Starting chemo January 2009?
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This weekend I got to help escort another sister into our club. Do wish we could be more exclusive. My sister's sister in law got in touch to let me know she had a lumpectimy this past week for a triple negative tumor around one centmeter, clean nodes, but damage to a nerve during the surgery. She wanted my take on the whole experience. She wants a bilat but is worried about surgury and trying to decide on reconstruction. She is handling it well but it sucks that she has to go through this. And now I worry for my niece, with an aunt on both sides with early breast cancer. one hormone positive Her neg and one triple negative. Need to get my sister and BIL to pay attention to any studies on things to do to help keep her odds down.
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Wow, Renrel- I am heartsick. There are too many of us. I am sure you were a great help and support. I am thinking of you.
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Hey, girlfriends?
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Renrel, nice to hear your niece has someone looking out for her. Hopefully a good high risk program in her area when she's ready.
I'm popping in every now and then so caught your post Jess. How are you? I was thinking of you and your rescue dogs when I heard how much need there has been in our local humane society recently. People dropping off pets because they can't afford to feed them in this economy. Heart breaking to hear, because that seems like a heck of a barometer regarding how many are doing.
Hope all are well. I realized this morning that the anniversary of my diagnosis had passed last week and I totally forgot about it until now. I'm taking that as a victory
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Well, tomorrow I go for a visit to the endocrinologist. I hope this is okay.......
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Kmmd - It is a wonderful sign to forget something like that. I think it really takes 3 years to recover from the diagnosis and sucessful treatment. But when I tell that too a newbie I tell them it is good news not bad, because it is a process and after a year or so you think you are all better but in fact you are going to be even more better a year after that and more better a year after that. Maybe you keep feeling better but I think I am really about where I would be if none of this had happened, assuming that I hit perimenapause anyway.
Jess - I seem mine on Friday to talk about what if anything I should do about me slightly off kilter thryoid. Hope your appointment goes well.
I went to a Bar Mitzvah this weekend for my nephew. He did wonderfully and DS proudly wore his first suit and was called to the Bima for the honor of opening the ark for the first time. He was very into it. Then he danced up a storm at the party and enjoyed drinking all the shirley temples he wanted all afternoon. But the music was so loud I lost my voice and had to stay home from work on Monday day. I still sound awful.
Any my period, which was coming every 6 months or so showed up after less than 20 days and I am bleeding heavy, which makes we wonder if I should call my Onc and ask about tamoxaphin and uterine cancer.
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I would definitely call my onc, Renrel. I know I had issues with crazy cycles like that. Not very enjoyable. I had a horrible time during chemo and then after a strong dose of progesterone that is all "she wrote". No more cycles- a relief- yet the lack of estrogen certainly creates another set of issues. Not that I am complaining.......
Visit to the thyroid doc went well. I have a lumpy bumpy thyroid; that's it! We check in six months and it coincides with the onc visit, so I am going for a twofer! I have to drive an hour+ to the docs and I have to say I am tired of that....
Anybody going anywhere festive for the winter break? I would love to go to a Caribbean island.....That could be a real cool JJ trip! :
)
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Called my Onc's nurse practiciner and she called me back this evening and said I should make an appointment with my GYN to check things out. Could be nothing but since I am on tamoxaphin it should be checked. I met a woman while I was in infusion who was post cancer and there to support a friend but she told me she got uterine cancer from the Tamoxaphin and urged me to pay attention because she thought it was more common than the doctors let on. She was fine but sometimes I think she crossed my path for a reason so I am going to follow up on this.
Only plans for the holiday season are to leave my son in NY with my parents and his cousins to avoid vacation program fees but the side beni is DH and I get a few nights alone.
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Good to hear Jess.
Renrel, please keep us posted. I'll be thinking of you. DS as usual made me smile. Love thinking of him dancing in his suit and enjoying Shirley Temples
DS and DDIL coming home for some time later this month, I'm so excited
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I have an appointment for next week with my GYN. My period is winding down and I am feeling better but I know I need to check this out to make sure it is not a problem.
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Had my Endo appt on Thursday. The nodule was just a nodule and not the parathyoid. My thyoid is under producing but not so much that I have to medicate but I can if want to. Apparently my body is producing antibodies that are attacking my thyroid or the horomones the thyroid. They can't stop the antibodies or fix the thyroid, but they can replace the hormones with a daily pill. Not too big a deal. I will probly try the pills for 3 mths and see if I feel any different. All the thyroid symtoms are so ordinary it is hard to know anything is off. Feeling tired, feeling cold, feeling achy, gaining weight. Sounds like chemo reactions on a mild level or the flu.
Gabe auditioned for a local community theater production today. The musical director said he was adorable and he was offered a part in the children's chorus. Tomorrow we bake some sugar cookies from a mix and decorate them.
My sister's sister in law started her chemo. Her reaction was not too bad and she is going to the Cayman Islands for the holidays, which is an awsome way to recuporate.
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I had my thyroid check up last week as well. I am actually a pound lighter from the last time! I still struggle to get the weight off from chemo days. sigh.......
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Just got back from a biopsy of the lining of my uteresis (endometris? ) . Such fun, not! But I am glad I had it so I can be sure this weird bleeding is just perimenipause and not a new cancer to deal with. But stage one of this cancer is an over 90% survival rate in 5 yrs and later stage is under 25%, so I will deal with the uncomfortable test to catch anything sooner rather than later.
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Ouch Renrel. Sorry to hear that. Please keep us posted
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Jess, every pound is so hard. Good for you!
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Thanks, Kmmd- I need all the encouragement I can get. The docs keep mentioning that taking femara may also cause weight gain. grrrr....Really?
