Bonfire of the Goddesses

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  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    Sorry ladies just getting back, lost track of this tread, did not save it to my favorits.

    Wanted to get back to Jo1955, Grannyduckes & Voraciousre.  I threw my BS on the fire.  Yep, 1st BS missed entirely but she had help from the radiologist who thought she hit the lesion via MRI guided wire.  OOPS!  Pathology said I was benign, of course, they took out healthy tissue.  18 months later MRI showed that it was still  there but BS said it can stay in.  Glad, but then again not so glad, I got a 2nd opinion.  Had all removed, was cancer all along.  I have a lawyer on board.  NY State law recognizes delayed diagnosis/diminished chance of survival as legal harm and entitles victims to compensation.  There are only 24 states that have this law. Only drawback is that there is a statue of limitations of 2 1/2 years from time of 1st diagnosis.  I'm still in the running.  My chance of survival is very good so I'm not sure how strong my case will be other than the actual proof from the 2 MRI's and the 1st and 2nd pathology showing huge error 1st time around. Prooving my case is pretty good, it's the punitive damage I will have a hard time with since I probably will not die, I only have scars, misshaped breast and loss of my time with all the doctor and rad apptms.  Will be glad though to slap her.  Any change I get I'm on the computer givng her bad ratings on all the websites that rate doctors in your area.  My only comment to them is "Run from this doctor".

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  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    Voraciousre:  just read one your posts.  I am a firm believer in mind over matter.  Breathing techniques too. 

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  • chabba
    chabba Member Posts: 5,065
    edited January 2012

    kingjr, have you filed a complaint with your state's Board of Medical Examiners?  If not, you should.

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    Kingjr... You got an INFERNO roasting... Now that your BS is on the coals! Despite all of the errors it surely must be a relief, at least, to have excellent prognostics. I sincerely hope that all of those who were responsible for your less than stellar care are held accountable so it never happens again.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Kingjr - You have this fire roaring -it is huge.  Glad you are going after that surgeon.  He should not be allowed to get away with this.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2012

    Thanks everyone----Now it's up to me to get the appointment made. Once theright paperwork was sent to insurance took them lessthan 5 business days to approve. ^ weeks-1 day to get doc's office to submit it right. But it's done now. Yeah. Marshmallows are good- VRCool

    Kingjr66--not happy re idiot, but very happy yo have gorrect dx now YEAH!!!!!!! Yup i see the fire burning with the old one in it.

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  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    Obliged to give you a roaring blaze and doc a woman, not a man.  You'd think there would have been more compassion being a woman an all.  She was so cold but she's roasting now.  New doc is a woman also and quite ironically, 1st doc did her internship with the 2nd doc.  It was not easy for the 2nd doc to tell me a close colleague of hers f'd up.  I have asked the hospital where I get my mammos and MRIs that I do not want that one particular radiologist ever to read any of my diagnostic images ever again.  I guess I should also throw that radiologist on the fire since it's good and hot.

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2012

    Sas...hang in there...depression and sorrow can be entwined. I am happy to say I am moving on..I am working where I work because right now, it affords me the opportunity to do teacher training and take off for bits of time to see where else I want to be...the training course has been cancelled for the winter/spring session so I have from feb 2 - April 27th to be somewhere else if I want to..looking into it as we speak...and hoping a school out there needs someone soooooon!...I will go anywhere..so far , have applied to the UAE, BRazil, Costa Rica, Mexico, a place in the USA that is hot, China...I could return to Vietnam but I want to go somewhere new..if I am being given this opportunity, I do not want to waste it.

    so, tossing in my toxic boss who won't even come in to the kitchen if he sees me there..the school has dropped enrollment in the 3 months I have been out of position and students and teachers are gone...it is a very quiet place...all the more reason for me to go next door to the gym when my sessions are done.

    Sas...look at what you can do....you deserve good things!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2012

    Sandee- Thanks Thanks. Sounds like all that traveling was/is really fun--------all but for the boss

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    Like I didn't have enough going on with my ear and sinuses and then remember how the vagina revolted? Well that funky vagina that the doctor thought was a yeast infection and treated it as a yeast infection for the last two weeks... Turned out to be a funky bacterial infection. Called the office yesterday but they weren't there due to the holiday. Called this morning because the vagina was on fire! So, what happened next? Nurse practitioner says, "Yep. Labs are here on my desk. Of course you're not feeling better because you need to be treated for a bacterial infection." HELLO! When was some one going to call? When my vagina had third degree burns????





