5 years since my diagnosis...

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metoodf
metoodf Member Posts: 2
edited January 2019 in HER2+ (Positive) Breast Cancer

I used to lurke on this forum when I was first diagnosed.  I was always saddened by the fact that there were no postings from longer term HER2 survivors.  I wondered if they existed?  So here I am...Jan 11, 2012 marks 5 years since my diagnosis at age 36.  We do exist!  Well wishes to all the survivors out there!

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  • Sissydi
    Sissydi Member Posts: 516
    edited January 2012

    Thank you for this! I just found out mine is HER2 pos...you encourage me!

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  • talbrig13
    talbrig13 Member Posts: 488
    edited January 2012

    I, too, am a 5 year survivor..her2 positve!

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  • NWArtLady
    NWArtLady Member Posts: 360
    edited January 2012

    Thanks for these posts metoodf and talbrig13!  Love seeing them. My oncologist keeps talking about how one day, 30 years from now, we'll be chatting about our favorite topic: photography. I'm looking forward to that day!

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  • orange1
    orange1 Member Posts: 930
    edited January 2012
    Thanks for posting.  Its always great to see Smile
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  • sheila888
    sheila888 Member Posts: 25,634
    edited January 2012

    I'm also a 6 year 9 months survivor

    Yes we existSmile

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  • lago
    lago Member Posts: 17,186
    edited January 2012

    Congratulations to all of you!

    I plan on being a 35-40 year survivor. I've already past 1 year and counting.

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  • Caya
    Caya Member Posts: 971
    edited January 2012

    I'm 5 years out now- looking forward to the next 5, 10, 15 etc.

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  • dawny
    dawny Member Posts: 1,126
    edited January 2012

    Fantastic, thanks for sharing that with us, we all need to hear good stories every now and then.  Hope to see your 6,7,8,9,10........anniversarys here too!

    Dawn

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  • dlcp
    dlcp Member Posts: 35
    edited January 2012

    great news!! keep on counting!! cheers to all of us!

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  • saralmom
    saralmom Member Posts: 329
    edited January 2012

    Awesome news metoodf, talbrig13 and sheila888! Thanks to all of you for posting!  Her2 success stories are so great!

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2012

    Woo hoo! We are loving all of your posts! Congrats to you all!

    --Your Mods

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  • jackboo09
    jackboo09 Member Posts: 920
    edited January 2012

    Hi metoodf

    Wonderful news! Thank you for spreading such optimism as we her 2 girls need it! I must confess to being a bit twitchy about the lack of posts for long term Her 2 ladies (especially those who are node positive) Perhaps I haven't been searching enough. I had one pos node when dx in Feb 2011 and have been worried about it every since.

    Thanks again for such good news

    Liz

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  • 4everhopeful
    4everhopeful Member Posts: 71
    edited January 2012

    Congrats on your 5 Years and many many more.  I was Stage 4 from the get go and 6 years & 4 months out and plan on celebrating many more as well.  Cheers!

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  • lkc
    lkc Member Posts: 1,203
    edited January 2012

    Congratulations. It's been 6 years 8 mos since I was dxed with Stage IIIC!!

     that was then, this is now NED and happy as a clam.

    See  you all in the old timers club!

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  • Sassa
    Sassa Member Posts: 1,588
    edited January 2012

    I go for my 5 year CT/PET scan and tests  next month.  They will be for my 5 year anniversary since finishing chemo (4 years herceptin).  My oncologist says we will be partying when they come back all clear as my chance of recurrence will be somewhere around 1 - 2%  after this.

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  • bluedasher
    bluedasher Member Posts: 1,203
    edited January 2012

    I'm 3 years 3 months past starting chemo and expecting many more years.

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  • jacksnana
    jacksnana Member Posts: 168
    edited January 2012

    These posts are so inspiring!  Thanks for sharing.

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  • CurlyGirly
    CurlyGirly Member Posts: 547
    edited January 2012

    Hi

    I was diagnosed 8 years ago, stage 2b, ER+/PR+, HER2+ with 2 positive nodes. I had chemo, no radiation, and have been on Tamoxifen and am almost done with Aromasin. I didn't even receive  Herceptin since it was only used to treat metastatic disease at that time, and I'm still here!

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited January 2012

    Wow - I see lots of familiar names on here - bluedasher, Ikc, Sassa, orange - hi and congratulations to you all! So many great stories on this thread. Tomorrow marks 4 years since my diagnosis - and I want to be part of Linda's old-timer's club too.

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  • mmm5
    mmm5 Member Posts: 1,470
    edited January 2012

    Hi to all of you familiar faces, I will be 4 years in April...Hi SUE good to see you and Jackie too!

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  • lago
    lago Member Posts: 17,186
    edited January 2012

    wow CurlyGirly. I'm so excited for you. Keep on counting!

    MMM5 4 years… whoo hoo to you too

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited January 2012

    Thank you metoodf, talbrig13 sheila888 and 4everhopeful for sharing.

    You certainly given me hope!!!!

    Long may NED continue, for all of us xox

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  • my2boys
    my2boys Member Posts: 339
    edited January 2012

    I'm almost 3-1/2 years out.  I was node positive.  Had a small local recurrence 2 years ago, but resumed Herceptin and added Tykerb for a year....now I'm doing just fine.  Very curly hair, but just fine!  Hi to all the familiar names I see in this thread.....glad to "see" you. 

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  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited January 2012

    I'll be four years since diagnosis in May.  Still scary, but getting easier :)

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  • septembersong
    septembersong Member Posts: 287
    edited January 2012

    I'll also be four years out in May, and so far, so good. 

    I think we may not see posts from many long-time Her-2 positive survivors because they're out there, busy living their lives. 

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  • Judy67
    Judy67 Member Posts: 361
    edited January 2012
    Thanks for the positive posts.  I am going through chemo right now but someday I hope to be able to post on here to give that same hope back to others. Smile
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  • bluedasher
    bluedasher Member Posts: 1,203
    edited January 2012

    my2boys, I'm glad you posted. I saw some of your posts when you had the recurrence and I've been wondering how you are doing. Congrats on getting through this a second time.

    Regarding hair, I guess I'm kind of odd. Most people post about their hair coming back curlier than it had been pre-chemo. I've got chemo-straight rather than the more common chemo-curls. My pre-chemo hair was naturally curly. Post  chemo, it is quite straight - the kind of hair that I wanted in high school in the 60s. But now I miss having curly hair that can be cut short and create a hair style with just a quick brushing. 

    It's a small thing and seems petty to complain about especially when I once wanted straight hair so much, but sometimes when I look in the mirror, it just doesn't look like me after over 50 years of curly hair.

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  • PoliceWife84
    PoliceWife84 Member Posts: 136
    edited January 2012

    2 year anniversary of my diagnosis was January 8th. Feeling fantastic - a little tired, but who isn't after all of this?! God is good!:)

                                                                                                   Love,

                                                                                                         Brandi

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  • my2boys
    my2boys Member Posts: 339
    edited January 2012

    Hi there Blue!!!  Glad you're good. :o)

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  • cebr2004
    cebr2004 Member Posts: 7
    edited January 2012

    I very rarely come on to the forum because I'm busy with my life. I just calculated and was amazed to note that I am almost 8 years since diagnosis with Stage II, 2.5 cm, Grade 3, ER+HER2+++, 0/3 nodes. I had mastectomy, chemo (ACT), and Herceptin for a year. Even my 5 years of Arimidex is ancient history.

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