Calling all ladies in their 20's

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Hey Amanda,

    Welcome to the club that nobody wants to be in. These boards are full of advice, but more importantly laughs. Know that you are not alone! We are all here. If you don't get responses to a question you can try and post it somewhere else. How old are your kids?

  • amandabiv
    amandabiv Member Posts: 67
    edited December 2011

    Hey Jendon,

    My kids are 9,7,and 6 there are 2 girls and 1 boy right in the middle. Im glad that I found this, and with people my age, not that Im glad any of you have to be here. For me it would just be odd trying to talk to most of the ladies in my town about any of this and the 1 person I would feel comfortable passed 6 years ago. I have a ton of questions but at this time none that any of you can answer because they are questions that bring me out of the dark. Being recently diagnosed  I guess its normal to feel like you are in the dark and pushing for answers! Thanks for the welcome Jen!

  • kisxxoo
    kisxxoo Member Posts: 21
    edited December 2011

    Hey Amanda! Once you meet with your surgeon they will fill you in on everything. Unfortunetly a lot of information will be thrown at you and you will be forced to make major decisions very quickly. Unfortunately that's part of the territory with cancer. Your surgeon and oncologist should help you with making those desicions. At our age chemo is usually recommended, my bc didn't spread but I am still undergoing chemo to ensure any rogue cancer cells are killed so that I can live a full life. I wasn't happy with my first oncologist and went for a second opinion and am soooo happy with my new doc! Don't be afraid to go fir second opinions if u don't feel comfortable with any of your docs. And you are not alone this whole forum is proof, if u contact the American cancer society they can give info on local groups to meet with as well. Stay strong and have faith! This will hopefully just be a bump in the road ;)

  • amandabiv
    amandabiv Member Posts: 67
    edited December 2011

    Thanks Kiss! Its helping out alot finding this website and this discussion board. I knew i wasnt alone and the only 28 yr old to deal with this, and to have all of you giving me a heads up helps me to feel more in control of whats going on. In the begining my head was spinning and I was angry because I felt like I was getting answers fast enough, now I know these things take time and there is a process I have to go through. I hope all of you are doing well today and yall are in my thoughts and prayers.

  • kisxxoo
    kisxxoo Member Posts: 21
    edited December 2011

    Im glad we can be here to help!! You just gotta take one thing at a time, which is easier said than done but it really does help with stress. Wink

    I have completed my second round of chemo and i definetly have the days where i think there is no way i can do this two more times, but each day i feel a little bit better and before i know it i feel "normal" again.  It a terrible road that none of us signed up to travel down but with faith, hope, and support we will get passed this, like the kitty on the poster says just hang in there!!  cause there is light at the end of the tunnel and life after cancer Innocent

  • amandabiv
    amandabiv Member Posts: 67
    edited December 2011
    Thanks Kiss Smile Going to meet my surgeon for the first time tomorrow, a little nervous about that but Im ready to do this and get things started! Hope all is doing well, my prayers are with you!!
  • NannaBaby
    NannaBaby Member Posts: 510
    edited December 2011

    its my one year anniversary ofmy mastectomy! i consider my surgery date the day ibecame cancer free! :)

     stay strong ladies and stay in touch 

  • Moonflower83
    Moonflower83 Member Posts: 92
    edited December 2011

    NannaBaby,

    that´s great! Congratulations!

    I was diagnosed one week after my 28th birthday and doing chemo now ( 6 rounds TEC), still 2 to go. My next session will be on Dec 27th and I don´t want to think about it, because I don´t wanna go there any more. Of course I know that I have to... but it´s hard.

    Sometimes I still feel like this whole cancer thing is not really happening to ME.

