Motivation
Comments
-
I was just watching the LE self-massage video, and thought it was worth giving you all the link:
http://www.youtube.com/watch?v=Q9FP6AHj9Eo&feature=related
-
Deanna, will check that out. I am always trying to do self massage from what I can remember the LE therapists doing and teaching me, but it was years ago.
Today was 70 degrees here! Loving this warm winter! (Can you call it winter when it's 70??) Anyway, took a 12 mile bike ride (about an hour). FELT AWESOME!! Hopeing to do the same tomorrow.
Spring.
-
Deanna, that MLD video was very good, and I didn't realize until now that I was not "dragging the skin", I was not applying enough pressuer! I've bookmarked it! I am going to try and do that 2x a day and see if it helps. I bet it will! I remember my LE therapists always starting at the neck as they said it was the most important area.
Thanks again!
-
Thanks for the link, I investigated last Friday and found that one. However, I saw my PT for my first session showing me how clear - Massage To Stimulate Lymph Flow for Upper Extemity Lymphedema, and its NOTHING like in this video, completely different. I have 2 weeks to practice this and then she will show me the MLD on the arm/hand. So nothing yet to help. I get measured tomorrow for a sleeve/gauntlet. I've been sorta bummed lately, trying to come out of the fog so to speak. We are hosting our GDD's 1st birthday party in a couple of weeks, and a lot of people are coming, so I'm really looking forward to that, but need to buy some new flowers, as we haven't had any rain in a LONG time and everything died out back. Been walking and will go to yoga tonight.
-
Hi, everyone! This is the first day in almost a month that I'm not coughing! YaY! Even though it started out as some sort of cold/flu thing, it was hard not to let my mind go "there" when that nasty cough just lingered on for sooo long.
Spring, that video technique is entirely different from the LE self massage I was taught by a massage therapist. I need to watch the video again because I did it as I was watching it, and just realized my side hasn't bothered me for 3 days!
Ah, Kari... so sorry you're still dealing with that. Hopefully, you'll start to get some noticeable improvement this week. And I cannot believe your GDD is going to be a year old! Where does the time go?!?!?!
I walked for about 50 mins. today and will go to the gym when DH gets home to practice what I learned on Friday. I have another appt with the trainer tomorrow morning, and I need to work on what he taught me! I'd hate to not be able to show him at least a little improvement. Deanna
-
Today was a day of rest. Yay for rest.
Kari, I completely know how you feel. It has taken me a long time to accept and learn how to manage my LE. I remember when it finally dawned on me that it was LE making me miserable, and I cried. It is another reminder of all we've been through. Other days, I say "oh so what" I don my sleeve and my under armour compression top and get active. I will say that over time, it gets more like "I'll just deal with it" and less of the "sad", but I still feel sad sometimes in Yoga when I have to modify everything inversion to avoid a flair. Also, I have learned better what to do when I get a flair, so I can nip in bud and also resolve it more quickly.
alas, it is a sad thing and if you feel sad I think completely normal. My LE therapist told me that LE is the thing that continues to bother women the most after being diagnosed with BC. On the other hand, we're alive and here, and I hang on to that. And let's keep moving! LE or no! It's the best prevention!
LOVE TO YOU KARI!!
Go Deanna!!! I also think this new LE massage thing is working. I'm going to keep doing it for a while.
-
Tears in my eyes, you ladies have no idea how important you are to me. Thanks for the kind words, I needed them!! It also helps to know I am NOT alone. I feel the love. You're spot on Bev. Funny, when I did that video last Friday, I felt GREAT, I could breathe better!! I practiced what I was taught by my LE gal, this morning briefly, I have to nail down the technique.
30 minute good walk at lunch!
-
40 minutes on the elliptical tonight before I had to go out for a meeting. So proud I didn't feel like doing it but managed to fit it in anyway. (Except for the last 5 minutes, not too bad!)
Kari, hang in there, it's a journey but you are not alone! Good going on the walk at lunch!
-
Hi Ladies- i don't even know where to start......I would like to vent a bit....please let me....
I had a great two weeks away from home, was house-sitting for a dear friend during the holidays. I did hatha yoga practically every day and went for great walks. Although, I was only fifteen minutes away from where H and I live, I had a great time NOT being around him, not seeing him, not dealing with his "stupidy" at all during these past two weeks. Yesterday, I came back home. OMG! This morning I opened the bills, etc.... what a disaster....he had not taken care of any of his bills, the apartment is filthy and the fridge is full of crap......I cried for about ten minutes....
Now I have to pull myself together and get going to the hospital to get my treatment. I will tell you more later......
I needed to vent ....thank you for letting me.....I am able to breathe again.
Love you all !
-
(((((Survivor))))). Obviously, you have to find a way out of that situation very soon. It sounds like you'd both be much happier apart. It's hard to offer any suggestions based on the little we know, but if you ever want to talk about it off-line, I'll PM you my phone number.
