January 2012 rads

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  • chef127
    chef127 Member Posts: 891
    edited January 2012

    Had my tx #3 today, Got home at 3:30, had a late lunch and fell asleep. My DD got home from work at 8:00 and woke me up. I was hot flashing and totaly exhausted. Is it possible its from the rads? Its too soon. I do suffer from fatigue from another condition so maybe its just me. 

     Kayce...6 1/2 weeks is not so long when its done but the duration seems like a liffe time. I've decided to treat myself during my 7 weeks to my favorite foods that I gave up when I was dx'ed. I had a cheesesteak and an apple turnover today. Bad girl. Its my way of coping. tommorow pizza. OH, I think murder is excusable in your circumstance.

    Ladies, goodluck on your rad journey

    good health...............................Maureen

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Chef, with me the fatigue comes and goes. I am in my second week now, and some days I feel juts fine, others I am completely zapped out. It is odd. On the weekend I slept like a log for many hours.

    I too have been giving myself food treats, lol. Yesterday I had a piece of nougat (it's a Danish thing, sort of like high quality, solid nutella).

  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    Kayce234:  I'm already tired too!  Don't start until the 23rd.  I so believe it's stress related.  The mind is working overtime, will it hurt, will I burn,will I peel, will I be fatigued, what cream to use, what bra to wear, can I endure this?? See.....exhusted. 

  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2012

    off to mapping and sim today.  Set to start next week.  Out of town to Vegas for a long weekend.  Not looking forward to 7 weeks of this.

    Maggie

  • newksmom100
    newksmom100 Member Posts: 55
    edited January 2012

    Good morning all, hope it was a good weekend for y'all.  I've got two questions that I'm hoping someone can answer.  I went yesterday for CT scan and mapping, but still do not have a start date as RO and dosimetrist have to plan treatment.  Do any of you have an idea of how long that may take?  Also, curious as to cost.  Do any of you have a idea as to the general cost per treatment (before insurance)?  Thanks much.  Hugs to all. 

  • AnnAlive
    AnnAlive Member Posts: 450
    edited January 2012
    Julie - I had heard treatment is 7-10 days after mapping, and mine was 8 days to dry run, which was last Friday. I started treatment on Monday, technically 11 days after mapping, counting the weekend. I'm not sure of cost per treatment yet, so I'm watching the insurance claims online. Because I get weekly Herceptin, I will probably have met my high deductible before the radiation treatments started, once the claims post. I do see the claim for for CT scan, mapping, etc, which is $2,691 before insurance, and my member rate is $1,024. I think this is the biggest item, and that the daily treatments will be less, but of course we get so many of them, so it will add up!
  • newksmom100
    newksmom100 Member Posts: 55
    edited January 2012

    Thanks Ann, I appreciate that you shared your experience.  I just got a call and treatment plan is set up already and tomorrow is a dry run and rads start on Thursday.  Funny how different doctors/treatment centers operate so differently.  Glad to get this started (finally), but a little scared too.  Just knowing that it's all going to be good. 

  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2012

    I was given a quote of about $15000 for my treatments without insurance.  Thank goodness I have some.

    No mapping today as the pet scan results from Friday did not come in due to the holiday on Monday.  Oh Well.  Doc says just wait til they are back just in case.  He assured me that it would be extremely rare for anything to show up given that I just finished chemo.  Would be a resistant bugger....but I am still anxious.  Rescheduled mapping for next week.

    Maggie

  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    I was just given a blow to the gut.  Met my onocologist for 1st time today.  She is suggesting chemo first.  I just about threw up.  I was given an option however to have a oncotype dx test done.  This is a genomic test to see the likelyhoold of my cancer recurring whether in the breast or somewhere else in my body.  I told her to go for it.  It it comes back with low # then I can forgo the chemo.  If the # is high then I will need chemo.  She still said that even if # high, it is my choice since I have low grade cancer.  And here I was all ready to start my rads on the 23rd.  They just cancelled my first 2 weeks since this test is done in California and will take almost 2 weeks.  I'm keeping my fingers crossed. 

  • chef127
    chef127 Member Posts: 891
    edited January 2012

    I just hd my 4th tx and I asked the rad nurse about the unusual fatigue i experienced yesterday. She looked at me kind of funny and said it was too soon for that SE. I really felt like I got beat up. It must have been the cheesesteak, or maybe the stress, or maybe I should stop anticipating the SE's......................hypocondriac????????

    momine, I think I'll give up the junk food lunches and I'll try the nougat. LOVE IT.

    kingjr, I'm exhausted reading your post. You're right it is too  exhausting

    Anyway, happy rad trails to all

  • Ossa
    Ossa Member Posts: 919
    edited January 2012

    Kingjr

    I had chemo first and it shrunk my tumour to the point where it was gone.. Started Chemo May 19/2011. 4 AC/4 DT Was done Oct 18/2011 Then Surgery Nov.22/2011 Now starting Rads. Jan 26/2012. All good. Glad I had chemo first

  • Rockym
    Rockym Member Posts: 1,261
    edited January 2012

    Had #10 today.  I'm pretty tired, but I think it's because I've been at this "cancer thing" since last June.  I'm a bit burnt out from it all.  My hair is growing back (which is good), but my eyebrows and lashes have started to fall out and I'm almost 2 months out from chemo.

    kingjr66, I thought with triple neg you get stuck with chemo regardless.  I can tell you that the typical standard of care is chemo first.  Here's hoping your Oncotype # is low.  Mine was 22 and I had positive nodes so I was stuck. 

  • chef127
    chef127 Member Posts: 891
    edited January 2012

    ossa,

    I'm just curious, did you get  mast after your tumor shrunk to nothing. And if so, whats the point of chemo first. Excuse my ignorance.

