowl
Cover gauze or facecloth with room temperature saline solution
Lay wet gauze or facecloth over area involved for 10-15 minutes.
Re-moisten if required.
Discard gauze after use
Gently dry surrounding skin
Repeat ______ times a day ( I was told to use as often as I felt like it)
Was told this is usually recommended about midway thru treatments.. as I am a very fair skinned redhead who burns if the sun just peaks around the corner, I was told to go ahead with this as they are expecting me to burn. Was told they will probably stop using the bolus in a few more treatments as I am already quite red
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I just finished #20 of 33 today. Five more whole breast treatments and I start the boosts. The boosts will be a higher dosage and they are pretty sure I'm going to burn. Not looking forward to those.
I'm very fair skinned and sunburn very easily. I'm also large breasted and they said that combination was going to mean trouble for me. So far (and I still have a ways to go) I'm only dark pink on my upper chest and under my arm. I'm light pink on my breast. However I have quite a rash on my chest and it's been there for a while. I'm using aloe on the rash and miaderm on my breast. Some days I just spread both everywhere. Who knows which one is really working best? I'm just pleased that I don't have blisters... yet.
I agree with Banba that the fatigue feels like you're on drugs. I get really light headed and my brain feels like it's in a fog. It comes on suddenly for me and usually in the afternoons (I get morning treatments). I try to either just power through it or I go out to my car and take a short nap. The real blessing for me has been that I take every Wed. afternoon off now. I sleep about two hours on those afternoons and it really helps. It also helps me psychologically to break up the monotony of the week with the treatments. I think it's what is going to help me get through.
My breast also continues to swell. It is quite a bit bigger than the other one now making the bra begin to be too tight on that side. If I go without a bra any bouncing around causes me pain. My breast is so sore I even have to be careful putting on the cream.
Thanks ladies for being here. No one else really gets what I'm going through and talking to my family just distresses them that there is nothing they can do to "solve" it. Venting the other day just made my mom cry so no more talking about it to her.
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Fatigue feels like I'm carrying around a 100 pound backpack. Never really experienced anything like this before. Even my voice is softer and yes, I'm not nearly as quick on my thinking. I tried to remind myself today that I'm getting closer to being done.
RO said that there should be less fatigue with the boosts so perhaps I'll be feeling better sooner.
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There are no changing rooms anywhere, no gowns either. Why gowns? You wear it while on the table?
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Momine,
The gown is removed at the table to expose the rad area. My facility provides the gowns and a robe. Seems like a real waste of laundry. I take my gown home with me because i only wear it for 5 minutes. The facility is extremly efficient and I never wait more than 2 or 3 minutes for the Tx. No time for refreshments Like some of you are getting. They don't even offer a mint.
Hang in there.
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