January 2012 rads
Comments
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Hi All,
I had 6.5 weeks of radiation ending August 24, 2011 with the last 5 being the boost to the surgical area. I was diligent about using the lotion they recommended and i got quite red by the end but no discomfort. I did have some fatigue but not bad. Chemo is more of a challenge in my opinion. But since I had chemo first, it made the radiation seem like a piece of cake. I know you ladies who are going through rads now will tolerate it just fine. Best of luck and it will be over before you know it!
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I had six chemo treatments of Cytoxan & Taxatere with last one on Dec.7th. On January 12, I had right Mastectomy. Now, getting ready to have 33 radiation treatments due to size and location of my tumor & 2 positive lymph nodes. They tell me if I can get through chemo, this will be a breeze but the unknown is always scarey. I see the RO again on January 30th for tattoos and will start radiation on Feb.6th if everything has healed from surgery (still have one of two drainage tubes). I am 69 & had IDC of the left breast only 5 years ago with Mastectomy, had my regular mammograms, Ultrasounds and breast MRI's since that time so this really shouldn't be happening. Somehow, my tumor was missed on these tests due to location (against chest cavity). Really looking forward to getting the radiation treatments over and going forward with my life and I'm sure each of you feel the same way. I feel very blessed because I'm still here. So many of our sisters did not get this far. So happy to be a part of this group. God bless all of you through your journey...
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Banba - I plan on trying honey too if it starts to need more than moisture. It worked on my c-section scar that wouldn't heal for 5 months. Slathered on raw honey - and I do mean straight from the extractor - not heat treated. Bit messy, but cleared up in a week, OB was amazed. Had been reading in a bee journal about how they had used ground up earth worms and honey (or something yummy like that) to treat burns in China - with better results than we get in our burn centres. So I decided nothing ventured, nothing gained. They did use it to treat wounds in WWI before antibiotics! And yes the bgirl moniker is bee girl - I do keep bees with my husband.
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Hi all,
1 down. 32 to go. I'm already pink and purply. This is going to be a long 6 1/2 weeks. I take medication that makes me sun sensitive. yikes. I was told to use Aveeno moisturizing lotion 3x a day.
It was interesting and a little disturbing that when I was getting rads that they set me up on the machine, left the room and closed a door that was close to 10 inches thick. I'm thinking what's wrong with this picture. I'm laying half naked on the table and they leave the room closing this gigantic door behind them. oh well...
Question: What type of bra or sports bra is most helpful. I still need to be able to dress work appropriate. I haven't been able to wear an underwire since biopsy and the sports bras seems so tight. If I burn...I don't know. Any suggestions?
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Lifechanging - Love your name, so appropriate! I started with the pink first treatment too - have 7 down and 28 to go. My doctor told me on Tuesday to not wear a bra - since I am a 40D/DD that's really not going to work for me. I have a pajama top that is a tank with a shelf that is working for non work days. I searched a bunch of stores for more but only found tight spandex ones - Walmart.com has some tanks with the shelf that look perfect and are pretty cheap so I ordered a few of those - hoping they are tight enough to support but not spandex tight. I get them tomorrow and I'll let you know how they are..
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I decided to be "bra-free" during rads.
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lifechange..
I found the genie bra to work well. A sportsbra found online as well as at bed bath and beyond..
Good luck with all your rads ladies, had one of 28 today. My rad team explained everything they where doing.. even brough DH in from waiting room so he could see what they were doing, then had him watch the monitor while I was getting treated..
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lifechange2011 - My rads facility has an area that sells bras for breast surgery patients so I met with their fitter and she recommended the Leisure Bra from American Breast Care. (www.americanbreastcare.com). It hooks in front and looks like a sports bra, but is not as binding and controlling. I got mine on day 2 of rads (today was day 6) and so far so good, wish I had had it after surgery.
I am required to wear business clothes for work and it's not obvious under those types of clothes. Since my RO recommended it, they billed my insurance and said they will at least pay part. It comes in four different colors. Good luck, this was a not so easy part of the journey, but I've been pleased so far.
Have a good weekend.
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Hello folks,
May I join you? I began radiation last week and had my 8th treatment this morning. Lovely people, my radiation therapists.
I use an ABC machine while doing radiation - it enables me to breathe in deeply and hold my chest wall away from my heart so as to avoid radiating it. This is great because I did Adriamycin and am doing Herceptin, both of which can do heart damage.
I am having one issue, though: after treatment 1, I developed severe redness on my breast and some swelling. 2 radiation oncologists say this should not happen this soon... they think it might be an infection. I went back to my breast surgeon and he says it is not an infection and wants me to take anti-inflammatory meds and check back in a week. Has anyone had this happen to them?
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I am "fortunate" on the bra issue. There are no breasts anymore. However, I am looking for work. If I get interviews and a job lined up, I will have to pull out the bmx bras that I purchased and get my breasts out of the box on the shelf. : ) The RO told me that if that becomes a problem area that they have some cooling pads that they can use to work with the areas that hurt, etc.
