tissue expanders after radiation

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rachel27
rachel27 Member Posts: 4
edited April 2018 in Breast Reconstruction

I finishedradiation april 2010 I am finally going ahead with reconstruction the dr is wanting to try tissue expanders only he says my skin looks healthy enough. Has anyone ever had radiated skin that stretched with expanders

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  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Hi

    I had badly radiated skin, ie I had second degree burns. I had diep 2 weeks ago, and now I've got a saline implant in the one breast . Other breast is fine ie my own .so I'm worried too that there's not going to be issues. I get my 1st fil next week.

  • ellieg
    ellieg Member Posts: 10
    edited January 2012

    Hi, I had bilateral MX and tissue expanders placed 4 weeks ago. I've had two different breast cancers, a year apart, one in each side. I was treated on right side originally with lumpectomy then rads in 2010. I decided on bilateral MX to reduce risk of either one recurring. My surgeon at first said he prefers to wait 2 years post rads, to let tissue settle before further surgery, as it can affect healing if too soon, however, he agreed to go ahead with MX and TE reconstruction after he examined the state of my skin. I wanted to avoid autologous reconstruction, as I prefer less surgery, less scars and I work in burns and plastic surgery so I see lots of patients with flap reconstructions as part of my work. I wanted the most simple reconstruction with TE then implants. I was filled with 150cc each side in surgery. My surgeon said to wait 6-8 weeks before expanding any more, to let things heal and settle. I saw him this week for a follow up and I'm scheduled for an expansion in 4 weeks. The reason for this is that my right side, which was irradiated is not as soft as my left non-irradiated side. I can tell that the pectoralis muscle is not stretching as easily on my right. My surgeon has told me to massage my skin with lots if vitamin E cream and this should soften everything nicely before I go back for expansion. I know that there is always a risk of failure with tissue expander reconstruction and irradiated areas but I've read other people saying that as long as the expansion is done slowly and left to settle for a few months after the total fill, good results can be achieved. I think if the surgeon is careful then there is less chance of problems. I'm hoping for a good result by being patient.

  • msphil
    msphil Member Posts: 1,536
    edited January 2012

    hello all, I had expander after L mast, but a couple weeks later and after a couple fillings I was rushed to ER with a infection, it hardened and was taken out another surgery, I now just use prothesis and wish I had done it then, good luck to all who decides to go that way but it didn,t work for me, my body doc says rejected the foreign body.  God Bless.  msphil  (idc,stage 2, 3 nodes invovled, Lmast, reconstruction(didn,t take) chemo and rads and 5 yrs on Tamoxifen.

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    hows the vitamin E coming along, im going to ask my PS tomorrow what the best thing for stretching the skin is

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited January 2012

    I had TE's about a year and a half after radiation.   Your chances of developing capsular contracture are about 50%.   No PS can predict who this will happen to and who it won't.   If it does happen, there are still options.   There is so much that can be done these days with recon.

    I am doing okay, but I am only 2.5 months out.   It's too soon to tell.

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    How does one know they are having capsular contraction, symptoms?

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited January 2012

    Redninrah, cc is painful and can also cause a distorted appearance to the breast.   There are four grades of it, so one might have a mild case where no action is taken, and someone else might have a severe case where surgery is needed.    But something can always be done.  

    CC is when scar tissue forms around the implant, forming a "capsule". 

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Thanks for the explanation

  • Artemis
    Artemis Member Posts: 759
    edited February 2012

    Thanks for your stories, everyone, and thanks to rachel for starting this thread.  I'm 2.5 years out of rads, and I'm starting to consider reconstruction.  

    I'd pretty much decided to try for some kind of flap, but the more I think about it the more I'd like to avoid such a long and complicated surgery.  So now I'm thinking about seeing consulting a PS for TEs which I can have done much closer to my home.

    Artemis 

  • sweetbean
    sweetbean Member Posts: 1,931
    edited February 2012

    To prevent CC, I've heard that some PS's recommend taking Claritin or Singulair, of all things.  They are both allergy meds.  I had a BMX with immediate TE placement, then rads.  I waited 7 months and my exchange is Thursday.  ALMOST HERE!!!!  I'll keep you posted.  I'm going to be in the good 50% - no CC!!!  :)

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited January 2013

    Hi All. I had BMX in March with TEs placed at the same time. I was expanded to 200 ccs prior to chemo just so I would feel a bit better about my situation. It didn't really help much because my TEs looked so bad. After 5 months of chemo and almost 2 months of rads I am back to expanding. It is going fine - 75cc or 50cc per appt. BUT, the radiated side is a lot more red and painful so it is scaring me. The pain in bed at night is awful. Scares me about infection. Valium and Vicodin have been absolutely necessary and Tylenol PM to sleep. I'm scared of the pain of another fill, but without it I absolutely cannot get the results I want. I have been through so much. It would be so nice just to have this go my way. As of yesterday I found out expanding may have set off lymphedema too. Keeping an eye on that. I just want to be cancer free and reasonably reconstructed. It doesn't seem like I am asking too much. My dad passed away this year and my siblings are fighting at Jerry Springer level over his estate. I wonder if any sanity will ever return...as my mom has Alzheimers and my boyfriend tells me regularly he is leaving me.

