Help me be a more supportive husband

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lakerrick
lakerrick Member Posts: 17

My wife is on day 10 of her second of 4 AC chemo treatments. I,  like a lot of men that I have read about am having a tough time, not as tough as my wife , but tough none the less. I want to fix it, and can't ,want to take her pain away and can't, want to make this all a bad dream and wake up and can't. We have four children age 17 to 7. I try to say the right thing, do whatever she wants of me and it just dosen't seem to be enough for her. Her sisters have come to help from other states and when they are here if I say the same thing a sister says, I am wrong or ignored, and the sister is right. I am not on here to complain I am on here for advice, how can I support my wife more and say the right things all the time? What is it that she needs from me that I am not giving. I love her more then life itself and would gladly change places with her in a heart beat!!!

Comments

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    Sorry to hear about your wife's diagnosis. You sound like a very loving spouse. During a quiet moment, why not say to her what you have just told us? I am sure she probably has no idea how much you are hurting now. Tell her. She needs to hear how much you are hurting and how much you love her. Good luck and hang in there. The first few months following diagnosis and active treatment are an emotional roller coaster. It will get better.

  • lakerrick
    lakerrick Member Posts: 17
    edited January 2012

    Thanks "vo", I have many times. She knows, her older sister just left yesterday and I have been  doing my best to do what she did when here and I think she appreciates it more, not that I am looking for any pats on the back.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2012

    Another thought. Perhaps all you need to do is sit a little closer to her and say nothing. Perhaps sit quietly next to her and read a book. Mention if there's anything she needs, you are there for her. I just think that the first few months wreak havoc on us emotionally. Both of you are going to have to seek out a new normal. Good luck.

  • scuttlers
    scuttlers Member Posts: 1,658
    edited January 2012

    The hardest is to really understand that you can not fix this. It frustrated my DH beyond imagination. There is a song on You tube by Martina McBride, "I'm Gonna Love You Though It". (at a quiet moment, when she feels like talking, you could possibly sit and hold her and play her the song) My DH told me this everyday, several times a day. Let her rant, cry, sleep, let her be sad - and let her know that you are there to stick through it all. It is REALLY difficult to be the one who is watching their loved one. My DH told me early on that "WE" had cancer - together, we would face it.



    It is hard to do, because you are also hurting - bad, real bad! Do not make it about you, when you are with her and her sisters. Right now it is about her. You do need to find your own support, check at the cancer center for a group and of course right here on BCO is a good place for this. The best you can give her is an understanding that she is safe with you. You are there to stay, you are gonna love her through these tough and very scary times.

  • lifechanging2011
    lifechanging2011 Member Posts: 48
    edited January 2012

    Just keep loving her no matter what. When she gets her life back, she'll be able to recognize that you did. Right now she's in a fight for her life and it's overwhelming. Hang in there.

  • lakerrick
    lakerrick Member Posts: 17
    edited January 2012

    thanks all, helps a lot. great advice.

  • Makratz
    Makratz Member Posts: 12,678
    edited January 2012

    Just be there.  It's OK if she gets irritated with you, it may be her way of dealing with this. You are an awesome husband! 

  • bcisnofun
    bcisnofun Member Posts: 488
    edited January 2012

    you sound like a great husband.  You're the closest person in the world to her so she's more likely to be completely honest with you, and she is going through one of the very hardest parts of this journey.  She has recently lost her hair, feels like crap,  the end seems like a long time away, etc.  My husband is a wonderful support, but the worst time for us was when he was trying to get me to be positive when I was feeling terrified, sad, etc.   I finally had to tell him that I was going to throw him out if he told me one more time to stay positive :).   So we learned....he just went with me through my feelings.  felt positive with me when I felt positive, felt sad with me when I felt sad.  Unfortunately you can't fix this.  Just validate/support her however she is feeling.  You'll come out the other side.  Chemo is temporary, keep moving forward. 

  • CLC
    CLC Member Posts: 1,531
    edited January 2012

    The only thing my husband really could do for me is sit and hold me when I cried.  I didn't want him to get up and get tissues.  I just wanted him to listen and hold me.  When he went to get the tissues (read "try to fix things"), I felt abandoned.  I just wanted to be held.  Then, of course, when the crying was done, I needed him to do, well, just about everything...the dishes, the laundry, the kids baths, the shopping, rearrange my pillows, make breakfast, lunch and dinner, etc., etc., etc., ...

