Aging Parents Anonymous
Comments
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otter, I think that level of service is called a companion. I'm glad your MIL is doing well with it. I'm hoping my mom will too.
Ladies, I wish you all a happy new year. I'm going out of town for a few days. So looking forward to it.
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Althea, ENJOY your time away! Hope you have a great time. Thanks for the New Year wishes!
I would like to also wish a HAPPY NEW YEAR to all the gals here, you are all special!
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Happy New Year...here's to only good things in 2012!!! Althea...enjoy your get-a-way!!!
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Happy New Year everyone !
Althea thank you for the reminder to take care of myself first. Maybe that should be the resolution for me in 2012. Me first, no guilt ! Wow that would be a change.
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Sierra - thank you for your post.
Wahine - thank you, too.
My brother collected my father and brought him to stay with me over the Christmas days.It was quite difficult as he not only repeated things a hundred times, but also thought I was my mother at times......I know I was not always very patient with him, and felt guilty afterwards that I did not always keep my cool. However, he is so appreciative and polite - and wouldn't complain about anything , ever. I am sad that he has become confused and unable physically to do a lot of things.He told me he had a really good time with me, so that is the most important thing.
I wish all of you a happy and healthy 2012.
Sorry about the italics - for some reason I was only able to use either bold or italics...gave uptrying to get it to work properly after the 9th attempt.....
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Sam you are doing a great job even if you do get impatient. We are all human and none of us can be the perfect daughter. He is lucky to have you.
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Talked to Mom today...she went to PT for an eval....PT was going over meds....long story short, the difficulties walking may be a side effect of her anti-depressant....PT was going to google the side effects..Mom will also talk to her counselor tomorrow...Mom said that the troubles started soon after she switched meds.....will keep you posted...
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JFV
Thank you!
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"Better living through chemistry!", I say...usually. I know that's the antithesis of the treatment approach advocated in this forum, but when a person's "chemistry" is messed up, sometimes it helps to tweak it a bit.
Trouble comes when the medical team is not paying enough attention to possible SE's of the drugs a person is on. This is especially true in elderly patients, who are often taking a whole bunch of drugs with varying -- and sometimes conflicting -- actions and SE's. It's good to take a look at the timeline, and to see whether a person's difficulties began at the same time as a change in his/her meds.
[I must have been feeling talkative tonight; I wrote a very, very long story about my dad, which I decided to delete. Here's the Cliff Notes version: Almost exactly a year ago, Nurse Ratched at my dad's skilled nursing facility told us that Dad's recent onset of lethargy and weight loss was due to his body "shutting down." "You just have to accept that his Alzheimer's Disease is progressing," she said. "He is dying." One very agitated care conference later, we learned that he had a severe UTI for which he was on two antibiotics, and he was seldom eating more than 25 or 30% of the food he was being served at mealtime. Once the UTI resolved and the lack of appetite was addressed -- and, once we got the staff to move him to a table where he would get "assistance" at mealtime -- he became more alert, he started showing interest in his meals, and he regained much of the weight he had lost.
The message is to trust your gut. If what you're being told about your loved one does not make sense, or if you aren't getting answers to your questions, insist on talking to someone higher up the food chain.
otter
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Otter....I've heard that UTI's are common in elderly patients and cause multiple problems for them....Mom takes very few meds...so it was relatively easy for her to realize that the walking problems started around when she started the new antidepressant...but only when it was brought up by the PT...And I agree with you 150% to trust your gut....I live by that adage with everything...if it doesn't feel right, its not right.....
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Happy new year everyone. Hope everyone's parents are doing ok. I took mom to a doctor's appointment yesterday. Her vitamin D results were in and she's at 76! Previous test last year barely squeaked in the normal range at 31. Between 50 and 80 is considered optimal, so I'm very pleased. I've had her on D3 supplements for at least a year now. She gained another half pound, and is up to 105 lbs now. Looking forward to hearing some updates from all of you.
