This all seems to be going backwards, bit of a long rant...

Dulie
Dulie Member Posts: 26

I've only posted one other topic and I've sat and ignored, mulled, been frustrated and anxious so I'm coming to vent and hopefully feel better... and we all know an understanding shoulder is worth more than it's weight in gold!

On Dec 27 I had a lumpectomy.  Prior to that I had a stereotactic biopsy for an area that showed up on a mammogram as micro calcifications.  Since April 2011 I have had 3 mammos and 2 dx mammos. Not one picked up my tumor but ultrasound did in April and it had grown quickly between then and Dec.  

My GYN and surgeon both felt it to be a plugged gland (Montgomery?) and it would be a simple outpatient surgery.  Even with the history of an aunt on both sides of my family having breast cancer of  which my dear aunt on my father's side died of bc at my age.  anyway...  They figure it was probably nothing to be concerned about.  

Fast forward to Jan 4, I'm sitting in my surgeon's office and she comes in with my chart and says, "We need to have a talk, Sweetie".  I just looked at her and said, "I have cancer."  (I love my surgeon and she is a breast health specialist).  What else could possibly happen, I'm in the middle of a divorce, my "ex" refuses to turn over financial document, I'm unemployed (was a sahm for 24 years) and he closed the bank account and says he is paying bills.  I get about $300-400 per month to meet all my needs... oh, and the house he didn't pay on is now ready to be seized by the bank in 3wks and the car is going to be repossessed.  I have been searching for a pro bono lawyer (ha! they do not exist) and will be standing in front of a judge Tue morning to beg for filing fee waivers.... anyway,, that's a whole other issue in my life...  can I use the "f" word here??? because it is the only one I can say that feels goodn to utter... sigh..

Anyway, because no one suspected cancer (although I had been complaining of discomfort in my breast and under my arm for a few months but thought that with negative mammo's it was nothing to be concerned about).  She did excise tissue around the tumor but nothing else.

The dx is IDC but that is about all we know.  The path report I have is very basic, no details, just type of cancer and Histologic grad (Nottingham)... but I don't understand what it's saying.  I'm a detail person and this is driving me NUTS!  

I know I will have more answers tomorrow morning but for some reason today this is eating me alive!  The surgeon says at minimum I need to have more breast removed (my opinion, lop the thing off and her sister too!  Removed nodes for testing and radiation.  Depending on other factors which I have no idea completely what they are but I've been reading and my head is bulging, and wait for for the brca tests it could change the course of treatment.  I'd rather reduce my risks of future cancer-besides, after my divorce I will not have health insurance... oh, did I mention that in his frustration he spit out that the only reason he is working a job he hates is because I have cancer and need health insurance.  That at the first possibility he's quitting and out of the area so here's hoping this doesn't complicate both our lives for long... ummm... wtf??? (can I say that here?)... him and his little dog can leave town (well, not the dog, I'm keeping the terrorist terrier). 

My family and friends are going nuts with me.  I have been working so hard to try and get some divorce settling done... even on hold in a pattern but I don't know how successful I will be (we've been seperated for a year and have both moved on in certain aspects of our lives)... and cancer has seemed to take a backseat.  I grew up in trauma and have learned to disassociate things quite effectively... sigh... and this is what i've been doing with bc.  I cannot do that, bc needs to come first.  

It all seems backward... and in reality not much time has gone by but it feels like ages!!  I did have an mri last week and everything should be in report wise... I am blessed that I have adult kids (and nine grands) that are extremely helpful.  My 26 and 20 year old sons have moved back into the house as support.  I'm praying we still have it next month, I cannot imagine surgery, cancer treatment and no home!  My daughter is a gem and five minutes away and my oldest son is nearby with his dear wife and family.  

Maybe it works this way at times, what seems to be a simple thing turns into a life altering event.  It just seems so backward and everything taking so long but I think time stands still for those of us in such situations.  It just seems silly to have nodes removed, more breast when seriously... take it all, that is honestly how I feel, and take nodes too but maybe I'm being unreasonable??? sigh... 

Dulie's rant for Jan 29, 2012... probably one of many to come.

I hope I have not been out of line in I've posted.  If I have please give me a poke.  

