MIDDLE-AGED WOMEN 40-60ish

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  • Paula66
    Paula66 Member Posts: 1,728
    edited January 2012

    Chilvur I thought the same for a awhile about mine too.  I did notice that once I got a good bra and wore it, they have changed.  I agree with the others as well on the $$$.  They should enclude any revision in the cost, grrrrr.  I know that they are never gonna look the same again, but come on.  I just dont think they get it sometimes.  

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2012

    chili, though I didn't get recon, I've been here long enough to read (and learn) that they have to do what is termed "drop and fluff". I'm surprised they didn't tell you that!!! Read up on drop and fluff to see if you have to massage or whatever....good luck!

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  • WaveWhisperer
    WaveWhisperer Member Posts: 898
    edited January 2012

    MP: a chemo bag?

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited January 2012

    Binney...I have a call onto my MO's nurse.  The nurse I talked to asked me if my arm was swollen.  No!  I told her I had done some homework on Truncal Lymphedema and arm swelling is not involved.  I hope Esther, the nurse, knows what it is.  She is very good and I trust her.  I am just tired of the swelling and the pain. 

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012
    Is truncal lymphadema the best kept secret from clinicians?  Good job, janis!
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  • Denise2730
    Denise2730 Member Posts: 648
    edited January 2012

    Sent a picture of the foobs to Whippetmom. I am not crazy. She confirmed what I thought. The PS didn't give me big enough implants for my skin flaps. Now I'm going to go to a PS with experience in reconstruction.  Just when I thought I was done with being cut open. Perhaps they should use a zipper or velcro closure.

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited January 2012

    chiluvr1228....I am so sorry you have to go through this.  What a mess!  Sometimes it fells as if we will never really be "done" with BC.  I hope it goes well for you.

    Eli, I got an appointment this afternoon with the nurse practicioner.  Esther and I talked and she said it sounds like lymphedema.  I did explain there was no arm swelling and I believe it is Truncal LE.  She did want to see and check me before sending me to a qualified LE therapist.  I'll let you know what she thinks this afternoon.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012

    MARTIN LUTHER KING was a truly remarkable man.  He HAD A DREAM of equality, justice, brotherhood and love for all mankind----while most of us were busy having the usual forgot to put on underwear for school and not passing the exam dream.

                                              

    [p.s.  Typical non-sequitur post for attention.  Sorry.  Enjoying MLK Day in my own way.]

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  • Reality
    Reality Member Posts: 782
    edited January 2012

    OMG - please feel free to read my recent posts on "Here's what cheezed me off today" thread - it is a prime example of how some med profs think they can control us!!

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012
    chiluvr,  LOL velcro!  You could probably get titanium snaps or clasps.  They do love their titanium.
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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2012

    chiluvr, shouldn't the doc that made the boo-boo fix it? With OUT copays??? Aren't any of these docs accountable???\

    Janis, my truncal LE is about the size of the cup in palm of my hand. It is around where my drains came out my back. Trucal LE doesn't mean your whole torso will be swollen, it could just be a small area like mine. Everytime my DH rubbed in lotion, I would complain and say OW! everytime he hit that spot. I insisted there MUST be something there, but he couldn't see anything. As soon as my onc saw my back she nailed it. It felt like a sharp blade was slicing over the area when he touched it. Or, if I leaned back in a hard chair I could feel it. Weird, to say the least.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2012

    e, I like the picture at the top, but when I fly, I hope I look more graceful than that!!!

    Where the HECK did you dig up that naked navy woman!!!!!! Like what do you Google to get THAT? And why is no one noticing her????

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012

    barbe,  That would be the keywords, "Asian school kid without underpants."  Kidding.  My theme today was DREAMS, since MLK had one. And good for you that you knew the top pic was flying, and not plummeting to the ground without a parachute, as ungainly as it looks.

    The universal dreams are FLYING, FALLING, PUBLIC EMBARassMENT, FREE MONEY, and HANGING OUT with Bob Dylan collecting stray golf balls from a woodsy out-of-bounds area on a golf course and then him giving you a ride (in his vintage 40's sedan) to your friend's art gallery with "You Gotta Serve Somebody" playing on the car radio.