  • ntvet
    ntvet Member Posts: 5
    edited December 2011

    Hi folks!  Had my appointment, and the Doc actually felt another lump in addition to the one I felt.  She sent me for an ultrasound, and I had that done the same day.  The tech said she didn't see any masses, and went to talk to the radiologist, but he didn't come talk to me.  Hoping that is a good thing!  The tech came back in and said that I will follow up with my Doc and 'decide what we would like to do clinically'.  I'm trying not to read too much into that, thinking maybe its just the standard line :)

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited December 2011

    I hope that thats a good sign.  I went in for an US and ended up having an US, mammogram and biopsy on the same day, followed by an appt with the surgeon 4 days later.  The radiologist came into the room, literally within minutes of the US tech starting her scan... I really hope the lack of urgency is a good sign and maybe its just something benign.  Sending you happy thoughts!! Have a great Holiday :)

  • amandabiv
    amandabiv Member Posts: 67
    edited December 2011

    Praying for you both ntvet and MiniMacs, I just met my surgeon for the 1st time Thursday now just waiting on a date to do the surgery and then start chemo...not ready for all this but I guess I dont have much of a choice, now its just think about getting better no matter what it takes!! Hope everyone has a Merry Christmas!!

  • kk11
    kk11 Member Posts: 210
    edited December 2011

    I've been MIA again....we went for a mini vacation to Seattle and Whistler around the middle of the month (tried skiing but my energy and strength wasn't quite up to par - still had a good time though!) and I've been busy at work the other days. Even though I'm only part time right now, I still feel like I'm full time! My free days are spent going to appointments or taking care of things that have been missed during treatments.

     MissRC - Did you get word on whether you will be taking Tamoxifen?

    Kissxxoo - Welcome to the group. I'm also 29 years old. My oncologist wants me on Tamoxifen for 5 years (no negotiations), but I am planning on taking a break at 2 years (another oncologist told me that would be okay). We were already trying to have a baby since the start of 2010 with a complicated miscarriage along the way, so waiting another 5 years is far too long. When do you think you'd be wanting to try? I'm glad you caught it at stage 1, but sorry about the BRCA result. Are you planning on removing your ovaries after you're done having children? Some people who are BRCA positive or even highly hormone positive do.

    Amanda - Welcome and sorry you have to be join this club that no-one ever wants to join. I was also 28 diagnosed, but no kids yet. Have you decided on your treatment/surgical plan?

     Nanna - Congrats on being 1 year cancer free! I agree, I'm going to use my surgery date as the day I became cancer free too based on what my oncologist told me. So mine will be coming up in May :)

    Moonflower - You're almost there! And I have my moments too where I feel like I never really had cancer. 

    Ntvet - Like Minimacsmom, I went in and had my ultrasound, mammo, and biopsy all on the same day. I was diagnosed the next day and saw the surgeon the day after that.  Hoping everything is okay for you.

     AFM - I'm getting my new nipple on Dec 30th! After that, I'll just have the tattooing to do and then continue on Tamoxifen for the next 22 or so months before taking a break to have a baby.

    To everyone, I hope you have a wonderful holiday. I know that when you're in the thick of treatments, that isn't necessarily easy (I was going through chemo for my molar pregnancy last December-Feb), but I think the only thing we can do is try to enjoy the company of family and friends and be thankful for how far we've come considering the year we've all had. Also saying a prayer for the ones we've lost along the way (including LibraryJenn). 

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited December 2011

    KK  Its good to know you are having a good holiday season so far!  I am still fairly new to this board, but I had gotten used to seeing you here :)  We are having a fun holiday season so far, missing my brother who is in Kuwait, but otherwise I can't complain.  I still even have enough hair that most people who don't know me don't look at me funny!    Yay for your nipple, its soo weird to feel excited about that, but excited for you non the less.  

     Amanda, it does get better!  My best advice going forward is to have confidence in your care team.  If you are confident that they have your cancer under control its much easier day to day.  I hope you have a great holiday whatever you surgery date ended up being. 