    It can't have been easy for him.  Now, that was during the surgery recovery, but I imagine chemo is just about the same in those respects...

    I think all of the advice above is really good advice...particularly seeking out support of your own...like you are doing here, and you can do through support groups...

    Hang in there...loving your wife is the most important thing you can do...and you are clearly doing that...:)

  • bcisnofun
    bcisnofun Member Posts: 488
    edited January 2012

    lakerrick - I'm in Westerville Ohio too.  I private message'd you.  let me know if I can do anything to help your wife.

  • lakerrick
    lakerrick Member Posts: 17
    edited January 2012

    Sometimes I have a tendency to get too quiet, when she has a bad day, or talks about the cancer coming back, or the 15% chance of dying in 10 years. I  think of losing my wife, my lover , my best friend, and I just do not know what to say to her? She dosen't liked to be held when she is emotionally upset, I sit with her all the time. We are inseparable.

  • brazos58
    brazos58 Member Posts: 261
    edited January 2012

    Lakerrick

    Sending you everything it takes to survive this most intimate cancer... it affects you both together.

    Try not to run away. Be present mentally/ emotionally/ physically/ spiritually. Take it one breathe at a time... and Pray. Pray alot to be the Man she needs you to be, to be a Good Father and for the Strength you need to heal yourself.....so you can help her heal and your kids.

    Take care of You. Don't hide. Feel everything. Cry with her. Go thru it together.

    Blessings to all of you.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited January 2012

    Have you considered a support group?  That would really help you I think.  It's really not you ... and if you can wait, she'll see that.  You also might consider seeking counseling by a psyciatrist that specializes in Oncology.  This sh!t is brutal ... it's a game changer for sure.  So hang on tight, keep your wits about you, and take care of yourself - if you don't take care of you, you won't be able to take care of your wife.

  • jancie
    jancie Member Posts: 2,631
    edited January 2012

    I am going to agree and support what bcisnofun said - your wife needs validation.  She needs to know that when she is angry it is ok, when she is sad it is ok.  Whatever her feelings are - she needs validation that what she is feeling is normal.

    I got really angry with my dh at the beginning of my chemo treatments.  He kept telling me that everything was ok, I was going to get through it, etc.  It appeared as though what I was going through was no big deal to him.  I was so scared!  I thought he didn't care enough or truly understand my fears of a recurrence, etc. and wasn't taking my cancer seriously enough.

    I had to sit down and talk to him and what I found out was that he was so scared but felt that he needed to come across as strong for ME.  He was also scared and when he told me that then I knew he took my cancer dx as being something to be concerned with.  It was odd but I felt so much better when he finally admitted that he was scared as chit.

    The day I got the dreaded phone call - what I didn't know at the time was that he was up until 3 am chatting with other women on the internet asking what he needed to do to help me cope with this.  That was one of the most loving things he did for me - he was so concerned that he reached out to others for advice and that is not his personality at all - he is extremely private.

    As others mentioned - counseling is always a good thing both for you and for your wife.  Also coming here to BCO will be helpful for you to understand the emotions that we go through.

  • lakerrick
    lakerrick Member Posts: 17
    edited January 2012

    thank you jancie, that is exactly the stuff I want to hear, I have told her how scared I am. I too am private, I tend to hold stuff in, tonight is my first time in here and it has been wonderful, already met a woman that lives in our same city and has the same exact drs as my wife, this has made me feel so much better !!!

  • dogeyed
    dogeyed Member Posts: 884
    edited January 2012

    Oh, women, when they get sick, they cry and whail and talk about misery as though they were relations.  That's me.  And she was only agreeing with her sisters becuz she was showing appreciation for their visit.  Don't take anything of this personal.  Pretty soon, and I was just at the time your wife is, in the midst of the second chemo, that I was ready to quit the program!  Yup, up and met with the doc and his nurse and another lady at the cancer clinic, and they decided I needed better pain control.  I had never even thought of that.  It made all the difference.  See, the treatments are PAINFUL.  If she is complaining of pain, you could suggest she tell the doc, maybe he'll give her some pain pills.

    If you think of your wife as this little hurt puppy, it will be much easier for you to do exactly the right things, like bringing her an extra blanket or some milk.  Just you being nearby is important.  And if you try to move the puppy and she cries out, then you just stroke his head until he falls back asleep.  Don't BOTHER the pup, only gently console, sit near her as she looks at you with those big sweet eyes.  Do for your wife what you would do for a pup with an injured paw, put it up on a little pillow.  Don't tell the pup about the NFL... talk to a pup about puppy stuff, softly and in her language.   

