Radiation with TEs?

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My 72-year old mom had a DMX on 12/7.  Cancer had not spread to her lymph nodes so we thought no radiation would be necessary.  Now she's been told that she should have it for 6-1/2 weeks because there were cancel cells in the perimeter.  She already had her TEs put in.  The chance of recurrance with radiation is 5% and without it 20%.  Reading some of the posts on this board, it sounds like radiation is much worse for women who've had mastectomies instead of lumpectomies and the TEs make it even worse.  Any advice?     

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Comments

  • Ralsper
    Ralsper Member Posts: 352
    edited January 2012

    I have had the same question since my RO  suggested to unfill my TE before radiation. The idea of having TEs before radiation is that because expansion isn't possible (or is difficult) after rads, completing it before rads permits expansion that can lead to exchange to implants several months after completion of rads. RO insisted that  the presence of TEs does not interfere with rads, and it is being done more now. Of course my skin is more delicate because it has been stretched but  I am really angry for not been told about this before. According to my PS in his experience it doesn't make the difference. I will begin rads next week, so I willl find soon  the answer.

  • rayofsun
    rayofsun Member Posts: 204
    edited January 2012

    I had TE's placed and filled to a the desired level and then had radiation without trouble.



    Ray

  • Patrithia
    Patrithia Member Posts: 19
    edited January 2012

    Hello Ray,

    Today is my 20th radiation treatment with 10 more to go.  I also have TE and this week my skin began to show signs from the radiation (red and slight rash).  Did this happend to you as well?  If so, how long after completion of radiation did it heal?  Have you had surgery to replace TE's with implants?  If so, how long after finishing radiation.  Thank you for your reply. Patricia 

  • Ralsper
    Ralsper Member Posts: 352
    edited January 2012

    Thank you Ray! You make me feel much better.

  • mauimom
    mauimom Member Posts: 80
    edited January 2012

    I had a TE placed and filled prior to radiation - going to my last radiation session Monday and haven't had any major problems due to the TE.  The TE feels firmer, but we overexpanded prior to starting radiation.  We'll see!  My skin held up well until about a week and a half ago.  Our original plan was to do the exchange surgery in March (about 6 weeks after the end of radiation).  

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited January 2012

    I had 33 tx with TE's. My RO told me that it was actually very effective medically. I don't know if it was true or not but I was very grateful because it made me feel so much better. I would say that I had a pretty crappy time of it but I don't think radiation is a cake walk for anyone. It took about 2 1/2 weeks for my skin to recover to a non-painful state. I called my PS and I have an appt him next month for additional fill and re-evaluation.  Its been a month since my last rads tx and my skin right now looks darker than my other side ( I had a BMX ) but other than the color there is no evidence that I had so much trauma to the area just 30 days ago.

    Keep the faith Sisters- I am on the other side of the radiation tunnel and I made it-YOU CAN TOO! Love and Hope.  ~Laura 

  • sundermom
    sundermom Member Posts: 463
    edited January 2012

    My PS believes is having the exchange surgery before rads, but it doesn't sound like that is an option here. It didn't really work it for me despite getting the exchange out of the way beforehand. My incision just popped open about 8 weeks after my last rads, so I'm back to having a TE. I've read about lots of sisters having rads with TEs and then exchanges afterwards, so I think it must be pretty common.

  • FLislander
    FLislander Member Posts: 243
    edited January 2012

    So glad to see this i have been asking around for a few days now. I'm in pre chemo b4 surgery and having BMX in 2 months. Said I would need radiation also and wondered about TEs heard some bad experiences but some good also. Guess I just need to keep positive and hope for best. It is nice to hear successful TE outcomes though

  • FLislander
    FLislander Member Posts: 243
    edited January 2012
  • FLislander
    FLislander Member Posts: 243
    edited January 2012
  • Pegs
    Pegs Member Posts: 198
    edited January 2012

    I had expanders in and had to have the fills completed before i started radiation, radiation made my skin tighter, and I got really burnt from the rads, it didn't happen right away but i was so bad i had a hard time putting my arm down by my side,  make sure you use whatever lotion they give you, i used emu oil, but that was not from a doc. i found about it on my own.  during radiation treatment i had no problems with my expanders,  but 4 months after i finished rads, ps put in inplants, i wish i had waited longer , i don't think my skin had enough time to recover from the rads, just my opinion, anyway the inplant had to come out, went with tram flap.my only option.  so really discuss when the exchange will be after you finish rads,  it could make a different, i wouldnt rush it.  just my opinion.  good luck

  • LisaMomOfFour
    LisaMomOfFour Member Posts: 465
    edited January 2012

    My PS told me that I did have an increased chance of TE failure with radiation.....  but I did have rads with a TE and had no issues.    I developed a pimple on my radiated breast at some point during rads, and pointed it out to my doctors...well you have never seen so much attention on a pimple, and they promptly ordered around of antibiotics, as well as antibiotic cream, and it took care of it.  

