Calling all ladies in their 20's

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  • MissRC
    MissRC Member Posts: 14
    edited January 2012
    kk11 - My hair is filling in on the sides of my head. I told my boyfriend that I have a reverse mohawk! I am hoping to be wigless in 2 months or less. Working part time is great, but I have applied for a full time position at the same company. I had my interview on Saturday, and I should know the result soon. It's so nice to have someone to corespond with. Have a great week! Talk to you later! Laughing
  • amandabiv
    amandabiv Member Posts: 67
    edited January 2012

    Just posting that I am going in for my surgery tomorrow so please everyone say a prayer for me and my family tomorrow! Hope everyone is doing good and know my prayers are with all of you!!!

  • MissRC
    MissRC Member Posts: 14
    edited January 2012

    Amandabiv - Good Luck!

  • NannaBaby
    NannaBaby Member Posts: 510
    edited January 2012

    Good Luck! Amandabiv

    My mastectomy wasn't nearly as bad as I thought it was going to be :)  Don't worry, it will be a great feeling to know the cancer has been removed!  Praying for you.

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    Hrello girls,

    I started chemotherapy am glad coz i feel well i can lgo out n see my friends feeling so normal no side effects :) i hvnt lost my hair yet but on the verge but i bought an awesome wig i still look so beutiful n have some date plans wish ur enjoying ur days as well Live with cancer as a part of u Be polite it will as well We can beat it am sure :) my prayers to you I wish we all get well soon coz a lot of bautiful things are waiting for us girls on their 20s mwah 

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012

    Rosaa,  I am glad you are feeling well enough to go out after your chemo!  I am not sure what routine you are on, but keep your rest up regardless.  Usually the side effects kind of build up on you as you get more treatment ;)  That being said, I definately went out with friends my first week of chemo and had a couple of drinks.   Yay for finding a wig you feel great in, I hope all continues to go smoothly for you ;)

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Hi ladies - checking in.

    For those of you getting chemo, I recommend discussing with your doctor before having any alcohol. My doctor didn't want me drinking at all during my chemo (though he made an exception one time for a special event). 

    Rosaa - I agree with MMM. It's great that you feel energetic enough to be out with friends, but be sure to listen to your body as fatigue and other symptoms can be cumulative. Also, be careful to not get sick as this is cold/flu season and you definitely don't need to deal with that on top of everything else!

    Amanda - Thinking of you and hoping your surgery went well yesterday.

    MissRC - I think I might go wigless in about 2 months too! Or shall I say scarfless since I haven't been wearing my wigs at all!

    I'm going to try to post a few pictures of me with my hair regrowth so that those of you who are currently getting chemo will have an idea what to expect. Just need to figure it out

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    Hello

    Can anyone tell me what should I eat that will help me beat cancer?

    is it true that i should not eat sugary food and red meats can you tell me what exactly you used to eat Thank you  

  • NannaBaby
    NannaBaby Member Posts: 510
    edited January 2012

    Hi Rosaa - Diet is subjective... eating a balanced healthy diet is best.  I have cut out all proccesed and pre packaged foods. No more artificial preservatives.  Start small.  Sugar is bad, but moderation is key.

    Anyone done chemo experience soft tooth enamel?  I saw my dentist the other day and I have chipped teeth and enamel degeneration.  They won't polish my teeth anymore it's that bad :s

    Where r my ladies?! Please y'all just check in :) I wanna know if u r ok! 

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012

    Rosaa:  I am ER/PR pos and all my docs in KY and TX said a ballanced diet is best and the only thing I really needed to cut out is soy.  They said not to worry about the other "ER stimulating foods" just soy.  There are some theories that say if you feed your body lots of extra vitamins you are feeding the cancer too (kinda like sugar) so ballanced is best.  I do try to take in extra protein because the surgery and the chemo is so hard on the body.  I like to eat egg whites and I try to eat more beans and I substitue Greek Yogurt for sour cream and regular yogurt.  Oh and I eat cottage cheese.  That being said the dairy and meat we buy is all hormone free so we add yet more hormones to our diet ;)

  • amandabiv
    amandabiv Member Posts: 67
    edited January 2012

    I am home from surgery and man do I feel so much better being at home! I am very sore but for the most part its all ok! I have looked in the mirror which is something I shouldnt have done so soon but oh well it to shall pass!! Hoping everyone has a great day!