  • kisxxoo
    kisxxoo Member Posts: 21
    edited December 2011

    KK, i will be on tamoxifen as well once chemo is completed in January.  My Onc said stopping is not ideal, but being so young it is a different circumstance.  it will be in about a year and a half two years that we try for children.  We have to plan a wedding first and i will have to wait at least one year from Chemo.  I will have my ovaries removed when i am done having children, i had alwayed prepared myself from that since my grandmother dies of ovarian cancer, no one in my family has ever had breast cancer, just ovarian.  I guess at this point i am glad it was breast instead of ovarian because i may still be able to have children at this point and was able to detect my cancer at an early stage...

    Going for my third treatment this week and then i have just one left!!! Thank goodness cause the side effects are getting worse with each treatment...my muscles feel like i have been to P90X or something lol

  • kk11
    kk11 Member Posts: 210
    edited December 2011

    MMM - Glad you're enjoying the holiday season as well. I hope your brother can come home from Kuwait soon.

    Kisxxoo - It's good when you have an onc who is understanding of how it's not entirely reasonable to wait 5 years to have kids (for people in our shoes). Mine does not agree at all with taking a break, but I have met with others who are more okay with it, so we are also shooting for 1 1/2 to 2 years. So you have a waiting buddy. I hope with planning your wedding that it offers some distraction from the kids thing.

  • HPP
    HPP Member Posts: 1
    edited December 2011

    Hello everyone,

    I am new to this message board thing but thought I would give it a shot to come on and say hi. I was 29 when I got diagnosed this year. I had a mascetomy in June, 4 months of chemo done and tomorrow I finish my last session of radiotherapy (my god I never thought I would say that when they gave me the timetable!!). I am still on Herceptin and just started Tamoxifen so am on that path already. Reconstruction will be in 12 months time. Initially I was a bit bummed about having to wait for so long but now I couldnt think of anything worse than spending anymore time in hospital I need a break away from it.  At the moment I am really stressing about my hair not growing back. I have felt so terrible about the way I look and it was the only thing that was getting me through chemo was that when it was over it would mean my hair would be coming back. I finished chemo 2 months ago. Tiny, fair, blondey, fuzz bits are starting to come through but I just thought I would have more by now. Does anyone have a timescale as to when they first went scarfless? I am happy with the military look so any sort of covering will do. Would be nice to return to work not looking like I am still on chemo by wearing a scarf. I am finding being patient waiting for it to grow is impossible. I have been so good the last 8 months being patient that being patient just a "little bit longer" is driving me crazy. Hope to hear from someone soon who has been in the same "cant wait any longer for my hair to grow back" boat xxxx

  • shensley
    shensley Member Posts: 1
    edited December 2011

    Hello ladies.  I'm new to this board and definitely new to all of this business.  I am 27 and was diagnosed on December 5 after an excisional biopsy.  On December 23 I had a double mastectomy and had tissue expanders put in.  I am anxiously awaiting the results of my lymph node biopsy that they did at the same time as surgery.  I have a 15-month-old daughter named Grace who I love more than anything in the world.  I am terrifed of what all this will mean for her.  I look forward to getting to you girls.  I've had a hard time finding anyone I can relate to because of my age. 

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited December 2011

    HPP: Congrats on being through Chem and Rads!  What a milestone!  I can't wait to join you :)

     Shensley:  Sorry you had to join us too but there are lots of young mommies on the forums with lots of great advice.  My son was 15 mo old when I was DX and he is 17 mo old now.  Let me tell you he has his fair share of tantrums now, more so than before BUT he is doing fine in general.  He mostly hates the fact that mommy has to be gone so much and then I couldn't interact as much with him post surgery.  A family friend and child psych told me that there will be behavioral differences due to all the fast changes, but this process won't "damage him".  As long as he is loved and cared for by people who love him he will be fine.  Change is very different from the neglect that causes most problems with children.  I hope this helps, its comforted me.  I just make a concerted effort to spend really good time with him when I feel really good.  And we don't give into his tantrums, we don't just let him have whatever because the process sucks for him to ;)  He can talk some so we make him use his words and say please instead of the easy point and scream.  I hope that your stage comes out really low and you don't have to go through all the chemo/rads crazy, but feel free to pm me anytime!