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Booked my trip to see my parents next month....fares have gone up, so didn't want to wait any longer.....kind of crazy flight times....I'm taking a red eye out of Denver...it seemed better than getting up at 4am for a 6 am flight, plus it gives me most of the day with my folks...I will be there over the long week-end in february.....I would love to get to go with my mom to her counselor, but don't know if it is doable......Looking forward to seeing them...hope the weather is nice....Mom is talking about coming to Denver for Passover....Dad too...its the beginning of April, I think the same week=end as Easter....I hope they do come...it will be a lot of work, but worth it to have them here......after the February trip, it will probably be summer till I get there again....Hope everyone;s parents are doing well....can you believe its the middle of January already!!!
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Wow Otter, good example of listening to your gut. Too bad we can't always trust the health professionals(?) that are in charge of our health. Gotta be such advocates for our own health and health of our loved ones.
Althea, WOW.....so glad your mom's vit D levels had come up to a good level! Yay! Glad she has gained a bit too....wish I could give her all my excess pounds.
Karen, So glad you will be seeing your parents again next month! Too bad prices are always so high there. It is also $$$ for my parents to come here from Hawaii. Tourist destinations do not have low prices. But I still check on Tues and Wed in case the fares go down. My mom's computer had changed its date again (gremlins?). She is so rarely on email anymore, but she wrote a couple of weeks ago and I never got it, cause her puter was set on Aug 2004! Finally when I got an email on my cell fone but it didn't show up on my computer, I searched and found it waaaaaay back there. Talked my dad into how to correct the date, but he couldn't get the time right, so it is 12 hrs off. Now I search for her name every morning just in case she has written! BUT she apparently thinks she can travel here alone, and is just waiting on their taxes to be done so she can sign them and fly back here. So I am really busy trying to get caught up at home so I can spend a ton of time with her. Right now I wouldn't even want her using the stove, etc. OR driving. When my dad is with her, if she forgets where she is driving, he can remind her, but by herself I am afraid she would just get lost. WIll need to figure out how to deal with that. Might just have to be honest...that its not that I don't think she can drive safely, but worry about her memory slipping when she is out. Since she is aware her memory is failing her, that might be the way I can get her to realize I don't want her driving alone. Will have to keep her keys at my house, or she would wake up and FORGET that she shouldn't drive. Oh Karen, I hope your parents CAN come up for Passover! That would be nice to have them there with your family.
Hoping everyone is doing well. Love and Hugs to you all!
Kathy
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ALthea-just wanted to jump in to reply to your original topic post....Cipro can be a horrible and toxic med and the doctors are reallynot aware of it (or choose not to be) I am 45 and took it for a UTI in October and it caused the most severe joint and muscle pain to a point where I could barely move. Upon researching it I found that many peeple suffer debilitating and longlasting effects from Cipro. Mine went away after 7 days -thank God.
My parents each turned 70 this year and I am starting to realize that soon I will be put into the position of caring for them. WIth my BC diagnosis I am really scared for the stress of this. Will be back here for advice I am sure.
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Hi girls, I just heard from my Dad, and yesterday my mom got so lost they had to have the police help find her.My Dad had to drive them into Honolulu to the airport (which would get ME lost!), to pick up my sister. WHY she has our parents,in their 90's drive 40 min to pick her up instead of her renting a car, is beyond me. But then he went into baggage claim, leaving my mom in the car. The cop made her move it, and after that she didn't know how to get back. She also never remembers how to use their cell phone, and drove around for FOUR hours. Luckily a good samaritan noticed she was driving slow and looked lost, and helped her call the first number on the phone, which was my brothers wife, in Alaska. SHe still didn't know where she was, so the police had to find her. I know it rattled my dad up too, as he was waiting at baggage claim all that time, not knowing where she was.
Oh Mallory, you said both of your parents turned 70 this year, so did MY HUSBAND!!! Now I feel old....LOL. He is a lot older than me, but still active and doesn't look his age. I hope it will be many years till you need to help care for them!!!
Hope all you girls are doing well, and your parents are too!