    Maureen

  • kingjr66
    kingjr66 Member Posts: 764
    edited January 2012

    Rockym:  just read your post.  I have made an error on my ER/PR/HER2 diagnosis.  I just noticed that yes, I show negative when they should be positive.  I have updated my bios.  Thanks for pointing that out.

  • tnhelen
    tnhelen Member Posts: 63
    edited January 2012

    My daughter said there's a balm that is sold even at walmart called wrecking balm that is suppose to remove tatoos.  Don't know if it does but maybe it would work on the small dots.

  • tnhelen
    tnhelen Member Posts: 63
    edited January 2012

    Treatment 15 today.  For the first time it was painful when I lifted my arm into the upper holders and felt like my breast was on fire.  Took some motrin that the RO prescribed and it really helped.  Starting to feel really tired though.  I still have my grandkids alot but not sure how much longer I will be able to do that.

  • bgirl
    bgirl Member Posts: 538
    edited January 2012

    My diagnosis is a little difficult to determine as my body had a bad reaction to stereotactic biopsy.  Original diagnosis after biopsy was invasive mammary carcinoma with lobular tendencies and high grade DCIS as well.  After lumpectomy was just a guess as biopsy had made a mess so just guessing as to tumour size on pathology report.  Therefore Stage 1 or 2 and grade 2 or 3.  So I just call it early (stage1/2) breast cancer.  Medical oncologist said doesn`t really matter as far as treatment.  Had Oncotype DX done. Score of 18 so reprieve from chemo.  Had simulation and tatoos last Tuesday, starting radiation on Friday. 16 + 5 boosts.  Very fair so concerned about burning.  Moisturizing with recommended cream as suggested before starting treament.  To make sure skin insn`t too dry already.  Getting worse now with winter and Tamoxifen.

  • Ossa
    Ossa Member Posts: 919
    edited January 2012

    Chef

    .My tumour was so big  (7x6x1.5 cm) and aggressive that my MO wanted to treat it aggressively and it worked. It covered 80% of my breast pre chemo, and shrunk with each chemo treatment.. Still had mastectomy as my Surgeon explained that if i "just" had a lumpectomy it was a big chance of recurrence as that is quite common with large tumours and lumpectomy.. So my decision to have a mastectomy was relatively easy..

  • Rockym
    Rockym Member Posts: 1,261
    edited January 2012
    kingjr66, glad to hear that you aren't triple negative.  At lest with ER+/PR+ you can take hormonal suppression drugs (which is a good thing) and even though you are HER2+ there is Herceptin for that (which is also good).  Triple neg. can basically only do surgery and chemo is the only back-up. 
  • tnhelen
    tnhelen Member Posts: 63
    edited January 2012

    bgirl,  I HATED to stereotactic biopsy.  I don't know if I would ever do that again.  I think I would just say put me to sleep and take a biopsy.  They call it non-invasive?  Are you kidding me?

    So far, with 15 treatments I am a little red but not burned.  Keep your moisturizer on and hopefully you won't burn too much.

    Helen

  • chef127
    chef127 Member Posts: 891
    edited January 2012

    ossa,

    Thanx for that great explanation. 80%!!! You  did  the right thing.  I'm so glad it worked for you.

    My MO and sugeon wanted me to  do the chemo first . The BS said " it would make the sugery easier on her."  Yea, so......... I guess I didn't understand her logic. It would have been easier on me too.  It was not explained to me like you just did.  I didn't ask the right questions. I just did not care for the MO and I left. That was my second opinion.

    My tumor was fairly large,  but my breast was realativly large compared to the tumor. Logic told me a mast was over kill. I did have a nipple sparing partial mast.  I hope I made the right decision. The result is good, but lopsided. The right breast is a DDD and the left one is a C. I can't wear a bra but a sports bra works. Sounds vain but the drama of a mast was hard to handle for me. ALL you woman are so brave.

    I suppose that I may still need the mast  so I may have doubled my pain and time to get rid of the C. The rads have the potential of shriveling the breast like a raisin.

    Thanx again, You taught me something..............................Maureen

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Newks, My 6-week course of treatment is costing 3500 Euros plus whatever the doc's fee will be. But I am in Greece, where costs are likely a lot lower than in the US. 

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Ann Alive, I just paid for my CT and mapping. The CT was 300 Euros and the mapping 450. That is the total cost.

  • hawk
    hawk Member Posts: 305
    edited January 2012

    #2 of 35 done.  This is going to be a loooong 7 weeks. 

  • bgirl
    bgirl Member Posts: 538
    edited January 2012

    Thanks Helen, I agree never again. Have to have a follow-up MRI in May regarding other breast.  If they have any concerns about what is in there it will be only an excisional bioposy/lumpectomy.  Just take it out while I am out!  Trying not to anticipate the bad and just go with what comes up, less stressful

  • Kayce234
    Kayce234 Member Posts: 249
    edited January 2012

    1 of 35 done!  Well today was simulation but I'm counting it in the 35 because they all run one after the other.  Of course they were running 45minutes late and today is one of my work days - luckily my company has been amazing through all this and is giving me all the time I need!!

  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2012

    Got the clean pet scan results today woot woot!!  Now I can follow thru with next weeks mapping.  CA 27-29 came back slightly elevated but doc said not to worry as this is normal after chemo.  Taking family out to celebrate tonight

    Maggie

  • hawk
    hawk Member Posts: 305
    edited January 2012

    WooHoo Maggie!!!

  • Ossa
    Ossa Member Posts: 919
    edited January 2012
    Woot woot Maggie Laughing
  • tnhelen
    tnhelen Member Posts: 63
    edited January 2012

    Mags - Yeah for you!  I am so glad for you!

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