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  • Shemp
    Shemp Member Posts: 89
    edited March 2006
    I want to add, my wife has been so incredibly strong and enduring through this, especially radiation. Every day she made that 40 minute drive there and 40 minute drive back and never complained. She finally got a nice burn toward the end, which I knew was ultra sensitive, but she hardly let out a peep. She toughed out 4 surgical procedures, 8 chemos and several trips to Iowa and Wisconsin for medical appointments. Add one trip to the ER for uncontrollable nausea, wig shopping at age 29 and numerous other doctors to treat the side effects of the treatments and it's just amazing how she puts on that smile most days. Did I mention she only missed about 20 days from school for all that?

    225 days of torture, done.
  • cowgirl
    cowgirl Member Posts: 777
    edited March 2006

    Shemp Yipppeee!!! So happy for you! And yes I am sure she is a happy camper to boot, after all she married a happy guy!

  • cowgirl
    cowgirl Member Posts: 777
    edited March 2006
    Mags I love the kitties and the Cuties! What a happy bunch you are! Carrie I honestly think considering where you have been this is not a bad news thing. They will watch you and that is a blessing!

    Okay off to shower for the MRI, hubby said I smelled like goats! They are going to be hungry but I will feed them late tonight!
  • Notsopuny5721
    Notsopuny5721 Member Posts: 110
    edited March 2006
    Shemp: Great news! And big kudos to you, my man, for standing by your woman through all this and being there for her! Whatcha guys going to do to celebrate?
    Best,
    Greg
    P.S. Cowgirl, good luck with the MRI.
  • csp
    csp Member Posts: 2,765
    edited March 2006
    Shemp,
    So happy the treatments are done!!!
    Happy dance for being done and for DW's birthday!!!


    image

    image


    sending prayers cowgirl for a easy fix!
    Carrie
  • KariLynn
    KariLynn Member Posts: 1,079
    edited March 2006
    Shemp,

    Congrats to you and your wife!!! I hope she recovers well from treatment and stays well.

    Party!!!
    Kari
  • mags
    mags Member Posts: 233
    edited March 2006
    Hi guys, just checking in.
    Shemp excellent news about your wife finishing chemo. Here is a happy dance for you [if i get it right].

    image

    Couldn't remember which one i needed.
  • mags
    mags Member Posts: 233
    edited March 2006
    Cowgirl I hope everything is ok with your MRI. They would have to give me a happy dart just to get me in the machine.

    I haven't got around to doing any of my tests yet. No, I am not putting them off but am finding it hard fitting in the 3 1/2 hours for my lymphedema therapy and work too. That's including the travelling. I promise I will do them on my days off. That's Tuesday and Wedenesday and I'll let you now how they went.

    Hugs all

    Mags.
  • purplehaze66
    purplehaze66 Member Posts: 136
    edited March 2006
  • cowgirl
    cowgirl Member Posts: 777
    edited March 2006
    mags,
    I thought of you in that machine, I kept saying if mags can handle LE for 24/7 I can do this machine for 20 minutes. You are an inspiration, you take whatever you are thrown and keep happy!

    Shemp,
    When do we get Marguaritas? or your DH's favorite food and drink?
  • mags
    mags Member Posts: 233
    edited March 2006
    Thanks cowgirl, but it's not quite the same thing. I know you've been in pain with your arm - luckily my lymphedema is only mild and doesn't hurt. The bandages are just an inconvenience. Hope there's a quick fix for it any how.
    Shemp, I'll give the Margaritas a miss and have a Daiquiri instead.
    Hugs
    Mags
  • Notsopuny5721
    Notsopuny5721 Member Posts: 110
    edited March 2006
    Hi Everybody: Broadcasting live from the Pacific NW, where we are visiting my in-laws for about a week. Saw a black-capped chickadee-my favorite bird--at the feeder this morning!

    Hope everyone is doing well and wishing you all a great week (don't know how often I'll be able to get on here.)

    Best,
    Greg
  • Shemp
    Shemp Member Posts: 89
    edited March 2006
    Quote:


    Shemp,
    When do we get Marguaritas?


    If they're strawberry and frozen, I have a feeling my wife wouldn't hesitate in buying for everyone for a whole evening!
  • csp
    csp Member Posts: 2,765
    edited March 2006
    Hi everyone ,

    I have my path report back and I wanted to share with you

    whats going on,It seems I have some difficult decisions

    to make and as a part of helping me I wanted some input

    from my friends So here is the report from Vanderbilt Univerity Medical Center Breast Consults in Tennessee:



    Well Developed Atypical Lobular Hyperpalsia with ductal

    involvement by cells of Atypical Lobular Hyperplasia; Focal Atypical Ductal Hyperplasia; Papillary Apocrine change, Sclerosing Adenosis.