  • kk11
    kk11 Member Posts: 210
    edited December 2011

    Hi everyone! I hope you're all doing as well as can be given the year we've all had. I am ringing in the new year with a new nipple! I just got it done today, so another step further. I'll be wearing a nipple shield for a month and then in 2-3 months, I will have the tattooing done to complete the reconstruction.

    Welcome to the new ladies on this board. I am sure it isn't easy to be going through everything with a young child at home, but I met someone who was diagnosed while pregnant and she says that her baby is making everything easier for her because she makes her smile. I hope that could be the case for you as well.

    As for the hair, I finished chemo in the beginning of October and it was about 2 months before it really filled out on my head, so I think it's normal for it to come in slowly at first. I read that it grows about 1/2 inch per month and that the first half inch is actually below the surface, so you could be growing hair and it just hasn't broken the surface yet. My hair is still very short, just about 1/2 inch at the longest parts and shorter in other parts, but so far it looks pretty good if you ignore the gray hairs! I'm still wearing my hats because it's too cold otherwise!

    Well, I hope everyone has a nice New Years. I'll be happy to say good bye to 2011 and am hoping 2012 is a better year for all of us!

  • MissRC
    MissRC Member Posts: 14
    edited January 2012

    I hope that everyone had a great Christmas and Happy New Year! Let's hope that 2012 is a better year for all of us! Wink

    kk11: I am still waiting to hear if I have to take Tamoxifin. I should know in Jan.

  • amandabiv
    amandabiv Member Posts: 67
    edited January 2012

    kk11 glad you had a great New Year, I just found out that my surgery date is Jan11th. though Im not excited about how my New Year will begin I am ready to be able to say it is all over and I am Happy and Healthy again...I hope everyone has a happy new year with good health!! My God bless all of you!

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Amanda - Good luck on the 11th. What surgery are you having again? My personal experience is that time really flew by this year during treatment. There were of course days that felt really long, especially when you're not feeling good or are in pain, but overall it went quickly. It's also a bit more peaceful once you've made all the decisions and are able to get the ball rolling!

     MissRC - Will be looking forward to an update from you this month regarding the Tamoxifen. If they say you should, do you know if you will take it the recommended 5 years or take a break?

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    M new here I have BC started Chemo FEC i hav an 8cm lump on my left breast and i dnt have tumors in any other part of my body i started chemo last week am 24 , cabin crew nver gt  married no kids I need ur support

  • amandabiv
    amandabiv Member Posts: 67
    edited January 2012

    Rosaa my prayers are with you!! I havent started chemo yet got to have surgery first then will start chemo Im fairly new here myself so I know how u feel!!

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Rosaa - Welcome to the group. In my own experience, the worst part is right after diagnosis, when you're trying to absorb the news while figuring out what to do. Once you decide your treatment plan, the time really starts to fly, though it doesn't seem like it at the time. The chemo will be over before you know it. Another difficult time is when you are done with treatments and you start going to the oncologist less often and people in your life think you are 100% done. It can be a difficult time emotionally and this experience is definitely an emotional rollercoaster (some days you feel "okay" with things and other days you're completely distraught), which is totally normal.

    I know you said you're not married, but do you have other family or close friends around that can help? This is the time to accept it if they're offering because trying to do everything yourself will only wear you out quickly. And don't be afraid to tell them specifically what it is that you need and also what you don't want or need. Please keep us posted on your journey.

  • kisxxoo
    kisxxoo Member Posts: 21
    edited January 2012

    kk11 - i am so happy i went for a second opinion and found this doctor! He is amazing and really cares about me as a person not just a tumor.  He talked about my relationship and depression and so many other aspects of this disease that my first onc didnt even bring up.  I drive an hour for treatment just cause i am so happy with my medical team :)

  • SKD
    SKD Member Posts: 140
    edited January 2012

    Hi everyone!