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012

    Congrats Amanda.  I am glad you are feeling well so far!  We are definately here for you if you need us.  Don't feel bad about the whole mirrors thing.  Its hard but it happens.  I thought I would be fine but I really like my foobie.  I am not sure you had a UMX or BMX, but it does get better.  My doc recomended waiting for 4 weeks before getting fitted... I wear my old bras and I ended up with a silicon Amoeno Contact bra.  Its amazing!  It even sticks on so I can wear lingerie if I want... the other ones you have to have pocket bras for.  I promise though, it will get better and soon you will have your pathology and your treatment plan... and it will feel amazing to be making progress.  Enjoy being pampered ;) 

     Big Hugs!

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    Hey girls

     after reading all ur posts m thinking tht i should have mastectomy rather lumpectomy my docotr is favouring a lumpectomy right now but we should first see the chemo results then decide wat better suits me i dnt mind to lose this shitty breast that wanted to kill me n replace it with a protheisis one All I neeed now is to get well n carrying on my life from where i stopped BC wont win its battle We re young and our desire for life will kill it my docotr told me that i will be ok soon just i need patience for the long treatement process I will consider this year as a break from all the matters in my life and as a test that i must pass BC learned me a lot of things I used to be someone selfish and careless I used to hate myself and to cry over lost things over an hassole that i thpught he loved me enough BC taught me that there are a lot of things more important than love and relationships and that when I fall down I still have my lovely people around my family and my real  friends :) for my xbf I used to be a pretty fashionnable girl that was a part from his luxurous and prestigeous lifestyle NOW am useless when I told him about my illness I thought that he would stand by me he just said a few words like he is so sorry to hear that and walked away Oh Life teaches a lot of things!!!! Incredible if I were at this situation I would have stopped everything and stood by him I dnt know why I want to share this with you all may be because I feel that we re a family now sharing the same thing and that you can understand how I feel more than everybody else I see hope and strength through my parents support I feel again a child they treat me so and am so happy to realize how much they do care about me I will overcome this nightmare and I will go for y cabin crew position again but with a new way of thinking and an ardent love to life and a strong faith in God :) 

  • amandabiv
    amandabiv Member Posts: 67
    edited January 2012

    Rossa I am sorry that you xbf is a piece of s&&& but I am glad to hear that you are not stressing over him and you are being strong for you! Its good that you have people that will stand by you cause believe me you will need them there and know that we will always be here for you! As far doing the mystectomy or lumpectomy dont just go with what the dr says you have to make the choice that is best for you, do research on them and then pray about it and really think about what is best for you! For me I knew the mystectomy would be best cause Im small chested and the lumpectomy would be about like a mystectomy anyway. Keep your faith in God he will always be there when noone else is and God will get you through this as long as you have faith! Praying for you hun <<hugs>> to u

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    Dear Amanda

    thank you for your encouragement I really need it :) I have some news for u girls for reconstruction I read an article that says that surgeons have foud a new way of getting us a natural and biological breast through taking the fat from our stomach or leg and reconstructing our breast it s so good and the breast will be a normal one and can even increase in weight if we add weight so we ll be the same as before i want to share this with you and please ask your surgeons about it my surgeon has already talked to me about it and I agreed :) wish you all happy days and good shape love u all my family :) 

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012

    Rossa:  I am glad you found a reconstruction method you are happy with.  Usually we refere to that as a Flap surgery, where they take skin and fat and replace it on the breast area... or ar you refering to fat transfer, where they lipo and then inject it into stretched out breast skin areas to add volume?  Either way, go with what makes you feel comfortable with the future and beautiful ;)  though from your picture I don't think you need much help in the beauty department... :)  That sucks about your ex, but its definately better to find out before kids are involved.  Its not uncommon for guys to bail, I think.  There seems to be alot of posts in the relationship forums about it and how successful women are at finding love after!  Keep us updated, you seem to be in good spirits and thats wonderful!

