ER+ ladies, what do you eat?

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited January 2012

    I love sardines. In class, when my students all squeeze together, I often tell them that they look as tightly packed as a can of sardines. Most have never seen nor tasted sardines. I then bring in a can and let them taste them. Some are grossed out but about half the class usually loves them. Then they go home and ask their parents to buy sardines. Their parents can't believe it.

    Caryn

  • lulubee
    lulubee Member Posts: 1,493
    edited January 2012

    Holy cow.  And this is what grade?

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited January 2012

    I've done this with kindergarten and first grade. They are so funny!

    Caryn

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    mrochon, sure it is what the thread is about. There was a food fair near my house the last few days, and each day I bought a cheese pie from one of the stands. It was a particularly good cheese pie and not too big. I am trying to find a balance. 

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    exbrnx, my kid grew up on canned sardines. She refused to eat meat as a little kid, and the doc insisted she needed protein. We did not have a decent place ot buy fresh fish, and besides I was pretty strapped for cash half the time, so one day I tried sardines. She loved them. It has been a stable around here since.

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited January 2012

    I grew up on open sanwiches of sardines with a sliced tomato on top.  They are very "fishy" but good.

  • Lacey12
    Lacey12 Member Posts: 2,951
    edited January 2012

    I have been getting a bit obsessive about the healthy diet thing, especially since looking at that site with info about what to avoid if on Tamoxifen. I am about to start taking it and figure that I would hate to be preventing it from doing its magic by eating the wrong thing. HOWEVER, I found the site to offer very restrictive lists.

    I eat a pretty healthy diet, and love kale, Brussels sprouts, spinach, etc.,but I am hardly motivated to become vegan, and live in an area where fresh fruit is not so great or plentiful during the winter months. Have any of your docs referred you to a BC knowledgeable nutritionist ?

    I was thinking about asking my MO for a referral to one. Before this she has said not one thing about diet to me so far, which seems odd since the estrogen issue is significant in my kind of cancer.


    Thanks for any ideas about this. Now that I am finished Rads I guess I am using any spare moment when not busy at work to obsess about the effect of diet. I keep telling my friends that now that my active treatments are completed all I have left to do is worry and figure out this food thing to try to prevent recurrence. Thanks for your help!

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Lacey, most docs seem neither very interested in nor knowledgable about diet issues. My rad doc told me not to eat sugar. I asked about honey, and she said that was OK, lol. 

  • Merilee
    Merilee Member Posts: 3,047
    edited January 2012

    Momie, When I was first diagnosed I hired a nutritionist to consult me and she knew less than I did. I ended up teaching her. I have been astonished at the lack of expertise in this area.

    Have you all seen the info on Stevia? Seems like the best option for sweetness. It has been shown to stabilize sugar levels in body as well as being totally natural.

  • bcisnofun
    bcisnofun Member Posts: 488
    edited January 2012

    There's a Dr where I live - at a well respected large academic medical center who focuses on complimentary medicine and a friend of mine who is stage 4 went to him.  His advice to her on food/supplements sounded odd to me and was different from what I had read in anti-cancer, etc.  I asked a fam med doc that I'm friends with what he thought.  He said because there's really not a lot of proven scientific info on what works, what doesn't, so there can't be a real standard of practice.  Everyone has different ideas and can suggest almost any line of what not to do/what to do and why.  You kind of have to go on trust. 

  • FLwarrior
    FLwarrior Member Posts: 977
    edited January 2012

    I bought Stevia and tried it, but I didn't like it.  To me it tasted like the artificial stuff that I have never liked. 

    Momine, the reason that your RO said no to sugar and ok to honey is because of how it effects the glucose levels in the body.  I combine the "anti-cancer diet" and "clean eating diet" which are very similar.  The "GI revolution diet" is also very similar.  They all seem to agree that Honey and Agave are the best choices for sweeteners because of their "GI index" they don't cause the spikes and crashes in glucose levels.

