Finish my sentence... I'm sick and tired of...

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MadisoninMd
MadisoninMd Member Posts: 87
edited June 2014 in Managing Side Effects of Breast Cancer and Its Treatment

Having one of those days... I'll start..

I'm sick and tired of:

- waking up every morning praying it will be a "good" day.

- well meaning people freely sharing my medical information with anyone who will listen (how about a little discretion people?? It's personal medical information here- not the weather!)

- this damn disease being the topic of every discussion. 

- insurance companies that can't seem to process claims correctly the FIRST time through.

Ugh... have at it ladies... I know someone else is feeling frustrated today...

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  • Peacock
    Peacock Member Posts: 86
    edited December 2011

    friends who DON'T ask how I'm feeling emotionally but ask for detailed medical info;

    family members who urge me to "keep fighting" and say "You'll be fine."  (Are you oncologists on the side?)

    tired of missing my old life and hair 

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  • Myopiawmn
    Myopiawmn Member Posts: 38
    edited December 2011

    Every ache and pain instantly becoming "cancer" in my mind. So far I've decided I've had toe cancer, ear cancer, hair follical cancer.....

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  • Faith316
    Faith316 Member Posts: 2,431
    edited December 2011

    People telling me that having a positive attitude is half the battle. 

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  • ALittleBitBritish
    ALittleBitBritish Member Posts: 627
    edited December 2011

    Having LE..and knowing it will never be gone!! Thanks BC

    Having no specific BC support groups close by and that meet after work.

    My LE compression garments disappearing when I returned them for a bigger size....this is a month ago..grrr where is it!!

    My referrals being put in wrong, so another month goes by before I get my scan... 

    Got area(s) of skin cancer - so surgery in January 

    Insurance co not paying for Oncotype test..

    I could go on...and on..just the LE disappearing would make my day!! Smile Harry Potter where is your wand? 

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  • snobordkykmom
    snobordkykmom Member Posts: 33
    edited December 2011
      Everyone telling me I look great.  I'm sorry, but how am I supposed to look?  (Just diagnosed end of Nov.,IBC, Chemo now; surgery, rads, etc, coming down the pike) First AC treatment done, seven to go. "Not dead Yet!"  Hell, we're going snowboarding tomorrow if it doesn't rain.
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  • vivirasselena
    vivirasselena Member Posts: 278
    edited December 2011

    cancer. period.

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  • MadisoninMd
    MadisoninMd Member Posts: 87
    edited December 2011

    I can relate to many of these as well...

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  • Carla9112
    Carla9112 Member Posts: 162
    edited December 2011

    Having people tell me that I "look great" and don't "look sick".  WTH - I just decided to have both of my breasts removed, undergo having poison pumped into my body so that I could become a lving toxic site; and then radiate my chest for 30 sessions; all for the heck of it.  I guess the $300 worth of Estee Lauder makeup I bought before shaving my head really works since I don't "look sick".  I decided if I was going to bald then I would at least try to make my makeup look good.  Honestly though how good can you look when your face is swelled to the shape of an egg and you're bald and flat-chested as a wall.  Oh well.... I guess people mean well.

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  • GracieG
    GracieG Member Posts: 118
    edited December 2011

    Being tired. I feel like I'm the poster child for fatigue.

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  • TeresainTucson
    TeresainTucson Member Posts: 71
    edited December 2011

    Of so many things.

    I think my main one is hearing someone say "oh I had a friend/sister/relative go through that. Keep on working and living a normal life and you'll be fine!" I want to say "Really? And they had the same type of cancer I do? The same stage, advancement, aggressiveness? The medicines were all the same and they had the same stresses outside of work?"

    I'm tired of my boss, who's second wife died of lung cancer, asking me "Do you really have to take the whole day off for chemo? Couldn't you just have it done in the afternoon?" My company is too small for FMLA to apply and I pay for most of the mortgage.

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  • Moon5
    Moon5 Member Posts: 2
    edited January 2012

    ...being asked "how I feel."  I'm getting microwaved daily by a machine that would put the lasers on a museum security system to shame.  How do you think I feel?

    ...trying to figure out what the still-evasive "new normal" looks like.

    ...people disappearing from my life because of cancer.

    ...feeling like some surreal tattoo advertisement.

    ...being told to "be positive."  When you've been carved like a turkey, then talk to me.

    (I got a million of 'em...lol)

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  • Moon5
    Moon5 Member Posts: 2
    edited January 2012
    ...or rather, people disappearing from my life because I am dealing with cancer.
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  • avaross09
    avaross09 Member Posts: 8
    edited January 2012

    It's damn frustrating briefing out every other person; about your disease, current words and then their humble words.