Hugsssssss,
kathy
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bump
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Kathy....glad that your mom was okay after all this....Talked to my mom today and they came up with an emergency plan for Dad incase something would happen to mom....such as if she got in an accident.....she felt good about the plan.....someone would come to the house to be with dad....its interesting how in the past 4 months how much mom has changed her thinking....a while ago she was talking regularly about placing dad for respite and now this is the farthest thing from her min....she said that dad really wants to take a vacation and hopefully they can work out coming to denver in april for passover...just the sedars and a day or two after.....I'll be there next month.....Never imagined myself in this roll....or being a part of the sandwich generation...but I guess thats what happens when you have a kid in your 40's...and my parents are still relatively young given i'm 55 and my brother is 57....
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Thanks Karen, I am so glad she was okay too. Haven't been able to sleep tonight, as it has really been on my mind. I need to talk to her, as I seem to be the only one that can reassure her that she is ok. My dad seems to make things worse as he focuses on what she CAN'T do, rather than what she CAN do...so then she gets depressed and feels useless. I just found out about this last night and it must have happened on Monday or Tuesday. Glad your mom has a good plan if something (heaven forbid) happens to her like an accident, that someone will come over and take care of your dad. I think your intervention and helping her has made quite a positive impact! So glad you were able to be with them and be of so much help. And so nice you will get to go again next month. Would be wonderful if they do get to come up for Passover. Funny the difference in our parents ages,as I am just 6 yrs older than you, but my parents are in their 90's. But my kids are grown, so I am not in the "sandwich" generation, as you are. Plus, you are still in the work force and that makes it harder too, as you have so many commitments. I think you are doing a wonderful job helping your parents, with all you have going on! And to see such an improvement in your mom's outlook, that is amazing!
Take care, and give yourself a pat on the back....you deserve it!
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Well I talked to my Mom today, and she does not remember (or at least not while I was on the phone with her) her 4 hr drive, getting lost. She sounded good, and that was soooooo good for me to hear. I just worry about her so much, as I know you all do too, about your parents. So hard when some of us are hundreds or thousands of miles away from our aging parents.
Hope everyone has a good weekend!!!!
Kathy
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My sister called today (twice). Apparently, my dad is slipping away. Hospice has been called in.
Dad is in a skilled nursing home, in the advanced stages of Alzheimer's. Apparently he has, as of these past few days, pretty much stopped eating. He had stopped feeding himself some time since December. We were there for the holidays and watched him pick up a spoon and empty a dish of pudding or thickened juice, sometimes even hungrily. No more, though. I guess he doesn't know what to do with the spoon anymore. Even when hand-fed, he will only eat about half of what he's offered. As a result (and probably because he's not drinking anything, either), he has lost 7 pounds in two weeks (having none to spare in the first place).
Add to that the fact that he will no longer walk -- won't stand up, and won't put one foot in front of the other when helped to his feet, even with a walker and assistance. When we were there last month, he could stand up (with assistance) and turn to sit in his wheelchair or grab ahold of his walker. With the walker, he could shuffle down the hallway very quickly (with someone stabilizing him, just in case). Now, he doesn't want to get out of bed, so they serve his meals in his room.
I knew he was declining when we saw him last month. He seemed weaker, and pale, and had a "lost" look in his eyes. We've been getting reports off and on of episodes of weakness and/or unwillingness to eat... but hearing that word "Hospice" this morning put a chill in me.
I understand and endorse the concept of hospice. It's a fact that both my mom and dad had signed "living wills" and "do not resuscitate" orders many years ago. Neither of them wanted to be kept alive just for the sake of living. I understand that. Fortunately (sort of), my mom's severe head injury last winter ended up taking her very quickly -- there was barely time for the hospice nurses to do anything. Things are different for my dad, though.
Now, it feels as if there is a big clock ticking. I just can't seem to get my head around the idea.
otter
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Oh Otter my thoughts are with you. I know how hard it is losing your last parent, even when you know it is for the best. Hospice will be a great support for you and you family.
