Diep 2012

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  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Hi how long did you keep the abdominal binder on its suffocating me. Too tight.

    It will be two. Weeks on Monday that I haven't taken it off

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited January 2012

    Hi redninrah - at 2 weeks when the NP took out the last two drains, she said that I could wear a girdle instead. I didn't own a girdle at the time. I have since gone out and bought a couple of "waist cincher" type things. (shopping at Fredrick's of Hollywood felt a bit odd at this point, but it worked) I got one at Fredrick's and one at Maidenform. They're so much more comfortable than the stupid one from the hospital.

    -Judy

  • goldlining
    goldlining Member Posts: 1,178
    edited January 2012

    I had no abdominal binder at any time. I had plastic tape over the incision that came off when I got home. After that the ab incision (as well as the upstairs) has been open-air. I wonder if the differences are just philosophical or if the no-binder surgeons use a different technique that makes them unnecessary.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited January 2012

    I suspect the binder is just extra insurance. I've noticed that at UCLA the doctors have been very careful/extra paranoid (two sides of the same coin).

    Well, it's raining here so the tournament is cancelled (that's what happens in So. Cal.). Now we're back home and everyone's tired, but we're all up right now. :(

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Tamyln - You're in the 'Burgh, yes? I saw on another thread you were looking for docs, and obviously you've found them.  Who did you wind up choosing?

    I'm also nearby and had DIEP Monday, Jan 9.  

  • Snobird
    Snobird Member Posts: 593
    edited January 2012

    Try a bigger size. It doesn't need to be suffocating just firm. Try a Marena or Spanx. The material is much softer.

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2012
  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited January 2012

    I agree with Snobird. It doesn't have to be too tight or uncomfortable. Any shaper like Spanx or Marena that provides some compression will be fine. A larger size so it doesn't roll. The hospital gave me a binder which was very stiff and unbearable. It dug into all my sore points. I couldn't wear it. My PS doesn't like binders and says they lay down ridges. He recommended Spanx instead.

  • tamlyn110
    tamlyn110 Member Posts: 195
    edited January 2012

    SHIP- Dr Nyguen. is my PS. Who was yours?

  • Seashellie
    Seashellie Member Posts: 152
    edited January 2012
    Hi Redninrah - My PS told me at 2 weeks that I didn't have to wear it anymore. I did, however continue wearing it at night for a few days and whenever I felt swollen or sore. Now I wear a shaper when I feel I need the support.
  • TexasRose
    TexasRose Member Posts: 740
    edited January 2012

    My PS told me I would have to wear a binder. Not looking forward to that. He said the hospital would provide one or I could buy a nicer one. I'll have to check those brands out. I'm not sure if I should buy a gown for the hospital or just wear theirs. I know there is a lot of checking, but theirs are so uncomfortable! Did anyone wear their own gown?

  • goldlining
    goldlining Member Posts: 1,178
    edited January 2012
    TexasRose, the checking is literally hourly at first. I would put up with the hospital gown. You can also change it every day. All the other stuff going on will likely push any gown-related discomfort right off your radar. They did have me bring my own light robe and slippers for walking in the hall.
  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited January 2012

    With all the IVs, monitors, etc. etc. they have you plugged into, getting your own personal gown on and off would be a pain, literally. For me, the hospital gowns were the most comfortable because they are large and loose. And practical - I didn't worry if I got blood, ooze or drain splashes on it because I could get a clean one right away. I did bring a light robe for walking the halls.

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Ok , will be two weeks tomorrow. I'm going to send my hubby to shoppers drug mart to get a new one, bigger size. This thing is stiff, and curling up everywhere.

    I'm wondering if I wear just yoga pants high enough?

    I don't own spanks....what are they and where do u buy them from

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Oh and the 1st day of hospital u r checked hourly so hospital gown is all u need.

    And warning, to. All of u guys, make sure u top up your constipation pills, I came home bunged up real. Bad,

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    TAMYLYN:  my PS is Dr. Michael Gimbel, and I'm quite pleased.  He was recommended to me by my BS.  Tomorrow is two weeks for me, and I guess I'm feeling a lot better than I had expected to be.  Will your surgery be at Magee?  At one time (during my stay) there were six flap patients on my floor, which is way more than usual, according to the nurses.  
  • goldlining
    goldlining Member Posts: 1,178
    edited January 2012

    The Bay carries Spanx. They're sort of like the top section of thick ultra-control top tights, going higher than the waist and stopping mid thigh. Walmart etc. have similar. Better selection would probably be in the downtown Bay rather than suburban. Company also makes Sara Blakely Assets, different styles of similar products. 

    I wasn't told to wear a binder. For the first three weeks, I did just wear yoga pants that were high enough to go over the incision line. I have worn jeans since then, and Lululemon running capris for walking. I started walking on the treadmill at 2 weeks. This was okay but hard on the back due to the stooping and lack of stretching and strengthening on the front of the hip. Yesterday I bought CW-X compression capris for running (I am just still walking, except for a tentative 3 minute spurt) and they are super super tight with different compression in different areas. They were fantastic to compress the ab line as well as my thigh muscles. They are like strength from the outside. You wouldn't want to wear them for around the house or to work, but for exercise they were better than just regular exercise tights. Very pricey but I know I will wear them whenever I work out, and I am a sucker for anything that makes running easier or more comfortable. I got them at the Running Room. Again, they don't have them at my local store but the main downtown one had them.

  • tamlyn110
    tamlyn110 Member Posts: 195
    edited January 2012

    SHIP- Yes my surgery is at Magee. It is Tuesday (24th). How did everything go for you? How long were you in the hospital and how was your stay there? Are you pleased with your results so far? Did you go to Aestique  because that is where I go and I know Dr. Gimbel also works out of there.