    I did NOT know my husband was in any pain or under any stress, he's quiet like you, until one day I said something about being afraid I might die, and he carefully and quickly wiped away a tear so I wouldn't see, but I SAW.  I never really understood where he was at until then.  It's like women can't be told anything; they have to SEE it.  So, bring her some flowers, YOU put them in a vase with water, trim them off so they won't fall over, put them where she can see them, with a papertowel underneath so it won't drip.  Buy her a little gift now and then, an inexpensive but sparkly bracelet, some cheap perfume, sandlewood soaps!  My brother sent me inexpensive gifts, it was the thought that meant a lot.  I STILL keep a bar of that soap near where I lay around and it's been almost a year ago. 

    Let her lay and wallow and cry all she wants, she is NOT to worry about the stoopid house.  You do the stuff she used to do, not ALL of it, some of it will have to wait, but there's SO much to do with the kids, keeping the kitchen and meals straight, going to the grocery store (fun, fun, fun), and of course listening.  We watched more matinee and evening TV movies together than we had in a long, long time, been together 30 years and we sort of "live" a lot of our lives in other places, so it was mighty fine to reconnect that way.

    I still remember the littlest thing, I wasn't hungry, altho he would fix a big pot of noodles mixed with goodies that would last a couple days, so I could scoop up a bowl from the frig and heat it up in the microwave.  Anyway, husband said one day as he was getting his TV dinner out of the oven (poor guy, I was useless), so he goes, "Would you like a french fry?"  I sat there for a second, and by golly I wanted that french fry worse that anything!  So, he put a few on a plate, brought it to me and my fav stuff to put on them, and I just thought that was the sweetest thing, becuz they don't put many of those fries in those dinners, the sacrifice of such a little thing meant so much.  Tell your wife if she would please ask for a drink from the kitchen or whatever, whenever she needs anything, you will be glad to do it.  I loved being served. 

    Also, you know what, husband went thru cancer 20 years ago, and I was unbelievably busy taking care of not only the usual work and house routine, but also coming and going to see him at the VA hospital, and on it went, for weeks, I was absolutely exhausted.  But he knew nothing of this, nor did I want him to know, really.  I can remember my feelings being briefly hurt a time or two when he would yell at me, under the power of drugs, but I overlooked it quickly, forgot all about it.  All this will be a distant memory one day.  I barely remember my chemo days, other than I fear it. 

    She may not want to be held because she is in pain.  So, me, I used to ask for a hand-hug.  Smile.  Sometimes I'd ask him to rub my shoulders for me, and no sooner would he start, then I'd be all fuming and awful.  I was a basket case.  Most women like to have their hair brushed, so he'd try to do that and pull a few hairs, and I'd burst into tears.  Nothing would console me.  Sometimes I DID want to be alone, other times I appreciated so much him sitting with me, which you say you do, and I think that's great.  Often I would not shower until I knew husband was up, I was afraid I would fall.  So, she might like you to draw her a bubble bath with a few candles, I don't know, you'll have to ask. 

    One thing that occurs to me, with four kids around, could be you can arrange for the sisters to take those kids over for a weekend with their aunties now and then, just so your wife can have peace and quiet.  And let those youngsters know their mom is sick right now, so  they should try not to make too much noise for a while.  Feel free to ask the kids to help YOU with cleaning up the kitchen.  If your wife doesn't want to get up to the table and eat, one of them should bring her a small plate of food, sit with her to eat.  It doesn't all have to be about you helping, they have to jump in also.

  • Margi1959
    Margi1959 Member Posts: 178
    edited January 2012

    Lakerick, I haven't taken the time to read through all the replies so this may have been suggested before.  I do have a couple of nonsensical things to add.  Have you heard the joke "If a man talks in the forest and there is no one there to hear him, is he still wrong"?  I know that when I'm pmsing or menopausing or just being hormonal, the only thing that helps me is to talk to other women - because I know they know....it's as simple as that.  Your wife may be relating more to her sisters than you because she knows they know what it feels like to be a woman living with something every woman fears.  I know men can get breast cancer too and I'm not trying to make this chauvinistic at all, please understand that. 

