How to Choose Prosthesis
I am looking for advice on how to choose prostheses. I have been waiting patiently since bmx and I think I may have surgeon's approval and script soon. I would love to hear from you ladies about the things that worked and didn't work. I hear that they can be heavy? Anything else that I need to know? Thank you!
Comments
-
I would say to choose a good fitter. The patient navigator from the ACS recommended the place I went to and I am very happy with my prosthesis. I am a D cup and I have to say it does feel heavy in your hand, but I forget that it's on all day. I have never had such a well fitting bra. I did choose one that is meant to be a bit cooler. I think that was the right choice for me. If you have any specific questions that I can answer, I would be happy to do so.
-
Thank you Marilyn. I kept hearing people complain about back pain after getting them or being to warm, so I thought I would just throw the question out there before shopping. Thanks again.
-
I had a uni-mx and my other breast is large (D). I am also very hot natured. I always say I could be hot in a snowstorm!
I have an Amoena Light prosthesis and it is very comfortable. I put it on in the morning when I get dressed and never give it a moment's thought all day long. It came with one cloth cover but I went online and bought several extras so I could always have a clean one each day. They were pretty cheap.
I also bought many bras and returned many bras before I finally found one that gave enough support and was comfortable to me. The one I finallly found that I really do like is called an Amoena Ava bra.
-
Thank you Faith. That is helpful to have some names to check and see if I like those as well. I do like my Amoena camisoles.
-
I like my Amoena bras and prostheses...I have been using them for over ten years..
you need to get fitted properly..
-
Good to hear!!
-
I had a BMX 4 months ago, and I wear either the soft pillow foobs I got for right after surgery or microbead ones I just ordered from TLC. I do not plan on getting silicone "proper" ones. From what I read, it seems that they are heavy, expensive and uncomfortable.
-
Hi J-Bug,
There's also some helpful info on Prostheses on the main Breastcancer.org site, including types of prostheses, resources to find prostheses, and insurance issues to watch out for.
Hope this helps!
--The Mods
-
Momine,
Although silicone can feel heavy (particularly if you wear a large size breast form or don't use a lightweight silicone) and can be uncomfortable (some women find them hot), many women love their silicone breast forms. Yes, they are expensive, but if you have insurance, you will almost-certainly be entitled to new breast forms at least every two years. There's federal legislation that requires coverage for this. Equally important as the breast forms themselves is the bra you wear them with (also usually covered by insurance). Some mastectomy bras are like iron maidens, but others are comfortable and attractive. A good fitter could help you with this.
Even though I often wear my non-silicone forms, I love the lifelike feel of silicone, which is soft and huggable. When I wear silicone, I look and (sometimes) feel as if I have my own breasts back. I'm writing this not only for you but for other women who might be reading this thread. I think at the very least, it's worth going to a good fitter and trying on some silicone breast forms. For those who have had a BMX, you can be any size you wish, so smaller forms will be even lighter in weight.
Barbara
-
Do check out Barbara's http://breastfree.org for excellent info. Since buying Genie bras a month or so ago, I've been happily wearing my 5 year old silicone forms (size 5) for the first time in years.
Dawn
-
I have been looking at TLC for a pocket camisole, just wondering if the #8067 is comfortable. Has anyone tried this one?
-
I have a cami from tlc, it has lace on it, and I ordered it a sixe larger than I needed so it wouldn't be tight, and you really don't need too much to hold the microbead foobs in place.
I just can't take anything tight.
Here is a question, does anyone know what it feels like to hug us with the microbead or silicon foobs in place? I live in a world where there are lots of friendly hugs and I always wonder if the other person is cringing to hug me?
My husband doesn't wish to say, he doesn't want me to be overlyn worried about such a thing.
-
I'm glad I read this. I'm going tomorrow with a friend to get my new set of 'girls'.
We're making a day of it, going to the fitter she used when she had her mastectomy, and then on to lunch. I'm really excited to maybe be able to find something to 'fill the void'.
My only concern is how they might feel against my scars. I still have lingering pain there (BMX was only 7 weeks ago) and certainly don't want to aggravate it and/or cause more pain. I don't plan on getting really heavy ones, nowhere near the size I was before surgery. I'll be happy with something in the neighborhood of a large B/small C. (I was a DDD) Hopefully we'll be able to find something that is a lightweight silicone. I'll just have to pray it doesn't cause more pain than I already have.
Crystal, I'm not sure what it feels like to them, but I'm certain they aren't thinking about that when they're giving a hug. If the person doing the hugging truly cares about you, that won't even be on their mind.
-
Crystal, purely from a "huggability" standpoint, everything I have heard or read, as well as my own experience is that silicone including light silicone is the best for feeling the most natural.
Barbara
-
Erica, I am sure you are right, and I didn't mean to "put down" silicone forms. It is just that where I am (Greece) you are shipped straight to amoena, and they only have silicone forms (here at least). So it was only by perusing sites in the US that I discovered that there are other options. I already have a 600-dollar wig sitting idle, so I would hate to have a 600-dollar set of boobs sitting in a drawer on top of that. My insurance does not pay for either.