  • dnadebbs
    dnadebbs Member Posts: 82
    edited January 2013

    mariasnow.....holy cow girl!   you sure did get your share of drama didn't you!?!  poor thing!   our situations seem very similar as far as diagnosis and timeframe.......however i had my chemo prior to my dbl mast and then after healing i had my radiation.   i waited 6 months after that and on 1/3 i had a bilateral TE.    still have 2 drains and although they are annoying.....i don't freak out after having to deal with them with the mast.   i, too, worry about lymphedema but so far so good.  i'm hoping it all works out good for me too.  i was scheduled for a lat dorsi and the day before my surgery my PS tells me that i healed so well that she thinks the basic TE should work great.   so now it's just a healing and waiting period.  i can tell the radiated side is harder but not so bad so we'll see how it goes.

    i hope things start looking up for you.   i know for me its always sooo much better to be able to talk to people about everything that is troubling me.   getting some sympathy from others and just having someone really listen.   you are going through so much even now......i wish there was a way you could turn down everything around you.   take care of yourself.......and find one of the discussion boards that have supporters to help you talk through everything......these women are phenominal!   God bless you sweety!  

  • hwhranch
    hwhranch Member Posts: 149
    edited January 2013

    Just wanted to let you know that I had delayed reconstruction due to mastectomy and then 33 rads. The breast surgeon told me that I would have to wait 6 months after rads to have reconstruction for the skin to heal, it ended up being a year later. I was told that I would have to have a flap procedure in order to get an implant. My PS recommended a latissimus dorsi flap and it has been very successful for me, was a 3.5 hour surgery that included a skin sparing mastectomy on the other breast and a 2 night stay in the hospital. That surgery was Nov 7 and I came out of it just fine and very pleased.

  • belindarev
    belindarev Member Posts: 17
    edited January 2013

    I had 35 rads ended July 2012-no real skin issues, just what looked like a mild sunburn at the very end.  I just had my TE inserted in Nov. and have not had any issues.  

  • nbags04
    nbags04 Member Posts: 1
    edited January 2013

    Hello everyone. I had a double mastectomy with TIssue expanders after chemotherapy. Filled to 200cc during surgery. Found out radiation was needed after 4 nodes were still positive. Expanders were filled to 400cc when we stopped filling for radiation. I finished radiation the end of nov.2012. I saw my PS in december and he said my skin looked so good we would beginning filling again. I have 750cc expanders in and he has overfilled them to 850cc with no issues. I am scheduled for my implant exchange Jan. 31. Does this seem too fast even though my skin and tissue has tolerated it? I am concerned about the skin healing since I am only 2 months out of radiation. Any advice or words of wisdom?

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited February 2013

    I had a BMX in Oct '11 followed by 6 weeks of radiation. Got through that pretty well and once things settled down, I started to consider reconstruction. Was not willing to cut up good body parts to salvage damaged ones, so that left TE's --> implants.

    PS has done two fat transfers over the past 6 months into the radiated side and is happy with the improvement in the skin and tissue. I am scheduled to have the TE's put in on Monday. He plans to fill very slowly over the course of 4-6 months, but is optimistic about getting a good result. My general health is excellent and he feels that is very important.

    Not looking forward to another surgery, nor the pain to follow, but I am excited to be moving forward.

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited March 2013

    I had my surgery quickly too. I finished radiation in November, started filling in December and had my exchange in January. All went really well. I don't love the cosmetic results. I have suffered with vanity issues but nothing went wrong with my health or complications so I know I might consider just being very grateful. I now feel like all the pictures on the internet are the plastic surgeon's best work and maybe my expectations were too high. I went to a tip top plastic surgeon. It is what it is. I'm in a funk today feeling hopeless like recurrence is inevitable and I should just give up now. I've been so positive and fighting for the past year. Today I just feel depressed and sad. It was bound to happen. I am very grateful how physically comfortable I am with my reconstruction. I feel like it's me. I have zero body discomfort. I was just miserable with expanders. Trying to count my blessings today but recurrence is all around me and I want to crawl under a rock. I could try being grateful it's not me today. I'm just stuck with Herceptin heart damage, low blood counts, and crappy scarring. I'm scared of my upcoming BRCA test. I just have a couple of rough weeks ahead. Waiting for the results of Friday's tumor marker test. I guess I'm off topic. Lol. It all runs together right now. My nipple tattoos are scheduled for April. I'm not doing nipple reconstruction. I don't want the risk of failure on my radiated skin.

  • francksgirl
    francksgirl Member Posts: 40
    edited March 2013

    Just had mine done on Monday.......If you have any questions, you can email me. I can send you a pic if you want to see how they look. They did a nipple tattoo and skate flap. I don't come on this site often. sheila.barbier@gmail.com Cheer up!! I hear ya......hate being her2+.......it just sucks!!!

