For those starting chemo in June
Comments
-
Pain not as bad today. I live in South GA and have been without power most of the day. I came over to my daughter's because I am looking after her animals while she is away at the UT football game with my oldest son. Her power and cable also went off for a while, but the power is back on. The cable is still off. I have a small black and white TV with an antenna going keeping up with the news. It's strange. The wind blew a little hard for a short while and it rained in buckets for a few minutes, but nothing that you would think would knock out the power for miles around. They say it will get worse tonight. I have candles ready. I can't imagine what Florida is going through. We are only experiencing a little bit of Frances here. We have tornado and flood watches mostly.
-
Hi Girls, Janie, Hope you make it through the night O.K. Fla. has sure been beaten up lately.I am really hurting today. We went to look for a new printer and ate out and i just got exausted. I came home and went to sleep so now I am up and awake. Pain is better but still hurts.Don't know if its the "pause" or the steroids lasting a long time from the treatment but I have been so upset with my husband today. I mean I could walk out and not look back. Just his breathing is upsetting me.How could a human be so dense? I know hes a man but gee, can't he act like a human? I hope he straightens up and I hope I figure out what I am upset about.Hes not really done anything but I just can't stand to be around him today.Hugs, Mary
-
Mary,
your post made me smile. It must be something in the air as hubby and I had a huge fight today. Don't think anyone of us was to blame. But I could have walked out today as well, with no regrets.
I too get more and more frustrated and more and more irrate. Guess those steroids really take a toll on us.
At least I blame my temper on them
I feel sorrry for you guys, for gettin all those bone pains, luckily I never had them.
And here I was moving furniture all day.... Now that was dumb as I am sore all over and so tired.
Oh well, will sleep good tonight.
And I forgot. Dawnt, Congratulations on finishing chemo. You must be so happy to have this chapter finished. Well we are right behind you. Good luck with radiation. Hugs to you
Tine -
Everything is back to normal powerwise. A tornado touched down a few miles away. I haven't heard much about Jacksonville on the news. I am scheduled to be there Wednesday. Mayo was going to be closed for the holiday today. It is about 11 miles from the ocean. The power went off last week (before all this) during my treatment, but the generator kicked on and my gizmo was battery operated anyway. My pain is a little less, but still there. It is going to be really hard to work if this keeps up.
-
Ugh! I think a truck hit me! I had my first Taxotere on Thursday and I ache all over. I feel restless, like I can't sit still. Hopefully like the others said it will only last 3-5 days. I can handle that -I think! It is our 24th wedding anniversary too, so much for a romantic night. Going to a picnic today- although I don't know what I'll eat because food tastes awful. I'm dreaming of PIZZA and chocolate chip cookies.
-
Hi ladies, Glad to here everythhings o.k. Janie.That has to be pretty scary.Tine, today seems better as far as my attitude but my husbands hanging on another show down if I feel I am not happy.Maybe i am more verble now or maybe I am just more aggressive.I've always been passive and I ain't no more.Oh well, if I get in a hiss he better pick his words wisely and I am trying to control my anger at what ever I may be angry at.Man it sucks to be him.We went for a harley ride today and stopped to eat. I just had a piece of pinapple cake and I couldn't really taste it. I got so wore out we came home and I slept an hour. I just ache all over.Tomorrow its back for more abuse.I think its getting worse with each treatment.Maybe I won't have to do daily shots this next week and it will be better. I will have to wait and see.Hugs to all and hope you all had a great Labor day today, Mary
-
Happy Anniversary rlswknd!!!Hope you felt like doing something grand.Mary
-
O.K. I have totally and certifiably lost it beyond control. I went to Walmart with my husband to get my juice and a few things and ran into my cousin and we were in conversation when I suddenly relized after entering Wally and I just smile at everyone, I smiled at the greeter and the return lady as I had a return. Ran into an old male friend and chatted.I had for the first time in my life (20 years)forgotten to put in my teeth when I left home. I never have them out in the day but as I was feeling bad I took them out while I slept because of the dry mouth thing.I can not believe I did that and I am truely in full force chemo brain storm.Its worse than chemo brain its a storm in there. I put my hand over my mouth and we paid and left. I will put a post a note on my forehead and in my car so it don't happen again. Of course my husband got the blame because he should of noticed.The lights out and no ones home, Mary
-
Mary, you are so funny. I think I told you how I worked so hard to get my school budget ready for the state by the deadline and then forgot to mail it. I think I am doing a little better in the chemo brain department, or maybe it is so bad I don't even know it. For a while I was having a really hard time thinking of what word I wanted to use, even it was a very common word.