-
Hi Momine,
Not having insurance definitely changes the perspective. I would be just like you in not wanting to invest in silicone forms only to find that I didn't like them. I'm glad the Internet is available to give you access to lightweight, less-expensive options. It's great that the microbead forms are working for you.
Barbara
-
Barbara: Seeing if you have any words of wisdom on fitting. I have a little more tissue over my ribs on one side than on the other. It makes one side have a tiny bit more projection than the other. One of those, you really have to look close to notice it and who looks that close anyway, things. Is there some simple little fix out there already? Being the queen of improvising, I could come up with something if I want to be that OCD about it but even then no sense in recreating the wheel.
Barbara
-
In keeping with the topic : How to choose prosthesis, well, I was feeling sad about this because of the expense, and to my amazment, a woman walked into our cancer wellness center with a matching pair of amonea silicon size 4's. Perfect!!! I was a size 7 before this, but I think these new 4's are wonderful.
I haven't worn them yet though...but it stuck me funny that I chose my based on what came in the door...free.
I did order TLC's microbeads, but I ordered size 3, and they were too small, so now I ordered a 5. I think you can't beat the comfort of those microbead foobs. But then I do not worry about being too perfect.
-
Starak,
I have the same situation, and the side with less on the side is also more indented on the chest. When I got my silicone forms over 5 years ago, the fitter suggested a form for the left that has a special little pocket on the back with what looks like a cream or lotion that helps it fit into the spaces and keeps the projection much more equal. I have wondered about having a form like that in a different shape, one of those with the slight extension over the side, but like you, I'm not that worried about perfection. And that area on my left side is where the surgeon did a very lousy job and I still have occasional discomfort, so I don't want to put anything else over it. I still remember that when I wore horizontal stripes before my BMX, the nipples were never on the same stripe. I don't think anybody is perfectly symmetrical!
Dawn
-
Hi Dawn: Thank you for your input.
When I was considering revision to remove The Mutant dog ears, I tried on a pair of asymmetrical forms which have the little bit of extension on the side. I liked the asym shape then and have liked them every time I have tried them on. With that in mind I just bought a set of weighted foam forms in the asymmetrical shape from TLC Direct. I do think the asyms are the best shape for me but with being under the gun back when I had to meet the year end deadline, I went with a standard triangle, an ABC 1042, lightweight silicone, in size 4. (Yes Crystal, same size as you.) I really do have a nice smooth flat chest. I can easily feel the difference in the amount of tissue above the ribs but visually it is really difficult to see. I am kind of thinking the simple and cheap answer would be to just slip a very thin pad in the pocket behind the form.
Barbara
-
Crystal, I ordered the microbeads in size 5, and although they fit in my bra (as promised by the chart), they seem too big to me. My bras are size 36B. Do you think the 3s would fit in that bra? I am debating whether to order 3s or 4s, you see. Because I am in Europe, it is a bit of a pain. I order the things to a US address, then has the lady in my US office forward them by mail. It means I can't really return things.
-
http://www.breastform.com/sizes.html
I finally found a decent comparison chart last night. This helped me understand why my fitter had to go up a size in prosthesis even though I wanted around an A-B cup. Hope that helps someone!
-
Thanks. According to that, I got the right size. I guess I should get some smaller bras if I want smaller foobs.
-
Do you think that will work with other body parts? If you want to be a size 10 but are a 16, if you buy the 10 will you be smaller?? Don't I wish!
-
Momine: I have 36B bras (just got my new prosthesis after a lb mastectomy, rb reduction) and Amoena size 4s fit perfectly. The bras are really comfortable too. I was really happy that I could get bras that look "typical." Don't think anyone would guess I have a prosthesis.
-
Granuaile, thanks so much. That is good to know. I will get some 4s next time. The 5s fit, but really stuff the bra to the max.
-
Thanks ladies! I did get my prostheses about a week ago. Since I am doing radiation, I haven't worn them yet. I am hoping to start working soon. Does anyone have any problem trying to wear a bra with prostheses during radiation? If I am starting a new job, I don't want to startle anyone with not having breasts. I feel very comfortable with it, but not sure the rest of the world would.
-
J-bug, I am doing rads now, and I get swelling around the armpit, making a bra a bad idea. I took a tight tank-top and tacked in the light forms I got to wear after surgery. It works a charm. I have 3 tanks like that, and I think I will sew proper pockets in them and have them to wear not just for rads, but also in summer under light shirts.
-
Yeah, I have the camisoles with padding too. I just don't like the padding no matter how I shape it or take some out. I should ask this question in our rads group too. Surely some of the women with breasts are wearing a bra. It doesn't sound comfortable, but I would like to make starting a new job to be about the work I can do, not the cancer.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team