I had training session #2 yesterday. Worked totally different parts of my body. Just hope I can remember everything he's taught me. He's such a stickler for correct form, but boy, you can sure feel the difference when your toes are pointed correctly, or when you relax muscles you're not supposed to be working.
Kudos, Spring, for working in those 40 mins on the ellliptical!! Good for you! And thanks for just giving me the motivation I needed this a.m. to get out there and walk before my busy day today! Gonna do that right after I finish my coffee, and I may not have if you hadn't reported your experience. By the way, I just bought my 3rd pair of running shoes since we started this "Motivation" journey together. My less than a year old 2nd pair is already trashed. So THANK YOU all for keeping me on track (with a few ups & downs) all these months!
Kari, how're you feeling today? Any relief yet? Did you have some LE earlier, or did this hand swelling just appear out of nowhere?
Where is everybody else???? Deanna
-
Survivor, big hugs to you. As Deanna said, you need to get away from H as soon as possible. I'm always extending an invitation to PM me if you want to talk or email as well. WE ARE HERE FOR YOU!
Deanna, awesome on the training and new shoes, I also got a new pair of shoes last week! I never had LE before, the hand swelling just popped up on 1/1/12. Way to kick off the year, LOL! My hand felt bruised the day before (back of hand where veins are) and then we went for a COLD walk in the vineyard at our hotel, my hands ached from the cold, and then voila, there it was. I practiced my "clearing" techniques last night and this morning and did notice I could get my wedding band on, but have not worn it since 1/1.
I had my fitting appt. for a sleeve/glove yesterday and blood work done for my Onc. appt. next week. I have my 2nd LE appt. next Tuesday for a review of the 'clearing' technique and then she will show me the arm/hand drainage.
I noticed that while in my funk over this LE that I slacked off exercise. I didn't end up going to Yoga Monday night, I was exhausted, so I went and bought 4 pairs of shoes and bought groceries and cooked myself a nice meal and read a book! Sometimes you just gotta give in.
I'm feeling much better about things again and am meeting another BC sistah for lunch, its been long overdue.
Yes, where is everybody??
-
Survivor, it is clear you need OUT of that relationship. It makes you miserable! There you were all alone and happy. That says something. I hope you can find a way in 2012 to be on your own....
Deanna, Great on so many new sneakers! That is you walking them to pieces!
Kari, it's okay. Yes, sometimes you have to give in. Sometimes I have to go to bed! I think we need to listen and do the right things for our body, minds, and spirits, as long as it isn't night after night of chips and stuff!!
Today was my 90 minute Yoga class. Haven't been since before Christmas. Didn't agravate the LE this time, I did some down dogs that I hold for just a second or two and then I go into plank, back and forth like that, instead of just staying in down dog. Seemed to work tonight. It's never the same! But I am glad I went!
I am having some challenges at work that are starting to consume my psyche. I need to find a way to compartmentalize these things or it is going to make me batz. Any suggestions appreciated! I remember when I was just dx'd I used to imagine a STOP sign and slowly trace all the letters in my mind. Maybe I need to do the STOP exercise again!!!
-
Wow, that work situation is a tough one, Spring. The STOP exercise sounds good. A similar one is to imagine putting your problem in a box, closing the lid, and turning it over to God to watch over for you. I've always found that changing the scene is about the only thing that can short circuit my thinking when it gets in a rut. I'm very visual, and I need new sights and distractions -- like a weekend away -- to get my mind out of its rut. But that's not going to help you during the week! How about a guided imagery CD? I know they have them for stress.
Kari, that's just so odd that your hand felt bruised before the swelling came on. I wonder what actually happened to it? You know, a few months ago I had a very painful truncal LE flare, and DH urged me to put cold on it by standing in the cold pool, which I did. It actually helped, but Binney or someone equally as knowledgable later told me that cold is bad for LE. She compared it to making snowballs with bare hands. At first, they just feel cold. But as they warm up, they swell up and hurt. So maybe the extreme cold had a lot to do with what's happened. I sure hope it calms down soon for you and goes back to normal!
DH and I went to the gym tonight. Trainer session #3 in the a.m. Deanna
PS ~ I meant to share this article I saw today: http://www.jonbarron.org/natural-health/bl100706/alternative-depression-drugs-exercise
-
Here's another interesting article I just saw posted on another BCO thread:
http://www.hopkinsmedicine.org/news/media/releases/cancer_cells_feed_on_sugar_free_diet
I don't totally understand the glutamine thing. I actually thought i glutamine was something some bc survivors supplement with, so that's confusing to me. But, what I thought is very interesting is that low oxygen is not a good thing (sounds like it makes for a more hospitable environment for at least one type of cancer cell), so I'm thinking this might be one reason exercise is so good for us -- all that deep breathing! Anyway, if anyone understands the glutamine part better than I do, please explain it to me! It sounds like an important discovery.