At my age, by the time I get my brain back, senility will have set in.
All schools are closed here today, so I get another day of recovery....actually it will be full...so much to catch up on. I haven't heard from Mayo so I guess all systems are go for tomorrow.
Warm fuzzies,
Janie -
I just received this email and thought Mary and Tine would appreciate it.
Dear Lord,
I pray for
Wisdom to understand a man
Love to forgive him, and
Patience for his moods
Because Lord, If I pray for strength
Ill just beat him to death -
Janie,LOL, Thats sooo funny and true. I have great news. I thought I had to get 12 treatments weekly but my onc. was back today and hes been pushing the envelope and I only have to get 8. Hes given me a little more meds. so I get to go on to rads. after 2 more treatments. Hes going to give me a good rest after. I will start rads in Oct. the second week I think.Usually you start the next week but my counts have been a little low because of the amount of Tax. I have been getting so I get a rest. "the taste of food ahhhhh" no more body pain its all comming back to me now.To live like a human being again. WELL, after my eye brows and funky, mangy lashes grow back. You know what? one eye the lashes are almost gone 3/4 are gone and that looks nappy but the other eye only a few here and there are gone. I look like something from the exercest!!!my head isn't all the way bald but close.well loopy as heck and hungry, I have a few taste buds on Tue. so I better get me some take out. Forgot to plug the CrockPot in today to cook the bbq ribs. Imagine that! my husband should have checked the kitchen before we left just in case I decided to randomly out of the blue cook in the crock pot today and not plug it in. Then when we got home he had the nerve to ask If I wanted to plug it in before we left.Now I had steroids surging through my blood like the colorado river and the benadryl was trying to bring me down. I had one nappy eye open and I proceded to tell him what he could do with the ribs "I" had forgotten to plug in and he should of known about and just did it for me.Now I have to get take out.He is going to ask the onc. nurse how to achieve the same affects of restful sleep with over the counter benadryl for me. Sometimes he needs to know when to shut up. You know.hugs Mary
-
It's off to JAX today. I-10 is closed at two places with detours. I was told to go the back way. I'm not from here so I don't know the back ways. We may end up in LA.
My school system is still closed. At least I don't have to take a sick day today. Have a good one all. -
Janie, Good luck and be careful my husband and I like to get in the car and go for drives and we did this when we moved to Fla. We just drove through the country and wound up at a chicken farm in the Okeefenokee Swamp. We stopped to ask directions as we were lost on a one lane road for 3 hours and there were spots we didn't think we would make it through in a little Pontiac Grand Am. The man we asked said he could not believe we made it through and we were lucky as rain was on the way and we would of never gotten out of there then. We were kinda a legends in his family. A car full of kids in the Okeefenokee. Hugs ,Mary
-
Hi guys, Boy, sounds like you have some serious traveling to do Janie. Hope all goes fine with the drive and the treatment.
Mary, great for you that you only have two more to do! Sounds like we'll start rads about the same time. I start Oct. 4. Not a moment too soon. I'm so ready to finish up all this stuff and get it behind me. I hope your hubby starts learning he needs to read your mind (and check the kitchen). Funny, mine hasn't mastered it yet either. How's your mouth doing? Getting any better?
Going in for 45th shot of Neupogen this morning (I have to go to the clinic for mine each time, insurance thing). And to think how afraid I was of shots before all this.
Hope everyone is doing OK. -
Hi all, Hope Janie gets to and from o.k. Let us know. PJB, my mouth is better I am using the biotene. It normally gets better toward next treatment so we will find out in a few days but I think its helping.I am home from work but have to go back for a while and don't feel like it. The steroids had me up all night and now I am really low and need sleep. We are leaving for Phoenix Az. Nov the 5th to the 8th. for the nascar race and visit my daughter. Hope I have enough energy. I will go and I don't have to do anything but I will want to. I always feel so much better there and no humidity, no cold weather and sun everyday. Its cloudy all winter in Il.So many people are depressed cause the darn sun never shines unless its below zero and a foot of snow and a windchill factor of 20 below.I bet the sun isn't out 20 days tatal in winter and thats nov. to march then we get storms and rain until may.Well back to work girls have a good day. Hugs, Mary
-
Janie,
thanks for the laugh. I wish it would be all his moods but unfortunately, most of the time I am the guilty one. Sigh. Aren't drugs wonderful. Of course I blame all of my mood swings on the drugs.