    Cowgirl is Helping me sort this out and understand I guess

    having both ALH and ADH in the same breast is rare and increases chances of developing BC in both breast

    and more so with first line family history.

    here is a link:

    http://www.breastcancer.org/research_genetics_011103.html



    Help I'm kinda worried

    Carrie
  • cowgirl
    cowgirl Member Posts: 777
    edited March 2006
    Carrie,
    You know what I think! This is something you need to do something about before you get to the BC stage, now what that is up to you!

    Greg great to hear from you, I hope you are having a good time!

    Shemp you buying I am drinking! Course I rarely drink but this is a special occasion!
  • KariLynn
    KariLynn Member Posts: 1,079
    edited March 2006
    Carrie,

    Sorry that you have big decisions to make. I don't know what all those words mean or how much those increase your chances of getting BC but I will advise you not to make any hasty decisions or any based on fear.
  • Shemp
    Shemp Member Posts: 89
    edited March 2006

    Carrie, I'm glad it's not the worst news, but I still wish it was something better. I'd never read about that diagnosis until I clicked on your link. That's certainly an unenviable position you're being put in, but as KariLynn said, take your time and think things out and be comfortable with however you want to address it. Best wishes.

  • mags
    mags Member Posts: 233
    edited March 2006
    Hi Carrie love, I just read your post. This is going to be a big decision for you so don't rush it. All the women here tend to agree that you have to go with what is comfortable for you. Big big hugs.
    Greg enjoy your holiday with you in-laws. I'm jealous about the only birds I see are magpies.
    Looking forward to the strawberry marguaritas.
    Hugs all
    mags
  • mags
    mags Member Posts: 233
    edited March 2006
    Hi guys, I managed to find some spare time today to go and do my blood test. They have always told me that I have thin hidden veins but usually get the blood no problem. Not today though. We started in the usual place and had to stop as she said the vein was reacting. Think she meant that it would have collapsed if we'd carried on. She took the rest from my hand near the knuckles - not very nice at all. So next time I have to go I am going to be stressed even before I get there. I used to go to another microbiologist and I think I'll use her next time. She put a butterfly needle in for me. I'll probably have the results tomorrow or the day after so I'll let you all know how it goes.
    Hugs,
    Mags
  • csp
    csp Member Posts: 2,765
    edited March 2006
    {{{{MAGS}}}}}} ooouch!
    I have the same problem with blood draws and IV'S !!
    Hoping all goes well with the results, will be watchin for your post!

    I went to see GP today about Path, he is running about a thousand blood test to see my risks of blood clots, liverstuff I don't know what all for tamoxifen.
    He Is recomending breast MRI as soon as surgery site heals
    Wants me to start the breast cancer diet now, no soy,
    low fat lots of veggies and fruit of all colors.
    and....
    Did I mention I smoke? THE PATCH!

    wish me luck!

    hugs,
    Carrie
  • KariLynn
    KariLynn Member Posts: 1,079
    edited March 2006

    Good luck with the patch - if it works it'll be worth it! DH smokes (not in the houseor car) and the smell stays on him and his breath - yuck!

  • cowgirl
    cowgirl Member Posts: 777
    edited March 2006
    Mags Yuck! I am really sorry, my friend always insists on a butterfly, maybe you can start to.

    Carrie, Laura is the expert at veggies of color, but she is away right now! Welcome to the lowfat club!

    The patch should help, chew gum if you have to!
  • mags
    mags Member Posts: 233
    edited March 2006
    Hi Carrie, I've just started taking 100mg of aspirin a day to try and keep the blood clots away - don't know it that is too much. I'll look it up later. I already have the liver problem Carrie from the tamoxifen - fatty liver that is why I am worried about my blood tests. I was on a really low fat diet for a while but couldn't keep it up. I stopped smoking 2 years ago when I found the lump - cold turkey - but then I substituted food instead. 20lbs later lol.
    My bf smokes in the house and car but it doesn't bother me now. I hate the dirty ash trays though
    Cowgirl - when will you get the results of your MRI? My lymphedema therapist says she usually does 20 massages but maybe I can only do 15. That would be another 3 weeks of wrapping. It will be such a relief not to have to do it any more.
    Hugs all,
    Mags
  • csp
    csp Member Posts: 2,765
    edited March 2006
    Mags,
    I have fingers toes crossed your test will come back
    clean.
    I am a stress eater , my DH can't eat when he is stressed, I did good yesterday, less cigs and less food
    I am trying my best not to take it out on my family lol!
    Why is it everything I like is not good for me!
    (Ithink there is song like that!)
    We will have to have
    a Mags doesn't have to wrap party !

    Cowgirl ~
    How did the MRI go yesterday ,
    When is your next appt. hope you
    can start getting PT soon!!

    Kari,
    How are you doing?
    you always pop in give support
    hugs to you!

