Male with Breast Cancer

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  • ma111
    ma111 Member Posts: 1,376
    edited January 2012

    I also find working to be helpful for the mentality. Not just helping others, but that is where the support system is. You can say more to friends then you can with family.

    You really did well with being a father, you must be very proud of them.

    People might not even notice your new hair due in the summer.

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    Recieved BRCA results today, and they were negative.  So glad for that.  Tomorrow will likely receive results of my lymph node disection.  The wait continues....

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited January 2012

    Good news for your family on the BRCA negative. Take care.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited January 2012

    Adrian glad you got good news on the BRCA..........one down more to go.  Hanging in there with you while you wait.

    Love n hugs.  Chrissy

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  • Cyborg
    Cyborg Member Posts: 848
    edited January 2012

    Firstcall, you are welcome here! Hope we can give you some support. Here is a warm wish fir healing headed toward you.

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  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited January 2012

    Adrian,

    Congratulations on your BRCA results!  But before you lay that concern aside for now, you may want to check to see if the test order included the BART extension to the BRCA testing.  

    Just one more thing to add to your checklist...

    Best wishes,

    LisaAlissa 

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  • CLC
    CLC Member Posts: 1,531
    edited January 2012

    Yeah, Adrian, on the great brca news!!!

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  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012

    Yay for the BRCA test!!!   Thats wonderful, Great for you and your family :)

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  • chef127
    chef127 Member Posts: 891
    edited January 2012

    Adrian,

    Welcome. You have certainly come to the right place for info and maybe guidance. The woman here are so loving, understading, caring, and knowledgable. I have learned more here from first hand experiences than much of the reasearch I've done. 

    I dated a guy about 8 years ago who had BC.  I met him after the fact so I don't know much of the details. He did have a mast and the scar covered quite a bit of his chest, at least 12".  He was just getting off of 5 years of tamoxaphin. Turned out to be quite a sexy guy, if that matters.

    That was  at least 14 yrs. of survival. and still going. 

    Take careful concideration in your treatment  AND survive this beast.

    Excuse my question, but is scar revision an option for BC. I did not find his chest unattractive.

    Maureen

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    Good News.  My lymph nodes came back negative.  My initial SNB had one micromet (0.8mm) but the nodes from the second surgery are negative.  So that was very nice to hear.  

    My scar from the mastectomy is healing well.  Its quite long, but it is just a thin line, and the skin lies very flat.  Just need to come up with a good story to accompany it Embarassed 

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  • CLC
    CLC Member Posts: 1,531
    edited January 2012

    Oh, Adrian!  That is fabulous news!!  I am so happy for you.  Do you know what this means in terms of treatment now?  Or do you have to wait?

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    Well, I still don't have the oncotype results yet, and I need to meet with my onc.  I know I will need tamoxafen as a minimum, and I'm hoping this means they can be a little more gentle with the other stuff.  I don't want to use a sledge hammer if I only need a hammer.  

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012

    Congrats on the nodes being clear!  Unless your Oncotype score is surprisingly high, you may very well get to keep your hair (skip chemo) and just do the 5-year Tamoxifen therapy.  

    Now I must pose a question to all reading here...Do men on Tamox. get the hot flashes?  I'm guessing it messes with their hypothalmus same as a woman's.  Yay or nay?

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    I think the answer is yay, I'll have to let you know when I'm going through it. 

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  • ma111
    ma111 Member Posts: 1,376
    edited January 2012

    Hopefully you won't need the sledge with the hammer.

    I can come up with some stories for the scar. Are you a Veteran? Saved a girlfriend or child from a tiger while on vacation in Africa. This could get fun.

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  • chef127
    chef127 Member Posts: 891
    edited January 2012

    It is yay.

    Hot flashes, sore breasts, mood swings, maybe even man boobs.(boob). A version of menapause. YUK.

    Now you can relate to your wife. Tell everyone she took your heart AWAY via LOVE. .............Hence the scar!

    Congrates on the neg nodes. Its a big plus.

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    Well I doubt if the sore breast will be anything like the soreness of the breast I dont have.  Interesting version of phantom pain, for sure.  

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  • cycle-path
    cycle-path Member Posts: 1,502
    edited January 2012

    "Just need to come up with a good story to accompany it"

    Dueling. Always go with a dueling story! (Or maybe something about a safari...)

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  • chef127
    chef127 Member Posts: 891
    edited January 2012

    OH Adrian,

    You've got us plotting stories. I like the dueling story. Or maybe something that involves a Hero.......................

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    Yes, I would like to get a few good stories, I could rotate them.  I'm thinking of taking up swimming, as I think it is helpful to help prevent lymphedema.  I'm sure that will give me the opportunity to try out some of the stories.  

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  • catbill
    catbill Member Posts: 326
    edited January 2012

    Hi Adrian,]

    after reading thru your posts, things for you sound very positive.  I'm very glad for you.  Waiting is always the worst (and I know everyone on these boards will agree with that statement).  It does sound like you will have all the pathology pieces soon.  For me, the Oncotype took the longest time...about 2 weeks.

    The scars...let's see.  While fighting a heretofore unknown tribe in Borneo who knows nothing of the outside world while rescuing a young girl from an erupting volcano...

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited January 2012

    Adrian, YAY!!!!!  another good result!!  They say all things come in threes so the odds are looking good for the other results.

    Mmmm, scar....................oh, how about.... using a power saw and lost control because your gorgeous wife caught you attention?

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  • chef127
    chef127 Member Posts: 891
    edited January 2012

    or..........................................................Stranded on a desert island and you had to perform heart surgery on your self. nah..too far fetched.........................................................snake bite and you had to bleed out., saved your own life.

    Now I'm obsessed...................We need a little comic relief...............at your expense, Hope you don't mind.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012
    Ahahaha!  Now there are two mentions of a wife and one of a girlfriend and I don't recall him mentioning that he had either.  Enquiring minds must want to know.  Never underestimate the power of BC.org for it's online dating potential.  Did someone say comic relief?  Ahahaha!
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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    I was thinking of saying I was stung by a sting ray while swimming the English Channel, and it got infected.  

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited January 2012

    Now that's a good one!....lol

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    So.....it sounds like I should come up with a story that includes a wife, a girlfriend, and this huge scar on my chest....hm......

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited January 2012

    Adrian, it could make for very interesting reading.........lol

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  • chef127
    chef127 Member Posts: 891
    edited January 2012

    ,

    Its called entertainment.

    Wife, sister, brother, partner, doctor, lawyer, indian chief, etc,etc,etc............a little bit of fantasy to help us cope with all of our situations. serious and overwelming. a little sense of humor. 

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  • firstcall
    firstcall Member Posts: 499
    edited January 2012

    Well thats how I see it too....humor, entertainment.....I think those things are important as we deal with this beast.   I need a story that is 'almost' believable, close enough to make people think (and laugh) a little.  Over the years, I've found that people in difficult life situations do appreciate humor.  It truely is one of the best medicines.  

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