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I wish everyone the best possible outcome with your rads treatments. I have decided to opt out of doing rads in light of my age and prognosis. I feel it's the right decision for me at this time in my life. If I were younger, I would be looking at this from a much different perspective.
Sending you all prayers and positive energy!
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NWArtLady - Welcome! I developed some redness after my first treatment, but it was gone the next day. I am applying 3 times a day 100% organic Aloe Vera as well as emu oil at night. My RO wants me to be extremely careful with my skin because I have a fully expanded TE.. My skin looks a little red after radiation everyday, but it looks fine the next day. Good luck!
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Hello, AussieKate,
Hope you are during well as you have no doubt begun your radiation.
Just had mylumpectemy surgery for DCIS Stage 0, 4.4mm, clear margins, and am trying to make the decision whether to go ahead with the radiation as am concerned about side effects and long-term effects.
Of course I have learned that there is possibility of metastasis should I not do the radiation, but at 73 years of age, am thinking perhaps worth the risk to retain "quality of life" as already have an autoimmune low thyroid problem and am easily tired, anyway!
Would you be kind enough to explain/discuss how you made the decision to proceed with the radiation. Mine will be 5 weeks, perhaps 6 weeks. (I probably have read way too much and now am "on the fence" between the positives and negatives.) Do not want to be penny-wise and pound-foolish, however.
Guess you are enjoying Summer right about now and having fun on the beaches. Would love to have experienced them. I live in the NW USA, and our water gives spectacular waves, but soooo cold!
Thank you very much,
Burma
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Starting a five week course of Radiation tomorrow, January 27th, I'm a bit nervous, as I had a wierd "delayed hyper-sensitivity" to the Chemical prep used during Breast Surgery, I had burns on the incision sites and an angry red rash with pustuels under both breast and between the breasts,
The nurse said it is likely I will burn. I have Aquafor and Aloe Vera gel to use.
Maybe I'll sleep tonight...maybe not...
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HI ladies,
#13 today. So far so good. I must be like leather. My skin is barely pink, The scar is darkening and there is fatigue in the evening after tx. I hope you all have an easy trip. The 15 minutes I spend at the center is like my social hour. I better get a life. The experience for me has been easy, so far. They have cases of flowering plants that they replenish every 2 weeks. I've taken home 3 plants.Now when I'm done I expect an orchid. lol.
Emotionally however its rough. Anger, depression, tears and fears. I do take a suppliment to help my immune sys. Don't know if that has helped, but this is too easy for me.
Kaara,
Great decision. I wish I had that option. Good Health to you and Keep the Faith.
Hey cancer "Burn Baby Burn"
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burma: I am 71 and I'm not doing radiation. It was a tough decision and not necessairly one that I would recommend to anyone else. I have a study that says women over 70 do not benefit all that much from rads if they have early stage cancers. I was trying to get a one week partial beam breast radiation, but my surgery had healed so well that they couldn't even find enough to target, so I was stuck with the whole breast rads. I felt it was an overkill for my low grade early stage bc, and I opted out. You have even a lower stage (0) and very small, and it's DCIS..not invasive.
You are concerned about mets. Radiation will not protect you from that...it only protects you from having bc recurr in the same breast. The anti hormonals like tamoxifen protect you from distant mets.
I wish you luck on your decision..it is never easy when we're weighing risk against QOL.
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Kaara - everyone must make decisions based on their own situation and I'm so happy that you have made yours and that weight is off your shoulders. - Wishing you nothing but the best!
Chef - I hear you on the emotional toll - spent yesterday after rads visiting my Dad at the cemetary crying my eyes out then slept for the rest of the afternoon. I don't know if it's the constant reminder every single day that I have cancer, the plain stress of it all or really not being able to open up about it at home because I feel like when I do both my Mom and husband try so hard to "make it better" that it's just easier to smile and say it's all good. It's been very hard for me - my Dad was the biggest support in my life and I could talk to him about anything - he passed in 2010 and although I'm actually somewhat grateful he isn't here for this - it truly would have killed him - I miss having him to talk to.
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So i guess i can jump in, I started RADS on Monday 1/23 so i guess i will be both Jan and Feb rads chick. I am a little different than most of you on this forum. This is my second time around, 1st time 2005 left side, this time November 2011 right side. So i already know when the burning will start and what to expect. But i did have a question, because i don't remember this the first time around. This week before every treatment they have done additional xrays. I am getting a little aggravated because i don't even want to be here and having to wait that much longer is starting to really aggravate me. Also, this time around my breast as already swelled considerably and it's only been 4 treatments. I second guess my self everyday why i chose to keep my breast!
Thanks Ladies
Jo
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OH kayce,
You are talking to your dad. Crying there is a good thing since your not crying at home. He is hearing you. My DD asks how I am everyday. but I cannot share the emotional aspect with her or anyone else. Thats the hard part. So I occaissonally have a pity party w her and I let her cater to my fatigue. I do feel alone w the emotions of it. Cry your heart out. it does help.