  • Merilee
    Merilee Member Posts: 3,047
    edited January 2012

    Once you unserstand just what cancer is and how it spreads itself, it is easier to sort out which foods are helpful by looking at what they do or do not do.

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    FLWarrior, yes, true, but from the way she said it, it was pretty obvious that she didn't really know. She had just heard that sugar was bad.

    Also, as far as I can make out, the real crux is to keep insulin down, so that would presumably mean keeping blood sugar low and steady. In other words, it is a bit more complicated than cutting out sugar, even if cutting out processed sugar is a good idea. 

  • Lacey12
    Lacey12 Member Posts: 2,951
    edited January 2012

    Thanks for that input, ladies. I will see if any of my BC docs/nurses have any info when I see them again over the next two months, but I totally hear what you are saying about needing to continue researching the relationships between foods and the specific cancer's "appetite".



    My internist who just saw me (for my annual PE) for the first time since I was diagnosed last August, listened to my concerns about this while comforting me in my fragile "just off rads and nervously getting set to start Tamoxifen" state, while trying to integrate this whole experience. While she, at first, had no idea what to tell me other than to bring it up with my MO, suggested that I wait until next month when I have a week off from work to "revamp" my eating plan, after doing all of my research. She knows what a demanding job I have and could tell from my presentation that I needed a little break from the self-induced pressure, especially since I am just off an intense four months of treatment while working full-time. So I will be trying to understand all of this better. This is a part of the process that is not so much discussed ....the "self care to prevent recurrence" part so I really appreciate this site and specifically this conversation. You are all so helpful!



    Obviously sugar is a huge culprit. I do use Stevia and would be very happy if it contributed to "stabilization" of sugar levels. By the way, FLwarrior, I found that I needed to try different brands of Stevia before settling on one that didn't' have an artificial taste to me. I use pure stevia extract from a little expensive bottle from Trader's....not to be confused with the stevia packets they also sell, which I recently also purchased for handbag convenience. Mistake! Yucky taste to me ....had some fillers. So I will stick to what works.

    I'll keep checking in when I can ....like on this wonderful three day weekend!
  • Lacey12
    Lacey12 Member Posts: 2,951
    edited January 2012

    Oh, and I really do wish I could eat sardines.....maybe if they came in an almond flavor! :)

    My sensory system just can't get super fishy foods past my palate. :(

  • tvacrat
    tvacrat Member Posts: 60
    edited January 2012

    I found a book called The Pink Ribbon Diet which spells out the research behind various foods and has some really nice recipes. I'm trying to follow it as much as possible.

  • Layla2525
    Layla2525 Member Posts: 827
    edited January 2012

    Wow, bcisnofun, your diagnosis is almost same as mine.  So far they are just continuing to biopsy me since the dx on 12/19 but I am supposed to get a surg date.  Did you already do your surg? I am going for a bmx hoping that will reduce the need for adjuvants and up my chances to stay healthy which brings us to this subject. how do we know what healthy eating is? when one scientist says dairy is ok and gives us CLA..then another says no carbs cause they equal sugar and one says go vegan and on? My head is spinning from all the info overload. One study says that tofu chemicals sit on the estrogen receptor so the real estrogen can not then the other study says all food with phyto chemicals are the same as taking estrogen and if I'm estrogen positive, I really need to know...eat veggies or not,get a list of ones with phyto estrogen?? Whats an old girl like me to do? ER+PR+ HER neg. grade 1, 1.5 cm of IDC.

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    tvacrat, that looks good, thanks!

  • FLwarrior
    FLwarrior Member Posts: 977
    edited January 2012

    Lacey, is the stevia that you are using that you do like in liquid form?  You are correct about the packets that is what I tried that I didn't like.

  • calamtykel
    calamtykel Member Posts: 1,187
    edited January 2012

    I think you could drive yourself crazy with what to eat (yes, I do...)   Estrogenic, non estrogenic---ARGH! 

