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wrsmith2x
wrsmith2x Member Posts: 410
edited June 2014 in Triple-Negative Breast Cancer

CT scan was clear with the exception of "...a 3mm paraseptal nodule in the left major fissure" and a "subcentimeter left renal hypodensity..." neither of which the doctor is worried about.  I'm not sure I'm not a little worried but we will watch it.  Anybody have any info on what either of those things are?

Node surgery is Friday and plastic surgeon and oncologist visits are Monday and then we can schedule the BMX I hope.

Thanks for all the good thoughts and prayers.  I wish you all peace.  Namaste'.

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  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2012

    Just stopping to bump your thread for you, in case you haven't gotten answers elsewhere.  And good luck on Friday and Monday!  Hope all goes well.    (((Hugs)))   Deanna

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  • christina1961
    christina1961 Member Posts: 736
    edited January 2012

    I'm not sure what that means, either.   I know I have some sort of benign cyst in my spleen and also liver - and something in my sinus area that show up on CT scans- maybe that is what they are?  I hope everything goes well for you during your surgery and at the oncologist and plastic surgeon visit. Please keep us updated. 

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited January 2012

    Reading a CAT or CT can give you too much information.  They talk about every little thing inside you and all you really want to know is is there cancer?  Or something else abnormal you need to address?

    You'll get the short version, which is what can affect you and your life.  That you are unique in some way that does not harm you is okay.  Just ask if that is all those weird things you wonder about are.

    Good luck to you. 

          

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  • tibet
    tibet Member Posts: 545
    edited January 2012

    How do they know it's a recurrence not a new primary? Do you know the receptors yet?

    by the way have you done a gene test?
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  • wrsmith2x
    wrsmith2x Member Posts: 410
    edited January 2012

    I guess they really don't know if it is a new primary or recurrence.  I am still awaiting receptor status.  It is directly where the last tumor was though.

    I did BRCA test and was negative.  Haven't had any oncotype test done.

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  • guitarGrl
    guitarGrl Member Posts: 697
    edited January 2012

    A search in pubmed brought up only 2 articles. While they didn't define paraseptal nodule, both articles were about breathing problems, so it might have somethIng to do with the lungs. Neither abstract was understandable to a non-scientist like me. None of the articles had anything to do with cancer.



    Good luck with the surgery/doctor's appointments - hope it's nothing.

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  • Titan
    Titan Member Posts: 2,956
    edited January 2012

    Glad your scan was clean..that is a relief!  I am curious whether or not it is a new primary or a reocurrence..after 4 years out.

    I'm being nosy here..and you don't have to tell me if you don't want to..but did you think something may be wrong b-4 your mammogram?  I remember not feeling well b-4 my I found my lump..

    I'm so glad that this new lump is small...(even though it sucks you have to go through this again..dang it)..and has not spread anywhere...obviously you and your doctors have been very diligent with your care...I'm asking because soon I may be seeing the onc every 6 months and to tell you the truth I'm not sure that is a good thing...

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited January 2012

    Titan,

    If your onc is anything like my own, you are in the driver's seat.  If you want to stick to a 3 or 4 month rotation for a while longer, just please ask.  Mine keeps asking if I am getting tired of being watched by a hawk, and I am not, so I still do a 3 month check.  You can choose that or a 4 month schedule or a 6 month schedule.  It should be up to you and your comfort level.

    At some point, one of your docs will become the primary and the others will slip into lesser roles.  Six months is fine for the surgeon.  Six months is fine for the radiologist, though he is better about ordering scans and mammograms and following up on those things.  But I like to see the onc every three months and have the bloodwork done, and get my annual infusion to keep my bones strong after I cracked a rib and discovered they had grown weak during treatment.

    Be your own advocate, as we all tell each other.  If you want a check more often, ask for it and you shall receive it.      

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  • tibet
    tibet Member Posts: 545
    edited January 2012

    WrSmith2x, if it Is a new primary, it is much better. Did they get clear margin the first time? Did you get regular scans and mamo during the 4 yrs ?

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  • wrsmith2x
    wrsmith2x Member Posts: 410
    edited January 2012

    Let's see.....Titan, I did feel a lump but I thought it was part of my scar tissue from last time and I knew I was going for a mammo soon so I waited.  We started with checkups every three months after my first BC and then moved to 4 months and then 6 months and we had finally moved to a year when it was found.  Funny, I had just seen my oncologist a month before and my tumor markers were fine (argh!) and I told him that my breast was itching terribly and he told me to use some cream on it.  Itching doesn't have to just be a sign of ILC....I didn't know that.

    Tibet, a new primary would be better but it has all the same characteristics as last time so I'd be surprised if it was a new primary.  They did get clear margins last time and I have had regular mammograms and only tumor markers done.  No scans were done except if I had symptoms of something - I had a hip issue and we did a bone scan about 2 1/2 years ago which was clean.

    After reading thru my CT scan very carefully though I came upon this:  "There is a pericardial effusion."  So I did what one does and read on the internet about what that was and needless to say I am freaked out again.  I will ask the surgeon about it as soon as I can.  Tomorrow is sentinel node biopsy again so I should have more answers by Monday.

    Peace to you all.  Namaste'.

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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2012

    Best wishes tomorrow on your SNB.

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  • Titan
    Titan Member Posts: 2,956
    edited January 2012

    Good luck tomorrow!  Will be thinking about you! 

    YDL...(and not to hijack your thread wrsmith)...I am thinking of seeing my onc every 3 months at least until 5 years out..heck..why not...I like him alot and would miss him ha ha...this triple negative crap is dang sneaky...many people have said that any BC patient needs to be watched for a long time....maybe our families/friends don't understand it..but we do...with how aggressive TNBC is..I think we need to be watched for a long time.

    Let us know how it goes when you feel up to it..wishing you the best...

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