    I just finished reconstruction 2 months ago ( diagnosed in March 2010, surgery April 2010,second lymph node surgery 2 weeks after, 6 rounds of chemo FEC-T, removal of second breast in Feb 2011 as a precaution, tissue expanders in place May 2011, and exhange surgery with gummies October 2011) and I can honestly say the past 22 months have BLOWN by! There were times that were hard but I found that finding out about the initial diagnosis of breast cancer was the hardest as well as finding out I was having chemo and I would lose my hair. I am a pretty positive person though, so saying that, I didn't mind chemo in the end because it was zapping all my bad cancer cells. And the hair falling out part was sad but it does grow back and it is down to my shoulders now (I am 16 months post-chemo) I wore a wig for 8 months and scarves but I felt like it was mostly for other people so they didn't look at me and feel sorry for me. At home, I would go wigless and it was during the summer so it wasnt too bad because it cooled me down. Also, I didn't have to shave any part of my body all summer long!!



    I was on tamoxifen for 10 months and now I am off it (my oncogist gave me the OK) so we are Now trying to conceive. I did get my periods back 5 months after chemo but we also did embryo freezing in case my ovaries are damaged.



    Anyways I just wanted to give some hope to those recently diagnosed that it is do-able (even though at times it doesnt feel like it) and we are all here for eachother so don't ever feel alone. :-)

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2012

    Hello again My bioposy showed infiltrating ductal carcinoma on stage two with no metastate or evolution all my body is ok the doctor told me it will be manageable and that this type of cancer is frequent my plan is FEC and Taxol or taximifére then surgery thenn radiotherapy wish me the best of luck n keep me posted with ur sucees stories it makes me feel releived and gives me courage and faith :)

  • MissRC
    MissRC Member Posts: 14
    edited January 2012

    Hello ladies,

    I just wanted to tell the ladies that have been recently dianosed that time really does seem to fly by. I have to agree with kk11 & SKD. I was diagnosed on April 27, 2011, surgeries May 16th & May 24th, chemo every 3 weeks from June 20th - October 3rd, radiation every day (Mon - Fri) from Nov 1st- Dec 21st. My hair is growing back, and I am hoping to be wigless within the next 2 months. I started working part time on Nov 2nd, and I love being at work, because I don't think about my cancer at all. It's great to get my mind off of everything. This discussion board has also helped me. 

    Question about Hetceptin: Does the Herceptin give you muscle/bone pain?

    I have had muscle pain that has to be treated with pain killers, and heat. However I do not take these pain killers at or before work. The pain has been anoying.  Any sugestions? 

    Thanks ladies! I look forward to our continuing correspondence. Have a great weekend!  Laughing ~MissRC~

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Rosaa - So sorry to hear about the diagnosis. I also had stage 2. It's hard to wrap your head around all of this, but you will get through it. We are here for you!

     SKD - Awesome that your oncologist gave you the OK to take a break from Tamoxifen to have a baby!  My oncologist is totally against it, but I have met with others that aren't opposed, so we are planning on taking a break closer to the 2 year mark (been on it for nearly 3 months now). I wish my oncologist was more okay with it, because it sucks going against doctors advice, but then in the end it's our body and our life that's impacted.

     MissRC - You and I are on a similar path it seems, except I'm not getting radiation (good margins and no positive lymph nodes - would have had this if I had a lumpectomy). I was diagnosed April 19th, mastectomy on May 25th, port surgery on June 28th, chemo from June 28th-October 4th, implant swapout on November 4th, and nipple reconstruction December 30th. How long is your hair now? I am amazed at how mine is coming in. I barely had anything for 2 months following chemo but in the last month, I've had some amazing growth! How is the part time work going? I also went back part time (actually in August while I was still going through chemo because I didn't want to have to pay COBRA) and am working my way up to full time. I'm up to 3 days a week now and will probably try to move to 4 days a week by the end of the month. 

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