    But there are misconceptions about milk.  First, raw milk has been consumed for thousands of years and those cultures that live on it have not had breast cancer the way we do today.  The modern dairy is a disgusting place - cows are pumped with milk producing hormones --they get away with having the barns and machinery dirty because after all, it will eventually be pasteurized (by the way, there are more instances of listeria and disease from pasteurized milk than raw milk from certified raw milk dairies -raw milk dairies are forced by law to have much cleaner equiptment, cleaner animals and cleaner udders!)   Urine and feces from cows makes it way into milk when the dairies know they're going to be pasteurizing it anyway.  The excess hormones frequently cause mastitis, so add pus to the concoction.  The cows are being fed an unnatural diet of grain instead of grass, the way they are supposed to.  (Grass actually increases a certain acid in the milk, that protects the milk itself from spoiling.  I've had raw milk last in my fridge for two weeks sometimes!  It also has protective bacteria and probiotics in it  - a newborn calf needs that!)   Unfortunately, milk from large commercial dairies is mostly the kind of milk that is consumed by the general public today.  When they do the breast cancer studies, this is the milk they are using as their basis since it is most widely available.  I don't think there have been ANY studies on raw, grassfed  milk and breast cancer.

    We have been drinking raw milk for a couple of years and we have seen a decrease in cavities for the kids and me as well as a definite measurable decrease in colds and stomach flus for all four kids.  Raw milk calcium is properly absorbed by the body, unlike pasteurized milk, in which the pasteurization changes the chemistry of the milk itself.   Raw milk contains enzymes that are killed in the pasteurization process. 

    If you don't have access to a raw milk dairy, at least be sure the milk you are purchasing does not have hormones or antibiotics in it (the antibiotics come into play when the cows develop mastitis due to the enlargement of their udders because of the hormones).  If they change and enlarge the udder tissue of cows, isn't it reasonable to imagine they are NOT very good for OUR mammary tissue if we're drinking the milk?

    Sam's club, I believe, has milk that doesn't have bovine growth hormones added and certain producers of yogurt and such don't have hormones (I think Dannon and Yoplait claim to be "hormone safe" but I'm not positive.)

    Chicken:   I don't eat a lot meat.  However, while chickens may have problems (I was recently reading about arsenic in the feed!)  it is against federal law to utilize growth hormones or antibiotics in poultry.  I don't know if they follow it however.  We have a flock of 35 chickens and from time to time, we have had to treat them with antibiotics -the whole flock.  This has been only once or twice in the past three or four years and it's very rare since mine free range.  There is a certain amount of time you have to wait for the meat and eggs to be "clear" of the medication.  I don't know if that is true for the commercial chicken farms (IE if being clear of antibiotics and hormones is the same as "no antibiotics used")   I do know that most day old  chicks are injected with a Merek's vaccine.  I have tried to get my birds from places that do not vaccinate but my latest batch of egg layers were vaccinated at the hatchery.  I don't know if the vaccine is detrimental to people or not.......

     Beef comes back to the same problem - hormones used for rapid growth.  I don't eat beef at all - unless I can get a good piece of grass fed beef without anything bad in it.  I will say that this is only VERY rarely because it's just too doggone expensive!   I have also found, even before breast cancer, that beef always gave me a stomach ache....just about every time.  Beef is actually a very inflammatory food especially if it's grain fed and not grass fed, so that's a reason for me to stay away from it - because I just don't feel good when I eat it. 

    If you're looking for a cereal alternative, I've been doing this these past couple of days:  throwing a handful of almonds and walnuts into the blender.  Blend until course but not powdered  Add some raisins or small blueberries -- stevia and/or agave and you have granola!   :)  Sort of....it's close enough for me, and it doesn't give me the sugar spike/low that real cereal does.  :)  

    I try to add some kind of raw juice every day, usually kale and organic carrot.  I really like "Better Than Boullion" to make fast soup - it is available in a jar in the soup section of the store or healthfood store.  they have organic and inorganic versions.  That with sea weed makes a good soup, or at least I think so!   I order my seaweed from a place called "Florida Herb House" - They are online and will ship and are reasonable and good! 

