depression

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adh-anxiety
adh-anxiety Member Posts: 1

Can't seem to shake this feeling of dread with an ADH diagnosis. They also found sclerosing adenosis with excisional biopsy. After 5 biopsies, dense breast tissue, fibrocystic disease, and a maternal aunt with BC I feel like a ticking time bomb. I just saw the surgeon and he's sending me to an oncologist, but said all I need is annual mammograms. Tamoxifen optional. I thought all high risk women required MRI/mammogram alternating each 6 months. He says MRI not needed, and I don't even need to go for a re-check in 6 months. I can't shake the feeling that there is more abnormal tissue.

Comments

  • thatsvanity
    thatsvanity Member Posts: 391
    edited January 2012

    When you talk with the oncologist discuss all the options to keep you healthy, that will reduce your anxiety. Best wishes,

    Amy Lynn

  • momoschki
    momoschki Member Posts: 682
    edited January 2012

    I also have an ADH dx.  I would not be comfortable with just annual mammograms for monitoring.  Although I have no family history, I get some kind of test every 6 months:  mammogram, ultrasound, or MRI, at my breast surgeon's discretion.  Did you have all the abnormal tissue removed by lumpectomy?  I would not be comfortable just leaving it there.

     I totally understand the persistent feeling of dread.  Although I got this dx in February of last year, it continued to hang on.  I saw a psychologist for therapy and continue to see a psychiatrist as well, for an antidepressant and anti-anxiety meds.  All of this has helped a great deal.  I also see an integrative oncologist for alternatives to Tamoxifen, which all my doctors agreed was not a good choice for me, since I have a history of endometrial issues. 

  • mommy23kids
    mommy23kids Member Posts: 51
    edited January 2012

    ADH anxiety I know your feelings all to well same sclerosing adenosis and ADH. I had a lumpectomy on 12/23 and my BS wants to have me on a 6 month rotation( mammo/ ultrasound) since they say they got everything. I'm not happy with my dx Im 29!!!! I feel like they are missing something I spoke with my GYN/midwife and explained that with everything that has happened in the last month and so fast that I want a MRI so that Im sure that Im clear for now. Ill even pay for the MRI if I have to. 

    I also have to see an oncologist for tamoxifen.

  • Kalonis52
    Kalonis52 Member Posts: 134
    edited January 2012

    Hi honey, It seems you have alot on your plate. I am a 6 Year Breastcancer Survivor. Being Depressed is a normal emotion. I was. With being diagnosed and going thru treatment with the awful disease, I fought and held my head high and was positive. It was tough though. You can do it. I learned to take baby steps. And, just take one day at a time. As it comes. Going through my illiness, I learned to keep my deep Faith and Hope each day. You try this. It will help the Depression. I know it did mine. 

    Kaloni

  • SarahsMom
    SarahsMom Member Posts: 1,779
    edited January 2012

    Hi - I've been living through this roller coaster for 6 years now, so I totally hear you! The key is to not let it stop you from living, you just have to press on was if it will never happen, do your 6 month checks, stay involved in what is happening with your breasts and body, and just move on with your life. My docs also don't want to do an MRI, for whatever reason. I am high risk as well and had surgery and a strong family history, plus other risk factors. I have to just trust that they know what they're doing, live the cleanest and best life I can and move on.

    If I get down, I see it as possible feeding the beast...stress is really bad for our bodies so I try to avoid stressing myself out. 

    I know it's hard, those of us in watchful/waiting mode understand! 

    You could also ask for an antidepressant if you think it would help you cope. The bottom line is don't let this get in the way of your life! 

  • momoschki
    momoschki Member Posts: 682
    edited January 2012

    Just want to second the suggestion of medication and/or therapy.  For me, this has made a HUGE difference-- the difference between being able to think about nothing but the eventuality of BC, and being able to function (albeit with that threat still hovering in the background, but it is not nearly so overwhelming.)  Living under a constant depressed cloud of anxiety and dread is NOT normal.  It is debilitating and there is help to make it more manageable.

