After Radiation

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    ksmatthrew are you taking any of the hormonal drugs they can do that to you.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited January 2012

    No I was TN so no meds for me.  I am 6 months out from chemo.  The nurse said my Dr would be in tomorrow and she would talk to her.  Hopefully she calls and lets me know something.  This sux!

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    ksmatthews sorry I did not even look at your diag. Hopefully the Dr. can help you out.

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  • kll22
    kll22 Member Posts: 124
    edited January 2012

    Ksmattews - I'm experiencing the same thing - very stiff if I'm in one position for too long. I'm attributing it to my chemo (TC) which did a number on my joints, and the colder weather.  I plan on bringing it up with my PCP next week.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited January 2012

    Sometimes it takes 1 to 2 yrs.for the chemo and/or rads to come out of your system.Be kind to yourself.Listen to your body.Its always talkin to you.

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited January 2012

    Ok Ladies - Next Weds the 18th at 3:15pm (pacific time) I need you in my pocket! I am going to meet a pain management doctor...

    As I am preparing to go see him, I have noticed my pain ISN'T the breast as such, its the ribs and muscles behind the breast... The PCP has raised my gabapentin and the creapy crawlies in the breast is better but the ribs are still painful... Anyone else have this issue? I'm almost 6 months out of radiation.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    gmafoley I did not have the rib pain but I had awful pectoral muscle pain.  Just finish PT for it and wish I had done it 6 months before.  I totally took care of the muslce pain. Now I still have some nerve damage but at least it is not agrivated by the muslce pain.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited January 2012

    I really need you all to say alot of prayers for my friend Janet. They just found out Wed. that she has lung and liver cancer and they have only gave her days. I went to visit her today and she was unresponsive :( this breaks my heart that Cancer is going to win another battle..

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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited January 2012

    I'm so sorry about your friend ksmatthews....I'm saying a prayer for her and her family and friends.

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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited January 2012

    That is so sad ksmatthews. I will be thinking about your friend and you.

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  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited January 2012

    ksmatthews, I am so sorry for both you and your friend.  Sending prayers and hugs for both of you.

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  • Merilee
    Merilee Member Posts: 3,047
    edited January 2012

    F*%k cancer!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Merilee - I second that.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited January 2012

    Thank you ladies for the prayers.  Sadly she passed this morning.  I hate cancer!!!

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  • crog234
    crog234 Member Posts: 801
    edited January 2012

    (ksmathews). So sorry for your loss.. I hate cancer too!!!



    Cindy

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  • walley
    walley Member Posts: 231
    edited January 2012

    Hi Ladies

    My friend  was diagnosed with anal  cancer......do any of you know of a support group like ours for that?I know she would like to have ladies like us to talk to ,get info and just have support.I know I couldn't have done it without all of you.I would like to find something like this for her.Thanks

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Walley - So sorry to hear about our friend.  I do not know of any such thing but that does not mean there isn't something out there.  Have her do a google search for support groups with her type of cancer.  That is how I found BCO.

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited January 2012
    ksmatthews - I am so sorry about your friend.. I am saying a prayer for both you and your friend/family... It is so hard during those times.. Just went through that with my 2 friends husbands... All you can do is know she will be in a better place where there is no pain...  It makes me very sad too...
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  • FireKracker
    FireKracker Member Posts: 8,046
    edited January 2012

    It is Jan 13th and as of just now i heard of 7 deaths since the new year...ALL CANCER..

    find a freekin cure!!!!!!!!!this just makes me want to throw up....2 or 3 on BCO...

    Today my GD called me to tell my her other granmother was just diag.with bone cancer.

    F#$K cancer!!!!!!!!

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  • walley
    walley Member Posts: 231
    edited January 2012

    Thanks jo1955 .That is also how I found  BCO .I will search for info.She says it a rare cancer.I am so sad for her.I agree with you Granny!!!!!!!!!!! Please ladies says a prayer for Carol

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  • Merilee
    Merilee Member Posts: 3,047
    edited January 2012

    Don't forget to write to Washington on the 23rd. We need to kick cancer's ass to the curb once and for all.

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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited January 2012

    I'm saying a prayer for Carol...

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  • SusanHG
    SusanHG Member Posts: 655
    edited January 2012

    ks matthews: so sorry to hear about your recent loss, and yes, way too many people are passing away this year.  I have a neighbor on my block, just diagnosed with bc in the summer, who passed away two days ago at 61.  Did not know her well, but so sad nevertheless...

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  • Merilee
    Merilee Member Posts: 3,047
    edited January 2012

    No one should be dying of this F-N disease! We declared war on Iraq when they killed 5,000 people here in the US. Spent trillions of dollars on it, yet this F-N disease is taking out 40,000 women a year, It's just so wrong. I say War on this pandemic is way over due!

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  • bgail84
    bgail84 Member Posts: 94
    edited January 2012
    Have completed rads so I will be stopping by here often. Looking forward to talking to you guys.Smile
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  • FireKracker
    FireKracker Member Posts: 8,046
    edited January 2012

    bgail----congrats on finishing the rads....YOU ARE DONE!!!!!!!!YAY.

    Merilee-----I sure hope everyone sends that letter to Washington on Jan 23.That thread is real quiet now......

    its time to take the bull by the horns..we need to be heard!!!!!!!

    I am soooo tired of sayin over and over again....find a friggin cure!!!!!!!NOW....

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    gail Woohoo on finishing rads

    ksmatthews so sorry for your loss.

    Walley hope your friend can find a support group.

    Had two good dr visits yeserday.  Pain dr released me and MO is very supportive of my BMX since my last surgery to remove the B9 lump.  Says my breast are too unpredictable.  I have it scheduled for March 23 but may end up changing that date.  He is also changing me from oral Fosomax to IV Reclast as there are studies to support it lowing recurrance rates in premenaupasal early stage BC.  I told him since my onco score was in a grey area and I did not do chemo I want all the help I can get.  If my insurance approves it I will get infusions every three months when i see him.

    Also I asked my MO about the new study released about artery stenosis.  He said it is very real for left breast rads.  I asked him if the newer rads lowered that and he said not really. He explained that the arteries get inflammed.  He said he has me on daily baby asprin because of high risk family cadiac issues and that the daily baby asprin will help reduce the risk of getting it but that it is always a possiblity.  Great one more risk to have.  Although he said my cholesteral is great and I exercise and eat right and keep my wieght low so he did not want me to spend time  worring about it.  Easier said than done. 

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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited January 2012

    Congratulations Gail on finishing rads!! =)

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited January 2012

    Im sorry i missed the bad news.i did read it about Wally and Kmathews.I just cannot respond anymore.this friggin disease is drivin me nuts.every damn day another story.its getting scary.

    Tomorrow I have to go to a wake.it just never ends.So depressing.

    Sherrry got good news.THANK YOU GOD.

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  • walley
    walley Member Posts: 231
    edited January 2012

    welcome bgail 84you will be glad you found this site,thanks everyone for your  comments.Glad you do have some good news Sherry.Scary about the artery stenosis for the left breast rads.That is what I had.Everyday brings a new concern it seems.But I am doing okay  a few aches and pains here and there, so I  take  it one day at a time.Have a great Sunday everyone:)

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