    Carrie
  • mags
    mags Member Posts: 233
    edited March 2006
    Hi ladies and gentlemen,
    Carrie I am so excited. Greece has finally discovered low fat potato chips. I am so addicted and now I don't have to feel so bad about eating them. Can't wait for the not having to wrap party.
    Cowgirl waiting to hear about your MRI. Is this another one?
    Were you thinking of me again lol? So pleased you are helping Carrie with her diagnosis. You are both such sweet ladies.
    Hugs all,
    Mags
    xxxxxxxxx
  • laucher
    laucher Member Posts: 2
    edited March 2006
    Shemp--

    i know you are just "finishing up" on this, but i thought you might be able to help another guy out. I spent a good portion of today reading the long list of posts here, and I think it is great what you guys have created here. I am about to turn 29, my wife 31, she was dx on 10/13/06 with BC. She has finished chemo, we are gearing up for surgery and radiation. I guess we are entering another unknown area, as chemo was pretty regular and measured out.... predicitible more or less.

    Last night she finally confronted me with "you dont love me like you used to." I couldnt deny it. I hate that this is so, but is something that has been growing inside me. I have been to all her appointments and done as much as i think i could do, i am sure i could have done more. The thing is, I want to love her and be a great husband. I told her this "I wish i could be one of those guys who just was a solid rock and never wavered or anything...but I havent been able to do that. sorry"

    I dont have a guy friend or even a girl friend we live in a crappy town and i cant seem to connect with anyone. I'm not good at alling someone and saying, i need to tell you about how s88itty my life and marriage are right now. heh, i guess i can do that my an email message board to a guy named Shemp.

    Basically i can do the medical hospital part. It's the staying emotionally connected and loving that i am having a difficult time with. Any advice?
  • Shemp
    Shemp Member Posts: 89
    edited March 2006
    Hi Lacher,



    First glad you found us. Any age sucks to deal with this, but our age darn well blows. I think you're bound to see your wife in a different light through this because that's not the person you married. Bald, depressed, moody, yacking in the toilet, and without energy probably wasn't what you were expecting of your wife at age 31. I know, I'm assuming, but I feel pretty comfortable making that call.



    The thing is, you'll get your wife back. I know she's likely bottomed out and had some real lows. She'll normalize in time and eventually you can go back to doing the things that made the two of you fall in love and get hitched in the first place.



    I understand the not doing enough part. Some days I felt I was doing well, others I thought (knew?) I could or should be doing more. At the same time, you're hoping things are the the way they were, and that you didn't have to change or do more.



    Staying emotionally connected is understandably difficult. My wife often says "I know you didn't sign up for this when you said 'I do.'" Well, truth is, I did, but I sure as hell didn't know it. You lose the physical closeness, you lose the time spent doing things she could have done before and you lose the time to just talk because she's not feeling up to even moving or talking during chemo. But again, you get her back eventually.



    Through all this, we've been looking forward to doing the things that were temporarily taken away. This summer, we should be able to take another outdoor vacation, and I think she'll have worked back up to a reasonable energy level to have some outdoors fun. She's starting to find that urge again to get back on the bicycles to do some riding and such.



    Lastly, I'll add, there's a local place here that does support things for patients and caregivers. Sometimes it's nice to just talk to someone that understands, or at least listens so you can unload. I suspect unloading on a stranger that understands is probably a lot easier for a couple reasons than unloading on a family member or friend.
  • KariLynn
    KariLynn Member Posts: 1,079
    edited March 2006
    laucher,

    Don't beat yourself up about this. You didn't say how long you've been married, but no one loves their spouse the same for the entire time - sometimes you love them more and some you wonder what in the world you were thinking when you married them!

    This disease sucks and really takes a lot out of the entire family, not just the patient. You need to be sure to take care of yourself so you don't burn out.

    I think the chemo is the hardest part so take a little comfort in that. Maybe you could try to arrange to get out of town for a couple of days (alone or together) and charge back up for the rest of this.

    Carrie - I feel great! Go to Houston next week for all my scans - will be popping in to the inspirations thread asking for prayers!!
  • cowgirl
    cowgirl Member Posts: 777
    edited March 2006
    I would have to say that BC isn't easy on marriage, but for the most part the low is only temporary. Nobody likes it but she will one day feel better, and suddenly your marriage will be strong again.

    Update on me, is I have frozen shoulder, not rotator cuff. So resting it was terrible advise, I go for PT on Tuesday. It is going to be a long haul to get well but as always I am too stubborn to give up!
  • mags
    mags Member Posts: 233
    edited March 2006
    Hi Cowgirl, I saw on the lymphedema section that it was frozen shoulder.Bet you really want to punch the doctor who told you not to excercise it. I know that it will get better as I know you will work hard at getting it better.
    Going to pick up blood tests tomorrow. Going to have a small glass of wine as it may be my last if my liver isn't looking good.
    Laucher, I hope you and your wife get through this together. I know that it's not the easiest of times and that you are coping with it too. She really needs your support now though. Feel free to come in here and vent whenever you feel the need if it helps keep you together.
    Hugs
    Mags

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