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    MiniMacs

    Thank you :) I really want to share some positive ideas wiith you all because we really need it to be able to beat this awful monster even though I go through  disappointments and depression like you all yest I spent the night crying thinking i will be dead soon even if my surgeon says that i will get well soon whenever I remamber the word Cancer tears come out inconsciously am trying to find a new meanings to my life and m getting closer to God through prayers when I see pity in pple eyes I get crasy even  staff at the hospital i can even imagnine that they re saying poor pretty girl this breaks my heart  I feel as if am punished or smthing I keep on imagining that m fine and m trying to prepare myself from the wordt to come with chemo yest i found some falling hair n I got crasy even my family they cannot comfort me how much I miss the precense of a guy that I love I feel lonely  but i feel so much anger when I remeber my xbf reaction this makes me stronger and eager to get back better than before n show him that my life didnt stop out of cancer and that am a survivor and a great person as wel may be this anger will be the driving key to my quick heal Yell

  • amandabiv
    amandabiv Member Posts: 67
    edited January 2012

    Sorry I havent been on much ladies since my surgery last week I just havent had the energy plus Im having some problem with all the gas build up its hurting something terrible!! I have been dealing with some depression during all this. I went to change my bandages last night and just lost it. It so hard to look at myself in the mirror and see the deformity looking back at you! I know that Im gonna beat this and will look just fine once the reconstructive surgery is done but it still hurts so bad to see what I look like now. Some days all I want to do is cry and there is noone around me that understands what it all feels like, some days I just feel alone..Rosaa dont allow the anger at your xbf to consume you remember to get better for you not just to shove it in his face though I can understand why you would want to lol. Just keep God first and you next and all will work out the way it should, you healthy and happy. My God bless all of you!

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    I know quite well that I have to focus on my health first and that my faith in God will help through all this 

  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited January 2012

    Hey girls! I've been away awhile but wanted to see how you all were. I passed my one year cancer free mark about a month ago. It feels really good and time did seem to go by fast now that I think about it. It felt slow at the time but now there are some days I don't even think about chemo or radiation...but I still think about BC. I have LE and that keeps me busy every day, taking care of it. It's such a bummer...

    My  hair started growing back about 8 weeks after chemo. It's still only about an inch long and growing in slooowww...Lighter and thinner than before. I hope it starts to thicken up soon. Also, my eyebrows are so much lighter and thinner than before. Anyone else experience this? Im holding out hope that over the next several months my hair will go back to how it was. We'll see I guess.

    Welcome to all the newbies! I hope you're all doing well. =)

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    hey Melanie

    I lost all my hair in my second chemo i still hav 6 rounds and i feel desperate did you finish your treatement ? how long it took you? did u do mastectomy? am asking all those question my case is similar to urs though m grade 2 stage2 IDC can u give me further infos thank you

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012
    Rosa:  I am going to answer part of your question for her in case she doesn't check back in.  She did TAC, which is Taxol, Adriamicin and cyclophosphamide.  Its 6 doses, once every 3 weeks for a total of 18 weeks.  It was one of the orginal regimes I was offered before I went ot MDA and they put me on T-FAC.  :)  Have you checked out the young survival coallition, I think the website is youngsurvival.org its also a BC website dedicated to young women.            
  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    I read that a young girl died out of BC after a long battle this makes me feel desperate and  I feel that i will die soon as well :((((((((((( Help!!!!!!!!!!!