Happy Holidays everyone; I hope you are all great! Hugs and kiss January Jewels! I still think we should plan a get together, difficult-near impossible I know, but something I day dream about now and then.
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Hope everyone is having a good season for watever your beliefs you celebrate. 3 years ago today I joined and found this group. I agree it would be nice to get together sometime
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Happy New Years Eve!
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Hi Ladies! Happy New Year! Haven't been on here in months. Its going to take me awhile to catch up with everyone. Hope everyone is doing well. As for me. Found out 3 wks ago I have a recurrance of my breast cancer. Had a biopsy on my neck. They found some cancer cells in my lymph nodes and on the lining on my left lung. My dr. switched tamoxifen to Armidex and I go Tues for a chest xray and see if this drug is working. So far, no chemo planned. I feel like crap. I've had this terrible cough for 2 months, had many tests done. I'm tired and my body aches. Kinda reminds me of chemo a week later. But I am praying for healing and I will get through this again. Take care and I will check in.
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That royally sucks Plutz. What a crappy way to end the year. Keep us posted. We will help you through this. What was the reason for having the biopsy and how did they locate the sites that cancer cells were present?
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Oh Phyllis. I'm so sorry to hear that. Please know we'll all be thinking of you and will be hoping that the switch to arimidex works well.
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Phyllis-- I am so sorry. We are definitely thinking of you. My throughts are with you.
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JHappy New Years everyone. May it be a good and healthy one.
On New years found out another aquaintance was diagnosised in September with BC and had a bilat. She apparently had some complications but as she did not come to the open house I attended I don't know anymore. The host gave her my number in case she wanted to talk. Sigh. It seems suddenly that cancer is all around me while growing up I only remember one person I knew having it, but I was probably just shielded as a child.
Got a clean bill of health on Thursday from my Onc, but still don't have the biopsy results from my uterine biaopsy. Onc does not seem too concerned though (my gyn did the test not him) . He said 1 out of 200 women have unusally bleeding with tamoxafin (I think those were the number he said) and that cancer is very unlikely. He explained that since the tomoxafin is blocking estrogin from where it trys to go my body may think it nees more and thus I have a estogen overload causing weird cycles. That may also explain the return of my libido a few months ago. He said I may want to concider an injectable drug to shut down my ovaries if the systems become problematic for me. I am not sure how annoyed I am over the symtoms since the overriding "symtom" was fear everytime I was aware of the bleeding because it might be cancer and maybe it will be too advanced to catch, ect. I am feeling a bit more calm about all that now that I have other reasonable explainations for the bleeding. Also I am apparently not approaching menopause based on my blood tests in September. Still plenty of hormones buzzing around in my body.
I was supposed to have my annual physical last week but it was canceled and I thought it was yesterday but it is next week and now I amy have to cancel that becuase I don't want to take another half day off. I am already taking another day off next week for my annual checkin with my PS.
Gabe is at a rehearsal for a conmmunity production of Joseph and the Technicolor Dream Coat today. He did an abbrievated version with his Hebrew school last year. This is his first non-kids production. Should be a great experience for him. Then his best friend is coming over for a playdate, possible sleep over.
Have a great day and year everyone.
P.S. How are you doing Phylis? I have been thinking about you.
S
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Hi ladies. I'm doing ok. Still have my coughing episodes. Had a checkup last week. Too soon to tell if the Armidex is working. Have an appt. next week. Had a bone scan last Fri. I was on a clinical trial and was taken off of it when the cancer came back. From my last MRI, is when some nodules were found on my lung. I can't recall why I had the biopsy on my neck. I think it was from this bump that they thought was scar tissue from the radiation and it seemed to have shifted. All in all I feel ok. I got a different prescription for my sleeping pills. They seem to be helping. I sleep more but still don't have much energy. I hope your all doing well.
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Thank you for posting. I am glad you are doing ok, and I hope they have a strong plan to help you. Hugs and kisses.
Jess
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Phyllis - glad to hear you are doing OK. Is there anything they are or can do to help with the cough? medicine, teas, yoga ? I hope the sleeping pills help. Wish you were near by so I could come over and give you some Reiki in person.
I finally got the uterine biopsy results back. All clear. I do wonder though how the know where to take the sample since it is not like a lump in your breast. But I feel pretty confident that my bleeding his hormonal.
My sister's sister in law is currently in treatment for triple negative but they plan are putting her on hercipin (sp) anyway. Anyone know why they would do that?
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I agree Renrel, Reiki is very cool. I wish we could somehow connect with Phyllis.
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Phyllis--Sending hugs and hope your way. Stupid bc. Hope Arimidex knocks it out with not much side effects, and that you can find something that will give you some relief from the cough. Hope the bone scan is clean. I'm sorry you are going through this, but perhaps you can find hope and comfort in the story of my sister-in-law's sister. She had a recurrence to the lungs around 7 years ago and is doing fine with treatments. They thought she had bronchitis her coughing was so bad and kept giving her antibiotics. Took her a long time to get a correct diagnosis. I'm also thinking of your daughters and hope they are able to give some support.
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Saw my PS yesterday. Everything looks fine but she suggested she could improve the already good results with some fat implants if I want. Take some from my upper abdomen and lay it down in some places where i am slightly uneven and which wrinkle when I slouch. Have to think about it.
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I hear you on that Renrel. I keep getting the "you still haven't gotten nipples", and suggestions of how to nip tuck and improve things. In my clothes I can't tell and I just can't stand the thought of anymore surgery
Phyllis, hope the cough is starting to get better
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