-
Hi Everyone,
Survivor, so unfair for you to be going through relationship problems now. Sounds cliche, but I would think it is time to focus on yourself. Be good to yourself.
Deanna, thanks for the links. Springtime. I've never heard of the STOP thing. I like it. Think I'll try it.
No Exercise class for me today. Everything is covered in a thick blanket of ice. Roads are closed and I'm starting to worry about getting to rads. This is the only thing I really hate about winter. I'm in bed with tea reading. Feels decadent. -
Cath ~ Your day sounds wonderfully decadant! We should all treat ourselves to days like that, whether we have icey roads or not!
Kari, I just wanted to share an LE thread with you that I just came across. It sounds a lot like your problem. http://community.breastcancer.org/forum/64/topic/780898 Hopefully, that link will work, but if it doesn't, the thread's entitled Swollen Hand. Deanna
-
Thanks Deanna! My LE therapist did say that you have to wear the glove with the sleeve or else the fluid will pool to the hand with only a sleeve. My hand is still very sore in one spot when I press on it. I agree on the cold thing too. The LE therapist said differences in temps, hot or cold, can cause a flareup. She also said No hot yoga. Remember I told you a few months ago I went to a hot yoga class, because I didn't know it was hot yoga. I should have left, but didn't...and felt sick for 2 days. She also told me don't think of what I did wrong to cause LE, think of all the things I've done RIGHT! That's a good reminder for all of us.
Did any of you girls have that feeling of a bruise when pressing while having a LE flareup?
Spring, no worries, I'm not one for succumbing to the chips and dip over and over, LOL!! I will feel sad for a bit, then move on. That's how I roll generally! LOL! Sorry to hear about your work dilemma. Is it work related or work-people related? Maybe just a new deadline? Well, try the STOP technique, sounds pretty cool to me. I am surrounded by pictures in my cubicle here at work. I will just stop and stare at my DD/DH/GDD's smiling faces or stare at a pic of us on vacation and time goes right back to that place. I catch myself smiling a lot during the day!! It can work for you too!
Cath, scary about the icy roads and possibly not making it to rads, as if rads isn't fun enough on an ice-free day!! LOVE the image of you in your decadant-ness, LOVE IT!!
Had lunch yesterday with a BC sista, was way overdue. Only managed 20 minutes on the treadmill last night and 20 minutes of some yoga stretches and today had lunch with a coworker (her birthday today), she's very depressed right now, so no walk today and DH is home and has exercised already, so I will most likely take today off.
-
Survivorwoman, thinking of you and hoping today is a better day.
Kari, all my sympathy with the LE. Mine has caused me to do some major changes in my career lately and a job change. Bit of a financial hit for DH and I, but, I'm hoping I'll have more time for myself and feel better so am thinking about it as a step towards better health. Hoping the LE will respond better now, it has not been behaving at all for me.
Worked out too hard Tues and have been paying for it all week. Maybe some gentle stretching today and start in tomorrow with the aerobics.
-
kmmd, All my best to you as you move toward better health! Where does your LE strike? Gentle stretching sounds lovely by the way! hugs
Ended up doing a quick program on the treadmill when I got home last night with some incline work (felt guilty having a brownie at work celebrating a coworker's birthday)
-
Deanna, you are a treasure trove of information! I just sent an email to my Osteopath asking about Glutamin given that study. I take it 3x a day!
I was out last night and didn't exercise. Not only that we ate Mexican food and I over indulged! Plan for the elliptical tonight.
Kari, When I flew back from Oregon to Tx to NC recently, I forgot to wear my sleeve and my compression top (aka Under Armours). I was so freaked out I slept that night in both. I woke in AM and my hand and fingers were like sausages! I removed the sleeve and my hand returned to normal in a couple of hours. SO I believe what your LE therapist says, though I never had trouble with this before while exercising and moving around. Maybe it is exasserbated (spelling?) when you don't move?? Like all swelling, Sit on plane or in care and feet can swell, etc.
-
Made it to rads, both yesterday and today. The technicians were just hanging around with nothing to do, because I was one of the few to brave the roads. Kind of worked out good. I was rushed in right away and got lots of attention and someone went and got me a coffee just for something to do!
Went to my first Yoga class ever last Wednesday. It went okay. Ran on my treadmill for 7k. Starting to feel like my ol' self, although hamstrings are barking today.
I feel bad for all you ladies dealing with LE. Not fair, not fair. Bugs me. -
Hi everyone,
My computer got a virus so I could read but not reply. Everything is fine now and I can jump back on here. Had a great trip to Albuquerque and a great visit. But the 9 hour layover in El Paso really sucked. Wasn't even suppose to go there!! Ended up getting another airline out to my destination. Played in the snow but was glad to get back to the warmer weather in NC. It turned cold today and will stay this way for a few days.