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  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Doctors nodding pleasantly at me without listening and doctors poo-pooing SEs.

    Being bald. It was fun, but now it is getting old.

    Everyone telling me I will be fine, because I look good and have a good attitude. I sure hope I will be fine, but I have no guarantees and my odds are not the greatest. 

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  • Nel138281
    Nel138281 Member Posts: 2,124
    edited January 2012

    All of the above and  people  saying "I'm sorry"      It's not your fault, it's nobodys fault, please stop apologizing!! 

    Nel

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  • theBCavenger
    theBCavenger Member Posts: 313
    edited January 2012

    not being able to normally participate in my life... 

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  • Denise2730
    Denise2730 Member Posts: 648
    edited January 2012

    I'm sick and tired of...

    BEING SICK AND TIRED!!!!!! It's hard planning anything when you're not sure how you are going to feel from day to day.

    People saying within earshot "she looks good". How am I supposed to look? Just because I've had a DMX doesn't mean I'm dying tomorrow. Next year may be a crapshoot but other than foobs I hate and some dark circles under my eyes I look the same..

    And Myopia I get it! I've had toe cancer too! (J/K)

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  • reesefoggy
    reesefoggy Member Posts: 65
    edited January 2012

    not being me!!! I want my hair and my life back

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  • jenlee
    jenlee Member Posts: 504
    edited January 2012
    Myopiawmn"Every ache and pain instantly becoming "cancer" in my mind. So far I've decided I've had toe cancer, ear cancer, hair follical cancer....."LOL, can't agree more:)   Sternum, knees, throat, skin...  But yet, I always shrugged off everything and know that from now on, need to pay attention to my body.  So after chemo & BMX, I guess I'll be going to the doctor every week to get checked. 
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  • ILBoysMom
    ILBoysMom Member Posts: 79
    edited January 2012

    --being told that losing my hair wasn't so bad because I look so good in hats.  Well, when this is over they should all come to my backyard hat bonfire because I don't agree.

    --being told that I don't look sick.

    --being told that at least they caught it early.   

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  • MadisoninMd
    MadisoninMd Member Posts: 87
    edited January 2012

    Reese- totally agree! I can't tell you how many times I have said that exact same thing!!

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  • MadisoninMd
    MadisoninMd Member Posts: 87
    edited January 2012

    IL- let me know when the bonfire is! I have a few things.. I.e. hats and wigs I'd like to toss in myself!

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  • jwilco
    jwilco Member Posts: 486
    edited January 2012

    ...being scared

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  • GR4C1E
    GR4C1E Member Posts: 159
    edited January 2012

    -that whiny (cancer free) jerk at work who wanders in late complaining that she "just didn't feel like getting out of bed this morning." while I'm on time every day and still going thru chemo.

    -not being able to smack that whiny little jerk upside her head, point to my chest and shout;  "CANCER! WINNING!" without getting fired.  Just ask Charlie Sheen how well letting his freak flag fly went over with his employer.  I'll cut to the chase............not well.

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  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Bwa Gracie, I have also had moments when doing a Charlie Sheen would be so incredibly satisfying. Never thought of it quite in those terms, but you put it well.

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  • MadisoninMd
    MadisoninMd Member Posts: 87
    edited January 2012

    Here's another.. people who explain their disappearance by explaining "I didn't know what to say to you". I just want to scream "I'm the same person! Say whatever you would have said before" I do understand some are scared to say the wrong thing- but come on we are still the same people. Say you don't know what to say but for goodness sake say something!

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  • jackboo09
    jackboo09 Member Posts: 920
    edited January 2012

    My best friend (also a hairdresser):

    Said "Oh you're brave." in a surprised voice when I said I was going without a wig.

    Same BF failing to turn up to my house to put my first hair dye post tx on.

    BF and everyone else treating me in such away that I feel I'm a stranger to them. I'm me. I want you to be normal with me, so I can FEEL NORMAL MYSELF!!!!!!!!

    Liz

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  • MadisoninMd
    MadisoninMd Member Posts: 87
    edited January 2012

    People insisting on coming into work sniffling, sneezing and coughing. STAY HOME if you are sick! Stop spreading germs and joking that "it's making its way through the office". Ugh!!

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  • GR4C1E
    GR4C1E Member Posts: 159
    edited January 2012

    MadisoninMd, I just step up close to them and whisper;  "Are you sure you're alright, because that's how it started with me."  Then I scratch my scalp so that my wig teeters from side to side and I walk off.  They usually go directly home after that.

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  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Gracie, you are BAD! ROFLMAO

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