    I've changed my eating habits a lot since breast cancer.  I don't pretend to claim that my cancer will never come back, but at least changing my diet makes me FEEL better physically in however many days I have on this earth! :) 

  • bcisnofun
    bcisnofun Member Posts: 488
    edited January 2012

    hi layla - I had IDC in one breast and DCIS in the other so I did do a bilateral plus reconstruction with lat dorsi flaps, then chemo, now tamoxifen.  I almost wrote an identical post to yours about the conflicting studies and even ended exactly the same as you...what's a girl to do :), so we are twins. 

  • jwilco
    jwilco Member Posts: 486
    edited January 2012

    For what it's worth I have found the powdere Stevia from Trader Joe's to not take weird.  I use it in my coffee and I don't get that fake sweetener taste that I did with the stevia in packets. 

    What to eat and not to eat is so confusing.  I appreciate all you tips.

  • Lacey12
    Lacey12 Member Posts: 2,951
    edited January 2012

    My stevia of choice is a powder in a 1 oz plastic bottle, labeled 100% Pure Stevia Extract. Costs around $10 in my Trader's in Massachusetts. Definitely not the same taste as the packets from there.

    Hope you can find it....there is also a large plastic bottle which has some additives, even tho it looks similar...I think that one may even have some dry milk product in it. The one I get is stevia extract all by itself.

    Thanks for the book idea, tvacrat!

    After the Pat's game I'll read thru calamtylel's entry carefully! Thanks for all the info...

  • Merilee
    Merilee Member Posts: 3,047
    edited January 2012

    I use Stevia in the Raw

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited January 2012

    tvacrat, thanks for the book tip - gonna check it out from the library.  Another book I am reading right now that is teaching me a lot (many of the principles I hear discussed here) is Waking the Warrior Goddess by Christine Horner.

    Also, thank you to whoever recommended the foodforbreastcancer site - it's an awesome resource!  Love the foods to eat and not to eat lists with links on each food so you can understand their reasoning behind each one.  They also have articles on what to eat/not eat if you are ER+, going through rads/chemo, etc.  They make no firm claims but just offer their interpretation of the current literature out there along with the references to the research.  I also like their approach of food being complementary to standard medicine, not alternative, which is the approach I am working on.  

  • Anita333
    Anita333 Member Posts: 45
    edited January 2012

    You're welcome dancetrancer. I use the site all the time. I printed the foods to eat list and the foods to avoid list and have it in my purse and on my fridge. When I go shopping if there are two things that I have cravings for and one is on the foods to eat list and the other is not on any list then I usually pick the one that is on the foods to eat list.

    I try to eat as much from the foods to eat list as possible. 

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited January 2012
    Anita33 I just printed out those two lists today myself, LOL!  I am going to start compiling recipes that include those ingredients.  We tried cooking with bok choy last night for the first time (had it in a thai curry recipe I use), and it was divine!  I have some bok choy left over, and I'm going to cook it as a side dish tonight (olive oil, garlic, crushed red pepper flakes).  I'm really excited about coming up with new recipes as I love, love, love to cook.  Thanks again for the website reference! 
  • lulubee
    lulubee Member Posts: 1,493
    edited January 2012

    I planted some stevia in my herb garden last year.  You wouldn't believe how sweet those leaves are when you bite into them! You can just bruise them a little in your fingers and put them in your tea, like you do with mint leaves.  I meant to put some in my Vitamix smoothies and see how that worked, but never did.  Maybe this year.

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited January 2012

    Wow lulubee, that is very cool.  I love to garden...I just read that you can grow your own green tea.  So many ideas, so little time! 

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Jo, just looked it up, freaky! I used to eat a lot of grapefruit, love the stuff. Oh well. 

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