    Also, my husband is going through cancer and treatments now and sometimes he does lash out at me too, when he doesn't to other people.  That's just because I'm in the "inner inner circle" and the closest one to him and he knows he can let his hair down with me and knows that I won't take it personally.  I was my mother's caregiver for most of last year and there were days when she showed me that side of her as well, because I was the one there when she needed to vent.  Sometimes, as a caregiver, you have to have wide waterproof (and bulletproof) shoulders.  It's just how we roll. Wink  The fact that you're here asking and worrying about this shows that you're already a superstar caregiver.  Keep up the good work and feel free to come here and vent anytime.  Don't lose yourself in this - it's real easy to do but, remember, you're of no worth to your honey if you crash.  

    Hugs to you, sending you strength to walk the road ahead.  Always here if you need a shoulder.

    Margi

  • lakerrick
    lakerrick Member Posts: 17
    edited January 2012

    Thanks Margi, great advice !

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited January 2012

    lakerrick -

    God bless you for being such a caring husband. You've already gotten some awesome advice so I'll try to be brief.

    When I was diagnosed, my husband and I talked forever, about what it meant to me, to him, to our marriage. He was never a big talker, but life, certain other crises, and his health issues changed all that last year. He was trying SO hard to be sensitive for me!!!

    I told him that I knew it would be difficult for him to watch me go through this, and sadly, I could not be HIS comforter. I did reassure him that I loved him, would do everything I could to be healthy, and thanked him in advance for what I would need from him.

    And oh, did I need things! I had no sisters to come help me, so he did it all. He never pressured me, and never resented the things he had to do. He didn't force his help on me, but said "Let me know if you need me." When I had uncontrollable pain, he brought me my meds around the clock, and just sat next to the bed and patted my leg while I cried. Many mornings I would wake up to a sweet card on the table for me.

    Because we have a strong faith, I encouraged him to share his concerns with the men who are in the groups he belongs to. While not everyone has a wife going through cancer treatment, almost every man has been in a situation where it is impossible to FIX the problems of the ones they love. Anger, hurt, frustration, helplessness....you need to get it out.

    Remember, on the airplane, they tell you to put your own oxygen mask on first, so you can help others.

    Don't worry about being perfect. Just be there. And the sisters? This isn't a situation where there's a "right" and a "wrong"...just let go of that. We all do the best we can with what we know, and when we know better, we do better.

    Hugs to you...

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Don't try to say anything. Wait for her and listen. 

    Be practical. Don't wait for her to ask you to empty the dishwasher or whatever, just do it, or organize the kids to do the chores and make sure they are done.

    Tell her you love her.

    Tell her she is beautiful.

    They always say men are simple and women complicated. We are really not. We just want love and understanding like everyone else. 

  • shmget
    shmget Member Posts: 4
    edited February 2012

    Some things I've found after a year of caregiving:

     1.  As was said above, tell her you love her and she is beautiful.

     2.  Listen intently at the doctors visits if you go with her.  Because of my job's flexibility, I've been able to go to just about every appointment.  The doctors sometimes say lots of things, and I've found that I am able to help my wife and the doctors when they ask questions.  Because of "chemo brain", sometimes my wife would forget to bring things up, and I made sure they got mentioned.  If you can't get to her visits, maybe review the questions you may have for the doctor the night before and write them down if she has trouble remembering.

     3.  My children are very young.  Because I basically work a 9-5 job M-F, I let my wife rest on the weekends, especially when she was going through the AC treatment.  It helped her to not have to deal with the little ones running around.

     4.  We have been fortunate to have good doctors, but my wife is the type that doesn't like to argue or ask too many questions.  Sometimes being a good caregiver is gently asking the doctors questions to make sure that necessary things are being done or that unecessary things don't get done.  Also, I usually got the prescriptions for her, and questioned the pharmacist to make sure all the things they put her on wouldn't interact.  Our doctors are good, but it never hurts to ask questions and double-check, especially when they recommend extensive testing.

    5.  Try to get out with her on "dates" when you can.  This is something I wish we could do more, but it hasn't been possible due to our schedules.  We try to talk every night after the kids are in bed, and I buy her lunch at the outpatient cancer center we go to, so she doesn't have to have hospital food. 

    6.  Take time for yourself.  At one point, I was waking up at 4-5am in the morning, before work, and going to Dennys to just sit and read.  It was my way of having "me time", since I couldn't get it in any other way.  Now, the way I "treat" myself is I buy my lunch just about everyday at the work cafeteria.  The food is good, and I like not having to worry about lunch. 

    Hope some of these ideas help.

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