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited March 2013

    I talked to my boyfriend about this over the weekend. I'm not happy with my reconstruction results so I am holding off on any nipple procedures that might then be out of place after a revision. And, I've had so much health and financial stress that worrying about revision is a couple of years down the road. So I am living with the situation as it is...with lots of shapewear over my reconstruction. Right now I'm working on finding the right cami shapewear with some padding. There is tons of it out there. I'm putting it out of my mind.

  • Annette_U
    Annette_U Member Posts: 111
    edited September 2013

    Reading your posts are great. I am deciding now on a surgeon Plastics team and one said immed mastectomy with TE's started, expanded then rads and the other said mastectomy, rads, heal then recon with TE's. I am doing neo-adjuvant chemo now FEC x  four (3 week) then Taxol x 8 weekly. I just had my 5th taxol. No big issues with chemo and now not sure which way to go wit rads. I want to nail the cancer but also would like a decent outcome. I am wanting a 36 A or small B cup. I am a 36B now. How long does expansion take for small boobs? and how soon after surgery can they start? or after surgery healing and tissue expansion? I don't know which route to go but need to make that decision soon! Thanks 

  • Walkinginfaith
    Walkinginfaith Member Posts: 46
    edited September 2013

    I had neo-adjuvant chemo then bilateral mastectomy with TE. I will start rads after the TE are filled. I was told 8-10 weeks to expand. Switch to implants depending on skin healing after rads 3-4 months after rads. My PS fills at surgery then 4 weeks after surgery.

  • Annette_U
    Annette_U Member Posts: 111
    edited September 2013

    Hi Walking IF! Thanks for the reply. My concern is do you think waiting for rads will give the cancer a chance to come back? One surgeon (2nd opinion) told me I should not get immed expanders if I  need rads but I think the surgeon I am choosing will put the expanders in at mastectomy and I will go the route you are. Are you being expanded to a small or large cup size? I was told it would not take long since I want an a or small b cup. Also, how long after surgery did they allow for healing before they started expansion? Gosh , I have so many questions and a bit lost for answers right now.

  • Walkinginfaith
    Walkinginfaith Member Posts: 46
    edited September 2013

    I was 36B and droopy after kids hoping for nice C. They filled at surgery then 4 weeks later. My RO and MO were fine with the plan of waiting for rads until TE filled time wise. The main issue with TE and rads seems more to do with radiated skin than the wait time to start. Some PS like to expand nonradiated skin and leave TE in firing raddy while some do not want the TE radiated.

  • jasper13
    jasper13 Member Posts: 14
    edited September 2013

    It's good too know that most are having good results after having the TE placed after bmx and then rads.  I had bmx Aug 12th.  TE place at that time.  I need too finish 3 chemo and then rads.  There is no good answer as which way to go.  TE have been uncomfortable but 4 weeks post op the pain is very minimal and have not taken pain meds in over a week.  Keep telling me good stories.  These are what makes this process more tolerable.  Also can anyone tell me how many cc's were added to get a large B or small C cup?  Would love to have this all done by April. 

  • Walkinginfaith
    Walkinginfaith Member Posts: 46
    edited September 2013

    From what I read there is not a correlation of cc to cup size. I had TE in July and am at 330cc total. I have no pain and don't feel them at all. I feel as close to normal as one can considering.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2013

    I had a BMX 2 years ago & I'm about to have more surgery for a recurrence to my chest wall.  MO thinks my implants will need to come out so I can have a flat chest wall for rads.  I will want implants replaced down the road.  Anyone been through this?  Will I need to start with new TEs? (ugh)  Any tips & advice will be appreciated.

  • jasper13
    jasper13 Member Posts: 14
    edited September 2013

    All I can tell you is my surgeon said he had 2 women with implants before diagnosis and they were able to shoot around the implant.  Your radiologist would be able to tell you.  Might depend on where your spot is. 

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited September 2013

    Thanks Jasper.

  • jasper13
    jasper13 Member Posts: 14
    edited September 2013

    I have expanders in and will need radiation.  My decision was based on another girl I know who went to Mayo clinic.  Her expander were put in knowing she would need radiation.  So will not know if I made the right decision until after Rads.   I hope everything works out for you, MinusTwo. 

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited September 2013

    Jasper I had rads in 2010 and bmx this feb.  Ive spent all year in expanders and lots of pain but am on the home stretch. I have exchange surgery sept 24, only downside with rads is they will need to go smaller to get a better look, but im okay with that considering everything else.  My skin healed great/looks great despite having rads in past.  Ps says i am an unusaul case, but i dont agree.  I took great care of my skin during/after rads and BMX surgery.  Anything you can do health wise will improve your ability to heal and the integrity of the skin.  Good luck to all!  Yes it can be done, i am living proof implants after rads(even older rads).  I did not want diep so this has to work out.:)

    Nancy

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