    So.... Today into the fire goes my gynocologist. But just for second... He did feel my lump and sent me for my diagnostic mammogram that ultimately landed me here. But.... Really!

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  • mpeaches
    mpeaches Member Posts: 155
    edited January 2012

    Voraciousreader - so sorry about your vagina!  I hope you got some drugs to make her feel better very quickly.  Unhappy vaginas are no fun.

    Worried purrs,

    Jenn

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  • mostlymom
    mostlymom Member Posts: 466
    edited January 2012
    Nancy:  oh my - since that's what i have, i have to ask what have they done now?  we are kinda hanging on by our fingernails with all the bills i have had last year that we're still paying off....  Surprised
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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2012

    VR- the positive is they did cultures-------so you know you are dealing with bacterais, Dh  must be cultured and treated too. Otherwise , it's just a pass and pass back situation. All I can say to that is it great to be treated, and it's great to have a partner to be treated with.---------Damn Ai's and Tamox lend us towards so many untoward infections---------Fuck AI" and Tamox

    developed vag  infection and something else?..........I went back to previously described Chloinre baths------Large garden tub---------2 cups clorox.------didn't work. Went to 3 cups clorox ---------worked problem solved.-------- The things we talk about------oh my.

    @& things we go through

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  • scuttlers
    scuttlers Member Posts: 1,658
    edited January 2012
    Edited to remove post. Fire burned up my issue and the wonderful forum moderators fixed the problem. Now, where did I leave my marshmallows, want some roasted sweet treats before toddling off to bed.
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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    Oh yeah! Bless cyberspace that affords us the opportunity to unload whatever is on our minds! Today, into the fire goes all of those real life chains that prevent us from speaking our minds in public. Now if I could only say publicly what I say in cyberspace...

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2012
    A few seconds ago sas-schatzi wrote:

     TO ALL          OK went to Moffit today- There are 17 NIH cancer centers in the USA---Moffitt is one-----After contact with all their people------I was undecided-----then I remembered my proactive stance the last time with going for the elective BMX  which saved my life-------I then went------duh----what are you waiting for-----out it comes. ------------Now have to work on scheduling.
    At one point I said to the doc "I'm tired of cancer, I'm tired of talking about cancer, I'm tired of waking up in the morning worrying about cancer," Then I think the clincher was he said if I was 30 they would remove it , but at my age(61) they would wait till it was larger. I'm thinking bad words at this point In my mind . Then he starts talking about it negatively impacting someone's life. I say" Doc If I were to ask you on a date right now and then have to say -------well , I have this brain tumor that's being watch for cancer---what would you do" Clicked my fingers as the hand waved backwards and went PHFTT with my lips. He is a serious doc -------He leaned back and laughed.

    He is also, the first doc that when asked this question which is important to my type of  brain tumor."Can you tell me that b/c it doesn't have a mass effect or edema that it's not producing estrogen and is not malignant-----His response was "No" Only doc that would commit to that statement. Give him great credit and respect for that.

    I  said "I can't move on with my life till we know this is negative." One way or the other I have to tell the truth should I meet someone. Until a pathology report is in I can't do that."---------

    Then on the way home, I got near a weepy spell , just  then I realized I was going to Ocala and not home--------took and extra hour , but gave me time to think and resolve. Bean is going to be history. I will add to that Bean will be history before I am.

    Now I am amazed that I did not end up in a trauma unit b/c the expressway traffic is crazy. It's like Miami-------Everyone exceeds the speed limits by 20 to 40 miles per limit.Weaving in and out.

     Chrissy will so get this b/c we went to Miami together-----------totally nuts

     I'm going to C&P this to several threads. For all that have prayed thank you, for all that cared about what I was going to do with Bean, thank you, my resolve is strong without reservation, Sometimes a wrong turn can turn out right. L&H's Namaste sheila

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited January 2012

    Sheila, it looks like you'll be able to throw that  tumor in the fire soon!

    I hope things go well for you and you are able to get rid of that benign tumor.

    Leah

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  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    Hello again:  I now have my oncologist to throw on the fire even though I only met her once.  I was all set to start rads yesterday (feb 23) but 2 weeks ago she told me that I would probably need chemo.  Come on, less than 1cm, clean margins and negative lymph nodes.  I asked for 2nd opinion and she recommended a oncotype dx.  I already know that I have a 3% chance or better for full recovery.  How much better % will I get than that from this test.  Now I'm stress all over again in the waiting game.  My fibro is way our of wack and I hurt all over.  Then I have to pysch my self all over again to get in the mood for the rads to begin.  She deserves to roast a little for me to watch and feel better.