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Treadmill at 2 weeks. Wow!!!!

    I am doing odd jobs in the house but I get tired so quick.

    I just took off my tight binder, what a relief, I got my roots yoga pants, and they are high enough to go over incision, I will get a comfy binder tonight.

    I try to walk around the house after lying down on couch. My back is stiff from this lying down.

  • goldlining
    goldlining Member Posts: 1,178
    edited January 2012

    The treadmill seems ambitious but honestly, it was a great improvement to my backache to get moving. I just walk at a comfortable speed and go for duration. It's not for cardio, but rather to get the blood flowing and build up endorphins to feel good. I have been using 4 mph setting on the treadmill but I have long legs and any slower I end up overstepping the belt. I use a heart rate monitor to make sure I am not overdoing the cardio. I have done at least one one-hour session a week, and the last couple of weeks have done almost 90 minutes. It's easier if there is football or skating on TV and the time flies. I delayed restarting after my first mx because I was kind of still hurty and weak, but I kicked myself after because the improvement in my pain level was remarkable and I had not taken advantage. This time, I made up my mind to go as soon as I could.

  • miychell358
    miychell358 Member Posts: 4
    edited January 2012

    HOw do I go about finding a GOOD ps...what is my first step.  I only have one more month of chemo and then radiation.  What is the time frame that I need to start looking

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2012

    I read a lot on these threads and then started having consultations... I met with a local PS recommended by my BS, (who does not do DIEP) , but he gave me a name of a PS who does... then went to NYC for a consult with Dr Allen... then flew to New Orleans and had a consult with the doctors down there... and that's who I chose.

  • alison34
    alison34 Member Posts: 138
    edited January 2012

    hi ladies

    just thought i would update on my progress

    i am 17 days out of my DIEP and feeling fantastic - i still cannot stand straight up but i am almost there - i didn't have much of a tummy to start with so i have been stretched a lot so think that's why its taking me a while to stand straight

    as for pain i haven't ever really had any

    my incisions are healing nicely few scabs starting to come away

    my new boob looks fantastic i am so happy with the results and so will you ladies

    it is so worth the long surgery and hey were asleep and know nothing about it haha

    ALISON

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    TAMYLYN:  I did not go to Aestique, as my BS made the appointment with Dr. Gimbel directly through his office in Shadyside - so I have been working directly with his office practice, too.  My surgery was Mon., Jan 9, and I was discharged Sat., Jan 14.  I could probably have gone home a day sooner, but the weather was bad that day and my family thought I should stay an extra day.  I have absolutely no complaints about my time at Magee.  The nursing staff and residents were top notch and took really good care of me. I had a LOT of nausea in recovery, and it took a good while to get that under control - that is my typical reaction to anesthesia and pain meds.  I was nauseous for a few days, and they worked really hard to fix that for me - it cleared up considerably when I went off the PCA and on to pain meds by mouth.  

    So far I AM pleased with my results.  My lumpectomy/rads had left me with a really asymmetrical situation, so just fixing that was a big deal for me.  I like Dr. Gimbel and feel very comfortable with him.  You'll have to let me know who your residents are, too.  Who is your BS?

    What else can I answer for you?  Everything is pretty fresh for me, so feel free to ask me anything, and I'll do my best to answer.  I will also be thinking of you this week and keep you in prayer.

  • tamlyn110
    tamlyn110 Member Posts: 195
    edited January 2012

    Thanks SHIP for answering all my questions! So glad that you had a good experience and are happy with your results so far. Its nice to have somebody nearby who went through it. How long was your surgery? Dr. Nugyuen said mine will probably be 8-12 hours but I am having a bilateral Diep.

    I am really starting to get nervous but I dont know if its because of the surgery or because I get the results of my Petscan tommorrow. Wish me luck.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    TAMLYN:  I'm sure you are getting nervous.  I scheduled all kinds of activities on the day before my surgery, knowing I would be obsessing.  I stayed busy and went to bed early--I had to be at Magee at 5:30 AM for a 7:30 AM surgery time.  I was really surprised at how many other patients were there that early.  I actually had to wait a short while to be checked in, and then we waited another short while to be taken to the pre op room.  There was one other DIEP flap surgery that day.

    My surgery was nearly 12 hours.  Dr. Gimbel came out of the OR and talked to my family about 6:30 PM, but I remained in there for another 50 minutes or so.  I was in recovery for three more hours while they managed to get the nausea under control.  The surgical team called my husband from the OR about every two hours to pass on information directly from the docs, and he was able to update a big list of friends via text as the day went on.  He was, however, the last person in the waiting room - long after everyone else went home.  He was permitted to come to my room, when I finally got there, and they brought in a chair/bed thing for him to (try to) sleep in.  He finally gave up and went home around 3 AM, as the nurses came in every hour to check the flaps and the chair was quite uncomfortable.  I didn't even know he was gone until much later. 

    Let me know about your PET scan and any other questions you might have.   

  • TexasRose
    TexasRose Member Posts: 740
    edited January 2012

    Tamlyn,

    Just wanted to pop in and wish you luck tomorrow! I'll be thinking of you!!

    ~~Mary

  • tamlyn110
    tamlyn110 Member Posts: 195
    edited January 2012

    Thanks SHIP & MARY- I am trying to keep busy by cleaning. What fun. LOL.

    Surgery is at 8:30

    Petct scan came back negetive- YIPEE!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Great news, Tammy-be thinking of you all day today.  

  • TexasRose
    TexasRose Member Posts: 740
    edited January 2012

    Awesome news, Tammy!! Thinking of you today!

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