    That last one may not be universal.  I'm not sure. 

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited January 2012

    Let's not forget being stranded at a girl scout camp with only Bobby Sherman and a hooka!

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012

    Eph,  LOL!  You are correct!  I think that one IS universal, but with variations.  You know, like stranded at Girl Scout camp with only Tommy Roe ("Oh, Sweet Pea, come on & dance with me...") and some Strawberry Hill, a few years before; and stranded at Girl Scout camp with only Shaun Cassidy and a bong a few years later.

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited January 2012

    Eli, Eph, thanks for making me laugh!

    Off to the MO to find out if I have LE.  LOL!!!!

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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited January 2012

    Good luck janis!

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited January 2012

    I got mixed results from the doctor and not sure what to think.  I saw the nurse practicioner...Esther.  She is very good and thorough and I trust her.  Although I have no fever, my breast is very red and of course swollen.  She thinks I have cellulitis so put me on antibiotics.  She still thinks I may have LE though as the swelling is over a fairly large area.  So I go back next week to see her again.  If I am still swollen then off to the LE specialist. 

    I am hoping the antibiotics clear the whole thing up and I don't have LE......I just have about run out of patience with this!  I realize it is not that serious but sure is annoying.

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  • marlegal
    marlegal Member Posts: 2,264
    edited January 2012

    good night for laughs, thanks Eli and Joni and Barbe :)  not many guesses on the mystery pic, or people just avoiding the computer today?

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Janis - Keeping fingers crossed that the antibiotics work and there is no LE. I hear that is no fun.  You have had to endure enought already.

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited January 2012

    so, I'm sorry I was late with the picture.  No one came close but Elimar gets props for funniest answer; I take that back, who guessed chemo bag?  Does ketchup packets count since "chemo" & ketchup sound the same? My ex swore ketchup was a food group.  I am willing to try again this coming weekend now that I pretend to think I know what I'm doing

     

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012
    Yes, take a second turn next Saturday, Eph!  We were pretty clueless about those serrated edges.
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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited January 2012

    Good pic Eph. You definitely stumped me.

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  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Justme, I am glad you got someone to look at it and also hope the antibiotics clear up the situation.

    LE is exactly that, annoying. It ain't gonna kill you, but it is a serious PITA.

    Another thing that the docs didn't seem all that aware of is that both chemo and rads cause inflammation. That part they had down but the inflammation can cause/worsen any lymphedema problems. After my last chemo, I tool anti-inflammatories (voltaren) for ten days, because of vein inflammation, but it also cleared up virtually all the swelling (which was minor). Then I started rads and am back to managing swelling every day. 

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited January 2012

    Good one Eph! I couldn't even come up with a guess.



    Janis, sorry you're having so much troubles. Binney is an absolute expert on LE, so I would ask her in addition to your medical people. I have it, but in my hand and arm, so I don't know anything about truncal LE.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Morning Ladies, Today is my last chemo-well that is what I last heard. I am still waiting for soemthing to change after the last MRI..we will see today when I meet with my onco

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  • WaveWhisperer
    WaveWhisperer Member Posts: 898
    edited January 2012

    Good MP, eph! I guessed the chemo bag but don't consider that a winner by any shot. Give us another one!

    Lory, congrats on the last chemo. You must be on an accelerated schedule, or is this prior to surgery?

    Janis, hope things clear up soon, dear! 

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    Janis hope things clear up soon

    Lori so glad you are finishing chemo

    I can't believe it I just have a slight pain this morning in my neck. woohoo.  I have been in pain since Dec 2010 when I started rads.  First breast pain then neck pain.  This is the first time I feel pain free (even though it is slight I know it is going to be gone.) WooHoo for me.  I have not felt this good since before my surgery Sept 2010. 

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2012

    Sherry, that is WONDERFUL to hear!!! What did you do different??

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  • Reality
    Reality Member Posts: 782
    edited January 2012

    Congrats, Lory! Best Wishes. (I am also triple neg).

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