Feeling wonderful;however.... Now I developped an allergic reaction on my PICC line. I am reacting to most of the the tapes so was very aware that this might happen.
But it could also be the cleaning solution they used. So now the arm is wrapped in gauze (SPL) again, and I am sooooo very itchy. If it is not one thing it is another.
I tell you, I take the chemo any time over all this other crap. Normally I am back to feeling ok after a couple of days. And then they put me on the darn antibiotics and I feel like crap again. At least there are no side effects with the blood thinners (to date) other than that I still bleed with my period. Not much but just enough that you have to wear a panty liner all the time.
Oh only 4 weeks to go till I am done with the chemo. Can't wait
I start radiation in November. So you can give me some hints. Are we gonna start a new thread for radiation or are we gonna continue with this one? Would be nice if we could stick together.
Anyhow, better get going. The weather has been miserable. But I am not complaining, no hurricane here. Just cold and snow is in the forecast for today. And to think it is still only September. still waiting for summer.
Take care ladies
Christine -
PJB, Called my sister today to check on mam. She told me she had it done and saw a cancer Dr. and its nothing. Frankly I don't believe she did. I am going to talk to her husband.Thats hard to do as he works nights at the prison but somehow I am going to get in touch with him. Maybe she did but its awful fast to get results and apt. for specialest in a couple days. She wants me off her back.My other sister is also going to call and try to find out if its true. She said the Dr. said if she had cancer her breast would be swelling. If she saw one hes a quack. Hugs, Mary
-
Hi all,
I'm back safe and sound. Well, safe anyway. Mary lost in a car in the swamp! I went riding through the swamp in a speed boat! Was hoping to see the gators, but it was January and they wouldn't surface. All these floods are probably going to have them running all over the place. This is the beginning of my 4th year here and I have yet to see one, although they are supposed to be plentiful. One tried to come into an outside door of a classroom one day when it was so dry. Probably in search of water.
I had a long detour on I-10 but left early enough to be on time. The chemo was not bad. Reminded her to take the Decadron slowly so I wouldn't get the side effects. It is strange. The last two times (Taxol), my right leg becomes very restless. I cannot keep from shaking it or whatever to try the make feeling go away. It is very annoying. I have a major meeting sheduled tomorrow. If on the same target of last week, I will turn beet red just about that time. Maybe they will think I am about to blow and agree with me.
I have ten more weeklys left and then start rads around Nov 24 or so.
Breast swells with cancer? Mine looked the same and tumor was 3cm.
Hugs all around,
Janie -
Janie, Glad you had a safe trip. And good thought trying to use the red face to your advantage. Perhaps you can also make smoke come out of your ears? That Taxol leg-shaking thing is a new one on me. I've had pretty much everything else. What does your onc say? Hope the next few days treat you well...
Mary, I hope your sister really did get it and it really was OK. I don't know how someone whose sister has BC could NOT want to get a mammo. All mine have had them since I was diagnosed. All OK, thank God. -
Oh, I also wanted to check on rlswkndr and nancee. How are you guys all doing post-treatment? Tine, sorry to hear about the continued problems with that picc line and all.
And here's some amazing stuff. My boss has arranged for a bunch of friends and coworkers to take me to almost every day of my radiation, which is at a hospital around 45 minutes from here. I was going to have it here in town mainly for work convenience reasons.But my onc persuaded me the doc at the hospital was about the best there is. Anyway, so now I'll have company every day for 33 days. (Plus, my boss says this way she has a good excuse for getting out of meetings!) -
Good Morning Girls,Gotta go to work. I don't know why my sister is like she is but she just don't want to deal with anything bad.She thinks everything will go away. My other sister went right in and got checked.She may have to deal with death and thats no fun.Shes a very nervous person.I bet her nerves will react if she hears the word cancer and aggressive in the same sentence.I will try to talk to her husband and thats all I can do. Can't help but worry.I slept all evening and night. I was exausted but I didn't sleep all night Tue. night from the steroids so I caught up. I never feel as If I sleep good and rested though.I only woke up about 4 times which is good. I am usually up every hour.I get jerking in my legs at night on treatment night and sometimes the next night. My muscles jerk and it kinda hurts but goes away. I seem to get knee and calf pain off and on a lot. Then I get random pains in my muscles here and there in my shoulder, back, kidneys etc. Well better get ready for work. I have to go to Grandparents day tomorrow with my grandson.Fri. afternoon I usually feel kinda bad but I should be home by noon.Can't miss this.He once told his preschool teacher his grandpa let him run with sharp objects and His grandpa wrestled an alligator and tore the head off a snake with his hands.Hes in 2nd grade now.Hes the one that stays with me a lot and cleans my house and takes care of me.He says I have too much clutter in my house.From the mouths of babes.Hugs and have a good day girls, Mary
-
Mary, your house sounds like a hoot! Your grandson sounds great, too. I hope you are able to enjoy grandparent's day.