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2012

    Are you talking about Eva Ekvall?  I think thats her name.  That's way hard.  But you also have to think about that there are MANY forms of breast cancer and ones that are much more aggressive than yours.  The benefit to ER positive is that it is something to control.  Generally tripple negs, or Her 2+ cancers are considered to be "worse" or harder to treat than ours.  Also IBC or ILC are also generally harder.  All you can do is get all the scans you need to make sure you know where ALL the cancers is, get the most aggressive treatment you can and then let things play out.  That as a answer really sucks.  I hate saying it that way, but in my head, my cancer could be worse so I am going to take comfort that I am not the end of the road.  And even if you were as advanced as I am or stage 4 there are women who live with stage 4 for many years.  The other option you have is the chemosensitivity test.  That tests to see which chemos your tumor will respond the best to (so what chemo will most likely put you at complete pathological response).  I know its hard.  I went to the play and stared at the actors thinking, what make me different that I have to deal with this, but you never know what hardships someone else deals with :)  Anyway, if you don't have trust or comfort with your doctor a 100% than see someone else,  that comfort makes things much easier. 

    And as much as it sucks to say, if you have dark thoughts for a while and its hard to shake those sad scary thoughts, there is NO judgement with getting an antidepressant.  I AM NOT SAYING YOU NEED ONE :) please don't get mad.  My friend, neighbor who is also a psych told me that as a guideline.  Two weeks of sad hard days and then try to get help, if you can stay confident and positive for most of the time, then you are good to go.  We all have hard days ;)  Most of the time looking at my son makes me joyful, but sometimes it makes me sad when I have a what if moment.  Big Hugs (sorry I have chemo brain so I run on.... )

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    Hello

    For me I still dont know whether its HER2 - OR + my tests havnt got ready yet my doctor told me it ll take some time tht s y am scared all I knw is the biopsy result that showd IDC stage2 grade2 with no lumpth nodes involvement and it didnt spread to my body as well good news at least and am through chemo coz my tumor size is 8cm the dctor wants to shrink it before surgery all this scares me a lot :(

  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited January 2012

    Rosaa- I had 6 treatments of chemotherapy like Minimacsmom said. I first had surgery though to remove my tumors. I had a lumpectomy and anxillary node dissection. Then chemotherapy followed by seven weeks of radiation. I'm now on hormonal therapy for 5 years. Please try not to stress too much! Write down all of your questions in a notebook and take it to your next doctor's appointment so that you can make sure you get them all answered. I think it's good that you started with chemo to shrink your tumor before getting it removed. That way they will be able to tell if it is working.

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Sorry I've been MIA ladies!

    Rosaa - I agree with Nanna that it's best to cut out added sugar whenever possible, eat a good amount of fruits and vegetables (sugars from those don't count in my book since it's not added!), whole grains and other fiber rich foods, and eat moderate amounts of meat and try to avoid processed foods. And I agree with MMM too about limiting soy (I haven't cut it out completely, but I do try to avoid it) and eating hormone free foods (I buy as much as possible organic as well). 

    As for the relationships thing, I think BC can really put them to the test. You find out who isn't worth spending your time with and who is. I had a strong relationship with my husband before the cancer, but we have since gotten even closer. I am really thankful because I know not everyone is that lucky. I have also had friends step up and others disappoint, so it is really a learning experience. 

    And I also wanted to say that it's okay to feel down at times during this process. It's especially hard when others our age don't make it. At stage 2 though, the odds are definitely in your favor, so try to remember that. You also have an opportunity to change things in your life for the better (be it diet, exercise, relationships, work, etc). I'm learning to let the little things go and to try to make the most of my life. It's not easy as I see others around me having babies and all I have is a baby in heaven (miscarried in 2010) and a multi-year wait while I take Tamoxifen, but I am trying to keep myself busy doing other things I enjoy.

    Nanna - I chipped a tooth during chemo just while eating bread (and it was soft - dipped in soup)! Interesting that you also have chipped teeth. 

    Amanda - How are you feeling a few weeks post surgery? Did you get your drains out? I agree that we shouldn't let doctors make the surgical decision for us as long as both options are on the table. As for the deformity, I had a different experience when I looked in the mirror for the first time. I thought it would look worse, but they did put in a tissue expander at the same time as my mastectomy and filled it a little bit so I had something there when I woke up. Is that what you have? If you're getting reconstruction, think of it all as a work in progress. Just know it will look better and better over time. Other than my new boob flattening out (like my real one does) when I lie down (it just sticks up hehe), you really can't tell under clothes that I've had a mastectomy. Hang in there!