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    SAS....I am wishing you well!  And oy!  Can I relate to the traffic and cars weaving in and out!  All of those aggressive drivers are going into the fire today so you'll have one less thing to worry about!!!

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    Kingjr66....Not sure what THAT'S all about!  Why didn't the doctor do the OncotypeDX test weeks ago if they were considering giving you chemotherapy?  I'd be very curious to know what your OncotypeDX score is because I also have a rare "favorable" breast cancer.  My BS immediately prescribed the OncotypeDX score, so we had my number by the time I saw the MO.  Hang in there.  Marshmallows will be roasting by the fire for you in the meantime.....

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  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    hello again:  need to clarify a statement earlier, I have a only a 3% chance of recurrence, 90+% chance of survival.  Sorry, that error just ate at me.  Did not have oncotype test done because I was referred to RO first since my BS agreed that I would not need the chemo, RO confirmed as well.  Then I saw the oncologist after I got my scan and tats and she dropped the ball on me.  RRRRRRR.  Will post my results. 

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Hi Everyone!  I have not been here for quite some time.  I try to read often but I have been so very busy at work.   I want to through in my neuralgia - nerve pain - the permanent nerve damage from rads.  It is really putting a kink in my journey forward after BC.  Been dealing with this crap for a year now.  Have been on pain meds since June and now having major flair ups and back to the pain specialist I go.  Have been twice in the last month with hopefully one for follow up to go.  The downside to all this is I will have to be on some type of pain meds for the rest of my life - thanks to BC and rads.  Sheesh!  I had to come here and get it out.  I was started on a new pain med recently and now can't sleep worth a shit.  I am bitchy and whiny lately but I knew you gals would understand.  Hoping to get some sleep tonight.

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    Jo!!! We've been waiting here for you, dear! Grab a blanket! Marshmallows and wine are on tap! Feel free to moan and grown!



    Sorry to hear you are in pain and losing sleep from the meds... Be patient with the meds and "tweak" them. There is nothing more debilitating than chronic pain. There are terrific pain management doctors out there. I hope you are working with one. I will keep you in my thoughts and prayers!

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited January 2012

    Hey ladies..............................I need help tossing in "Annette's" asshole of a husband...............he  has to be to give up such a wonderful lady...................ok, ready........................................heeve.....ho............................he's in..........thanks

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  • chabba
    chabba Member Posts: 5,065
    edited January 2012

    Glad to help Ducky

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2012

    quick fly by...make sure you do a it of reading too before you decide on the chemo options, get your info...so you can process it..this is a big decisin...and if they are doin frads first....and had ood margins,,,,,those are excellent odds. they often mke thoe decisions based on if you are single, have kids...as well as the stuff like how much did they get, how aggressive wasd your cancer etc...maybe a few more questions to ask. nigth all

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    ducky - More than glad to help.  I met Annette this past summer in San Antonio and she is one fantastic lady.  The schumuk does not know what he is truly giving up.

    voraciousreader - Sorry I am been away so long.  I know you don't need to have something to throw in to visit here.  The chronic pain is just that - a real pain in the ass.  I know rads have something to do with the toes hurting.  We have already concluded the breast pain is nerve damage from rads.  Now it is getting it under control.  The bad part is - whatever we find that will work - I will have to be on that regime for the rest of my life.  As if I don't have enough going on already.  I go back on Feb 7th - will keep everyone updated.

     The marshmallows and wine sound terrific.  Thanks for listening. 

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited January 2012

    Hey, Jo............just want to drop you a "Hi how are you"............same thing with the pain..................and truely the only thing that don't hurt is my "ass".......................I have frigging "trigger thumbs".......................back pain on the raidiated side...............and am just tired of it all.........................all I ask is just 1 day to feel like I did when I was "20" now is that asking too much..........................just 1 day........................so tired of feeling like I'm 90........................guess I should shut up and just be happy I'm alive, right................well sometimes QOL........................plays a huge role in your daily doings.............ok, I'm done....................gonna find the Vodka..............hugs girlfriend...........

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    ducky - I know the feeling.  Can you share the vodka?  A stiff drink sounds good right now.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited January 2012

    time to start the fire and stop that drinkin girls.i need matches and lots of help.I would like to burn a bitch of a lady who keeps pulling the short hairs on the back of my neck.and yes she is on BCO.enuf said.read between the lines.burn her up....

    CALLIN OUT THE TROOPS!!!!!!!!!!!!

    ya know i can kick her ass but id rather burn her up.

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