  • Kalonis52
    Kalonis52 Member Posts: 134
    edited January 2012

    Hi Momoschki, When I was diagnosed in 2006, I went on Antidepressants. It is normal for many BC Patients etc. to go on these. However, too relieve just the Anxiety, I went on Xanax. Xanax is a Anti-Anxiety Medication, and, it helps lower your Anxiety levels. I hope this is helpful for you.

    Kaloni

  • momoschki
    momoschki Member Posts: 682
    edited January 2012

    Kalonis, I am currently on Wellbutrin and Klonopin-- both seem to be doing the trick.  That cloud of doom does still hover above, however.  The drugs make it more manageable.  Klonopin is in the same class of drugs as Xanax, only longer acting.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2012

    adh-anxiety and all - I had been followed closely for 20 years for very dense and fibrocystic breasts.  Periodically I had US guided FNA to empty cysts of their fluid so they would collapse and so that the fluid could be looked at in the lab.  At various points I had imaging at 6 and 12 months intervals.  I was dx with IDC in the fall of '09 and had an MRI prior to surgery.  I opted for BMX even though I was a lumpectomy candidate.  After that many years of being closely followed I wasn't comfortable with leaving the other breast.  The MRI did not disclose the ADH/ALH in the "prophy" breast, and it did not disclose the 2 positive nodes on the cancer side.  All of this was found on post-op pathology.  Mammography did not disclose the 2cm IDC either, it was found on US.  Please realize that imaging is not foolproof, does not show everything, so that may be why your physicians are not endorsing more frequent exams.

  • Jodycat
    Jodycat Member Posts: 123
    edited January 2012

    How long has this been going on?  The dragged out dreading feeling may well be depression, and you might consider a doctor.  Other things that are important:  good exercise, 30 min a day for at least 5 days a week.  Might be just brisk walking.  A very healthy diet; plenty of fruit, veggies, whole grains.  Interacting socially:  meeting up with friends, a book cllub, volunteering, for example.

     For me and a lot of others, one way to help with depression is to get control of one's environment.  Cleaning out a closet, drawers, etc.  One advantage to doing this when you are depressed is that you can be less incllined to want things, so throwing out is easier.  I clear away about half my kitchen after I saw a very horrible and tragic accident.  I  had no desire for anything.

  • SarahsMom
    SarahsMom Member Posts: 1,779
    edited January 2012

    Special K, I appreciate your post, thanks for sharing your experience with us. This is why we have to stay vigilant. You also made really smart decisions about your care and took charge of the situation. Thankfully!  Now that your herceptin is done, what kind of follow up care/diagnostics will you have, just curious. 

    Hope ADH is doing well, not sure she's come back to the boards after this initial post.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2012

    carpe - I just clicked on her member name and saw that she has not returned.  I hope she is OK.  Maybe it just caused her to have more anxiety.

    My surgery decisions were based on the little voice in my head that said it would be good for the breasts to be gone.  I always had half a dozen cysts at any given time (they were all present in my post-op path, including one right next to my tumor) and I can't tell a B9 lump from a cancerous one.  I would have been doing self-exam every 5 minutes and always in freak-out mode.  I have also had many ovarian cysts and a B9 3cm ovarian mass, a golf ball sized B9 nerve sheath tumor in my calf,  and uterine fibroids, so my body likes to produce these things.  Don't know why.

    Now that Herceptin is done my MO wants a new PET.  I had one pre-chemo, a post-chemo and now he wants to post-active treatment.  I am on Femara, which is making me hurt all over, but I will stay on it.  Unfortuately, I also have osteopenia so he wants me to have bi-annual injections of Prolia.  Just had a bone density done yesterday so we have a good baseline after chemo and 6 months of Femara.  He is also a believer in tumor markers and CMP on a regular basis, so I will be having more of those.  He likes to see if they are trending in any particular direction.  I will be followed every 6 months, and I am going to try to stagger it so I see the BS, the MO or PCP every 3 months or so.  I don't know if anyone wants to do any MRI in the future, or if we will rely on the PET only.

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