    I waited about four months before doing the exchange.   

    Good luck, I found rads to be fairly tolerable.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited January 2012

    Hi, i had 28 rads with TE's in.  I used emu oil and aloe vera from the plant (not a tube) every day, at least three times a day.  I barely burned - both my OT and my RO were astonished and have become believers in emu oil.  After rads, I continued with emu oil 2-3 a day.  My skin has headed extremely well - I will be having my exchange surgery on Feb 2, which will be 7 months after finishing rads.  I have heard mixed results from people doing the exchange before six months, so I decided to wait.  If my PS had wanted me to, I would have waited longer.  But she says I should be fine.  

  • FLislander
    FLislander Member Posts: 243
    edited January 2012

    Thank you, Thank you, Thank you it is so relieving to hear success with treatments before I go in, and I will buy that emu oil for sure. Have a great week sisters! Thanks for posting

  • FLislander
    FLislander Member Posts: 243
    edited January 2012
  • Ralsper
    Ralsper Member Posts: 352
    edited January 2012

    Thank you! I will begin this week (25 rads). I bought the organic 99% Aloe Vera.

  • mammalou
    mammalou Member Posts: 823
    edited January 2012

    I had partial fills before 33 rads, then waited 2 months and slowly finished filling the TEs.  I now have to wait 6 months for the exchange because of RADs.  So far, so good.

  • sherry67
    sherry67 Member Posts: 556
    edited January 2012

    Hi my name is sherry new here but just wanted to say I used the pure aloe and acquphor they give you and had no issues with my skin. I started the aloe a week before rad a few times a day .

  • karen1956
    karen1956 Member Posts: 6,503
    edited January 2012

    I had bilat with TE....had fills during chemo and was done with fills a couple months before starting rads....my skin got itchy but it wasn't awful.....the risk was will recon....rads increases the "failure" rate of recon...but I've had these implants for just about 3 1/2 years.....all the best to your mom

  • FLislander
    FLislander Member Posts: 243
    edited January 2012

    Bumping everyday

    I love hearing success, I have 2 months til rads but I was really scared before this forum started. I like to know a bit b4 I talk to drs. Thanks to all posting!

  • FLislander
    FLislander Member Posts: 243
    edited January 2012
  • Ralsper
    Ralsper Member Posts: 352
    edited January 2012

    Done with 2 out of 25. So far so good  ;-)

  • FLislander
    FLislander Member Posts: 243
    edited January 2012

    Keep us posted, I'm 2 months behind you, have to finish taxol, then BMX

  • FLislander
    FLislander Member Posts: 243
    edited January 2012
  • Ralsper
    Ralsper Member Posts: 352
    edited January 2012

    I developed some redness after treatment everyday, but normally it is gone the next day. My skin is kind of "olive" ( I am not "white-pale"), so it looks like when I walk on the beach for an hour. Done 4 out of 25.

  • FLislander
    FLislander Member Posts: 243
    edited January 2012
  • FLislander
    FLislander Member Posts: 243
    edited February 2012
  • Ralsper
    Ralsper Member Posts: 352
    edited February 2012

    Done with 8 out of 25. So far so good  ;-)

  • Ralsper
    Ralsper Member Posts: 352
    edited February 2012

    Well... 20 of 25 done. My "foob" is really tan/redish, I have two tiny blisters but it is not sore and it doen't hurt. My underarm is really dark "peeling", wounded and it's sore and hurts. I keep applying aloe vera and emu oil on my "foob", but I am afraid to apply anything under my arm, since I have mild lyphedema on my upper arm and I was told that any wound or infection could agravate it. Wait to see what the nurse says tomorrow, hopefully she will know what to do.

  • FLislander
    FLislander Member Posts: 243
    edited February 2012

    thanks for the posts, will be doing rads with TE end of March, thanks for the confidence 

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