    Melanie Ann - I've had a different experience with the hair growing back post chemo. It's been nearly 4 months since my last chemo and I have about an inch as well. It started coming in about 6 weeks post chemo. So far it's similar to the hair I had before...we'll see if it stays that way. I guess everyone is different, but I would have expected more than an inch after 11 months. Have you trimmed it at all? I have been eating a lot of fruits and vegetables and I know that eggs are also excellent for hair growth. As for the eyebrows, they thinned out for me after chemo, but then they came back really quickly as well. 

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Almost forgot to mention that I think my period has come back today (217 days since my last one, 113 since my last day of chemo)! It's VERY light, so not sure what to make of it, but I am taking it as a good sign. I guess I'm no longer in chemopause! Just wanted to share with those of you that are wondering about that. My fertility specialist told me that most in our age group will get it back within 6 months of finishing chemo (I'm almost at 4) and almost everyone else will get it back within 12 months of finishing chemo.

    For those of you on Tamoxifen, I also wanted to mention that copper IUDs are a great option for birth control and you can keep it for up to 10 years and you can get pregnant pretty much right after you have it removed, so it's a good option since the pill isn't possible for us. I'm happy to share more if anyone here is interested. I decided to have mine inserted in December because I didn't want to worry about possibly getting pregnant while on Tamoxifen. 

  • Moonflower83
    Moonflower83 Member Posts: 92
    edited January 2012

    Melanie_Ann: I just finished the same chemotherapy as yours an will start 7 weeks of radiation on feb, 6. My onc told me, that my hair should grow after 6-7 so I´m still waiting. My last chemo session is now 10 days ago (but I still have brows and lashes, not as many as before, but enough). Can you please tell me when they put you an Tamoxifen? They want me to start in 2-3 week from now and I´m a little bit scared.

    Rosaa: I think we all know this moments of panic during chemotherapy and how much negative news can influence our thoughts. But please remember: you are rosaa an no one else. you had no positive nodes and you cancer has grade 2, so you really have a good chances to stay healthy after all the treatment you get! Bad moments are normal along the way..I had a lot of them and I can understand that it makes you sad that your boyfriend left. But now you know who deserves you and who does not. And its better to know about this now than to spend years with a man, who runs away, because he is scared and not strong enough.

    kk11: Congrats :-) But you are still on tamoxifen? I always thouhgt, that the period does not come back when I have to take tam....I also get zoladex for 2 years. I hope I can still have children after this. It´s so sad...a friend of mine is pregnant and I got cancer. Of course I´m happy for her, but it is not easy to handle.

  • sj29
    sj29 Member Posts: 68
    edited January 2012
    I just got diagnosed with breast cancer at age 26 two weeks ago today. I have IDC grade II tumor about 6 mm. Based on the MRI it doesn't appear there is lymph node involvement, but obviously won't know until surgery. I am at a HUGE stand still because I can not pick what surgical option is the best for me. I was told I am a candidate for either a lumpectomy with radiation and a mastectomy. I have gotten second opinions on every doctor (2 surgeons, 2 plastics, and 2 radiation oncologists). The first radiation oncologist said he is recommending NOT to do radiation because it is too risky at my age for the long term effects. Long term effects are not studied in my age group so he is unsure if this is my best option. Long term effects are low, but serious. Since they are not studied AT ALL in my age group, it makes me that much more fearful. The second radiation oncologist said it would be fine, that the long term risks are low, and to go ahead with radiation. The flip side is putting myself through a major surgery with reconstruction which is not easy either? So do I risk short term pain and risk with surgery along with body image OR risk more serious long term effects. The only thing that really gets me that if there is lymph node involvement greater than 2, that they would have to do radiation either way. I am so scared because I don't want to make the wrong decision. Without having any for sure long term side effects on radiation at my age, I am hesitant to go along with it even though it would make the surgical process easier. I don't know if this is common to have such an indecisivenss, but my age plays into a lot. Does anyone have ANY suggestions/comments/thoughts????

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