Comments

  • Dulie
    Dulie Member Posts: 26
    edited January 2012

    I think the thing that is bugging me most is there are no details on the path report, just the very basic.  I'm hoping there are more details when I get to the office tomorrow.  ugh!  I don't think coffee is a good idea right now Wink

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2012

    Wow, you haven't been out of line at all. But what a lot of s^#t you've got on your plate! Thank goodness you have kids you can rely on. I would cling to them! If your husband still has his insurance can you get on COBRA to help pay for treatment? Let us know how you are doing. This is a great, supportive place with a wealth of information.

    God bless! 

  • kira1234
    kira1234 Member Posts: 3,091
    edited January 2012

    nanapants I can understand just how frustrated you are about now. At some point you will need a SNB to find out if it is the nodes or not. The MRI will give indications, but not 100%. With the path report you have so far you know the kind, and the grade as well as the size of the tumor. I would recommend you have the surgeon send in testing to find the Oncotype score if you are node negative, or very little involment of the lynpnodes. It helps to know if chemo will be needed.

  • stillhere663
    stillhere663 Member Posts: 22
    edited January 2012

    Not out of line at all. You deserve to vent.

  • Janie-bug
    Janie-bug Member Posts: 181
    edited January 2012

    Nanapants - Wow girl you are going through a lot. Cancer alone is hugh my its self. Plus all the other things going on. I am sooooooooooo sorry that you are having to go through this. You can absolutly  come here and rant anytime you want to. There will be lots more information coming form your doctors. When you get all of your results you will have several decisions to make. It sounds like you already have an idea of what you want to do about the "boobs". There will also be other treatments that you will have to think about depending on your ER/PR/HER2 status, your grade, stage and possibily the oncotype dx test (depending on your histology). The ladies on these boards are a valuable sorce for information AND SUPPORT. Good luck tomorrow and let us know how you are doing. I will pray that things get better for you. I am so glad you have wonderful children close by to help you. RANT anytime you want and as much as you want here!!!!!!!!!!!!!!!

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited January 2012

    Wow! You have really been put through the wringer!!! Rant away......

    Sending love & support. NJ 

  • Dulie
    Dulie Member Posts: 26
    edited January 2012

    ...dont' you love it when the post you are working on disappears...

    Thank you ladies!  I feel like I am on such a rollercoaster!  My kids are great and I don't know what I'd do without them!  They have contacted my partner who lives in Cali (my ex and I haven't "been together" as a couple for a very long time) and told him to get up here.  They know he is a great support and they feel i need him more than I want to admit... they are right!  They talked with me the other day and said they can focus on some of the other needs (housing, food, etc) and give me emotional support but that my partner can be here in a way that I really need and they support him in focusing on me for as long as it takes (not much details here but not really necessary)... I think it's my mad cleaning and organizing of kitchen cupboards, scrubbing bathrooms top to bottom... it's giving me away- I clean when stressed.  Last night I was going to clean the oven because the sleeping pills they gave me weren't working and I felt anxious... I decided against it as I did feel uncoordinated.  It would be nice to have him here... As my daughter, Sissy, said, that with him here they can work the other issues and know that he is here to help me intimately physically and emotionally... She's right, my red headed wonder.  I do have great kids.

    One thing that doesn't help is I have pain from old injuries and what they are trying to rule out as MCTD (mixed connective tissue disease)... for now they call it fibromyalgia.  I do worry about pain control being an issue post surgery, a road I'll cross later but it needs discussed. 

    And all the other things some of you mentioned: (Janie-but)  ER/PR/HER2 status  (thanks to this site I am becoming very informed!) etc...

    from my understanding in my state I can request up to five years post divorice insurance coverage.  If I get that I don't know but we had a 24 year marriage in which I stayed home.  My ex is not all bad and he seems to be scrambling to fix some things.  You can't be together for so long and not feel something.  I think his anger speaks volumes.  sigh... and he brought me two beautiful steaks (I'm a meat-o-saurus when I get the opportunity), he's not all bad, lol.

    Thanks friends!

    tomorrow I will know more, my daughter is going with me to the surgeon.  She was so excited I asked.  The kids really do want to be involved but don't know how...  I suppose in all this there will be an off kilter sort of normal that will happen... 

    whew, feel better!  Just may put on some mascara and lip gloss.

  • Lumpynme
    Lumpynme Member Posts: 747
    edited February 2012

    rant away...hugs....

    lean on your kids-they WANT to be part of your life.....

  • Dulie
    Dulie Member Posts: 26
    edited February 2012

    Thanks for the reminder Lumpynme.  I am finding that while I want to "protect" them from what is really going on in my heart and my head that isn't quite fair to them. 

    It's apparent that cancer is a family affair... 

Categories