Concerning Posture and Sleeping

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Hi Ladies, I have had a double mastectomy and am a side sleeper. What seems to be happening is when I fall into a very deep sleep, my two shoulders draw towards each other across my missing breasts...and it is *very* painful to unfold myself in the mornings. Hands./arms are folded across my chest too.

I try to fall to sleep hugging a pillow, but at some point, I lose it. This is all becoming a painful issue, today my shoulder never stopped hurting from my sleep position. And even my muscles along my spine feel too stretched.

 I do not wear a prosthesis...no reconstruction.

I have no idea who to even ask for help with this, so I thank you for reading....

Comments

  • christina1961
    christina1961 Member Posts: 736
    edited January 2012

    I have a uniMX with no reconstruction for now and I also have upper back kyphosis. I got a hard foam roll on amazon.com - it is 3 feet long and about 6-8 inches wide. It is flat on one side. I put it on the floor, put a pillow under my head and lay with the curved part of the roll parallel with my spine every night for about 15 minutes. It helps "undo" some of the shoulders curving in that I get working on a keyboard for hours and hours a day. It also helps stretch my scar (my MX was in July.)

  • J-Bug
    J-Bug Member Posts: 626
    edited January 2012

    crystalphm: Could it also be a PT issue? I was even walking like that after bmx with my hand across my breast bone. Aren't you in my October surgery group? I would think that the work that the PT does to strengthen the chest muscles again would start to get you straightened back out again. I still have a very hard time getting out of bed each morning and waddle to the alarm clock with all the hip pain as well, but the stretching and strengthening exercises that my PT gives me are really helping.

    christina1961: I love to lay flat on the floor with my arms out to stretch. Sometimes I add a pillow under my shoulders running the height of my body so that it will pull my shoulders back further into the stretch like you are doing with the foam roll. It feels so awesome with all the computer work that I do. 

  • nagem
    nagem Member Posts: 353
    edited January 2012

    It may be that your top leg is pulling you over into a crumpled position. Here's a suggestion for sleeping: Lie on your preferred side with your bottom leg straight and in line with your straight spine and your pillowed head. Bend your top leg 90 degrees or less, and prop your shin on a pillow or bolster. This will prevent it from falling forward and taking you with it. It's really good for your spine to sleep in an aligned position. If you wake up and find that your position has disintegrated, rearrange yourself. Also, when you're ready to get up in the morning, take a moment or two to lie flat on your back, so that everything can realign symmetrically. Then when you get up, swing your legs over the side of the bed and allow that motion to pull your upper body upright. When your feet are on the ground and you're in an upright seated position, THEN stand up.

    Another suggestion: In addition to lying parallel on the foam roller, you can lie across it so that the roller is under your upper back. With your knees bent, your hands supporting your head and your butt dropped, push into your feet to roll your spine up and down over the roller. Keep your butt hanging low. It feels really great, like a very gentle chiropractic manipulation.

    Hope these help!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited January 2012

    Wow - even pre-BMX my shoulders did that - on a very large chest, I might add!

    Years ago, I had a shoulder reconstruction, and from then on, I always slept on my side using a long body pillow alongside me,  to prop up the arm on top, and to have a place for my bended knee to rest. It really helped align my spine.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited January 2012

    I am a year out from my bmx, and I still have problems with that! I,too, have tried sleeping with a pillowl.Because of severe chronic vertigo, I can only sleep on my left side and that shoulder is getting sore. I had 6 months of occupational therapy for scar tissue adhesions and pmps, and at some points, they would ultrasound my shoulder and that seemed to help.

    Nagem, I have tried your suggestions and found they don't work. If I don't wake up at night, I can't realign, so who knows what the heck I am doing. I naturally have a slow time waking up in the morning, so I lay there for quite awhile, relaxing and waking up. I can't lie flat on my back because my  head will spin from the vertigo..what a mess.... 

    I should have asked my occupational therapists about it before I was discharged. Those ladies had a solution for everything.

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    What kind of exercises are you doing? It would seem to me that strengthening and stretching your upper back and shoulders ought to help some. Because I have lymphedema on both sides, I am forced to sleep on my back for now (which causes other problems and is damned uncomfortable, but anyway ...) so I haven't run into the problem you describe.

    Sticking your arms straight out to the sides and moving them in small circles is a good way to strengthen and move the shoulder. 

  • crystalphm
    crystalphm Member Posts: 1,138
    edited January 2012

    You cannot imagine how thankful I am for all these ideas! I tried them last night and definately slept better...and I will keep working on everything!!! Thank you all so much!!! I will let you know more of how I am doing.

    Nagem, the laying on the pillow is *awesome*...my back felt good for the first time in 20 months...I am still working on the other technique.

  • nagem
    nagem Member Posts: 353
    edited January 2012

    Crystalphm, I am so pleased! 

  • J-Bug
    J-Bug Member Posts: 626
    edited January 2012

    So glad to hear that you are starting to feel better!

    I have found that even working with a PT, I feel like I am on my way to fighting those curled in chest muscle issues and then some days it seems to all go back to where I started. So my PT told me to just keep working through it gently to win that battle.

  • topless
    topless Member Posts: 74
    edited January 2012

    Even before my BMX I was hooked on a double body pillow.  It's shaped like a huge horse shoe so which ever side I sleep on I am automatically on a body pillow.  I have multiple sclerosis and was advised to try this type of body support to help ease spacisity at night.  I love, love, love my pillow!  I haven't had the problem you mentioned but you might find that this type of body pillow might work better.

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