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{{{{{{{{{{hugs to otter}}}}}}}}}}}
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Oh dear Otter, My heart goes out to you, along with the other gals on this thread who feel your pain and sadness. I really hurt for you,and your post got me all weepy. Wish there was something I could do to help. I am sending hugs, along with Althea. (((((Otter))))). Please use this post to vent when you want to, we are all here for each other. Hoping your father is not feeling any pain.
Hugs,
Kathy
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Otto....I"m so sorry to hear that your Dad is declining so....sending you hugs from Denver, Karen
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Otter, I am so sorry to hear about this. The pain and dread must be enormous.
It's one thing to intellectually accept the idea of hospice, but when the reality is there it's so different.
I wish I had words that would comfort you but I think at this point words would be insufficient.
All I can do is send love.
Leah
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Otter, Still sending you (((HUGS))) and prayers. Thinking of you and your family.
Kathy
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Otter I am so sorry ! What a terrible time for you
wahine it seems like the forgetfullness seems to help them continue to live in denial about their poor health. I think that my parents have simply forgotten what a full functioning adult can do. I hope your Dad can find a way to cope with your Mom.
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Many thanks to all of you for your kind words. Yes, this is hard. One thing Alzheimer's: the fact that it progresses isn't a surprise. Everyone in the family knows it is going to get worse. It's the timing that is so unpredictable. Dad was doing pretty well just a month ago, so being told this past week that he can no longer walk and can barely swallow was a shock.
I spent an hour on the speaker phone with the hospice nurse and social worker a few days ago. Since Dad is in a nursing home, it's important to coordinate the hospice services with the regular skilled nursing care he is already getting. The cost of the nursing home care (room and board) are still our responsibility, but Medicare will cover the hospice costs. Even the music therapist and the backrubs, apparently.... if we request them.
The good news is that both the nursing home and the hospice service are small and serve the local community, so everybody knows everybody. In fact, the nursing home physician (the one who visits the residents regularly and is "on call" at other times) turns out to also be the hospice physician.
I'm staying busy, which (as it did during my "cancer year") helps keep my mind off things I don't want to think about. Mostly I've been gathering all the documents and forms we'll need for filing taxes this year, and taking a crash course on probate and estate settlement.
My heart goes out to those of you who are trying to figure out how to manage crises when you're far away. I know exactly how that feels. I also know what it's like to try to plan for the "what-if's" when neither parent is all that strong and healthy.
it's dreadful to have to move a loved one into a nursing home, but it was such a relief (to me) when we transferred my dad to the facility where he lives now. My mom's health was unpredictable and she was physically at risk (tired easily; poor endurance; terrible pain from arthritis in her knees). She desperately wanted to continue to live independently, but she had a hard time caring for herself, much less taking care of my dad when his Alzheimer's started to get worse. Knowing he had skilled, compassionate people caring for him and watching over him helped me to be able to sleep better and take fewer antacids.
Hugs to all of you.
otter
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Otter, Glad that they are treating your dad so well, and taking good care of him. I have been worried about you, how are you holding up?
My parents will be back here on the 27th. I am trying to get a lot of stuff done, my dr appts, surgery, etc., before they get here so I can devote all the time I can, to them. Today is their 8th anniv (they were first married in 1941 and honeymooning on the side of the island that was bombed B4 Pearl Harbor was bombed a short time later). Then they divorced when I was 12. So glad they remarried after both lost spouses, as they are a big help to each other.
Thinking of you all, and hoping everyone is doing okay.
Hugsssss,
Kathy
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Hi, all. Kathy, thanks for asking. We lost my dad last night. He got much worse Monday evening and became unresponsive. He seemed to be sleeping, and the hospice folks and nursing home staff did everything necessary to keep him comfortable. He finally just stopped breathing.
My dh and I were still en route when my sister called to say he had died. She was there with him, along with one of our cousins and my dad's sister-in-law. It's very sad to lose him, but I am okay. What was the title of that book Nancy Reagan wrote? The Long Goodbye... I'm missing my dad a lot, but at least he was with family and was kept comfortable.
More later. I'm typing this with one finger on an iPhone as dh drives.
otter
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