((((((((((((((((((()))))))))))))))))))))))))))xo
Maureen
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bgirl - very interesting input. I put the honey on before going to sleep(yeah, not so smart maybe. Woke up and washed it off in the middle of the night). In the morning the breast did look better than in the evening so I will keep this up. I am using calendula lotion now but researching St John's worth and chamomile lotion, both supposedly good. And pure lavender mixed with almond oil. I so really really do not want to take any cortisone.
Oh, I forgot. #3 today and both today and yesterday morning I felt really nauseous and headachy. Lasted for a few hours. I am not sick, no flu/cold etc. Am I the only one who've gotten this reaction to rads?
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kayce234 & chef 127 - I totally agree with you guys. I can not share the emotional side of this at home either. As long as I say I'm fine, they kind of drop it. It's funny though, my 8 year old seems to know more or feel more. He hugs me and asks me if it hurts.. that makes my want to cry harder.
bojo - my breast totally was swelling and painful for the first 5 treatment. I had #9 this morning and it is much much better. They had me taking Motrin for a few days to relieve the inflammation pain. I have been totally second guessing my choices as well. We make the choices we do with the information we have at that time.
Ardychan - To me, rads has been scary.
Kaara - I know this has been a hard decison for you. I'm saying prayers for you.
Yay for Friday everyone ! Two days off of rads. Whew.
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Yay for Friday, indeed. I just completed week 3 of 6, so exactly halfway through. The doc and techs were inspecting my skin today and decided it was "behaving well."
In other news I saw my PT this morning and she was pleased that both the swelling and the cords were down. This was after I consumed my special anti-inflammation soup yesterday. I made a soup full of ginger, fresh chile and garlic. I think I will keep eating chili to see if it really could have that much of an effect.
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Momime,
Can you post receipe of your soup? is it supposed to help with swelling? They want me to take ibubrofen but i can't take to much because of other issues.
thanks
Jo
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I posted in the soup thread, but there isn't much too it. Take a fresh chili, an onion, 2 cloves garlic, a hunk of fresh ginger. Peel and chop and saute in a little oil along with a good helping of plain, mild curry powder. Add about a cup of red lentils and a large sweet potato, peeled and chopped roughly. Cover with water, throw in salt and boil till potato is very tender, 20-30 minutes. Puree, and adjust seasoning. I topped it with fresh coriander. Chili, curry and garlic are all supposed to be anti-inflammatory, sweet potato too.
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Great thank you...
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Momine: That sounds great...what a wonderful way to eat lentils!
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#10 of 33 today! 23 more to go. No real redness or pain, just a slight tingling of the nipple. Eating well and exercising daily. Strength 3x a week & cardio 7 days. I do some light upper body stretches daily from a handout given to me by the RO. I am using pure aloe after the treatment and coconut oil 3-4 x a day & showered off before rads. Also in the no bra camp; using some slightly small cotton tees under my other shirts to hold myself together.I agree with some of the other posters about feeling more emotional. I had a good 6 weeks of not being messed with and being able to be normal & the every day to the rads center really puts me off. It's easier to say everything is ok than be honest about how you really feel! Chemo was different, or maybe because my DH is a pharmacist I understood what was going on better. We will be experts by treatment's end for sure! Best wishes to you all.
Debbie
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I had #8 today. My skin has been pink in the treatment area each afternoon this week, and then it fades overnight. This afternoon, with the pinkest skin yet, I had to get an echocardiogram (every 3 months while on Herceptin). It didn't hurt having the doppler on that skin (on the heart side) but I'm glad it's over with now and not later in treatment! I think I'm starting to feel fatigue today, though. I was feeling more energetic than I had in months, and then after the echo went shopping and the energy drained.
Have as good a weekend as possible, all of you ladies.
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Burma - Even though, I had mastectomy and my margins are clear, radiation therapy was recommended due to my age (44). According to my RO I belong to that "gray area". I am "too young" (?????) and my tumor was grade 3 (aggressive), so the chances of local recurrence are high.
Anyway, apart from been extremely bitchy, depressed, the annoying lyphedema, not have fully recovered the full use of my arm and gained 30 pounds during chemo, my MO said that I am doing great (?????). I had #5 today and my skin is doing fine. Have a wonderful weekend.
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Thanks for all of the suggestions about the bra situation. I will be looking into all of them.
2 down. 31 to go. My breast is looking pink and feels tender.
I, too, can't really discuss my true feelings about this with friends or family. I don't really want to hear one more time that it could've been worse. I know I'm lucky. I know it can be worse. etc..etc. However, sometimes I'm just not feeling so grateful. Sometimes I'm annoyed as heck that I have to go through this at all. People want to be able to fix it and make me feel better. I'd rather someone say to me, "You're right ...your life sucks right now"
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