I was suppose to fo to court with the ex on the 3rd but now it is on the docket for the 30th. The longer I wait the madder I get and my list of wants gets longer. I haven't figured the delay. survivorwoman you need to get away from your H. The stress is not good for you and you know you will feel so much better away from him. My way of living has changed but I am so much better off.
Had yoga on Wednesday. I also have been walking my friends' two dogs for her. So My dd got two walks and then hers got a walk. I was walked out by the time I got to work.
Cath be careful on those slick roads. Everyone have a great weekend. I'm working days and need to catch up on a lot on the computer. (((HUGS)))
-
45 on the elliptical, too cold to bike! Freezing here tonight!
CD, good for you!
HI JOY!!!
-
Kari, I have trouble with my arm and truncal LE. I'll need to get back on the treadmill too. We ordered Chinese take out last night. Yummy but I'll need to work it off today
-
It is 31 degress right now and going up to 42. DH says he may try biking, but I am going to pass and face the elliptical beast. At least, that is the plan!
Have a great wkend everyone!
-
Good to see some missing faces back here! Kate, I was so surprised to hear about your job change. I hope it's proving to be a good move and much less stressful for you!
Sorry about the court delay, Joy, but hopefully it will all work out for the best. And if it gives you time to rethink what you want, maybe that's a good thing.
I had my 3rd training session on Thursday, and although it just seemed a little tough when I was there (lots more reps & sets), I ended up spending Thursday afternoon and evening curled up with heating pads, and I'm still hurting some today. But it's even all-over aching (no injuries) ... which I guess means we're working lots of muscles that need to be worked! This coming week, I really need to try harder to walk every day, whether I go to the gym or not.
Hope everyone has a lovely Sunday! Deanna
-
45 on the elliptical last night and boy I did not want to do it, but I did it anyway! it was so cold, stripping down to put on all the compression stuff and yoga pants, that was the hardest part!! Better once I got warmed up on the machine.
Wow, Deanna, OUCHIE! I would say take it easy, but I guess having a trainer is the antithesis of "take it easy"!! I bet if you keep it up you will get stronger, look buff, and no longer be as sore after work outs. I need to get back on the gym machines. I've noticed my once buff arms are now more loose looking and it's not a look that I like! That's in my future.... I have a weight on my desk too, going to try and remember to do some reps with that throughout the day, maybe on calls I don't need to pay attention to as much! LOL,,,
-
Who left the freezer door open??? I like to froze this morning walking the Dd and it was 45. Guess living down here has made me a wimp. The wind is really blowing and that goes right through me.
I have me Wii back up and running so now I have to get back into working out on it. There is a boxing one and that will work out the arms. I'm getting the "old lady" arms and I need them stronger for kayaking. The season will be upon us soon.
Went out with some friends last night to dinner and then a folklore concert. Some toe tapping music. It was really great and I really enjoyed it. I haven't been out like that in a long time. Stay warm and Deanna don't over do it. You are showing us all up with the walking and now the gym.
Hugs to all.
-
Spring, when I read this article this a.m., I immediately thought about you and a previous post you'd made that made an impression on me about getting more protein:
By the way, I found this on an interesting vegan FB page called The Delgado Protocol For Health.
I spent about an hour at the gym yesterday -- 2 miles (1/2 hr) on a treadmill and then gently through my workout routine. I'm off this a.m. to take my car in for a bit of body work from when a silly woman backed into me while trying to park next to me several weeks ago. Finally getting around to taking care of it, and hope to walk later.
Bundle up and have a great week, everyone! And survivor, I will PM you later. Deanna
-
Nice to have a day off today, we usually don't get this holiday, but I'm glad we do this year!
Spring, I wanted to mention that my LE therapist was adamant about not wearing the sleeve/gauntlet or glove at night! There is a special night garment to wear, the sleeve looks like what a dog trainer wears, very different. She said the day garments are different because we are moving around. Maybe that added to the swelling you experienced? My hand is still swollen, a couple of mornings last week the fingers looked better, I could even get my rings on, but a few hours later that changed. Haven't worn my rings since initial swelling, because I can't get them on anyway. I'm perplexed that the LE therapist hasn't done anything to aid in getting the swelling done. 1st appt.= talking, measuring, 2nd appt.= quick lesson in clearing, and tomorrow I go so she can review my clearing, see if I'm even doing it correctly, then she should show me how to drain the hand/arm. I'm so ready for some relief! Not sure when my sleeve/glove will be ready.
Really no exercise at all this weekend, UGH, but I just did 2 routines on treadmill, so 46 minutes of hills and some work on my exercise ball. Worked muscles that used to be so strong, and now I'm a wimp, so starting over again. I will succeed!!
Hugs to all, keep warm!!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team