Hey, a guy at work gave me about 8 of the Lance Armstrong bracelets. If any of you wants one, PM me your address and I'll send one along. -
Thanks for asking PBJ. I have been reading the posts, just not enough energy to do much else. I do not like Taxotere! I ached from teeth to toes for about 5 days. Now I have a rash on my chest that itches like crazy. I took some Benadryl to sleep, woke up 6 hours later and took some more. I have to drive to the lab this morning, so I can't take more until I get home. Still no taste - plus I think I'd rather be constipated! UGH. Today is 1 week out, so hopefully things will improve from now on. I don't sleep as well, feel like I've had to much caffeine. I had steroids 1 day before, 2 days after, so I though they'd be out of my system soon. Had to whine a bit... I never felt this bad on A/C so I guess it's my turn to be miserable. The good news- only 3 to go!
Renee -
Sorry PJB, Typing fingers and brain don't always connect. Renee
-
Renee, sure hope you get to feeling better or at least having some good days. I had it bad with the A/C so the Taxol is so much better. PJB, I would love to have a Lance Bracelet.I know theres a charge that goes to cancer and just let me know how much. Gosh, your boss sounds great and its such a caring thing to do for you. You must be a pretty special person to have such great friends and co-workers. I have to try to put on eyeliner tomorrow cause my lashes aren't all the way gone and they look sooo funky. I am not even going down the eyebrow road. I will wear my do-rag and ball cap.I pull my cap down and you can't see my eyes very well. Can I get by with that in school? I will get sent to the principal right off the bat.You know Lee hasn't checked in for some time and I hope shes doing o.k.Home for a while and back to work.Later girls, Mary
-
well PJB it sounds like your boss is a blast. I bet you girls have fun.Hope things are better for Tine, and Renee, and glad Janie made it through the storms. If you can't post we are thinking of you and just keep watching until you feel better and we will be here waiting.Gotta get some sleep hugs, Mary
-
Mary, My friend up here at work already paid for the bracelets, so there's no charge. I think he thought we could pass them out up here as a show of solidarity, but that was a little too public for me. I'll put one in the mail to you.
I hope you don't have to write on the board 100 times, I won't wear a hat in school, I won't wear a hat in school.
And you're right about my friends/coworkers. They are fantastic. In fact, my boss has come up with a name: Paula's Rollin' Radiators. How funny is she? (I'm making her some calorically catastrophic treat tonight to say thanks)
Hang in there you guys. This part will soon be over and we'll ALL feel better. -
The numbness has set into my fingers. Weird feeling trying to type. I discovered if I put on 100% aloe vera gel the next morning after treatment, it lessens the redness in the face.
Looks like Ivan the Terrible is heading this way. I feel ok painwise. Tomorrow is the dreaded day number 3.
Hang in everyone. Have a good one. It's Friday! Yeah! -
Good Morning, I hear ya Janie on day 3. Today is day 3 for me and I didn't work because I am tired and hurting. I haven't had any numbness. I get stiff fingers and they hurt.My leg muscles hurt bad lately. They hurt like I am sooo out of shape and have been exercising. By the time I get up my stairs my muscles ache and feel weak.My ribs even hurt today.I hate feeling so exausted so much.I never realized how good I use to feel.2 more left.I was getting the A/c on Tue. so I would feel good by the wk. end now I need to get treatment on Fri. so I feel good on the wk. end. Oh well. 2 more wk. ends left.Later, Mary
-
Hope you guys get to feeling better. Boy, took me forever to figure out how to quickly get to this end of this thread. It's fancy looking, maybe too fancy for me to handle!
So I'm thinking of trying acupuncture to try to get rid of the numb fingers and the foot pain. My insurance won't cover it, but I wonder if it'd help. What's few more needles?
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team